MDS Alliance

When you're surfing the internet looking for some updated information about MDS, it's crucial to find trustworthy info. Stick to reliable sources like government sites and healthcare databases when looking up health stuff. Whether you're checking symptoms, looking into treatments, or trying to stay healthy, trust these sites. Your health is important, and good info is your best friend! Stay sharp, stay informed! Check out some tips and useful websites here: https://lnkd.in/eYJbM6Hz

Meet the MDS Alliance Member: Connaitre Combattre Les Myélodysplasies. Since 2006, CCM has been the only organisation in France dedicated to supporting patients with myelodysplastic syndromes (MDS). CCM aims to provide MDS patients and their caregivers, wherever they live, with access to the latest resources and information on MDS. CCM helps patients better understand MDS by organising regular doctor/patient information meetings, contributes to advances in patient care through collaborations with international associations and laboratories and supports research into new treatments by helping draft protocols for clinical trials and collaborating on national and international surveys. Let's applaud CCM for their invaluable contribution to the MDS Alliance and their unwavering support to the community! #MDS #MeetOurMember

Join us at the THEMA Saint-Louis Research Institute's first International Symposium on 9th and 10th September 2024 at the Collège de France in Paris! This event will gather international researchers to present current developments and challenges in leukaemia research and treatment. We’re happy to announce that the MDS Alliance will be contributing to the symposium by bringing the patient voice to the forefront in the session Quality of Life Matters: A Patient Perspective, led by Jacqueline Dubow. Registration is free and available via this link: https://lnkd.in/ejj8DsKD

🩸 Awareness about Myelodysplastic Syndromes (#MDS) is crucial for early diagnosis and better management, just like any other health condition. Identifying the key symptoms can help you recognize when it's essential to seek medical advice. Spread the word about MDS and help others understand the importance of early detection. If you or someone you know experiences these symptoms, consult a healthcare professional for guidance. https://lnkd.in/dhEyF-fe

Amazing days at the European Hematology Association (EHA) Congress in Madrid! The event was a fantastic opportunity to deepen our understanding of hematological conditions, like #MDS, and explore the latest research, all while connecting with peers, leading experts, and industry representatives. We left #EHA2024 feeling inspired and equipped with new ideas to keep advocating for a better future for MDS patients. A big thank you to the organisers, speakers, and participants for making this a memorable experience. Looking forward to next year!

Did you know that for about 70% of patients with the rare blood cancer Myelodysplastic Syndrome #MDS, blood transfusions are more than just a treatment - they're essential for survival? Today, on 🌍 𝐖𝐨𝐫𝐥𝐝 𝐁𝐥𝐨𝐨𝐝 𝐃𝐨𝐧𝐨𝐫 𝐃𝐚𝐲, let's come together to make a difference. Your simple act of donating blood can save lives. Whether it's for someone battling illness or in need of emergency care, your donation matters. Join us in this mission to ensure there's always a strong blood supply for those who need it. 𝐒𝐜𝐡𝐞𝐝𝐮𝐥𝐞 𝐲𝐨𝐮𝐫 𝐛𝐥𝐨𝐨𝐝 𝐝𝐨𝐧𝐚𝐭𝐢𝐨𝐧 𝐚𝐩𝐩𝐨𝐢𝐧𝐭𝐦𝐞𝐧𝐭 𝐭𝐨𝐝𝐚𝐲! 🩸

Meet the MDS Alliance Members: Agrupación Española de entidades de Lucha Contra la Leucemia y Enfermedades de la Sangre, AELCLÉS We are excited to introduce AELCLÉS, a non-profit organisation established in Spain in 2009 through the collaboration of several associations. AELCLÉS is dedicated to supporting patients with onco-hematological diseases and their families on their journey to better health. AELCLÉS provides individualised support to improve the patients' quality of life. They aim to inform and raise awareness in society about the needs of people with hematological diseases but they also strive to promote blood, bone marrow, and umbilical cord donation. Their actions aren't limited to the national level and AELCLÉS also actively participates in international actions and projects with similar institutions to exchange knowledge and experiences. 𝐋𝐞𝐭'𝐬 𝐚𝐩𝐩𝐥𝐚𝐮𝐝 𝐀𝐄𝐋𝐂𝐋É𝐒 𝐟𝐨𝐫 𝐭𝐡𝐞𝐢𝐫 𝐜𝐨𝐧𝐭𝐢𝐧𝐮𝐨𝐮𝐬 𝐬𝐮𝐩𝐩𝐨𝐫𝐭 𝐭𝐨 𝐭𝐡𝐞 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲 𝐚𝐧𝐝 𝐭𝐡𝐞𝐢𝐫 𝐢𝐦𝐩𝐚𝐜𝐭𝐟𝐮𝐥 𝐜𝐨𝐧𝐭𝐫𝐢𝐛𝐮𝐭𝐢𝐨𝐧 𝐭𝐨 𝐭𝐡𝐞 𝐌𝐃𝐒 𝐀𝐥𝐥𝐢𝐚𝐧𝐜𝐞! #MDS #MeetOurMember

Today is 𝐖𝐨𝐫𝐥𝐝 𝐁𝐥𝐨𝐨𝐝 𝐂𝐚𝐧𝐜𝐞𝐫 𝐃𝐚𝐲! Join us in raising awareness and supporting those affected by blood cancer, including Myelodysplastic syndromes (MDS). Remember, you can make a difference by donating blood or bone marrow. Together, we can bring hope to those fighting blood cancer. #WorldBloodCancerDay #MDS

It's crucial to us that everyone has equal access to treatments, no matter where they live. However, access to different treatments remains unequal across countries. To advocate for greater access to new therapies around the world, it is essential to understand the current situation. The MDS Alliance is analysing access to 10 different treatments across various countries and 𝐰𝐞 𝐧𝐞𝐞𝐝 𝐲𝐨𝐮𝐫 𝐢𝐧𝐩𝐮𝐭. If you have information on this topic, we want to hear from you. Help us map the treatment landscape by filling the form on this page ➡ https://lnkd.in/dRt8hmuU #MDS #MDSTreatment

The MDS Alliance is excited to attend the European Hematology Association (EHA) Congress in Madrid from June 13-16. The agenda will be filled with engaging activities focused on advancing awareness and understanding of hematological conditions, including #MDS. Additionally, attendees will delve into the latest research in the field. In addition to the scientific sessions, the #EHA2024 Hybrid Congress will provide an opportunity for our representatives to strengthen connections, engage with peers, and interact with experts and industry associates. Registrations are still open through this link: https://lnkd.in/dZ3Jmhqg