Charity Hopes Makeover Will Brighten Johns Creek Boy's Life

A Roswell-based nonprofit will partner with a builder to make life easier for a Johns Creek child battling two rare disorders that’s left him with various medical complications.

Sunshine on a Ranney Day will partner with Cambridge Swinerton Builders for its makeover benefitting the family of Oliver Shattles-Moore, a little boy diagnosed with Phelan-McDermid Syndrome (22q13 deletion) and a partial Trisomy 9 (9q34 duplication), two rare genetic conditions.

Cambridge Swinerton Builders is sponsoring this makeover and several of their employees and members of the SOARD volunteer team will begin a demolition on parts of the house at 9 a.m. Saturday, Jan. 17. The demo will take place 9630 Haverhill Lane in Johns Creek.

Shattles-Moore is one of only two children in the world with this extremely rare combination of genetic disorders and is one of the 1,100 known worldwide cases of Phelan-McDermid Syndrome.

Complications of his condition include Cerebral Palsy and Epilepsy, as well as deficits of the cardiac, neurological, intestinal and renal systems leading to extreme chronic pain. He receives his nutrition intravenously and is incredibly susceptible to infection. In his short three years, Oliver has already endured 14 surgeries and frequent hospitalizations.

As a result of his condition, Oliver is unable to go to school or engage in therapy outside the home. He is currently non-ambulatory, non-verbal and receives extensive in home therapies to facilitate improved muscle control, cognition and communication.

SOARD plans to redesign his home to accommodate his changing needs. This project will include remodeling of the floor and bathroom to become wheelchair accessible, a room makeover and transforming the family dining room into a therapy suite so he can get all of the interventions he needs at home.

Members of the Cambridge Swinerton Builders and SOARD teams will begin gutting the master bathroom to make it wheelchair accessible, removing all carpet and demoing the dining room to make it into a therapy room on January 17.

The big makeover reveal is tentatively scheduled for noon Feb. 14.

SOARD, a leading children’s charity with expertise in residential, Americans with Disabilities Act-compliant modifications, therapy rooms and unique children’s room design, has completed 19 life-changing makeovers for Atlanta-area families since 2012.

For more information, visit SOARD’s website.

Photo credit: Sunshine on a Ranney Day