This Saturday, buy a snag at Bunnings Edwardstown and support South Aussies affected by MND! 🌭 We are holding a sausage sizzle with two of our Trek Champions: A/Prof David Schultz, and MNDSA Support Coordinator Jane Barnett! Join Jane, David, and the MNDSA team at Bunnings this Saturday, and buy a sausage to raise funds ahead of this year's Bay of Fires Trek! #MNDSA #MNDSATrek2024 #UntilTheresACure
Motor Neurone Disease Association of South Australia (MNDSA)
Hospitals and Health Care
MILE END, SA 973 followers
Supporting lives affected by MND in SA and their families through planning, education, counselling & equipment supply
About us
MND SA’s mission is to provide the best possible care for people living with MND. We are the go to organisation in SA for those affected by MND. We are focused on expanding information, support and advocacy services for the South Australian MND community. The Organisation's profile is rising within South Australia because of growing public awareness and our commitment to helping people live better for longer in the setting of their choice. Currently, Motor Neurone Disease (MND) has no effective treatment and no cure. Explaining to a person that they have MND has been described as the worst diagnosis a doctor has to give. With no nerves to activate them, the muscles of movement, speech, swallowing and breathing weaken and waste, and paralysis ensues. MND affects each person differently with respect to initial symptoms, rate and pattern of progression, and survival time. We staff MND Support Coordinators who are qualified health and community professionals with specific knowledge and experience related to MND. We provide information and support for people with MND, their families and carers as well as educating health professionals. Support Staff maintain contact with home visits, telephone and email. MND SA also staffs an Occupational Therapist for clients and a wide range of loan equipment including, but not limited to, wheelchairs and Communication devices. MND SA provides opportunities for the community to come together at information sessions and events so that people know they are not alone. At any given time, we support over 150 clients because although sadly 4 – 6 people each month lose their battle with this awful disease, we are also contacted by 4 – 6 people recently diagnosed. Life expectancy varies from diagnosis however the average is twenty-seven months so time is of the essence for the people we serve. MND SA relies on fundraising, donations and bequests as our main way of maintaining services for the majority of our community.
- Website
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https://www.mndsa.org.au/
External link for Motor Neurone Disease Association of South Australia (MNDSA)
- Industry
- Hospitals and Health Care
- Company size
- 11-50 employees
- Headquarters
- MILE END, SA
- Type
- Nonprofit
- Founded
- 1985
- Specialties
- MND, Occupational Therapy, NDIS, Disability Services, Equipment, Education, Support Services
Locations
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Primary
66 Hughes Street
MILE END, SA 5031, AU
Employees at Motor Neurone Disease Association of South Australia (MNDSA)
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Karen Percival
CEO Motor Neurone Disease Assoc of SA, Management Consultant, FCA GAICD
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Mary-Louise Rogers
Lab Head / Associate Professor and Principal Research Fellow at Flinders University
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Iryna Buynevych
Experienced Humanitarian Professional | Grant Management | Certificate IV in Mental Health & Psychiatry Qualification
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Bea Logothetis
Volunteer coordinator MNDSA
Updates
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Loneliness Awareness Week was observed earlier this month, to shine a spotlight on the shared experience of loneliness. While the focus is often on the loneliness experienced by people living with MND, carers can also face significant isolation and emotional challenges. The Australian Carers Guide have published an article outlining strategies carers can use to help combat feelings of loneliness, while caring for someone living with MND. Learn more about these strategies here: https://lnkd.in/g95xrpAQ At MNDSA, we provide help and support for people in caring roles for people living with MND. Until there's a cure, there's care—for our clients, families and carers. #MNDSA #MNDAwareness #Carers #UntilTheresACure
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Athelstone Football Club chose to support MNDSA at their MND & Past Players round on Saturday 13 July. The club ran a meat raffle and sausage sizzle, and sold MNDSA merchandise, raising funds and awareness in honour of one of the greatest Raggies and MNDSA client, Chris Grigg, who passed away from MND in 2022. Over the past 12 months, the Raggies have raised nearly $20,000 from events supporting MNDSA! Thank you to Athelstone Football Club and to everyone that has attended and supported us at these events, for helping MNDSA support South Aussies affected by MND! #MNDSA #MNDAwareness #UntilTheresACure
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Due to last-minute cancellations, we have ONE quiz table of 10 available for the MNDSA Trekkers Trivia Night next Friday, 23 August 2024! Book Table 6 now via this link: www.trybooking.com/CNUFP This SOLD-OUT event, hosted by Quiz Master Andy Mewett, will challenge your teammates and bring out their hidden talents. We'll also have auctions, raffles, prizes, and much more! By taking part, you help our MNDSA Trekkers raise funds ahead of the 2024 Bay of Fires Trek, and support South Aussies affected by Motor Neurone Disease. Get in quick and don't miss out! Book Table 6 now via this link: www.trybooking.com/CNUFP #MNDSA #MNDAwareness #Trivia #UntilTheresACure
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Did you know bees communicate through dancing? 🐝They perform a "waggle dance" to tell other bees where to find the best flowers. 🌻 All carers in our MNDSA community are invited to 'Come Join our Hive' at our Carers Pamper Day on Wednesday 16 October 2024. Join us for a day of pampering just for you, at Novita Tech (31 Manton Street, Hindmarsh) . Numbers are limited, so get in early to secure your place! RSVP by Wednesday 2nd October. (Please let us know if you have any food allergies) For more details and to register your interest, visit our event page: https://lnkd.in/gg3yN6ff 'Bee' happy! #MNDSA #MNDAwareness #Carers #UntilTheresACure
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Hear our Occupational Therapist, Jess talk about helping clients access powered wheelchairs! "Powered wheelchairs are invaluable for individuals with MND as it can enhance independence, mobility and access to the home and the community." If you would benefit from a powered wheelchair, an occupational therapist will spend time gathering information to ensure that the wheelchair chosen for you will provide the best postural support, comfort and outcomes for you. This process is called scripting." "If the wheelchair is being custom made for you, this will include discussion about the most appropriate joystick controls, specialised seating and electronic features that will be needed." "If you are hiring a wheelchair, your needs will be matched to existing stock to find the best fit. The wheelchair will then be adjusted as needed so it fits you well. This may include swapping the controller from the right to the left hand side, or changing the height of the backrest so it provides good support." "Training is provided to you and your supports on how to use and drive the wheelchair safely. Your confidence and competence may be fine after a few sessions, but if more support is needed, or if things start getting challenging, we are always here to help!" Our MNDEquip warehouse is full of life-changing equipment, which our MNDSA clients are able to hire for minimal to no cost to the client. If you or someone you know living with MND could benefit from our services, get in touch with our friendly Client Services team on 08 8234 8448, or email us at [email protected] #MNDSA #UntilTheresACure #MNDAwareness
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MND Connect provides resources, information and service linkage for people living with MND, their carers and family, as well as the health professionals and services providers who support them to live well. Watch the video here: https://lnkd.in/gqW4g-Ei Watch this short overview of the MND Connect website, including the types of content and resources available to people with motor neurone disease. It also includes content for family and carers as well as for healthcare professionals and service providers. You can visit the MND Connect website at https://mndconnect.org.au #MNDSA #MNDAwareness #UntilTheresACure
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MNDSA proudly celebrates the successful outcome of our quality audit through the Australian Government Aged Care Quality and Safety Commission (ACQSC). We recently underwent an audit for quality service provision in Commonwealth Home Support Program (CHSP) services at MNDSA. We are pleased to announce we have received successful achievement results of all audit criteria, across all 8 Aged Care Quality Standards. A robust audit process was undertaken by two ACQSC auditors, which included two full days of: - client, staff, executive and Board interviews; - an analysis and review of our work and service provision environment; - an analysis of the policies, processes, and procedures MNDSA has in place to care for our over 65-year-old CHSP clients; and - a full review of service delivery actions and outcomes. These results reflect MNDSA's dedication to providing quality services and care for all people affected by MND in South Australia. Until there’s a cure, there’s care #MNDSA #QualityService #AgedCare #UntilTheresACure
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Introducing our Gala Dinner band – The Incredibles! We are delighted to welcome back The Incredibles as our band for the MNDSA 'Starry Night' Gala Dinner, at the Wolf Blass ‘The Man’ Event Centre on Friday 1 November. Book your table today: https://lnkd.in/gRavvFnG Adelaide's premier band brought the house down at last year's Gala Dinner, with music that had everyone out on the dancefloor. From the latest tunes to the classics, to songs long forgotten but hit you between the eyes when you hear them, The Incredibles play them all! Be part of an Incredible experience! Book your table today: https://lnkd.in/gRavvFnG #MNDSA #MNDSAGala #GalaDinner #UntilTheresACure
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MNDSA invites our community in the Limestone Coast to our Mt Gambier Rural Roadshow! Friday 13 September 2024 | Ary Sports Bar & Bistro | 16 Sturt St, Mt Gambier For more info and to register, visit https://lnkd.in/gE9ny6ec Morning Session - 10:30am - 12:30pm Special Clients & Carers Session - 2:00pm - 4:00pm Evening Session - 6:30pm - 8:30pm Come and learn about MNDSA, what we do, and how we are the only specialist provider caring for South Aussies affected by Motor Neurone Disease (MND). Light refreshments provided at each session For more info and to register, visit https://lnkd.in/gE9ny6ec We hope to see you there! Don't forget to check out our new Limestone Coast MNDSA Supporters Group Facebook page, to stay updated with everything happening in the region! https://lnkd.in/g_8sXT27 Until there’s a cure, there’s care. #MNDSA #MNDAwareness #LimestoneCoast #MountGambier #UntilTheresACure
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