Dr. Saad Z. Usmani (Memorial Sloan Kettering Cancer Center) first took interest in myeloma as a fellow in training in Connecticut when he realized how few treatment options there were for his patients with #myeloma. He joins us this fall for the IMF's Iceland Cycling Expedition after one of his myeloma patients a few years ago encouraged him to be part of endurance fundraisers to raise money for myeloma research. Support ICE: https://mmsm.link/3UBoPoD #MyelomaICE #mmsm
International Myeloma Foundation
Non-profit Organizations
North Hollywood, CA 7,922 followers
Improving Lives, Finding the Cure.
About us
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy. The IMF has conducted more than 250 educational seminars worldwide, maintains a world-renowned InfoLine, and in 2001, established the International Myeloma Working Group (IMWG), a collaborative research initiative focused on improving myeloma treatment options for patients. In 2012, the IMF launched the Black Swan Research Initiative®, a groundbreaking research project aimed at curing myeloma. The IMF can be reached at (800) 452-CURE (2873). The global website is www.myeloma.org. Follow the IMF on Twitter @IMFmyeloma.
- Website
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http://www.myeloma.org
External link for International Myeloma Foundation
- Industry
- Non-profit Organizations
- Company size
- 11-50 employees
- Headquarters
- North Hollywood, CA
- Type
- Nonprofit
- Founded
- 1990
- Specialties
- Myeloma Research, Myeloma Education, Myeloma Support, and Myeloma Advocacy
Locations
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Primary
12650 Riverside Dr Ste 206
North Hollywood, CA 91607, US
Employees at International Myeloma Foundation
Updates
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The #MyelomaMinute is out! Read and subscribe to your top source of myeloma news and info. This week we feature upcoming events, the Iceland Cycling Expedition, and IMF Chief Medical Officer Dr. Joseph Mikhael explains why clinical trials are crucial for advancing multiple myeloma treatments. https://lnkd.in/g-xNHC3p
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A letter from Carri: When my loved one was first diagnosed, I felt angry because our relationship wasn't healthy at that time, and we were on the verge of going our separate ways. Once he was diagnosed, I felt compelled to stay to support him but was still angry that I was in the position of having to choose based on circumstances. When I first joined a support group, I felt like it was a waste of my time because I'm not a patient. What help did I need???? 🤦 I became a support group leader because my partner wanted to attend a support group for #myeloma but there were none in our area - so we started one. As a support group leader, I learned that there's no wrong way to support others - they simply want to be heard and understood. To me, being a support group leader means creating a space where our members can speak freely, and giving them the opportunity to release some emotions, share their updates (good or bad), and feel supported beyond just their care team. The International Myeloma Foundation’s Support Group Leaders Summit empowers me to connect with other support group leaders and get new ideas on how to grow our group and make the biggest impact on our members. Because of the International Myeloma Foundation, I feel SEEN because, as care partners, we often have to put our wants and needs aside for our loved ones. The IMF understands the ripple effect of myeloma and encourages support of the entire family dynamic, not just the patient. Raising money to support the International Myeloma Foundation is important to me because, without it, they couldn't offer such valuable resources to patients (and their families) around the world. Donate to the IMF and help empower patients and care partners: https://mmsm.link/3KZCa4m
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When Nancy Bruno's husband was diagnosed with myeloma in 1998, doctors gave him 2 years to live—but after learning about the IMF and joining a support group, he lived for 12 years with the disease. This fall, she's setting out to cycle through Iceland with the IMF with a goal—cure multiple myeloma. #MyelomaICE #cancer #bloodcancer #cancerresearch #myelomaresearch #mmsm #oncology #hematology #myeloma #multiplemyeloma #InternationalMyelomaFoundation #hemeonc #cancersupport #nonprofit #cycling #Iceland #bloodcancerresearch #IMFBSRI #cycling
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Join us for the Hole in One for Multiple Myeloma Golf Tournament on 8/12 in Jackson, NJ! Enjoy games, prizes, a buffet luncheon, & a reception, all to raise funds for myeloma research. Thanks to sponsors Hallen and StarLo. https://mmsm.link/3xNJAoh
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Nancy Bruno, IMF's Director of Support Groups, embarks on a cycling journey through Iceland to conquer the terrain with determination and resilience in hopes of a cure for #myeloma. #MyelomaICE
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"Myeloma Made Simple" is a video series brought to you by the International Myeloma Foundation. In each episode, IMF Chief Medical Officer Dr. Joseph Mikhael tackles a range of complex topics about #multiplemyeloma. https://lnkd.in/gNmqVCpR
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Thank you to myeloma patient and advocate Kent Oliver for bringing together over a thousand people at the Laughs 4 Life Hattiesburg event on 7/26, supporting the International Myeloma Foundation and other local nonprofits! Kent truly embodies the impact a fundraising effort can have to benefit the International Myeloma Foundation and the myeloma community at large by funding critical myeloma research that brings the IMF closer to its goal: a world without #myeloma Kent Oliver Yelak Biru, MSc Sylvia Dsouza, MPA
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Discover the emotional and practical aspects of the journey of undergoing CAR T-cell therapy from Jerry and Jill Schock's perspective. Thank you to Bristol Myers Squibb for supporting these patient stories. https://lnkd.in/gD49K6MC
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Nancy Bruno, IMF's Director of Support Groups, embarks on a cycling journey through Iceland to conquer the terrain with determination and resilience in hopes of a cure for myeloma. Watch the full interview now to find out why she's making the trip: https://lnkd.in/gX3y3guK #MyelomaICE #mmsm