This #JIA Awareness Week, we aim to get people talking. Thank you to those who have shared your stories! Use the hashtag #ThislsJIA or contact us like Michael’s Mum has:
Michael was diagnosed with Juvenile Idiopathic Arthritis (JIA) at 14 months, though MRI scans indicated scarring from birth. Despite frequent trips to the GP and local hospitals due to concerns about his health, Michael's symptoms were often misdiagnosed as colic, reflux, wind, or viral infections. As a mother, I felt something was wrong, but my concerns were dismissed as post-natal anxiety.
One night, Michael had a seizure after battling a viral and ear infection. Refusing to leave the hospital until he was fully examined, the doctors discovered fluid in his knees, which they drained, significantly improving his mobility.
Two weeks later, Michael's condition worsened, leading to another hospital stay. Initially suspected of having a rare form of cancer, further tests at Great Ormond Street Hospital revealed he had JIA. While relieved he didn't have cancer, we were unprepared for the diagnosis and the ongoing treatment it required.
Michael received steroid injections and fluid removal, improving his condition. However, by age two, he needed regular steroid treatments and methotrexate injections. Adjusting to this treatment was challenging and frightening, especially with the risk of infections like chickenpox.
Now nine, Michael is an active, football-loving boy, despite his struggles with extended oligoarticular JIA. He receives weekly methotrexate injections and monthly abatacept infusions. Michael's determination to participate in activities, regardless of his pain, makes us incredibly proud and grateful for his bravery. #ThisIsJIA
