Raise awareness of #LennoxGastautSyndrome in your community with a custom LGS Awareness Yard Sign! Check out our Yard Signs: How To Guide for any easy step by step guide to personalizing and ordering your sign today: 👉 https://ow.ly/awNV50SX5yB 👈 Thank You to Our International LGS Awareness Day Partners: Jazz Pharmaceuticals, Longboard Pharmaceuticals, UCB, Takeda Pharmaceuticals, and Assertio Pharmaceuticals. #LGSAwareness #EpilepsyAwarenessMonth
Lennox-Gastaut Syndrome (LGS) Foundation
Non-profit Organizations
San Diego, California 1,750 followers
Standing Together. Stronger Together.
About us
The Lennox-Gastaut Syndrome (LGS) Foundation Is A Nonprofit Organization Dedicated To Improving The Lives Of Individuals Impacted By LGS Through Advancing Research, Awareness, Education, And Family Support.
- Website
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http://www.lgsfoundation.org
External link for Lennox-Gastaut Syndrome (LGS) Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- San Diego, California
- Type
- Nonprofit
- Founded
- 2008
Locations
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Primary
6030 Santo Rd
Suite 1, Unit 420878
San Diego, California 92124, US
Employees at Lennox-Gastaut Syndrome (LGS) Foundation
Updates
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Get your Official LGS Awareness Apparel today and help spread the word about Lennox-Gastaut Syndrome during International LGS Awareness Day and Epilepsy Awareness Month! 🌍💜 There are a variety of colors and styles available... We even have youth and hoodie options! Join us in showing support and raising awareness. Every purchase counts! 🔗 Shop now at https://lnkd.in/eJiyeVVY Thank You to our International LGS Awareness Day Partners: Jazz Pharmaceuticals, Longboard Pharmaceuticals, UCB, Takeda Pharmaceuticals, and Assertio Pharmaceuticals. #LennoxGastautSyndrome #LGSAwareness #EpilepsyAwarenessMonth
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Be Bold and join us at the biggest night of the year! 🎉 The LGS Awareness Dinner is on Saturday, November 2nd, at the Harbor View Loft in San Diego, CA. “Life is filled with profound moments – some filled with joy, others filled with pain and struggle. Yet even in those darkest moments, we have the resilience to transform suffering into growth. Each day presents an opportunity to live boldly and embrace every experience as a change for deeper connection and wisdom.” – Kathy Leavens, Mom to Matthew, Senior Director of Programs The evening will feature a silent auction and cocktail reception, seated dinner, inspirational program, exciting live auction, live entertainment, and more. You don't want to miss it! 👉 Learn More & Get Your Tickets at https://lnkd.in/dbmiTWFd #LGSAwareness #LennoxGastautSyndrome #StandingTogether #StrongerTogether #BeBold
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Lennox-Gastaut Syndrome (LGS) Foundation reposted this
Join us tonight for our Transition of Care webinar! https://lnkd.in/g2WsEAiQ
Join us TONIGHT! Epilepsy Alliance America is excited to partner with member organization Epilepsy Advocacy Network to bring you this Transition of Care webinar. Governmental resources to consider and medical transition from pediatric care are just some of the subjects we’ll cover. We’re looking forward to seeing you there! https://lnkd.in/g2WsEAiQ
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🌟2024 LGS Awareness Apparel is now available!!🌟 By ordering and wearing your official LGS Awareness Apparel, you're helping raise awareness of Lennox-Gastaut Syndrome around International LGS Awareness Day and Epilepsy Awareness Month! 🌍💜 Let's stand together, wear our support, and shine a light on LGS. Every purchase makes a difference! 🔗 Order now at https://lnkd.in/eJiyeVVY #LennoxGastautSyndrome #LGSAwareness #EpilepsyAwarenessMonth
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📚✨ Happy National Book Lovers Day! 📚✨ Did you know that some amazing books have been written by members of our LGS community? Today is the perfect day to check them out! #NationalBookLoversDay #LennoxGastautSyndrome #Epilepsy Please note that the LGS Foundation does not endorse any of these books; we are sharing to show our pride in this amazing, resilient, and talented LGS Community.
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Raise awareness in your community this International LGS Awareness Day and Epilepsy Awareness Month with a custom LGS Awareness Yard Sign! 💜 Follow these simple steps to design, customize, and display your sign year after year: https://lnkd.in/ehJ_3YGE Join us in spreading the word and supporting those impacted by #LennoxGastautSyndrome. Together, we can make a difference! 🌟 #EpilepsyAwarenessMonth #LGSAwareness
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We are SO excited about Emmy Award winner Ben Decter and Tony Award nominee Kristin Hanggi's new heartfelt musical - It's All Your Fault, Tyler Price! It follows Jackson, a middle school boy with big feelings who's in big trouble after punching his bullying classmate, Tyler Price, for mocking Jackson's sister, Lucy. Lucy, who attends the same school's special day class, has epilepsy, Lennox-Gastaut Syndrome, and related learning challenges. This powerful production will raise awareness of #Epilepsy and #LennoxGastautSyndrome (LGS). Join us in celebrating this inspiring story and help us spread the word! 🔗 Read More: https://ow.ly/OEC750SP6at 🔗 Buy Tickets: https://ow.ly/MG3N50SQlz1 #LGSAwareness #Musical #LosAngeles
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The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center for all! 💜 Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive Care Center will benefit the patient and family, allowing them to connect with knowledgeable experts and form a bridge to their local care provider when complex issues arise. 👉 Learn more and locate a comprehensive care center at https://lnkd.in/ec43qXeu #LennoxGastautSyndrome #SeizureSafety #Seizures #ComprehensiveCare
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Lennox-Gastaut Syndrome (LGS) Foundation reposted this
The resilience of the rare disease community shines bright in this podcast by Patient Worthy. A few days after disappointing news for the Lennox-Gastaut Syndrome (LGS) Foundation Syndrome (LGS) Foundation and community, Dr. Tracy Dixon-Salazar recorded this podcast with us where she talked about the importance of working together to achieve the common goal of bringing meds to those who need them. 💪💪
At Ovid, our mission is to conquer epilepsies and brain conditions with courageous science. This ambitious goal can only be achieved by keeping patient communities at the center of our efforts. In the latest episode of Patient Worthy’s podcast “Wait, How Do You Spell That?”, Ovid’s Chief Strategy Officer, Meg Alexander, and Executive Director of the Lennox-Gastaut Syndrome (LGS) Foundation, Dr. Tracy Dixon-Salazar, discuss the vital role patient advocacy groups play in the drug development process and shaping a company culture. The episode delves into how these communities are more than just stakeholders – they are our thought partners. From helping us determine the best formulation to shaping endpoint goals, their insights are integral to our approach. Tune in to learn more about Ovid’s differentiated pipeline and how collaborative relationships help us pave the way for breakthrough treatments that patient communities like Tracy’s truly deserve. https://lnkd.in/eCDzYJEP #Epilepsy #Podcast #PatientAdvocacy
Epilepsy and Unmet Need, feat. The LGS Foundation and Ovid Therapeutics | Wait, How Do You Spell That? A Rare Disease Podcast
waithowdoyouspellthatraredisease.podbean.com