Living with Diabetes: A Journal for Teens
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Living with Diabetes - Jaimie A Wolfelt
Diabetes
Introduction
I was diagnosed with Type 1 diabetes three weeks before my tenth birthday. I still have vivid memories of moments during that time. I was terrified and didn’t understand what was happening or what living with Type 1 really meant for my life. As I grew through my teenage years and into my twenties, I experienced many—if not all—of the mental, emotional, and social issues discussed in this journal. Now, as a 25-year-old, I still experience some of the challenges that I will outline in the coming chapters.
I kept a diabetes journal from the day I was diagnosed until I went to college. As I reread my journal now, I’m reminded of how much I struggled during my teen years. There were moments where I was extremely angry at diabetes and wished that I could have lived a different life. I questioned why I had diabetes and others didn’t; I even questioned the meaning of the world. There were days when I was scared of changing my diabetes management and times where I wanted to give up because it never seemed to go right. I took on a lot of responsibility too fast and ended up blaming myself for having high A1Cs. I made myself feel horrible and dreaded going to the doctor to see how my next A1C would value my personal worth. I felt as though no one understood me or how I felt. For years, I didn’t really know anyone else with Type 1. Overall, I was angry at my family and my doctors for telling me how to manage a disease that they would never know how it truly felt to live with.
It wasn’t until I found a group of friends with Type 1 that I started to feel understood and less ashamed of my diabetes. I found power in my friends with diabetes and leaned on them for support and inspiration. As I became a young adult, I met more and more people living with diabetes who truly embraced their lives. They weren’t afraid to talk about diabetes. They wore their insulin pumps for all to see, while I had been hiding mine for years. I was inspired by their spirit and their embrace of managing diabetes. They taught me to embrace mine. Although we all acknowledged the hardships of living with Type 1, we also honored what we had gained from living with diabetes. I now proudly show my insulin pump and CGM. I get excited when I have the opportunity to teach others about living with Type 1, and I am extremely passionate about diabetes advocacy, education, and connecting with other T1Ds.
GLOSSARY OF TERMS USED IN THIS BOOK
A1C
A blood test that measures your average blood sugar level over the past three months
BG
Blood glucose, or blood sugar
CGM
Continuous glucose monitor (e.g., Dexcom, Libre, Medtronic, etc.)
DKA
Diabetic ketoacidosis. A dangerous and serious reaction in your body to low insulin. Ketones can build up and make you feel sick. Can lead to diabetic coma and death.
JDRF
A nonprofit organization that funds Type 1 research and advocacy for people living with Type 1; formerly called the Juvenile Diabetes Research Foundation
Low Treatment
Food you eat to