Hydrocephalus Association

Calling all enthusiastic community members! Join us on #WorldHydrocephalusDay, Friday, September 20th, at The Today Show Plaza. We are aiming to create as much attention as possible and hopefully snag some on-camera time. Your presence and energy can make a huge difference! Sign up using this form and we will get you connected with our group. https://ow.ly/cvOH50ThQTB

This Hydrocephalus Awareness Month, make a big impact by asking your members of Congress to join the #Hydrocephalus Caucus! Let’s raise our voices and make a difference together! #HAM2024 https://lnkd.in/exCma7cf

School’s back, and we want to make sure teachers have what they need to support our kids with #hydrocephalus. That’s why we’ve put together customizable Teachers' Guides to help them understand the unique challenges our kids might face. Let’s make sure every child gets the support they need to thrive. Download the right guide for your child’s grade and share it with their teacher today! #BackToSchool #HAM2024 https://lnkd.in/gJUxqGyW

A record-breaking $14 million grant is fueling groundbreaking research into idiopathic normal pressure hydrocephalus (iNPH)! This historic trial, the first of its kind, is set to revolutionize the way we understand and treat adult #hydrocephalus. Curious to learn more? Dive into the details of this incredible study and its potential to transform lives! #HAM2024 🔬https://lnkd.in/gtgSjNWk

🌟 Don't miss out! Join us for our next Advocacy Update tomorrow, September 4th, at 7:00 pm Eastern. If you haven’t signed up yet, there's still time—click below to register! https://lnkd.in/g4yQXGUx

Did you know? Hydrocephalus is the most common reason for brain surgery in children. Kids like Aiden, who has bravely undergone 23 brain surgeries, inspire us every day. Let’s spread awareness and support those living with #hydrocephalus. Learn More: hydroassoc.org/ham2024 #HydrocephalusAwareness #HAM2024

Hydrocephalus Awareness Month is the perfect time to educate everyone about this condition. Watch this video that simplifies what #hydrocephalus is, showcases treatment options, and highlights key symptoms to watch for. Be sure to share it with everyone you know! 💙 #HAM2024 https://lnkd.in/enYaQw_V

🔬In the past year, we awarded funding to 7 researchers for projects that align with our community’s top research priorities. This year, we're expanding our efforts with an unprecedented number of awards, including our continued Innovator Awards, as well as new awards focused on neuropsychology and cognition, epidemiology, engineering, and accelerating research. Meet our 2023 Innovator Award recipients: https://lnkd.in/ec6kzmM8 #HAM2024 #Hydrocephalus #HydrocephalusResearch

What a great start to Hydrocephalus Awareness Month #HAM2024! 💙 We have so much to share this month, including World Hydrocephalus Day on September 20. We stand together to support the millions impacted by #hydrocephalus worldwide. Whether you're a patient, a caregiver, a healthcare professional, or an advocate, your voice matters. Join us in raising awareness, fostering understanding, and pushing for better treatments and care. Share our stories, spread the word, and help us make an impact. Let’s honor the strength and resilience of the hydrocephalus community and drive change together. Learn more and get involved: https://lnkd.in/ebYFPviw

Meet Gary Chaffee, whose life was profoundly altered by #NPH, leading to disability and uncertainty. Despite enduring years of vague symptoms and frustration, Gary's unwavering perseverance and the eventual diagnosis paved the way for transformative change. Immediately after receiving a shunt, he experienced a dramatic improvement in his quality of life, proving that even after many years, hope and resilience can lead to a brighter future. #HAM2024 https://lnkd.in/eYujp8Vq