How can you avoid common myths in patient advocacy outcomes?

1 Myth 1: You need to be an expert

One of the myths that can discourage or overwhelm potential patient advocates is that they need to have extensive medical knowledge or legal expertise to advocate for themselves or others. While it is important to learn as much as you can about your condition, treatment options, and rights, you do not need to be an expert on everything. You can use reliable sources of information, such as reputable websites, books, or organizations, to educate yourself and ask questions. You can also seek help from other patient advocates, support groups, or professionals who can guide you or represent you when needed.

2 Myth 2: You need to be aggressive

Another myth that can affect patient advocacy is that you need to be aggressive, confrontational, or hostile to get what you want from the health care system. While it is true that you need to be assertive, confident, and persistent, you do not need to be rude, disrespectful, or demanding. In fact, being aggressive can backfire and damage your relationship with your health care providers, who are also human beings with feelings and limitations. Instead, you can use effective communication skills, such as active listening, empathy, and negotiation, to express your needs, concerns, and preferences in a respectful and collaborative way.

3 Myth 3: You need to do it alone

A third myth that can undermine patient advocacy is that you need to do it alone or that you are the only one who can advocate for yourself or your loved one. While it is essential to be involved and informed about your care, you do not need to isolate yourself or take on all the responsibility. You can benefit from the support and assistance of other people, such as family members, friends, or other patients, who can offer emotional, practical, or financial help. You can also delegate some tasks or roles to others, such as making appointments, taking notes, or researching options. Moreover, you can build a trusting and respectful partnership with your health care team, who can also advocate for you and your best interests.

4 Myth 4: You need to accept everything

A fourth myth that can limit patient advocacy is that you need to accept everything that the health care system offers or imposes on you or your loved one. While it is important to respect the expertise and authority of your health care providers, you do not need to agree with everything they say or do. You have the right to ask questions, seek second opinions, refuse treatments, or file complaints if you are not satisfied or comfortable with your care. You also have the right to participate in shared decision making, which means that you and your health care providers work together to find the best solution for your situation, based on your values, goals, and preferences.

5 Myth 5: You need to achieve perfection

A fifth myth that can frustrate patient advocates is that they need to achieve perfection or that their advocacy efforts will always lead to positive outcomes. While it is admirable to strive for excellence and improvement, you do not need to put unrealistic pressure on yourself or others. You need to acknowledge that the health care system is complex and imperfect, and that there are many factors that can affect your care and outcomes, some of which are beyond your control. You also need to recognize that advocacy is a dynamic and ongoing process, not a one-time event or a fixed result. You can celebrate your successes, learn from your failures, and adjust your strategies as needed.

6 Here’s what else to consider

This is a space to share examples, stories, or insights that don’t fit into any of the previous sections. What else would you like to add?