Our Provider Directory is designed to connect individuals with experienced physical, occupational, and massage therapy professionals specializing in Lipedema. Each therapist listed has self-reported their qualifications based on their certification and experience in this field. As we move forward, our goal is to expand this directory to include a broader range of professionals, ensuring that those affected by Lipedema have access to comprehensive care and support. bit.ly/49Oa9GS
Lipedema Foundation
Research
Greenwich, Connecticut 2,524 followers
Defining the Lipedema Research Space -- Finding a Diagnostic Test to enable rigorous research and helpful treatment
About us
The Foundation's Mission is to Define, Diagnose and Develop Treatments for Lipedema. The Foundation aims to accomplish this by supporting collaborative research that addresses the basic biology, genetics, and epidemiology of the disease. The Foundation's Values include: Transparency – the Foundation strives for an open and active discussion with and amongst grantees Collaboration – the Foundation stresses the importance of collaborative research Community – the Foundation favors efforts that will build and leverage a patient-researcher community The Lipedema Foundation is not a medical provider and shares content for informational purposes only. Consult a healthcare professional about medical advice.
- Website
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https://www.lipedema.org
External link for Lipedema Foundation
- Industry
- Research
- Company size
- 2-10 employees
- Headquarters
- Greenwich, Connecticut
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Scientific Research, Medical Research, Lymphatics Research, Microvascular Research, Adipose Research, and Grantmaking
Locations
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Primary
39 Lewis St
4th Floor
Greenwich, Connecticut 06830, US
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New York, NY 10017, US
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Baltimore, MD, US
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Washington, D.C., D.C., US
Employees at Lipedema Foundation
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Laura Harmacek, PhD
Non-profit, program management, cross-functional team collaborations, immune epigenetics/genomics and multi-dimensional data analysis
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Felicitie Daftuar
Founder, Lipedema Foundation
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Stephanie Galia
Supporting individuals and communities to find holistic health, wellness, and balance.
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Erin Clark
People - Culture - Philanthropy - DEI - Social Entrepreneurship - Program/Project Mgmt (she/her)
Updates
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Our First Look Report reveals some of the common challenges faced by those with Lipedema: - Easy bruising: 50% report "very severe" bruising in the last 30 days - Leg heaviness: 65% have experienced this in the past month - Sensitivity to touch: Affects 42% of respondents - Swelling: Reported by 39% These findings highlight the importance of conducting further research to fully understand the impact of these symptoms. Want to dive deeper? Explore the full report and share your experiences with us! 👉 bit.ly/41liRJk
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The LF Provider Directory aims to support individuals with Lipedema, their healthcare providers, and the broader Lipedema community by identifying physical, occupational, and massage therapists experienced in treating this condition. We are working to expand our directory to 300 therapists! If you are a dedicated physical, occupational, or massage therapy professional, we invite you to join us. Your expertise is vital in delivering the necessary care and support to this community. Join us today and contribute to the advancement of Lipedema treatment and awareness. Your involvement can make a significant impact. Know a professional who would be a perfect fit? Please encourage them to reach out and become part of our mission! bit.ly/49Oa9GS
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The Lipedema Foundation is proud to support and participate in the virtual conference "Evolving Lymphatic Concepts" on September 14-15. This conference will highlight the latest research and advancements in lymphatic health, including new therapy interventions and surgical techniques. We believe this event is an invaluable opportunity for healthcare professionals, researchers and patients to come together. Your support and participation are vital to our mission of improving understanding and treatment of lymphatic disorders. Please share this event to help us reach a wider audience. Register here: https://lnkd.in/gGpf85g4
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Exciting News! ARPA-H has just announced the new Groundbreaking Lymphatic Interventions and Drug Exploration (GLIDE) program! This is another new initiative in addition to the LIGHT program. The GLIDE program aims to develop physical, pharmacologic, gene, and cell-based therapeutic interventions to treat primary and rare lymphatic disease (LD) and chronic conditions complicated by lymphatic dysfunction. This groundbreaking initiative aims to develop affordable and accessible treatments, providing new hope for those with lymphatic diseases and related conditions. Read more about this promising development that could improve treatments and resources for Lipedema and other lymphatic disorders: https://bit.ly/3YuQNVs #LipedemaFoundation #LymphaticHealth #ARPAH #GLIDE #MedicalResearch #LipedemaAwareness
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Are you or do you know any physical, occupational, and massage therapy professionals (therapists) specializing in Lipedema? Our LF Provider Directory is currently seeking therapists in Hawaii, Maine, Delaware, South Dakota, and the District of Columbia. Your expertise, or the expertise of a therapist you know, can make a significant difference in the lives of patients managing Lipedema. By joining our directory, you will help bridge the gap between patients and specialized care, advancing Lipedema awareness, research, and patient support. Please tag or share this post with someone who can contribute. Join us today and become a crucial part of our dedicated network. https://lnkd.in/ezZh_zfU
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Lipedema Foundation awardee Scott Cameron and colleagues have uncovered key differences in platelet gene expression between patients with Lipedema, lymphedema, and obesity. These findings reveal how unique biological pathways in platelets may contribute to the increased risk of thrombosis (blood clots) in these conditions. Understanding more about these changes could offer insights into the biological mechanisms underlying platelet activation and its association with thrombosis in Lipedema. Read the article here: bit.ly/3LmYhlm
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We are proud to share that LF CEO Jonathan Kartt, along with LF awardees Vincenza Cifarelli, PhD, and Philipp E. Scherer, PhD, presented at the Lipedema panel during the 2024 International Congress on Obesity in Sao Paulo, Brazil. The session was attended by over 700 people, with participants standing, sitting on the floor, and streaming on their devices in the hallway. This strong turnout underscores the growing interest and commitment to advancing Lipedema research and patient care. We are honored to have contributed to this important discussion. Learn more about the event: bit.ly/3VYPuLl
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We have new Lipedema treatment tools! This page, designed to empower patients and healthcare professionals with comprehensive and accessible treatment options, now includes even more options and insights. There are various care and Lipedema treatment options available that can effectively manage symptoms and improve the quality of life for patients. Since Lipedema affects each individual differently, these resources aim to provide a wide range of treatment ideas that can be customized to meet patients' specific needs. Visit our treatment page today to explore these valuable tools: bit.ly/40kwpna
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Finding the right therapist can make a significant difference in managing Lipedema. Our LF Provider Directory is here to help patients, caregivers, and healthcare providers locate rehabilitative therapy professionals who specialize in treating Lipedema. 🔹 Steps to Use the Directory Effectively: 1. Access the Directory: Best viewed on a desktop or laptop. 2. Combine Resources: Use it alongside our Patient Self-Advocacy Guide for evaluating and preparing for appointments. 3. Search by Area: Locate therapists near you who have the necessary training and experience. 4. Stay Updated: Encourage providers to sign up for the LF Newsletter for future expansions. Help us reach our goal of getting at least 300 providers added to the directory this year by sharing this resource with others. As our Provider Directory grows, so does the support for our community! bit.ly/49Oa9GS