Huntington's Disease Society of America

HD Advocates are preparing for the HDSA August Congressional Recess In-District Meeting Campaign. To help in the preparation, HDSA will be holding a training webinar on Wednesday, July 10 at 6: 30 p.m. ET and again at 5:30 p.m. PT. Join us and learn how HDSA and HD advocates can help raise awareness and demand access to quality health care and equitable financial support for HD families. • Register for 6:30 ET here: https://lnkd.in/e6z7HDqX • Register for 5:30 PT here: https://lnkd.in/ebuhp9U8 You can also participate in the HDSA Externally-led Patient Focused Drug Development (EL-PFDD) Meeting for Pre-symptomatic and Early to Mid-Stage Adult Onset of HD, on November 13, 2024. Information on this meeting and how to register will be available at the HDSA advocacy hub later this month. #LetsTalkAboutHD

The 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together in Spokane, WA, May 30 - June 1, 2024. The Opening Ceremony is now available on our YouTube channel. Check it out by using the url below: https://lnkd.in/eubV-ENk

At the 39th Annual #HDSAConvention Community Awards Luncheon we had the opportunity to recognize a Chapter who has gone above and beyond to raise awareness about HD through various initiatives. Their commitment and dedication to raising awareness and fostering understanding has made a profound difference in and round their state. Congratulations to the 2024 HDSA Let's Talk About HD Award recipients, the Michigan Chapter!

aloha kaiaulu! Check out the latest installment of the HDSA Research Blog! #LetsTalkAboutHD📚💡 Share your thoughts, spread the word! 👉Click the link below!👇 https://hdsa.org/blog

At the 39th Annual #HDSAConvention Community Awards Luncheon we had the opportunity to recognize a Chapter who not only utilizes creative efforts to fundraise but also takes pride and joy in bringing the community and HD family members together. This highly motivated and resourceful group had a successful year. Congratulations to the 2024 HDSA Outstanding Achievement in Fundraising Award recipients, Greater New York Chapter! #OneHDSA #LetstalkaboutHD #HDSAFamily #familyiseverything #Huntingtonsdisease

Celebrate your special day (and other anniversaries!) by making a difference in the world and helping to make a difference in the fight against Huntington's disease. Create a Facebook/Instagram Fundraiser and join us in our mission. Let’s stand together to raise awareness and support those affected by HD. #HDawareness #HDSA #FamilyIsEverything #Huntingtonsdisease

Thank you Huntington's Disease Society of America for the space and this incredible research opportunity! It was amazing to see this group come together to work towards a common goal to better understand HD. This was HDSA’s 39th convention, and this year we saw promising technology and remote applications within the field. Thank you to everyone who made this event happen, and a very special thanks to all of the participants we saw over the 3 days!! Couldn’t do any of this without you!

Account Manager Paula Cohen attended Yoga in the Park in Michigan to support the Huntington's Disease Society of America Foundation. Margot’s European Day Spa was a sponsor of the event, which was held at Shain Park in Birmingham, Michigan. The event featured Ursula Froehlich, Alina Smirnov, and Merita Berisha.

An Alnylam team took steps to raise funds for the Huntington's Disease Society of America —literally. 👣 With kids in tow, colleagues participated in Team Hope Walk last weekend on Castle Island in Boston. We’re raising awareness about this devastating #RareDisease. Learn more about #HuntingtonsDisease: https://hdsa.org/

This past Saturday, Atalanta employees, friends, family, and pets came together in Boston for the MA & RI HDSA Chapter “Team Hope Walk". Team Hope Walk is the largest fundraising event for The Huntington's Disease Society of America in the US. It was a wonderful opportunity to provide support for today and inspire hope for tomorrow. #HDSA #AtalantaTX