HIV infection rates are declining globally but for Pacific women and girls, it's a different story

Women sit along a fence at a fruit and vegetable market on an overcast day with the ocean in the background

The UN is calling for more funding to tackle the HIV/AIDS pandemic in the Pacific. (Supplied: Cathy Ross )

For millions of people around the world, isolation has become synonymous with COVID-19.

But in the early 1990s, Fijian woman Jokapeci Cati spent six months at home, unable to face the world, amid a global pandemic of a different kind – HIV/AIDS.

Just 22 years old, Ms Cati had tested positive to the virus.

"I wasn't ready to tell anybody," she said.

"It was really a tragic moment because there was no support group, there was no awareness and the community was not sensitised."

'It was like a death sentence'

Despite having the support of her family, Ms Cati said the early days of knowing her positive status were defined by a sense of loneliness.

"There were tears and emotions involved because there wasn't any information celebrating that you can live a normal life even though you're HIV-positive," she said.

A woman with dark hair tied-back smiling from a table in a food court

Ms Cati has lived with HIV for more than two decades.  (Supplied: Jokapeci Cati)

"Back then, no-one had come out public in Fiji to say, 'Hey I'm Fijian, I'm HIV-positive and it's OK because you can live a normal life.'

"It was like a death sentence; knowing that you were HIV-positive had a connotation of death, no future and you cannot live a normal life."

Much has changed since then.

HIV can be managed through antiretroviral medication that suppresses the amount of HIV in the body and allows people to live long and healthy lives without passing the virus on.

Since her diagnosis, Ms Cati has worked tirelessly to improve outcomes for HIV-positive Pacific Islanders, and in 2007 she remarried and went on to have three children.

"I've been living with HIV for more than 20 years and I know without treatment I wouldn't have survived this long," she said.

"It's really important [for HIV-positive people] to hear testimonies of those who have lived with HIV and are celebrating life, treatment and having relationships."

Half of new HIV infections women, girls

While rates of new infections and AID-related deaths have more than halved because of treatment options, some disturbing trends have emerged.

Of the estimated 37.7 million people living with HIV in 2020, 53 per cent were women and girls, according to UNAIDS. 

Just four years earlier, figures from UN Women showed young women aged between 15 and 24 made up almost 60 per cent of all new infections globally. 

A woman with long brown and blonde highlights hair smiling

Ms Ram says women have less negotiating power than men when it comes to condom use.  (Supplied: Renata Ram)

UNAIDS country director Renata Ram said this was especially concerning for Fijians.

"Fiji in particular has seen a 116 per cent increase in new HIV infections since 2010 and almost doubled [the number of infections] in the 15- to 24-year-old age group," she said.

"Last year during the lockdown period, six babies were born with HIV. This is worrying when other countries with high HIV prevalence have zero mother-to-child transmission."

So if antiretroviral treatment is free and available and infection rates are declining globally, what is driving new infections among women and girls?

According to Ms Ram, an uncontrolled sexually transmitted infection (STI) epidemic, unsafe sex and under-resourced HIV testing programs are to blame.

"In Pacific Island countries we suffer from a high burden of sexually transmitted infections but the prevalence over time is not well known," Ms Ram said.

"With HIV, you may only detect it when a person becomes very sick or if they get routine testing, which is not really happening now," she said.

HIV and STI programs underfunded 

Under previous donor funding arrangements, Ms Ram said a comprehensive HIV and STI control program was implemented regionally but was not continued beyond 2014.

As a result, fewer women and girls have been screened for sexually transmitted diseases in recent years, and if they do not get tested, they cannot get treatment.

"Donor priorities have shifted to other emerging issues without fully addressing the HIV and AIDS situation in the Pacific," she said.

"Ten years ago, we had a robust HIV and STI program but now it's unheard of and people think HIV has left this region, but it's not the case."

According to the UN, teenage girls and young women are vulnerable to contracting HIV due to intimate partner violence and a lack of sexual and reproductive health information.

Ms Ram said married women were also vulnerable to HIV because of the unequal power dynamic between men and women when it came to negotiating condom use.

"Some men do not prefer to wear a condom and women do not have the negotiating power in terms of wearing condoms and protecting themselves from HIV," she said.

Speaking out about sexual health

For women and girls to get help, they must be able to talk about what is happening to them.

Ms Ram said ending the silence around sexual and reproductive health in the Pacific was key.

"Talking about sex is also a very taboo subject in the Pacific due to this conservatism, so our awareness campaigns can be very challenging," she said.

"We have antiretroviral treatment … and for anyone in the Pacific, this is free of charge once a person enrols into the treatment program.

As for Pacific leaders, Ms Ram said the region desperately needed greater and sustained funding from donors to tackle the HIV/AIDS pandemic through education and testing.

"One of the key things [to implement] is the comprehensive sexuality education package in school curriculums," she said.

"It is about empowering young people to know about themselves, their sexuality, how to treat people and about diseases."

"There is this perception that HIV is a death sentence, but it is not. It should be viewed as a chronic disease like high blood pressure diabetes, where you take medication daily."