The Lives They Left Behind: Suitcases from a State Hospital Attic
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The acclaimed portrait of institutionalized patients whose abandoned possessions recall their forgotten lives
“A deeply moving testament to the human side of mental illness.” —Oliver Sacks
When Willard State Hospital closed its doors in 1995, after operating as one of New York State’s largest mental institutions for over 120 years, a forgotten attic filled with suitcases belonging to former patients was discovered. Using the possessions found in these suitcases along with institutional records and doctors’ notes from patient sessions, Darby Penney, a leading advocate of patients’ rights, and Peter Stastny, a psychiatrist and documentary filmmaker, were able to reconstruct the lives of ten patients who resided at Willard during the first half of the twentieth century.
The Lives They Left Behind tells their story. In addition to these human portraits, the book contains over 100 photographs as well as valuable historical background on how this state-funded institution operated. As it restores the humanity of the individuals it so poignantly evokes, The Lives They Left Behind reveals the vast historical inadequacies of a psychiatric system that has yet to heal itself.
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- Rating: 5 out of 5 stars5/5Informative and fascinating to see what has changed and what hasn't about the way we treat the mentally ill. First I read a semi-fictional story that referenced this book and found it so compelling I wanted to read the actual, factual information about a asylum in New York,
Book preview
The Lives They Left Behind - Darby Penney
Willard State Hospital, aerial view, ca. 1980s
PROLOGUE: LIFE IN THE ATTIC
The Sheltered Workshop Building stands alone on a hill overlooking Seneca Lake next to the empty lot that once held Chapin Hall, the massive central building of Willard State Hospital in New York. When that towering, meandering structure was torn down in 1988, the institution lost its architectural heart, leaving a scattered bunch of buildings that housed nearly a thousand mental patients until the state finally decided to abandon the entire facility in 1995. That spring, all remaining patients were distributed to other institutions. Curators and state workers roamed the grounds, trying to safeguard anything that might be worth keeping before the buildings were condemned. They scurried from building to building, determined to beat the looming deadline of the demolition crews.
Beverly Courtwright and Lisa Hoffman, two local women who worked at Willard, knew the place intimately. They guided Craig Williams, a curator from the New York State Museum, to the spots that offered the most promise for finding important artifacts. Beverly remembered that there was something stashed under the roof of the Sheltered Workshop Building. She led the group up the steep staircase to the attic and then to a door in a partition under pigeon-infested rafters. Once the door was pried open, they were struck by an awesome sight: a beam of sunlight streaming down a central corridor that separated rows of wooden racks tightly filled with suitcases of all shapes and sizes—men’s on the left side, women’s on the right, alphabetized, labeled, and covered by layers of bird droppings, apparently untouched for a great many years.
Crates, trunks, hundreds of standard suitcases, doctor’s bags, and many-shaped containers were all neatly arrayed under the watchful eyes of the pigeons who had come to join the lost souls and their worldly possessions. For Beverly and some others who saw it, this upper room exuded an unearthly air, a hovering presence of hundreds of souls or spirits attached to the many people who had handled and worn the items in those bags before they were packed, who had read the books, written in the diaries, and looked into the mirrors they contained.
004Craig Williams, realizing that he had stumbled across a dream of a treasure, called for additional trucks to salvage the luggage. Just keep ten, and throw the rest away,
he was told. Fortunately, Craig ignored this order, and within hours, all 427 suitcases were wrapped in plastic and driven to the museum’s warehouse. He knew this was a unique historical find, but one that could not be dealt with immediately. Interns and volunteers cataloged the items in some of the suitcases over the next three years, but the majority of them remained unopened.
In 1998, a group of archivists and curators, including Craig Williams, met with officials of the New York State Office of Mental Health to brief them on a ten-year plan to document the history of mental health in the state. Almost as an aside, Craig mentioned the patient suitcases in the museum’s warehouse from the Willard attic that were saved from destruction when the facility closed in 1995.
This is where we—the authors—come in. One person at the meeting, Darby Penney, recognized the potential of this historic find to shed light on the lives of forgotten mental patients. She was Director of Recipient Affairs, a position created in the early 1990s to facilitate input from current and former patients about policies and programs. Darby invited her colleague Peter Stastny, a psychiatrist and documentary filmmaker, to join the project. Peter brought in photographer Lisa Rinzler to guide the team’s visual approach. This collaboration resulted in a major exhibit at the New York State Museum in 2004, attended by over 600,000 visitors; a website (www.SuitcaseExhibit.org); a traveling exhibit; and, ultimately, this book.
On our first ride up to Willard, catching a view of two lakes, one before us, the other in our rearview mirror, we could never imagine the worlds that would open up behind the fences, walls, and leather latches.
By then half of the facility had been converted to a boot camp for drug-addicted state prisoners. As we drove onto the grounds, we heard their marching chants in the background. Some buildings were nailed shut. Others were still open, housing workers, alcoholics, a day-care center, but no psychiatric patients. Oddly enough, we noticed a group of obvious patients with their medication shuffle and their poor clothing at a campground by the lake. Some of them were former Willard patients who had come here for an outing from Elmira Psychiatric Center, thirty miles to the south, where many Willard patients had been moved when the facility closed.
We pulled up to the Sheltered Workshop Building and waited for the woman with the keys. Once again, it was Beverly who took us up to her aerie. The old freight elevator had been out of service for years. The huge workshop tables, once surrounded by patients packing pens or gluing paper bags, stood empty in the barren halls. Old calendars, fire extinguishers last inspected a decade ago, hung on the walls. The staircase was steep, but we trudged up with our camera equipment. Breathless and struggling with dust, we arrived at the top. A few suitcases and clothes were strewn next to a window on the east side of the attic—a strange mixture of beauty and neglect.
005Bending under the low rafters, we reached the door in the partition wall and opened it. It was late afternoon. Snow had fallen through an open latch. Rows of empty racks took up the entire space, still labeled Men
and Women,
and lettered A through Z on each side. An old lab coat hung from a nail, a strangely human shell overseeing it all. Haste had left behind several gutted suitcases, broken interiors of steamer trunks with Chinese motifs, their contents spilling onto the wood floor, mingling with dust and snow, house keys, photographs, earrings, and belts.
We spent much time exploring and documenting the place where the suitcase owners had spent their lives; clambered into basements, scaled several other pigeon-infested attics, and toured dozens of abandoned wards. We tried to hit some pins in the hospital’s bowling alley, timidly traipsed through its morgue, and unearthed discarded old grave markers in the gully behind the burial grounds. But nothing else had anywhere near the potency of that attic. When we brought a bunch of empty suitcases back up to re-create the time when they were all stacked there, we realized that the space had been irrevocably violated once that door was opened. The spirits of the suitcase owners had been awakened without their consent, and we felt that we owed them our utmost effort to do them justice.
006Discarded grave markers, Willard Cemetery
The vast museum warehouse in Rotterdam, New York, became our operating theater where we encountered the suitcases wrapped in dusty sheets of white plastic, multiply tagged, and piled high among the antique cars, building facades, agricultural relics, and thousands of other artifacts from New York State’s history. Working with a list of names and hospital identification numbers, we went through several hundred containers, separating the empty ones from those that held merely a sewing kit or a pocket knife. Our mission was to choose a relatively small number of suitcase owners for closer study, and we did not want to miss those who left fewer items behind. There were some obvious choices: the eighteen pieces of luggage that belonged to one woman and included much of her furnishings; several oversize steamer trunks, footlockers, wardrobes, upright ladies’ Saratoga trunks (so named because they could hold enough clothes for an entire summer season in the resort town of Saratoga Springs, New York), and a good dozen doctors’ bags. These drew our attention not just because of their sizes and unusual shapes, but also for their elaborate markings, monograms, and signs of extensive travel. When opened, dense collections of personal items spilled from many of these suitcases, sometimes still in the same position as they were packed, others obviously disturbed during the intervening years.
007First view of Lawrence Marek’s suitcase
By the time we had gone through all 427 cataloged containers, we chose 25 individuals for further study, either because their belongings called out to us in a loud and clear manner, or because the relatively few items remaining in their trunks hinted at unique personal traits and backgrounds. This was the case for one embossed leather suitcase containing just a pair of dress shoes, galoshes, shaving utensils, and a belt, which, had we passed over it, would have deprived us of the opportunity to discover one of the most compelling stories of the lot.
008Once we knew who we wanted to focus on, we needed access to their medical records. As part of a research project, we got permission to view the records, which were kept in an abandoned hospital building contaminated by asbestos and lead paint, requiring us to don protective booties, masks, and gowns. Most of the charts were in several volumes, spanning years of institutionalization. Affixed to the front page were passport-size photos of the inmates, alternatingly cheerful and grim, sometimes followed by a photo taken in old age. For the first time, we could look into the people’s eyes. Those who smiled at us, like Marie Lehner, seemed oddly inviting, while others churned our hearts: ravaged, toothless, their glances broken. We were only allowed a few hours with those records spanning hundreds of hospital years. We copied pages, caught a few words here and there—dementia praecox
indelibly etched on the face sheet of a person’s life. Correspondence was attached in the back; there were chart entries in dozens of different scripts, colors, and levels of erudition; medication logs, a sea of initials entered to signify that a dose was given, or refused; X-ray reports, the tracings of a beating heart; and postmortem results.
Once we had worked with these files, the hints from the records and the bags began to coalesce into a plan for discovering the suitcase owners’ pasts. Hardly anyone had living relatives, and many of their old addresses had been razed by urban renewal. But sometimes we found those long-lost places in a similar state as when their tenants left them behind, like the home of the Sicilian laborer Michael Bastone on a street corner south of the Ithaca rail yards, surrounded by industrial castoffs. We were approached by a man in a pickup truck who turned out to be a son of the neighbor who had called the police on Mr. Bastone more than sixty years ago. Or the twin brownstones across the street from St. Joseph’s Hospital in Syracuse, New York, where Dmytre and Sofia Zarchuk lived and where Sofia died. As we photographed the building, a man emerged from the neighboring house —he was the Zarchuks’ Italian landlady’s son. His eighty-eight-year-old mother still lived there and remembered her tenant from 1952 as the beautiful young nurse
from next door. Sometimes all we found was a grave, like that of the photographer Herman Graham in Mount Olivet Cemetery, in Maspeth, Queens, New York, or Ethel Smalls’s in Trumansburg, New York.
Michael Bastone’s former residence, Ithaca, New York
009We had spent our careers speaking up for living people who got caught up in the mental health system. What possessed us to spend almost a decade in pursuit of the life stories of ordinary people who had died many years before, and whose stories would be told largely in our words and not theirs? Why piece together biographies from remnants when there are living people perfectly capable of telling their stories and having them recorded for posterity? A keenness to rummage through personal effects undisturbed by their owners was certainly a factor; another was the knowledge that these individuals never had the chance to tell their stories outside of the confines of psychiatry. What might be revealed by comparing the personal artifacts from their pre-institutional lives with the way they were perceived by doctors and hospital staff? Regardless of what might have troubled them, we were struck by the sundering of who they were as people from who they became as mental patients.
Psychiatry in those days (and still today) was largely in the business of stripping patients of their quotidian identities. Diagnostic categories serve mainly to pitch people into a few pigeonholes that help psychiatrists talk about them among themselves. This is not to say that nothing was ailing the people whose stories are featured here. Beyond their obvious physical complaints, they were sad, downtrodden, heartbroken, confused, distressed, angry, irritated—and irritating—fearful, convinced of being persecuted, troubled by voices of unseen speakers, soothed by visions of a celestial kind, shaken by religious fevers, in pain from loneliness, isolation, excessive excitement, and misguided love. Each one of them could be assigned one label or another, but none of these labels—schizophrenia, dementia praecox, melancholia, paranoia, manic-depression, delusional disorder—speaks to the narratives of their lives or gives color to their own unmistakable forms of suffering. Neither could those diagnostic categories, then or now, provide a basis for successful treatment and recovery. If anything, they stand in the way of healing, paths to which are suggested by the individual narratives.
If someone had taken the time and effort to piece together these people’s stories during their lifetimes, a deeper understanding of their life circumstances might have led to a successful resumption of the lives they led before being institutionalized. Clearly, even with the best efforts, some people remain trapped in a web of misperception, fear, and self-loathing. Some of the suitcase owners might have remained forever distressed and unable to fully engage in society even if they had been afforded the best treatment. But then again, even they would certainly have done better if they had been treated with kindness and persistent care, and been given a chance to live in the outside world.
1.
HE TOOK THEM ON THEIR LAST WALK
For more than thirty years, a small man wearing heavy rubber boots strode around Willard State Hospital with a self-contained air and a general sense of industriousness. He was a well-known personage among the staff and patients. He expected to get his way, and, according to some workers who knew him, he usually did. A former director of nursing at Willard said, He had seniority over the employees, the patients and everybody else.
A retired nurse called him an established member of the hospital.
He wasn’t the superintendent or a member of the medical staff; he was Lawrence Marek, a patient, and the institution’s unpaid grave digger until the day he died at ninety years of age.
From 1937 until his death in 1968, Mr. Marek worked nearly every day in the patient cemetery, in every kind of weather, digging graves by hand and maintaining the expansive grounds overlooking Seneca Lake. Halfway up the gently rising slope of the thirty-acre burial ground, he built himself a simple wooden shack where he stayed during the warmer months of the year. A physician noted in his record, He is happy, has found a home at the hospital.
Perhaps that overstates the case, but certainly Lawrence figured out a way to make the best of the bad circumstances in which he found himself, and he built a life (of sorts) for himself while institutionalized for 52 years. Unlike most of the suitcase owners, Marek was able to find a sense of purpose within the restricted world of the hospital, a job that he took seriously and around which he built his identity, gaining a measure of local prestige and personal satisfaction.
Lawrence’s shack and Civil War graves, Willard Cemetery, c. 1960
JANUARY 19, 1965: Patient continues to be the well liked, hard working, quite original old man, walking with his 87 years in rain or snow every day to his job in the cemetery. He is always very pleasant and friendly, and possibly because of language difficulties mainly, not associating with others. He is always cheerful, playing his harmonica, however, mostly for himself in his shanty. Physically the patient is in excellent health for his age. Blood pressure 120/60. Medication: None.
—Adolph Hug, M.D.
Lawrence, by all accounts, was a master of his trade. "I remember that he could dig a grave that was almost perfectly . . . as a matter of fact, it looked like it was perfectly rectangular, former nursing director Laverne Dratt recalled.
I know that he had a wooden form that he laid down on the top so that he got it started. But I don’t have any idea how you could possibly dig a hole in the ground six feet deep that was that perfect. . . . He used to wear hip waders when he was digging the grave, because often while he was digging, the water was seeping in. . . . And when he wasn’t digging graves, he also wore the hip waders. He was meticulous, according to another former nursing director, Web Rankin:
I remember going over and seeing the grave and being impressed by his attention to the details of the burial and the fact that the cemetery was well-maintained. He was very fussy about it. His cemetery had to be properly maintained and he saw to it that it was maintained." Lawrence also made some pocket money by wrapping the bodies of his deceased fellow patients, according to Dratt. Preparing bodies for burial was the responsibility of the ward attendants, but they often avoided this unpleasant task by paying Marek a dollar or two to relieve them of this burden.
By taking on such grim but vital work that no one else wanted to do, Lawrence made himself indispensable to the hospital, which allowed him to take some liberties within the institutional regimen. He didn’t countenance any direction from other people. If the boss told him something, then he would. But if you were just a regular employee, he just kind of went his own way,
Laverne Dratt said. His behavior, one doctor noted somewhat cryptically in the record, was not in complete agreement with the rules, without causing any major difficulties.
Among the rules Lawrence stretched was a strict policy that patients would be served only at regular mealtimes. He used to go to the main kitchen; he was a patient who had special privileges. And [the kitchen staff] would feed him pretty much regardless of what time it was,
according to Dratt.
A SELF-SUFFICIENT ENCLAVE
From its founding in 1869 until the latter part of the twentieth century, Willard, like other state-run mental institutions, was dependent upon unpaid patient labor to sustain its operations. The facility had over six hundred acres of farmland, with a greenhouse, a dairy, stables, chicken houses, piggeries, and barns where nearly all of the facility’s food was raised and processed. There were industrial shops producing clothing and shoes, baskets and brooms, and other necessities such as soap, as well as huge laundries, bakeries, and kitchens. The hospital had a slaughterhouse, wood-working shops, brickworks, a blacksmith’s shop, and a coal-fired power plant whose boilers were fed by patients hauling coal by wheelbarrow from the hospital’s rail yard. These facilities were overseen by paid staff, but most of the work was done by patients, who also labored on the grounds crews, did the excavation for