Death Without Dignity?: Euthanasia and Assisted Suicide in Europe
By John Wyatt
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About this ebook
John Wyatt
John Wyatt is a doctor, author, speaker and research scientist. His background is as a consultant neonatologist and academic researcher focussing on the mechanisms, treatment and prevention of brain damage in newborn infants. His academic title is Emeritus Professor of Neonatal Paediatrics, Ethics & Perinatology at University College London. John Wyatt is also a senior researcher at the Faraday Institute for Science and Religion, Cambridge. However the views expressed in this book are his own and do not represent the views of any organization.John Wyatt worked as a paediatrician specialising in the care of newborn babies at a leading neonatal intensive care unit for more than 25 years. Through his clinical experience he became increasingly aware of the ethical maelstrom caused by advancing technology and contentious debates about the nature of humanity at the beginning and end of life.He has now retired from frontline medical practice and am engaged in addressing new ethical, philosophical and theological challenges caused by rapidly advances in medical science and technology. John Wyatt is also fascinated by the issues raised by rapid advances in AI and robotics, and the interface between cutting-edge science and Christian faith.
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Book preview
Death Without Dignity? - John Wyatt
Introduction
Death, like the sun, should not be stared at.
So wrote the philosopher François de La Rochefoucauld. But that’s exactly what we shall be doing in this short book. Staring at the reality of death in our society, and at the arguments and controversies that surround the topic. What does it mean to die well? Is it best to die in control? To choose your own way out? Is it best to make a deliberate choice to end it all at the time and in the manner that you decide? Is suicide always an act of despair and hopelessness or could it be a responsible way to die? Or is there a better way to die? Does modern palliative care provide a better, a richer, a more humane option?
These are not easy questions to confront. Writing this book has made me think about my own death and those of my loved-ones. What will happen in my last hours, days and weeks?
Death and dying are not comfortable topics. They raise uneasy questions and anxieties, reminders of our own frailty and vulnerability, and fears about the impending loss of loved-ones. I have found writing this book emotionally challenging but I am absolutely convinced we cannot avoid these vital topics.
Just as we can’t escape being confronted with death and dying in our personal lives, so also these topics have taken on growing importance in the public arena. Scarcely a week goes by without another high profile media story highlighting the inadequacies of end of life care in our health services, or the tragic story of an individual who committed suicide to escape the suffering and indignity of a terminal illness. Some of the real-life stories feature in the subsequent chapters.
Sophisticated lobbying campaigns around the world are using these personal tragedies as the driving force to change the law to allow different forms of medically assistance in ending life. Interestingly there is no agreement on the best form of legislation or even on terminology. As we will see, the different forms of legislation around the world are mutually contradictory. In the Netherlands and Canada, you need to have unbearable and intolerable suffering but there is no requirement to have a terminal illness. In Austria, legislation introduced in January 2022 allows medically assisted suicide for individuals with a terminal illness or a permanent debilitating condition
. In many US states you need to have less than 6 months to live but there is no requirement to have any degree of suffering. In the UK assisted dying
bills are being debated in both English and Scottish Parliaments.
So what are the forces that are driving this demand for a change in the law? Is it about individual choice and control over our lives – what philosophers refer to as personal autonomy
? Or is it about controlling unbearable physical suffering? And is it possible to construct a law which has an internal logical consistency and is robust and safe in practice?
Of course these are much more than philosophical, political or legal issues. We must never forget the personal tragedies and fears that lie behind the public debates. If we wish to understand the full human reality of what is going on, then our first responsibility is to empathise, to try to comprehend the suffering, fear and desperation which many people face at the end of life.
This is not an easy discussion and the public debate is often emotive, confused and confusing. I have tried to make this book as up-to-date as possible but the target is continually moving and, to my frustration as an author, fresh developments are occurring almost weekly. The book is intended for lay people and does not presume any medical knowledge, but I hope some health professionals will find it instructive as well.
I’m very grateful to many friends and colleagues who have contributed to the development of this book and who have read earlier versions of the manuscript. I’m especially grateful to Verena Schnitzhofer who provided invaluable research assistance, to Jasper Knecht for detailed editorial input, and to Morten Magelssen, Rick Paul and Peter Saunders who reviewed the manuscript. However, of course, I remain responsible for any errors that remain.
My aim is to examine the arguments for and against euthanasia and assisted suicide, particularly as they have developed in continental Europe.
In Chapter 1, we look at four real-live tragic stories of individuals who chose to end their lives for medical reasons.
In Chapter 2, we shall look briefly at the strange history of mercy killing, and then at current euthanasia and assisted suicide practice in countries that allow various forms of medical assistance in dying, especially in the Netherlands, Austria, Belgium, Switzerland, USA and Canada.
In Chapter 3, we look briefly at the language that is used and why clarity of language is important.
In Chapters 4 and 5, we focus particularly on the two main arguments put forward in favour of assisted dying – the argument from compassion and the argument from choice - the right to direct one’s own life.
In Chapter 6, we look at real world problems in how legislation works in practice and the difficulties that are encountered.
In Chapter 7, we look at the medical role in the legislation and what the consequences might be for doctors and health professionals.
In Chapter 8, we look at some of the wider societal context in which various forms of medical assistance in ending life is being sought and of the longer term consequences to society if euthanasia and assisted suicide becomes common in Europe and elsewhere.
In Chapter 9, we turn our attention to Oregon which has had a form of medically assisted suicide since 1998 and to Canada which legalised Medical Aid in Dying
in 2016 and the remarkable developments that have taken place since then.
Then in Chapter 10, we look at the development of palliative care and ask what are the arguments for and against palliative care. Is this a better way to die?
In Chapter 11, we look at specifically Christian responses to the proposed legislation on assisted dying.
Finally in Chapter 12, we summarise and conclude the discussion with suggestions for further reading and study and ways of getting involved personally in this vital debate.
But first, we turn to a few of the personal stories that lie at the heart of this debate.
Chapter 1 – Tragic Narratives
An Assisted Death in Linz
In September 2020, a 36-year-old man came to the police station in Linz and reported that he had helped his friend to die.¹ Police immediately went to his apartment and found the body of a 29-year-old man. The dead man had suffered from musculoskeletal pain for many years. He was known to have mental health issues and had made several suicide attempts in the past. His friend had promised to help him on this occasion and had obtained sedative medication at his request. He had taken an overdose late on Friday evening and had become comatose shortly afterwards. But on Saturday lunchtime he still showed signs of life. In order to keep his promise, the older man had placed a pillow against his friend’s face and suffocated him. The 36-year-old was charged with assisting a suicide and detained in prison.
Andrea Mielke
Assisted suicide was formally legalised in Austria in January 2022 and 57-year-old Andrea Mielke was the first person in Salzburg to opt for assisted suicide.² She had been born with a rare genetic condition and had been a wheelchair user all her life. She had been a strong campaigner for the rights of disabled people and despite her physical limitations had many remarkable accomplishments. But she had decided that she could carry on no further. I want the right to decide for myself when I end my life, when living is no longer possible.
The battle to achieve this right had not been easy, If you're not tough and brave enough, then you've lost anyway; because fighting the authorities is the worst thing and almost nobody can stand it.
Following her request, the Austrian law insisted on a 12-week cooling off period, before her request could be carried out, but eventually in April 2022, in the presence of her partner Adi and two doctors, she took lethal medication and