This post was contributed by a community member. The views expressed here are the author's own.

Kids & Family

Specialty Camp Weekend for Turner Syndrome Women & Girls

Turner Syndrome Foundation hosts a retreat for women, girls, and family members affected by Turner Syndrome.

Turner Syndrome Foundation, a local nonprofit organization, is proud to announce it is hosting the first Turner Syndrome Autumn Retreat this September at YMCA Camp Ockanickon in Medford, New Jersey. This event is exclusive to women, girls, and families affected by Turner Syndrome. The Autumn Retreat is poised to foster an environment in which new relationships can develop and thrive while providing educational opportunities to promote a broader and deeper understanding of Turner Syndrome. The agenda includes group activities, professional presentations, and a team 5K Lake Walk.

Girls with Turner Syndrome face unique social challenges and can benefit from developing quality relationships that will contribute to their self-esteem and confidence. In addition, women with Turner Syndrome need an established support system once they transition out of pediatric care. The Autumn Retreat weekend will help to accomplish both of these. With breakout sessions for women, caregivers, and girls, there is an opportunity for all to voice concerns, ask questions, and make friends to turn to into the future.

Turner Syndrome women, girls, and family members are invited to attend. The minimum age to attend is 5 years-old, but parents of young children are welcome to join us and can benefit from learning strategies and tips for their child! Campers under the age of 16 must be accompanied by a parent or guardian. Siblings are welcome to attend!

Find out what's happening in Holmdel-Hazletwith free, real-time updates from Patch.

Sample Schedule of Activities

Day One: Arrive at camp and get settled in. Enjoy meet and greet activities to get to know each other. End the night around the campfire!
Day Two: Spend the day learning and having fun! Activities include presentations by Turner Syndrome specialists, wellness activities, outdoor adventures, and arts & crafts. We’ll end the day with a dance party!
Day Three: Together we’ll complete a 5K around the camp’s wilderness trail as Team TSF, followed by a reception at the finish line to have some final fun and farewell with friends!

Find out what's happening in Holmdel-Hazletwith free, real-time updates from Patch.

Past camp attendee: “Bonding with that group felt seamless. The commonality of our medical condition played a part, but I believe something deeper was at work. A combination of shared struggles and a desire for support united us. The resulting relationships have helped me to embrace my condition.”

Limited space is available! To learn more or register today, visit https://turnersyndromefoundati...

Sponsorship and volunteer opportunities available! Contact Alexis Gratton at [email protected] today!


About Turner Syndrome Foundation

The goal of the Turner Syndrome Foundation is to support research initiatives and facilitate education programs that increase awareness and enhance medical care of those affected by Turner syndrome. Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome. Turner Syndrome Foundation collaborates with patients, physicians, educators, legislators, and researchers to fulfill our mission through our four program areas of awareness, advocacy, education, and research. TSF serves more than 20,000 individuals through our patient and professional education workshops, national awareness athletic events, research registry, and open-access education resources.

The views expressed in this post are the author's own. Want to post on Patch?