A Wish Granted
Watch Video
Together We Shine Bright
Who We Are
Learn about our Mission, Story and Research Advancements.
Learn MoreFamily Stories
Each family has a unique story about how cystinosis has impacted their lives.
Learn MoreFor Researchers
All the information for your researchers, in one place.
Learn MoreNatalie's Wish
Get the latest information on our biggest event of the year - Natalie's Wish.
Learn More
Previous slide
Next slide
![NW-Video_Phototiles_09](https://www.cystinosisresearch.org/wp-content/uploads/2022/03/NW-Video_Phototiles_09.jpg)
"We dream for a better tomorrow, and with ever evolving treatments, our tomorrow grows brighter. With recent advancements in treatment and research, we believe Lily can achieve all this."
The Beauregard Family
"We are so grateful to the Cystinosis Research Foundation and the Cystinosis community as this disease can make you feel isolated and scared."
The Andrews Family
" To Ethan, cystinosis is just a part of his life, it will not keep him down, nothing will."
The Fenn Family
Previous
Next
CRF News
Read about what’s going on at the Cystinosis Research Foundation