A big thank you to all who attended and supported Boston's Dystonia Zoo Day. You made this a successful event helping to create awareness and give support to others. Thank you! #dystonia #dmrf
About us
Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and a network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.
- Website
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http://www.dystonia-foundation.org
External link for Dystonia Medical Research Foundation
- Industry
- Health, Wellness & Fitness
- Company size
- 2-10 employees
- Headquarters
- Chicago, IL
- Type
- Nonprofit
- Founded
- 1976
Locations
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Primary
One East Wacker Drive, Suite 1730
Chicago, IL 60601, US
Employees at Dystonia Medical Research Foundation
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Janet Hieshetter
Member at Advisory Council of the NINDS
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Margaret Knapp MLS(ASCP) CLS
Owner and Clinical Laboratory Consultant at Knapp-Frazer Consulting
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Rebecca Sharp
Residential loan originator/Commercial Loan specialist at American Mortgage Group
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Dan Lewis
Upstream Marketing Director - Cardiac Pacing Therapies, Medtronic
Updates
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Here's a quick reminder for our Long Island and NYC friends: The Long Island Dystonia Zoo Day event is just three weeks away on Sat. Sept. 14. But the deadline for ordering your T-Shirt is Mon. Aug. 26. Go here to order today: https://bit.ly/3qEojKj #dystonia #dmrf
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Indianapolis' Dystonia Zoo Day is just three weeks away. But the deadline for ordering your T-Shirt is Monday. This fun family event happens on Sat. Sept. 14 at the White River Waterfront Pavilion, next to the Indy Zoo. Go here to register and order your T-Shirt: https://bit.ly/3zyZgfN #dystonia #dmrf
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For our friends in NW Ohio, did you know that Toledo's Dystonia Zoo Day is just a month away? Make sure you register for this great family event: https://bit.ly/48oRVMH . We'll see you on Sat. Sept. 28, at 8am at the Indigo Room at the Toledo Zoo & Aquarium #dystonia #dmrf
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The Dystonia Warrior Ride is kickstands up on Sat. Sept. 21 so make sure you've registered: https://bit.ly/4cviFNe Here's the schedule for this great event: Check In & Registration: 9:30 AM Kickstands Up at 11:00 AM Start: Woodstock Harley Davidson – KSU 11:00am 2235 S. Eastwood Dr, Woodstock, IL 60098 Stop 1: 2Brothers Bar & Grill – Lunch N1161 Clover Road, Genoa City, WI 53128 Stop 2: Whiskey Ranch Bar & Grill W9002 State Road 11, Delavan, WI 53115 End Party & Bike Show: 1903 Saloon 11230 260th Avenue, Trevor, WI 53178 #dystonia #dmrf
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For everyone in northern and central Indiana, the Ft Wayne Dystonia Zoo Day event is just one month away. On Sat. Sept. 28 at 9am we'll be gathering at the Franke Pavilion outside Ft. Wayne Children's Zoo. Go here to register or donate: https://bit.ly/3AgADEQ #dystonia #dmrf
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Calling everyone on Long Island, the DMRF's Dystonia Zoo Day at the Holtsville Wildlife and Ecology Center is on Sat, Sept 14. This is a great family event and we're looking forward to seeing you there. To register or to donate go here: https://bit.ly/3qEojKj #dystonia #dmrf
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For everyone in Central Indiana the DMRF's Dystonia Zoo Day at the White River Pavilion next to the Indy Zoo is on Sat, Sept 14. This is a great family event and we're looking forward to seeing you there. To register or to donate go here: https://bit.ly/3zyZgfN #dystonia #dmrf
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Calling all our NW Ohio and SE Michigan members! If you haven't done so already, make sure you're registered and ordered your T-Shirt for Toledo's Dystonia Zoo Day on Sat. Sept. 28 at the Indigo Room at the Toledo Zoo and Aquarium. We are about a month away from this year's Dystonia Zoo Day so if you're not registered or haven't ordered your T-Shirt, click this link https://bit.ly/48oRVMH and do so today! #dystonia #dmrf
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Mark your calendars for Sat, Oct 5 to connect with others in the dystonia community! From North Pole, AK to the FL Keys, the DMRF Virtual Zoo Day is an event EVERYONE can participate in. Hear from dystonia experts; learn more about relaxation techniques and the importance of support. Plan on joining in and connecting with others during this event that is designed for you. Registration isn't required, but it is encouraged. And if you want to order a VZD T-Shirt follow this link: https://bit.ly/3ZqhHMq #dystonia #dmrf
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