EFCNI - European Foundation for the Care of Newborn Infants

🎉 #ResQFamily project report and corresponding research article now available Did you know that 47% of the parents who participated in the #ResQFamily study reported that their child, who was hospitalised for #RSV, was affected by breathing pauses (apnoea) for at least one or more days? …and did you know that more than 44% of all parents felt often or always guilty for not having prevented the #RSV infection of their child?  🔍 Following the launch of the #ResQFamily Study in 2022/23, we are very delighted to present our #projectreport, which summarises the key study results at a glance. This report provides an overview of the most important cross-national key findings and outlines not only RSV-related symptoms but also parenteral health-related quality of life dimensions. Besides, country-specific results focusing on parental feelings in relation to the child’s health status, health literacy and disease awareness, and the quality of communication and support structures from healthcare providers are also addressed. 🚀#Download your copy here, share our research with your community and help us raise awareness of the extensive impact of infant hospitalisation due to RSV on the quality of life of the whole family! Project Report: https://lnkd.in/dzbHi6pw For detailed information about the overall and country-specific descriptive findings have a look at our freshly published research article: https://lnkd.in/dHNQmUpd 🤝Let’s work together for increased #RSVAwareness and perception of the challenges faced by affected families! #RespiratorySyncytialVirus #QoL #QualityOfLife #RSVPrevention #EveryBreathCounts #Research #ResearchProject

🎉🛠️ Our latest #ResearchNews feature a newly developed self-management self-efficacy (SMSE) tool. It has the potential to assess a woman’s behaviour, risks, and needs to subsequently tailor early health interventions individually to reduce the risk of preterm birth! 📋 🍊 🚴♀️ 😣 Preterm birth is associated with long-term adversities such as increased morbidity and mortality. Therefore, the SMSE tool can help prevent such consequences of adverse pregnancy outcomes and strengthen the mother’s agency to adopt healthy behaviours, supporting her own health and the health of the unborn child. 👩👦 💪 The SMSE scale was developed by South Korean scientists and included feedback and information from almost 700 women to ensure the comprehensiveness and validity of the tool and to effectively support women of childbearing age before and during pregnancy through to a healthy birth! 👶✨ Find out more at: https://lnkd.in/d6arXFur #HealthyPregnancy #SelfEfficacy ©Pexels

𝐅𝐨𝐜𝐮𝐬 𝐨𝐟 𝐭𝐡𝐞 𝐦𝐨𝐧𝐭𝐡: 𝐄𝐭𝐡𝐢𝐜𝐚𝐥 𝐝𝐞𝐜𝐢𝐬𝐢𝐨𝐧-𝐦𝐚𝐤𝐢𝐧𝐠 & 𝐩𝐚𝐥𝐥𝐢𝐚𝐭𝐢𝐯𝐞 𝐜𝐚𝐫𝐞 𝐢𝐧 𝐧𝐞𝐨𝐧𝐚𝐭𝐚𝐥 𝐡𝐞𝐚𝐥𝐭𝐡! In neonatal care, the advancement in treatments has increased survival rates for preterm and ill newborns. However, when faced with life-limiting conditions or significant long-term disabilities, ethical decision-making and palliative care become crucial components of care. 📌 𝐊𝐞𝐲 𝐚𝐬𝐩𝐞𝐜𝐭𝐬: 𝐎𝐩𝐞𝐧 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐜𝐚𝐭𝐢𝐨𝐧: Ensuring parents are fully involved in care decisions through transparent and honest discussions builds trust and enhances decision-making. 𝐈𝐧𝐟𝐚𝐧𝐭- 𝐚𝐧𝐝 𝐟𝐚𝐦𝐢𝐥𝐲-𝐜𝐞𝐧𝐭𝐫𝐞𝐝 𝐜𝐚𝐫𝐞: Interdisciplinary neonatal palliative care focuses on the quality of life for both the infant and the family. All relevant medical information, prognosis, and care choices should be shared, respecting family values and rights. 𝐄𝐟𝐟𝐞𝐜𝐭𝐢𝐯𝐞 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐜𝐚𝐭𝐢𝐨𝐧: Overcoming barriers related to language, education, culture, and socio-economic status with clear and compassionate communication is essential. The European Standards of Care for Newborn Health (ESCNH) provide comprehensive guidelines to help healthcare professionals deliver optimal care from the hospital to school age. This interdisciplinary collaboration brings together over 220 experts from 30+ countries to develop and update care standards in this and other critical areas of 𝐧𝐞𝐨𝐧𝐚𝐭𝐚𝐥 𝐜𝐚𝐫𝐞. The ESCNH set the standard for ensuring the best outcomes for newborns and their families. 👉 Find out more at: https://lnkd.in/dumswadn #ForTheBestStartInLife #NewbornHealth #BetterStandardsBetterOutcomes #act4babies #ESCNH

The first Do’s and Don’ts Congress has come to an end with a closing plenary session focusing on infections, specifically on #RSV and #RSVPrevention. 👏 EFCNI's ResQ Family project managers Dr. Christina Tischer and Ilona Trautmannsberger presented their findings on “how an infant RSV infection with hospitalisation impacts the quality of life of parents and caregivers”. Amongst many key findings, the study showed that more than 44% of parents felt often or always guilty for not having prevented their child's RSV infection. 📄 Learn more by downloading the #projectreport:  https://lnkd.in/dzbHi6pw 🙏 We thank Christina and Ilona for their efforts in driving increased #RSVAwareness and presenting the #ResQFamily study results. #NewbornHealth #NeoBestPractice #RespiratorySyncytialVirus #EveryBreathCounts #Research #ResearchProject UENPS - Union of European Neonatal and Perinatal Societies MCA Scientific Events

🔊At the Do's and Don'ts Congress in #Ljubljana we are raising awareness about the importance of #ParenteralNutrition for very #preterm and sick newborns ❓𝐖𝐡𝐚𝐭 𝐢𝐬 𝐩𝐚𝐫𝐞𝐧𝐭𝐞𝐫𝐚𝐥 𝐧𝐮𝐭𝐫𝐢𝐭𝐢𝐨𝐧? 💡🩺𝐏𝐚𝐫𝐞𝐧𝐭𝐞𝐫𝐚𝐥 𝐧𝐮𝐭𝐫𝐢𝐭𝐢𝐨𝐧 (PN) is a feeding method that bypasses the digestive tract by delivering vital nutrients directly to the bloodstream through a small needle or tiny tube. Adequate nutritional intakes – especially during the first 1000 days of life – are essential for promoting growth and health, including long-term metabolic, cognitive, and neurodevelopmental outcomes. However, babies born preterm need some time to establish nutrition intake via the gastrointestinal tract, therefore PN is the only alternative method for them to meet nutrient requirements. PN is also crucial in babies with illnesses affecting the digestive tract (e.g. congenital or acquired gut disorder like necrotising enterocolitis (NEC). 🗒Would you like to learn more about this topic? Then check out our factsheets, available in English and German! 👨👩👧👦 For parents: 👉 https://lnkd.in/dmXa3MhM 👩⚕️For healthcare professionals: 👉 https://lnkd.in/eNuwX6Sj #UENPS #Neonatology #Perinatology #NutritionExpert #EarlyNutrition

Little fighters need extra nutrients 💜 At the Do's and Don'ts Congress in beautiful Ljubljana, we highlighted the importance of fortification in preterm and sick babies with our factsheet for parents and caregivers. 📄 For optimal development and growth, preterm, sick, or low-birth-weight babies require additional proteins, fats, carbohydrates, and calories alongside breast milk. Fortifying breast milk is one effective way to meet these needs. Our factsheet provides an overview of the areas of application, types, and components of fortification for preterm and sick babies. 👶 👉 Download your free copy now: https://lnkd.in/ep5v9X5H   #UENPS #neonatology #perinatology #preterm #fortification #nutrition The topic of fortification is kindly supported by Prolacta Bioscience.

🌟 Advocating for #ZeroSeparation 🌟 We had the privilege of attending an insightful presentation on the vital topic of immediate skin-to-skin contact at the Do’s and Don’ts Congress in Ljubljana. 🌼👶 Stina Klemming presented the latest recommendations for immediate skin-to-skin contact, sharing evidence from the "Immediate Parent-Infant Skin-to-Skin Study." This research underscores the significant benefits of the practice, particularly for very preterm infants. In addition to the study's findings, the essential requirements for clinical practice and safety were outlined, ensuring this vital practice can be implemented effectively and safely in neonatal care. Furthermore, she highlighted the importance of continued skin-to-skin contact, facilitated by keeping mothers and babies together through the concept of mother-newborn couplet care. This approach not only strengthens the bond between mother and baby but also promotes better health outcomes for both. We continue to advocate for zero separation and support practices that keep our tiniest patients close to their parents from the very beginning. 🤱👣 UENPS - Union of European Neonatal and Perinatal Societies MCA Scientific Events #neonatology #perinatology #NewbornHealth #KMC #KangarooMotherCare #FamilyCenteredCare #SkinToSkin #preterm #ZeroSeparation

The Do's and Don'ts Congress has kicked off, and EFCNI is here in Ljubljana, Slovenia! Together with UENPS - Union of European Neonatal and Perinatal Societies, we invite #doctors, #nurses, #midwives, and #parents to take part in workshops and listen to presentations focusing on #bestpractice in neonatal care. ℹ️ Today’s scientific programme offers a wide variety of topics, check out the schedule on https://lnkd.in/eviwTkKJ. MCA Scientific Events #EFCNI #UENPS #neonatology #perinatology #NewbornHealth #neobestpractice #Ljubljana #NeonatalCare #congress

📬 𝙊𝙪𝙧 𝙡𝙖𝙩𝙚𝙨𝙩 𝙣𝙚𝙬𝙨𝙡𝙚𝙩𝙩𝙚𝙧 𝙞𝙨 𝙣𝙤𝙬 𝙖𝙫𝙖𝙞𝙡𝙖𝙗𝙡𝙚! In this edition, we explore several important developments: 📑 The new 𝗘𝗨 𝗹𝗲𝗴𝗶𝘀𝗹𝗮𝘁𝗶𝗼𝗻 𝗼𝗻 𝗵𝘂𝗺𝗮𝗻 𝗺𝗶𝗹𝗸, a significant step forward in ensuring optimal nutrition and care for infants. 🌿 Fascinating new 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗼𝗻 𝗰𝗮𝗻𝗻𝗮𝗯𝗶𝘀 𝘂𝘀𝗲 𝗱𝘂𝗿𝗶𝗻𝗴 𝗽𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆, including effective strategies to encourage women to quit and protect their babies’ health. 👶🩺 World Health Organization's ongoing project to develop comprehensive materials for the 𝗳𝗼𝗹𝗹𝗼𝘄-𝘂𝗽 𝗰𝗮𝗿𝗲 𝗼𝗳 𝘀𝗺𝗮𝗹𝗹 𝗮𝗻𝗱 𝘀𝗶𝗰𝗸 𝗻𝗲𝘄𝗯𝗼𝗿𝗻𝘀, aimed at improving outcomes from discharge until five years of age. 👉 For a deep dive into these topics and more: https://lnkd.in/d2D6resy Happy reading! ✏️ 𝗦𝘁𝗮𝘆 𝗶𝗻𝗳𝗼𝗿𝗺𝗲𝗱 about these critical updates and more. Join us in our mission to advocate for the best care for newborns and their families, and 𝘀𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 to the monthly #EFCNI newsletter: https://lnkd.in/dvRJZhG #News #NewbornHealth #ForTheBestStartInLife

🥳𝐓𝐨𝐥𝐥𝐞 𝐍𝐞𝐮𝐢𝐠𝐤𝐞𝐢𝐭𝐞𝐧! 🙌 Wir freuen uns sehr über die neue Empfehlung der STIKO zur Prävention von #RSV! 👶 Das Respiratorische Synzytial-Virus (RSV) stellt weltweit eine erhebliche Gefahr für Säuglinge und Kleinkinder dar. Die STIKO empfiehlt nun erstmalig eine passive Immunisierung als Standardempfehlung, um alle Kinder vor schweren RSV-Infektionen zu schützen. 🦠Wir von EFCNI, als international tätige Eltern- und Patientenorganisation, begrüßen diese wichtige Maßnahme zum Schutz der Kleinsten und sind dankbar, dass nun alle Kinder von dieser präventiven Maßnahme profitieren können. 📃RSV und dessen Prävention ist für uns eine große Herzensangelegenheit. Bereits letztes Jahr haben wir mit unserem Positionspapier dazu aufgerufen, Kindern einen umfassenden Schutz vor der nächsten RSV-Saison zu bieten und damit sowohl das Gesundheitssystem als auch betroffene Familien zu entlasten. Das Positionspapier sowie die kürzlich veröffentlichte Publikation finden Sie hier:  👉https://lnkd.in/d22ffqRj  👉https://lnkd.in/dWdzGvTB Für weitere Informationen zur STIKO-Empfehlung, werfen Sie einen Blick auf den offiziellen Post des Robert-Koch Instituts und das dort verlinkte epidemiologische Bulletin 26/2024 ⬇ #RespiratorySyncytialVirus #RSVPrevention #RSVAwareness #EveryBreathCounts