EB Research Partnership

Have friends in Sydney? Get them to the EB Match Day with the GWS GIANTS 🦋 👊 🧡 Learn more here: https://bit.ly/EBRP_GIANTS

🚀 Moving the needle for EB and beyond 🚀 We're proud to share that as of 2023, EBRP directly funded over 50% of the active EB clinical trials. 🌟 Together, we are accelerating progress towards a cure for EB. And thanks to our #VenturePhilanthropy model the impact of every dollar donated to EBRP can be multiplied many times over. Let's keep the momentum going! 💙 Learn more and support this progress: https://lnkd.in/ewcNsrcg #CureEB #EBResearch #ClinicalTrials #ImpactReport #MedicalResearch

🌟 2023 Financial Summary: Empowering Research and Partnerships 🌟 At EB Research Partnership, transparency and accountability are at the heart of how we work. We have the highest independent charity ratings, including 4 Stars from Charity Navigator and a Platinum rating from Guidestar. We are proud to share our 2023 Financial Summary, highlighting our commitment to urgency and efficiency in finding a cure for Epidermolysis Bullosa (EB). These numbers reflect our unwavering dedication to advancing research and supporting the EB community. Every dollar contributed brings us closer to a world where no child suffers from EB. Thank you to all our supporters, partners, and donors for making this possible. Together, we are making a difference! #FinancialReview #EBResearchPartnership #ImpactReport #NonprofitFinance #TogetherForACure

Join us for our inaugural EBRP Town Hall on Tuesday August 20th! 🎉🦋 This is your chance to connect with the EB community, learn about the research we're funding and ask your questions to Team EBRP & leading experts in the field. This time we’ll be joined by Anthony Oro, MD, PhD, who is the Associate Director of the Center for Definitive and Curative Medicine at Stanford University School of Medicine. Tony and his team are dedicated to bringing treatments and cures to the EB community. We have proudly funded innovative #stemcell and #geneediting projects they have been working on for years. RSVP and submit your questions here: https://lnkd.in/ebEZDZqU 📆 WHEN: Tuesday, August 20 at 3PM ET 🧐 WHAT: A live Town Hall with Anthony Oro, MD, PhD, leading EB researcher from Stanford, and Michael Hund, CEO of EBRP 🎥 WHERE: Virtually hosted by EBRP 🦋 WHY: To learn more about Anthony Oro's exciting EB research

📢 📢 Announcing the Launch of Our 2023 Impact Report! 📢📢 With your generous support in 2023, EBRP achieved a record-breaking year! We raised over $8 million to fund 18 innovative research projects across 5 countries. 🌍💙 From gene therapies to curative medicine, our work is accelerating cutting-edge science to cure all forms of EB. Since 2010, we’ve raised over $60 million and funded more than 140 projects, transforming the EB clinical trial landscape. 🚀 🚀 Donate today to support us in our mission to cure EB by 2030 and read the full report here: https://lnkd.in/ewcNsrcg #EBResearch #ImpactReport #CureEB #InnovativeResearch

At the 2nd annual #VentureIntoCures in 2021, Mayim Bialik interviewed Dr. Jean Tang and Dr. Andy South who are working to find a cure for Epidermolysis Bullosa. Since then we've made remarkable progress on our mission towards a cure, including two FDA approved EB treatments. Our goal is to cure EB by 2030. Help us reach that goal by making a donation to life-saving research at https://lnkd.in/ezsMBCfM

RESEARCH HIGHLIGHT 🦋🧬💥 🤯Although miniature, simplified versions of organs grown in a lab sound like science fiction, they are a cutting-edge approach being used right now in a project we funded! 🤯🤯🤯 Using organoids could mean faster and more reliable drug development, with fewer risks and side effects for patients. We're proud to fund partners at the Institut Imagine for Genetic Disease to help advance this potentially life-changing innovation. Learn more about this project and all of the research we have funded at ebresearch.org/our-impact Araksya Izmiryan Matthias Titeux Alain Hovnanian #RareDisease #Genetics #Research

🌟 Ready to make a difference and have fun while doing it? 🌟 From lemonade stands and bake sales to golf outings and galas, there are endless ways to get #EBActive! Use your skills and talents to create a unique event to benefit EBRP, spread EB awareness, and engage your local community. Whether you’re running, cycling, or hosting an event, every effort helps us get closer to finding a cure for Epidermolysis Bullosa. Join the #EBActive movement today and turn your passion into impact. Learn more at https://lnkd.in/exvkgeWh #EBResearch #FitnessForACause #JoinTheMovement #CommunityAction

Zendaya knows a true superhero when she sees one. Fighting spirit, courage, and a will to make the world a better place, these are the qualities of a superhero. And in this case, her name is Novelette Munroe. 🦋 🦋🦋 Together, we can make the world a better place for those like Novelette who live with EB by supporting critical research to find treatments and a cure. Donate to life-saving research at https://lnkd.in/eMxGpBpy

Our CEO, Michael Hund, had the pleasure of speaking with the Yale School of Management community in the latest Yale Ventures #Startup Speaker Series. In this session Michael covered the principles he learned in the Flint Hills of Kansas that guide his personal and professional life to the principles of our #VenturePhilanthropy model that drive impact at EB Research Partnership. Read more takeaways from the session here: https://bit.ly/MHundYale