SE Research Centre

SE Research Centre

Markham, Ontario, Canada
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About

The SE Research Centre is embedded in a learning health system as SE Health's centre of research excellence. We are committed to participatory, community-driven and action-oriented research to facilitate positive health system change.

Purpose: To respond to the needs of people, their caregivers, and health and social care providers with evidence-based solutions to tough health and social care problems in partnership with experts-by-experience.

Goal: To synthesize, generate, translate, adapt and mobilize scientific evidence in the co-design, implementation, and evaluation of person- and family-centred health and social care services.

Activity

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Experience

Publications

  • Profiling the medical, functional, cognitive, and psychosocial care needs of adults assessed for home care in Ontario, Canada: The case for long-term ‘life care’ at home

    PLOS One

    How can we use routinely collected assessment data to health system reform? Using the 2017-2018 interRAI Home Care (HC) assessment data (n=162,523), this study groups home care clients by service needs to generate six unique groups - each with a comprehensive profile that represents the dominant medical, functional, cognitive, and psychosocial care needs. These comprehensive clinical profiles support a future-focused, evidence-informed, and community-engaged approach to research and practice in…

    How can we use routinely collected assessment data to health system reform? Using the 2017-2018 interRAI Home Care (HC) assessment data (n=162,523), this study groups home care clients by service needs to generate six unique groups - each with a comprehensive profile that represents the dominant medical, functional, cognitive, and psychosocial care needs. These comprehensive clinical profiles support a future-focused, evidence-informed, and community-engaged approach to research and practice in integrated home-based health and social care - aka. 'life care'.

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  • Co-designing action-oriented mental health conversations between care providers and ageing Canadians in the community: a participatory mixed-methods study protocol

    BMJ Open

    How are we working to expand health system capacity for mental health support, care and treatment in home and community settings across Canada? This CIHR-funded research takes evidence-based approaches to mental health conversations in home and community care, which is critical to counteracting the dual stigmas of ageism and negative attitudes towards mental health that often impede help-seeking behaviours and system integration. With involvement from 1,200+ aging Canadians from every province…

    How are we working to expand health system capacity for mental health support, care and treatment in home and community settings across Canada? This CIHR-funded research takes evidence-based approaches to mental health conversations in home and community care, which is critical to counteracting the dual stigmas of ageism and negative attitudes towards mental health that often impede help-seeking behaviours and system integration. With involvement from 1,200+ aging Canadians from every province and territory who have participated in this work to date, 15 collaborating home and community care organizations across Ontario, British Columbia and Nova Scotia, 25 expert-by-experience members of our project Working Group for their time and valuable guidance, and our team of investigators and researchers for their skill in facilitating this work.

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  • Resource Utilization Groups in transitional home care: validating the RUG-III/HC case-mix system in hospital-to-home care programs

    BMC Health Services Research

    How can we use clinical assessment data and administrative billing records to support person-centred care? Using the Resource Utilization Groups III/Home Care (RUG III/HC) case-mix system, this study groups clients in hospital-to-home transitional care according to characteristics that may inform future care planning, costs, and resource allocation in transitional care programs.

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  • Mapping a comprehensive assessment tool to a holistic definition of health for person-centred care planning in home care: a modified eDelphi study

    BMC Health Services Research

    What are some opportunities for more person-centred care planning at the point-of-care in home care? Using the 'My Positive Health' tool developed in the Netherlands as a framework, this study asked an expert panel (n=25) of researchers, health care providers, older adults and caregivers to map out elements of the interRAI home care assessment via a modified eDelphi method. Findings support the integration of comprehensive assessment and dialogue-based care planning tools.

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  • The Reflection Room®: Moving from Death-Avoiding to Death-Discussing

    OMEGA - Journal of Death and Dying

    The Reflection Room® is a participatory arts-based storytelling initiative to support moving away from death-avoiding and towards death-discussing. We developed, implemented, and evaluated The Reflection Room® by installing a Reflection Room in 25 sites across Canada. We found that The Reflection Room® increased comfort in thinking and talking about dying and death, as well as the likelihood of engaging in advance care planning (ACP).

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  • Developing an evidence-informed model of long-term life care at home for older adults with medical, functional and/or social care needs in Ontario, Canada: a mixed methods study protocol

    BMJ Open

    What is 'life care'? The 'long-term life care at home' model was developed with aims to sustainably meet the needs of community-dwelling older adults to live, age and receive care at home. This protocol for the 'long-term life care at home' model shows a 2-year project that will carry out across 3 phases using a mixed methods study design to determine the model feasibility for future application in Canada.

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  • Person‐ and family‐centred goal‐setting for older adults in Canadian home care: A solution‐focused approach

    Health and Social Care in the Community

    What does person- and family-centred goal-setting look like for older adults in home care? Through solution-focused semi-structured key informant interviews with older adult home care clients and their family/ friend caregivers, this study found 4 themes to practicing person- and family-centred goal setting.

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  • Development and testing of the Geriatric Care Assessment Practices (G-CAP) survey

    BMC Geriatrics

    The Geriatric Care Assessment Practices (G-CAP) survey is a 33-question, online, self-report tool developed to support geriatric care assessment practices of interdisciplinary home care providers. This study pilot tested the use of the G-CAP survey at a single home care agency in Ontario, Canada, and shows potential for the survey to inform improvements to integrated care planning.

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Honors & Awards

  • Patient and Caregiver Engagement Award

    The International Foundation for Integrated Care (IFIC)

    The 'Our Dementia Journey Journal' project led by Dr. Paul Holyoke (VP, Research & Innovation) of the SE Research Centre received a Patient and Caregiver Engagement Award Runner Up Prize at the 1st North American Conference on Integrated Care (NACIC) in October 2021.

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