"After her son was diagnosed with cerebral palsy, Lily Collison witnessed how far Ireland was behind in its treatment. So, when Rachel Byrne asked her to get involved in the Cerebral Palsy Foundation, she immediately asked: "Can we go to Ireland?’” This article in The Currency talks about our Ireland Programme of Excellence, the importance of research, and what people like CPF are doing for people with cerebral palsy in Ireland.
Cerebral Palsy Foundation
Non-profit Organization Management
New York, NY 2,453 followers
Changing what's possible for people with cerebral palsy in education, healthcare, technology, and advocacy.
About us
Cerebral Palsy Foundation is a catalyst for creating positive change for people with cerebral palsy. We enable real world impact through influential researchers, thinkers, and organizations around the world to drive significant change in healthcare, education, technology, public awareness and policy. IMPROVING HEALTH At its core, improving the health of individuals with cerebral palsy has been central to the work of Cerebral Palsy Foundation in our 60 year history. We aim to improve health and quality of life through our programs and initiatives backed by evidence-based research. Through our commitment to providing you with the best health education information available, we partner with leading clinicians, researchers and stakeholders to provide stakeholders no cost resources in a variety of on demand formats and through our websites and social media channels. CREATING INCLUSIVE EDUCATION & COMMUNITIES 1 in 4 Americans have disability which is more than 64,000,000 of us. We are committed to ensuring that people with disabilities are valued and actively participating members in schools, the workplace, healthcare system, and communities. We partner with businesses and school systems to ensure inclusion and representation is more than just a catch phrase. ADVOCACY & PUBLIC POLICY Cerebral Palsy Foundation is a strong and powerful voice for the 17,000,000 people around the world with cerebral palsy and their families. We have a global commitment to increasing awareness and support for cerebral palsy research and investment. Our US Advocacy-led efforts currently focus on increasing federal investment supporting cerebral palsy research initiatives at the National Institutes of Health and Centers for Disease Control and Prevention. Cerebral Palsy research is vastly underfunded despite the number of people impacted. We work year-round with key lawmakers, policy makers, government agencies and other stakeholders to educate and draft language.
- Website
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http://www.yourcpf.org
External link for Cerebral Palsy Foundation
- Industry
- Non-profit Organization Management
- Company size
- 2-10 employees
- Headquarters
- New York, NY
- Type
- Nonprofit
- Founded
- 1955
- Specialties
- Research, Education, Advocacy, and Health
Locations
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Primary
Get directions
3 Columbus Circle
15th Floor
New York, NY 10019, US
Employees at Cerebral Palsy Foundation
Updates
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CPF Board Chair Ila Eckhoff, MBA, CPA spoke recently on a panel for the International Cerebral Palsy Society about being a parent with a disability. The panel is all about the expectations vs. the reality of being a disabled parent, and everything that comes with it.
Redefining Everyday Triumphs - Parents with Cerebral Palsy: Expectations vs Reality
https://www.youtube.com/
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This insightful new article from Variety spotlights CPF’s founders Leonard and Isabelle Goldenson, as well as Leonard’s legacy as a media pioneer, and the founding and history of CPF. The Goldenson’s daughter Loreen Arbus is quoted along with CPF Executive Director Rachel Byrne.
‘A True Visionary’: Leonard H. Goldenson Set Template for Ways Networks Operate Today
https://variety.com
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Cerebral Palsy Foundation Executive Director Rachel Byrne explains “National Cerebral Palsy Awareness Month is not only for the Cerebral Palsy community. It is for our communities, families, stakeholders, healthcare providers, business organizations, schools and many more. Together, we can make a difference and create a more inclusive and supportive society for individuals living with cerebral palsy.” Read the whole press release below. 👇
MARCH IS NATIONAL CEREBAL PALSY AWARENESS MONTH IN THE UNITED STATES
einpresswire.com
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Today is National Cerebral Palsy Awareness Day! 💚 Did you know that cerebral palsy is the most common lifelong motor disability affecting more than 17,000,000 people and their families worldwide? Many people don't realize how common CP is, or know that there is a lot more that can and should be done to improve lives across the lifespan. It's time to change the future. At the Cerebral Palsy Foundation we are making a difference and increasing global awareness about the vital public health need for cerebral palsy research investment in order to improve health outcomes for people with cerebral palsy. We not only lead the way in advocating for US federal funding for cerebral palsy research, but we also advance research, care and awareness around the world. You can read more about how we started National Cerebral Palsy Awareness and the #GoGreen4CP campaign at our advocacy website www.gogreen4cp.org. Get involved! Make a difference! Today WE WEAR GREEN! Most of all though, today is about our community, and why it's so important to raise awareness about Cerebral Palsy. #GoGreen4CP - Team CPF
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Our Programme of Excellence in Ireland is in full swing! Here's an update, nearly a year into operation from The Irish Times.
Cerebral Palsy: ‘It is tough hearing that news, but it is far tougher when you have to fight for the best care for your child’
irishtimes.com
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Have you seen our latest #JustSayHi newsletter? Subscribe if you haven't!
Just Say Hi's February Update 2024
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Cerebral Palsy Foundation reposted this
We invite you to check out our JSH! October Update: "Disability Inclusion, Education, & Workforce Pipeline" -- which, being October, emphasizes the Dept. of Labor / ODEP's National Disability Employment Awareness Month (#NDEAM), and how to advance NDEAM's mission within the Education Ecosystem. Feel free to repost as an act of allyship and/or activism! #disabilityinclusion #NDEAM #DisabilityWorkforcePipeline #JSH_Heumann_Education_Advisory_Council members: Victor Calise Victor Santiago Pineda Donna R. Walton, Ed.D. Donna Meltzer Alanna Flax-Clark Nicole Homerin, M.Ed. Danielle Thompson, Ph.D., N.C.C., N.C.S.C. Emily Ladau Bonnielin Swenor Janet LaBreck Haley Moss, Esq. Alhassan Susso Yvette E. Pearson, Ph.D., P.E., F.ASCE, ENV SP Want to receive our monthly updates? Great! The more the merrier! The time is NOW to rev this disability-inclusion-in-schools engine! Sign up link is in the Update ... scroll down to the bottom.
JSH October Update: Disability Inclusion, Education, & Workforce Pipeline
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Caught up on Foundation news? If not, read the latest here or sign up at https://lnkd.in/e9zdVTub
Welcome to Fall
Cerebral Palsy Foundation on LinkedIn