Cerebral Palsy Research Network (CPRN)

The Cerebral Palsy Research Network is excited to announce this month’s webinar will be on Monday, June 24 at 8 pm ET and focused on adults with cerebral palsy (CP) and research findings about functional changes and pain. The webinar will be presented by the CP Research Network adult study co-chairs Drs. Ed Hurvitz and Mary Gannotti along with researcher and CP Research Network Community Action Committee member Ms. Jodi Kreschmer. ➡️ You can read more about this webinar, in our latest blog post here - https://lnkd.in/e2rtd9Ye Why is this webinar important? There is a lack of information about what happens to adults with cerebral palsy as they get older. Many adults with cerebral palsy and clinicians are not aware of how and why their abilities to use their arms, legs, and to communicate may change with age. We will describe some of the reasons for these changes and what questions you should ask your providers. ... Image description: A graphic with pictures of the three presenters of the webinar, smiling and ready to share their insight. #mycp #cerebralpalsy #CPRN #CPresearchnetwork #webinar #CPwebinar Cerebral Palsy Alliance Research Foundation Michele Shusterman Paul Gross

Dr. Mary Gannotti a physical therapist and researcher who co-leads our adult study group, has published a new article explaining the co-production process used to develop our adult study of wellbeing and pain that is hosted in our Community Registry. ➡️ See our blog post for more details and a link to the article - https://lnkd.in/eqbWtcmC #cerebralpalsyresearch #cerebralpalsycommunity #adultswithcerebralpalsy Image Description: Dr. Gannotti with long dark hair, a red wine colored sweater and glasses smiles while explaining her work to a mom and her adult son with CP in a wheelchair at the network's recent Annual Investigators' Meeting.

✨ Honored to see Co-Founder Michele Shusterman recognized among South Carolina's most impactful women! Thank you for paving the way for future generations. Let's celebrate her achievements and the countless other women making a difference in the state of South Carolina! ➡️ Read the article here: https://lnkd.in/es_Xd_7E #womeninbusiness #southcarolinawomen #whosonthemove #cprn #femalefounder Paul Gross

Today begins CP Awareness Month! This is a time during which we run our annual photo contest, share facts and information about cerebral palsy and invite the public to better understand our diverse community. Join us and don't forget to purchase your merch from our online store 💚💚💚 https://lnkd.in/gp7-4jAk Michele, Co-founder of the CP Research Network #cp #mycp #cpawarenessmonth #cprn #cpresearchnetwork #cparf

Today marks the opening of our Annual Photo Contest for 2024 📸 We’ve ran this for a few years now and today is the first day we open submissions. Submissions will be open until March 15th, 2024. So why is this important? And what does it mean to our community? We are so excited to give individuals of the CP community an opportunity to share their lived experiences in preparation for CP Awareness Month in March. It’s a chance to celebrate our community and shine a spotlight as well. Participants have the opportunity to win in total $1,300 of prizes and be featured in our communications and resources, to help provide our community with more information about CP 🙌 We are also specifically looking for photos of young CP teens and adults and landscape horizontal photos, so be sure to share these. To submit your photos 👉 https://lnkd.in/eBEwHrbM It’s really easy to submit your photo (or photos) and we can’t wait to celebrate our wonderful community and people. Image Description: One of the photo entries from 2023 - a young person with CP with sunglasses on smiling. #photocontest #cprnphotocontest #cpresearchnetwork #cerebralpalsycommunity #cpresearch #cerebralpalsyresearch #cerebralpalsyresearchnetwork #cerebralpalsyawareness #cerebralpalsyadvocate #cpadvocate Cerebral Palsy Alliance Research Foundation Paul Gross Michele Shusterman

On Tuesday, Feb 6 at 4pm ET, join the Cerebral Palsy Research Network's update on adult research efforts at the AACPDM's "Research Updates in Adults with CP" virtual meeting. Featuring key projects funded by Cerebral Palsy Alliance Research Foundation, this meeting is an opportunity for insights and discussions on advancing adult CP care. Joining the meeting requires pre-registration. Please join us for this important update on our efforts to improve the health and wellbeing of people with CP. Blog link to read more ➡️ https://lnkd.in/ezxzbxgr Zoom Registration link ➡️ https://lnkd.in/eF-N55sT Image Description: Photograph of the CP Research Network registry and network in a meeting and the CP Research Network logo. #CPResearch #AACPDM #AdultsAndAging #HealthcareUpdate #cpresearchnetwork #cpadvocate #CPwebinar #webinar #MyCP Paul Gross

📣 New academic research published in the Disability and Health Journal by the CP Research Network on Adults with Cerebral Palsy and Chronic Pain Experience ✨ The CP Research Network are excited to share that Cristina A. Sarmiento, MD and her co-authors have had their CP Research Network manuscript published called “Adults with cerebral palsy and chronic pain experience: A cross-sectional analysis of patient-reported outcomes from a novel North American registry”. The Disability and Health Journal released this peer reviewed article in November 2023, and this marks the CP Research Network's first publication based on an adult study launched through #MyCP in 2019. The publication describes the pain experience and its impact on function and quality of life among adults with CP who have chronic pain. It marks a tremendous milestone in furthering our understanding and sharing of adult pain research with our community. Read our latest blog post here to find out more 👉 https://lnkd.in/dyE_dHm8 Read the full academic here (full article available online until Jan 1, 2024) 👉 https://lnkd.in/dVd8-Gcy #CPResearchNetwork #CPResearch #CPacademicstudy #CPacademicjournal #CP #MyCP #CPRN Cerebral Palsy Alliance Research Foundation Paul Gross Michele Shusterman

Exciting news for the CP Research Network, as we continue to grow and support the #cerebralpalsy community - Welcome Joyce Trost, PhD, PT - we are delighted to have you onboard 🙌 💚 #cprrsearchnetwork #thecpresearchnetwork #cp #mycp #newhire #cerebralpalsyawareness #cpcommunity