Some great presentations and discussions on #HeartFailure in Milan this morning. Fantastic to see so many patient organisations together to discuss the current landscape of heart failure by sharing their lived experiences, personal insights and unmet needs. #HeartFailure #HeartFailureAwareness
Global Heart Hub
Non-profit Organizations
Galway, County Galway 4,373 followers
The Alliance of Heart Patient Organisations
About us
The Global Heart Hub is the first global non-profit organisation established to provide a voice for those affected by cardiovascular disease. We are an alliance of heart patient organisations, aiming to create a unified global voice for those living with or affected by heart disease.
- Website
-
http://www.globalhearthub.org
External link for Global Heart Hub
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- Galway, County Galway
- Type
- Nonprofit
- Founded
- 2019
Locations
-
Primary
Moyola Lane
Galway, County Galway H91 FF68, IE
Employees at Global Heart Hub
-
JOHN GORDON HAROLD, MD,MACC,MACP,FRCPI(Hon),FRCP(Lon)
Past President, American College of Cardiology
-
Penilla Gunther
Former Member of Swedish Parliament, Founder of FOKUS Patient
-
David Kelly
Operations Manager @ Global Heart Hub / Chair @ Heart & Stroke Voice Ireland / CVD Patient Advocate
-
Patricia Tiramani
Consultant | Passionate Health Advocate
Updates
-
We are delighted to be in #Milan, Italy, for Global Heart Hub’s in-person Heart Failure Patient Council meeting. This event is bringing together 21 patient organisations from 19 different countries over the coming days, where we will examine opportunities to promote public and healthcare education, and advocate for policy action in an insufficiently recognised and increasingly burdensome disease area #HeartFailure
-
-
Don’t forget, September 16-22 is Heart Valve Disease Awareness Week! Global Heart Hub will be encouraging you to share the message to ‘Listen to your Heart’. Heart valve disease is common, serious but treatable. Join the campaign next week and share the message with your followers. Our campaign will launch on Monday across 12 languages. Stay tuned to our social channels for more! 🌏 #ValveWeek24 #ListenToYourHeart #HeartValveDisease
-
-
Only three weeks to go until the 2024 World Heart Day on September 29! This #WorldHeartDay we demand cardiovascular plans to save lives. Sign the petition to send a powerful message to leaders that a heart action plan is necessary to prevent cardiovascular disease and protect communities from the world’s biggest killer - https://lnkd.in/d2R_NjZ World Heart Federation #UseHeart #HeartYes
-
-
Don't miss our upcoming Empower Webinar: A Patient’s Guide to Shared Decision-Making for Heart Valve Disease, as part of #ValveWeek24. When: September 19 Time: 11:00 EST | 15:00 UTC 16:00 IST | 17:00 CET Register now: https://bit.ly/3SKuoj8 Global Heart Hub is delighted to partner with Heart Valve Voice Canada for this patient-centred webinar on shared decision-making for #heartvalve disease. We are pleased to feature a distinguished panel of experts who will discuss the importance of shared decision-making to improve patient outcomes. Learn more: https://bit.ly/3SKuoj8 #ListenToYourHeart #HeartValveDisease
-
-
Have you read our 2023 Annual Review? https://bit.ly/3ApuSVA Check out some of our 2023 highlights, including welcoming our 100th international patient organisation affiliate; publishing 3 new reports, hosting our first in-person Unite Summit, achieving over 145 million opportunities to see our campaign messages, and much more! We extend our heartfelt thanks to each of our affiliates and supporters. Your collaboration, partnership and collective commitment to our shared vision of an empowered, activated and engaged patient community is what drives us. Thank you for being an integral part of the Global Heart Hub community.
-
-
Global Heart Hub Team Spotlight - Meet Olive! Olive Fenton started working with Global Heart Hub in March 2021 as our Senior Executive on Development initiatives. Based in Switzerland, near Geneva where she has resided for the past eleven years, Olive is originally from Ireland and speaks English, French and Irish. Following an extensive career of leadership positions in the Biopharmaceutical industry, mostly related to cardiovascular disease, Olive recognised that her passion closely aligned to patient advocacy work and the supporting role her experience and knowledge could play in this industry. Read more about Olive here ⤵
-
Global Heart Hub reposted this
In 2 Wochen beginnt die internationale Herzklappenwoche mit vielen Infos zu Symptomen, Behandlung und Leben mit Herzklappenerkrankungen. Folgt uns hier auf diesem Kanal, damit Euer Herz gesund bleibt❤️ Eine Aktion des Global Heart Hub, dem internationalen Dachverband der Herz-Kreislauf-Patientenorganisationen mit weltweiten Aktionen! Initiative Herzklappe e.V. , Instituto Lado a Lado pela Vida, Alliance du Coeur in France, Heart Valve Voice US, Heart Valve Voice in the UK, Canada and Japan, AEPOVAC in Spain, EcoSerce in Poland, PACO from Mexico, Croí Heart & Stroke Charityí, The Mended Hearts, Inc. , WomenHeart: The National Coalition for Women with Heart Disease, Israeli Heart Association in Israel, hearts4heart, Cuore Nostro, Stichting Hartpatiënten in The Netherlands and SASNET in Ghana. #höraufdeinherz #ListenToYourHeart #Wissen #Medizin #Gesundheit #herz #herzklappe #höraufdeinherz #vorsorge #früherkennung #medizinwissen #medizinwissen2go #achtsamkeit #gesundheitstipps #kardiologie #kardiologe #arzt #krankenschwester #krankenpflege #mta #herzkrank #herzkrankesbaby #herzinsuffizienz #herzklappe #bluthochdruck #gesundheitsförderung #herzfehler #patientjourney
-
-
Global Heart Hub reposted this
Vor 16 internationalen Heart Teams berichtete Teresa Glynn, Global Heart Hub, im Rahmen der Maastricht Mitral Masters, wie eine internationale Kooperation mit Stakeholdern gelingen kann, um die gemeinsame Entscheidungsfindung und die patientenzentrierte Versorgung voranzutreiben. Als Speaker vertrat ich dort die Initiative Herzklappe e.V. , teilte meine gelebte Erfahrung als Herzklappenpatient mit Fokus auf die „informierte Entscheidung“ und erläuterte aus meiner persönlichen Sicht, warum es für Patientinnen und Patienten so wichtig ist, zu wissen, dass interdisziplinäre Experten in Form eines Herzteams sich um das Wohlergehen von Patientinnen und Patienten kümmern. Ein herzliches Dankeschön an Peyman Sardari Nia, Programmdirektor der Heart Team Academy, für die Einladung. Es war mir eine Ehre! https://lnkd.in/euxs-ZTw #Herzklappen #Herzklappenerkrankung #HerzSDM Heart Team Academy Karen Padilla
-
-
Global Heart Hub is delighted to be at the Maastricht Mitral Masters in the Netherlands, engaging with 16 international heart teams. Teresa Glynn, our Senior Executive, Strategy & Partnerships, shared how we are working with international stakeholders to advance shared decision-making and patient-centred care. Our Affiliate Jens Naeumann, Initiative Herzklappe e.V., shared his own personal perspective on why it is so important for patients to be involved with their heart team to find the best treatment options. A heartfelt thank you to Dr Peyman Sardari Nia, Programme Director, for the invitation and continued support. #heartvalve #heartvalvedisease #heartSDM Heart Team Academy
-