EKPF - European Kidney Patients' Federation

🎬 We’re excited to present the KitNewCare project video! Explore he innovative solutions we are pioneering to kidney healthcare, making it more sustainable for the environment. This video highlights our commitment to creating a greener future and the strength of our consortium's collaboration. 🤝 🌍 Check out the video at https://kitnewcare.eu/ and see how we’re transforming kidney care!

🌟 Enhance patient care and quality of life is crucial for patients affected by Chronic Kidney Disease-associated Pruritus (CKD-aP).   Let's bridge the knowledge gap and empower patients to report their experiences. By prioritising patient voices, we can gain invaluable insights into the challenges they face and tailor solutions accordingly.   Connecting patients with a platform to voice their experiences is key to know valuable insights to improve patient care and well-being.   Let’s work together to advocate for progress and drive meaningful change in CKD-aP management! https://bit.ly/3J3n5hc

KREW Camp 2024 in Den Helder, Netherlands, was a truly unforgettable experience! 🌟 From June 21-28, 30 children from six different countries came together for a week filled with fun, learning, and cultural exchange. We had an action-packed schedule that included swimming, visiting the Maritime Museum (complete with a submarine tour), cycling around the beautiful city of Den Helder, and playing mini-golf. 🚴♀️🏊♂️⚓️ What makes KREW Camp so special is the inclusive and supportive environment we create. This year, we were proud to accommodate a child undergoing dialysis, ensuring that everyone could fully participate and enjoy the camp. Each evening, we celebrated a different country’s culture, which not only entertained us but also taught us about each other's traditions, fostering a spirit of unity and understanding among the participants. 🌍❤️ One of the most important aspects of KREW Camp is the opportunity for adolescents with kidney disease to meet others who are going through similar experiences. These connections are invaluable, as they empower the teenagers by showing them they are not alone in their journey. Through shared experiences and mutual support, these children gain confidence and build lasting friendships. 🤝💪 Our exceptional accommodation provided the perfect base for our adventures, and the incredible weather allowed us to maximize our outdoor activities. ☀️ We couldn’t have achieved this without the cooperation of Nierpatiënten Vereniging Nederland and the generous support of our Premium Sponsors. We’re committed to continuing this tradition, providing a space where children with kidney disease can create lasting memories and forge new friendships. Here’s to many more incredible KREW Camps in the future! 🏕️ Premium Sponsors Astellas Pharma AstraZeneca Alnylam Pharmaceuticals CSL Vifor Novartis Official Sponsors Diaverum Boehringer Ingelheim Takeda

Receiving a diagnosis of kidney cancer is a delicate experience that can trigger a flood of emotions. 😔 In these moments, clarity and understanding are more important than ever. Most patients and their families find themselves in unfamiliar territory, lacking sufficient information about the disease and often facing medical language that can be complex and confusing. 🤔🩺 Therefore, it is vital for healthcare professionals to use adapted, simple, and understandable medical language. Learn about Charlotte's story with kidney cancer. #WorldKidneyCancerDay

📢 Ever wondered about the complexities of Chronic Kidney Disease-associated Pruritus (CKD-aP)? Gaining a deeper insight into the complex pathways of CKD-aP is essential to prevent, manage, and treat its underlying factors effectively. In this effort, stakeholder collaboration lies at the heart of a CKD-aP transformative journey. Joining forces to address impactful research initiatives forward is a priority for patient’s future 📢 By forging strategic partnerships, we can unlock transformative breakthroughs in CKD-aP research and treatment. Let’s be united and work together to mitigate the impact of this challenging condition on patient’s lifes! https://bit.ly/3J3n5hc

⭐KREW Camp Kicks Off in Den Helder⭐ This Friday marked the beginning of the KREW Camp in Den Helder, ⛺️gathering participants from six countries: Spain, Portugal, Greece, the Netherlands, Poland, and Finland. A total of 30 teenagers👧 have joined this exciting event, which promises to be full of adventure and cultural exchange. 🎊The participants have already enjoyed a variety of activities, including biking, visiting the sea, tasting local foods, and celebrating Portuguese and Finnish tradition nights. These activities have provided opportunities for the teenagers to bond and learn about each other's cultures in a fun and engaging way. Many more exciting activities are planned for the coming days. The group will visit Amsterdam, explore the maritime museum, take boat rides, and see the traditional Dutch windmills. Additionally, the participants are benefiting from excellent weather, making the most of the hostel and its surroundings. The hostel features amenities such as hammocks, a volleyball net, and scenic bike paths, ensuring a comfortable and enjoyable stay for everyone involved.👏

💫Today is World Kidney Cancer Day, an opportunity to raise awareness about this disease and support those who face it every day 💪. Behind every case, there is a story, and today we bring you closer to Gilbert’s. #WorldKidneyCancerDay

📢 Are you aware that Chronic Kidney Disease affects millions of patients globally and that CKD-aP is a common symptom that they face? However, awareness and treatment remain inadequate.    Elevating policy awareness is imperative to drive meaningful change in CKD-aP care, sharing valuable insights into the daily challenges faced by CKD-aP patients.    Let’s advocate for a health systems and policies that prioritise the needs of CKD-aP patients, ensuring a brighter and more inclusive future for all. 🤝  https://bit.ly/3J3n5hc 

🗣️ People affected by Chronic Kidney Disease-associated Pruritus (CKD-aP) face substantial challenges. Underdiagnosing and underreporting are two of them.    To tackle them, we need a comprehensive strategy! Let’s team up with medical associations to spread awareness and advocate for routine screening consultations, helping to overcome communication gaps and provide patients with the information and support they need.    Let's empower healthcare professionals and patients, ensuring no one faces CKD-aP alone!💪   https://bit.ly/3J3n5hc  

The 77th session of the World Health Assembly took place this week in Geneva, organized by Devex in collaboration with the World Health Assembly.📌 Daniel Gallego, President of the European Kidney Patients Federation (EKPF), participated in the roundtable: “Fireside Chat: Ensuring Access to Life-Saving Treatments for CKD”. 🗣 During this event, the urgent need to improve access to vital treatments for chronic kidney disease (CKD) has been addressed, emphasizing awareness, improving diagnosis, and ensuring access to quality care.