Upload your WPD 2024 activities! Unite your colleagues, friends, and community to raise awareness for psoriatic disease. Your contribution matters whether it's a ‘walk-the-talk’, patient forum, or social media activity. Explore global events and add your own pin to the map at https://lnkd.in/ed3T7grG! 🌍💪 #WorldPsoriasisDay2024 #psoriaticfamily #WPD2024 #PsoriaticDisease
IFPA
Ideella organisationer
Stockholm, Stockholm County 1 520 följare
Global leader in fighting psoriatic disease
Om oss
Founded in 1971, IFPA is an international federation of psoriatic disease associations. We are the psoriatic disease community. Our members represent over 60 million people living with psoriatic disease. Together, we advocate for progress. Vision A future where all people living with psoriatic disease enjoy good health and wellbeing, free from stigma and preventable disability and comorbidities Mission Unite, strengthen and lead the global psoriatic disease community to improve the lives of all people affected by psoriatic disease.
- Webbplats
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https://ifpa-pso.com/
Extern länk för IFPA
- Bransch
- Ideella organisationer
- Företagsstorlek
- 2–10 anställda
- Huvudkontor
- Stockholm, Stockholm County
- Typ
- Ideell organisation
- Grundat
- 1971
- Specialistområden
- psoriasis, psoriatic arthritis, non-communicable diseases, advocacy, education, IFPA network, psoriasis patients, World Psoriasis Day och World Psoriasis and Psoriatic Arthritis Conference
Adresser
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Primär
Slottsbacken 8
Stockholm, Stockholm County 111 30, SE
Anställda på IFPA
Uppdateringar
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🌟 Exciting News! 🌟 The 2nd round of the Project Rare GPP (Generalized Pustular Psoriasis) fund is NOW open for applications from all patient associations, not just IFPA members. Don't miss this chance—apply by September 1, 2024, at https://lnkd.in/d6szwkU4. 🚀 #ProjectRare #FundingOpportunity #gpp
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Thank you for attending the IFPA Conference 2024! We were thrilled to see so many of you in Stockholm. From groundbreaking lectures on psoriatic disease to inspiring complementary programs and insightful symposiums, this year's conference was a huge success thanks to your participation and enthusiasm. A big thank you to all the speakers, attendees, and sponsors for making this event unforgettable. Let's continue advancing the field of psoriatic disease together. See you next time! #IFPAConference2024
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The 2014 WHA resolution on psoriasis is a milestone for the psoriatic disease community! 🌍👏 Under IFPA’s leadership, many worked hard to put psoriasis on the World Health Organization agenda. This resolution has become a powerful advocacy tool, inspiring national psoriatic disease organizations to push for change. Anette Meyer from the German Psoriasis Association shares the successes and challenges of implementing it in Germany. Read the full article here - https://lnkd.in/dJ2tPCWJ #WHA77 #WHOPsoriasisResolution #10YearsOfAction
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IFPA omdelade detta
First year of being an IFPA Ambassador trainer was nothing short of amazing. It was nerve-wrecking as it was my first time, fortunately most of the training materials were very close-to-heart. It felt so amazing to be able to put my advocacy skills into good use. Shoutout to Camille Lancelot for providing both Joel Nelson and I sufficient support prior to our first session. Looking forward to more experiences like these 🌼
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🌍✨ World Skin Health Day 2024 ✨🌍 Today, we stand with over 1.8 billion people living with a disease visible on the skin. The skin is your body's largest organ, and maintaining its health is crucial for overall well-being. Thank you to The International League of Dermatological Societies (ILDS) and the International Society of Dermatology (ISD) for emphasizing the importance of skin health. We must work together to ensure everyone has the support and treatment they need. Join us in raising awareness, educating others, and taking action towards improving skin health for all. #WorldSkinHealthDay #skinhealthforall #PsoriaticDisease #accessforall #ILDS #ISD #HealthySkinForAll
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IFPA omdelade detta
Last week, we united the psoriatic disease community and truly covered the broad spectrum of this disease. We are closing the gap between disciplines, between specialty groups and the patient community, between knowledge and action. Thank you to everyone who contributed to the success of the 7th IFPA Conference. To Professor April Armstrong, MD MPH striving for all of us to deliver top-notch level, to the scientific executive committee Prof Ulrich Mrowietz and Prof Laura Coates, our scientific advisory board and complementary program committee Mahira Hamdy Elsayed and Claudia de la Cruz Fernández. Thank you IFPA Secretariat, Board and Members. Thank you to our sponsors for your continued support and for believing in the work that we do. Thank you to International Psoriasis Council and Group for Research and Assessment of Psoriasis and Psoriatic Arthritis - GRAPPA and all wonderful speakers and delegates from all around the world. Thank you HOSEAH WAWERU who I felt the presence of the whole week. I miss you.
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IFPA omdelade detta
Helen Crawford sharing IFPA’s Impact Report for 2023-2024. #IFPAconference2024 #IFPAfamily #psoriasiscommunity
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IFPA omdelade detta
Aansluitend aan de IFPA conferentie was ook de jaarlijkse IFPA member meeting met alle aangesloten #psoriasis patiëntenorganisaties vanuit alle landen wereldwijd. Samen spraken we over de uitdagingen die mensen met psoriasis in het leven tegen komen. We hebben in een aantal groepen brainstormend gewerkt aan drie ingebrachte onderwerpen: het betrekken van jeugd, de uitdagingen van AI en de 10e verjaardag van de resolutie van de WHO op #psoriasis. Gevolgd door een Speeddate langs de verschillende projecten en ondersteuning die IFPA biedt, met een presentatie over de impact die IFPA en haar leden afgelopen jaar samen hebben gemaakt. Daarnaast presenteerde een aantal landen projecten die zij hebben gedaan ter lering en inspiratie voor andere psoriasispatienten organisaties. Zo leerzaam en fijn om samen met andere #patientadvocates geïnspireerd te worden en samen te werken. Many thanks to @IFPA team en board voor deze leerzame dagen.
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IFPA omdelade detta
What an engaging three days in Stockholm at the 7th World Psoriasis & Psoriatic Conference hosted by IFPA chaired by Dr. April Armstrong, MD MPH! It was fascinating to listen to experts unpack topics from #treatment advances to unmet needs to the #prevention of psoriatic arthritis from a global vantage point. I had the honor of highlighting the work of the National Psoriasis Foundation and the complexities of accessing care in the U.S. through two panels: "From diagnosis to treatment: Rethinking care to better meet patient needs" (presented by Bristol Myers Squibb) and "Beyond the surface: a deep dive into the psoriatic disease spectrum." These sessions included a look at data from NPF’s Health Indicator Report - recently released as part of our work under the Centers for Disease Control and Prevention Chronic Disease Education & Awareness Grant - and impactful research funded by the NPF including the CP3 grant with the potential to change and extend lives! Today, the focus shifts to the IFPA patient organization member meeting. Excited to continue learning, sharing, and collaborating in this dynamic environment. #Psoriasis #IFPA #PatientCare #MedicalConference
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