Today, we’re celebrating the greatest love of all: the love Vicki and Fred Modell had for each other, and the love they shared for their son, Jeffrey. While Vicki Modell is no longer with us, her memory and the incredible journey she and Fred shared continue to inspire us. Today, we honor their enduring legacy and the love that shaped the Jeffrey Modell Foundation. ❤️ Here’s to a lifetime of love and the beautiful mark they left on the world. Happy anniversary, Vicki and Fred!
Jeffrey Modell Foundation
Non-profit Organizations
New York, NY 1,433 followers
Curing PI Worldwide 🌍❤
About us
The Jeffrey Modell Foundation (JMF) is a global nonprofit dedicated to early diagnosis, meaningful treatments, and ultimately, cures for Primary Immunodeficiency (PI) through awareness, advocacy, and research. Vicki and Fred Modell established JMF in 1987 in memory of their son, Jeffrey, who died at the age of 15 due to complications from Primary Immunodeficiency (PI). PIs are a group of more than 450 genetic disorders of the immune system that are chronic, serious, and often fatal. PIs affect an estimated 10 million people worldwide. To date, JMF has established a global centers network including over 900 physicians at 402 medical institutions in 87 countries, funded millions of dollars in innovative research for treatments and cures, implemented newborn screening programs in the United States and abroad, and spearheaded a genetic sequencing initiative called Jeffrey's Insights with a goal of 10,000 patients sequenced. Additionally, JMF's awareness-raising activities have reached millions around the world, encouraging early diagnosis and improved quality of life. Join our mission to #CurePI worldwide. Learn more on our website at https://www.info4pi.org.
- Website
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http://info4pi.org
External link for Jeffrey Modell Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- New York, NY
- Type
- Nonprofit
- Founded
- 1987
- Specialties
- advocacy, research, education, and awareness
Locations
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Get directions
New York, NY 10017, US
Employees at Jeffrey Modell Foundation
Updates
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Did you know that #NewbornScreening for #SCID has helped improve long-term health outcomes worldwide? The earlier you are diagnosed, the quicker you can begin the treatment process 💪. Early #diagnosis helps save lives! ❤️🩺 #NewbornScreeningMonth #NewbornScreeningAwarenessMonth #NBSMonth #NBSAwarenessMonth
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Did you know that 21 countries are currently conducting Newborn Screening for Severe Combined Immunodeficiency (#SCID)? 🔍🌏 Our founders, Vicki and Fred Modell, spearheaded efforts to require #NewbornScreening SCID in the United States for several years in Washington D.C. Due to their efforts, #NewbornScreening for SCID is implemented in all 50 states, Washington D.C., Puerto Rico, and the Navajo Nation. We continue to advocate for SCID screening worldwide because early diagnosis saves lives! Has your country implemented newborn screening for SCID? 🤔 #NewbornScreeningAwarenessMonth #NBSMonth #NBSAwarenessMonth #Immunology #PrimaryImmunodeficiency #SevereCombinedImmunodeficiency #NewbornScreeningMonth
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Today kicks off Newborn Screening Awareness Month! For years, our founders, Vicki and Fred Modell, lobbied in Washington D.C. to add Severe Combined Immunodeficiency #SCID to the federal #NewbornScreening panel. They appeared before the US Congress and continued to advocate, determined to help and educate as many families as possible. Finally, in 2018, #NBS for SCID was implemented in all 50 states, Washington D.C., Puerto Rico, and the Navajo Nation. Nearly 42 million babies have been screened in the United States alone! ❤️🌎 Stay tuned this month for more updates and stories about our #NewbornScreening efforts worldwide! #NewbornScreeningAwarenessMonth #NBSMonth #NBSAwarenessMonth #Immunology #PrimaryImmunodeficiency #SevereCombinedImmunodeficiency
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Donating #plasma helps countless people living with PI to stay healthy and strong 💪 Click here to find a plasma donation center near you and give the gift of LIFE: https://bit.ly/3W6Ia1Q #DonatePlasma #Immunology #PrimaryImmunodeficiency #RareDisease
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Meet Aubrey, a #CVID warrior! 💪 After being diagnosed at age 19 due to extreme sickness her freshman year of college, Aubrey began biweekly #SCIG infusions. Her treatment has allowed her to live a fulfilling and happy life, and she wants to inspire others with #PrimaryImmunodeficiency to do the same. ❤️ Check out Aubrey’s website (Aubreywithgrace.com) and her podcast appearances on her Instagram @aubrey.johnston to learn more about her story! Click here to read our latest blog post featuring Aubrey: https://bit.ly/473Rya8 #Immunology #PIStrong #RareDisease #RaiseAwareness
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#PIFact: There are more than 450 types of Primary Immunodeficiency, and the severity of the disorder can vary widely. This can affect how early PI is detected, with some cases not being identified until adulthood. Which form of PI were you diagnosed with? #Immunology #ImmuneDeficient #RareDisease
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Many patients endure a lengthy journey from the onset of symptoms to receiving an accurate diagnosis. This period of time is known as the Diagnostic Odyssey. People living with a Primary Immunodeficiency may experience a wide range of different symptoms, making it difficult for doctors to recognize and properly diagnose. Swipe to learn more about the #DiagnosticOdyssey Find an expert immunologist near you: https://bit.ly/4bhGwPY 🌍💖
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#NewbornScreening Awareness Month is coming up! 👣 Raising awareness for Newborn Screening, especially for #SCID, is crucial. Check back in September for more information on JMF’s global efforts to achieve this💪 #NBSAM #Immunodeficiency #PrimaryImmunodeficiency #Awareness #chronicillness #NBS
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Vicki Modell's legacy lives on forever through the Jeffrey Modell Foundation. 💙 Her vision and dedication continue to inspire us to improve the lives of those with #PrimaryImmunodeficiency through knowledge and science. We will continue to honor her memory by working together to create a brighter future for all. ✨
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