MDA's investment in research translates into hope and progress. Every funded project is a step closer to new discoveries in #neuromuscular disease treatment. Learn more from Greg Cooper, faculty investigator at the HudsonAlpha Institute for Biotechnology, and visit MDA.org/Science for more information. #ClinicalResearch #ScientificResearch #ResearchToReality
Muscular Dystrophy Association
Non-profit Organizations
Chicago, Illinois 23,803 followers
Faster breakthroughs, Stronger futures.
About us
If you’re seeking to start or advance your career with a purpose, Muscular Dystrophy Association is an employer that will enable you to thrive. The Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. Our mission is to empower the people we serve to live longer, more independent lives. #MDA #MuscularDystrophy #ALS #neuromuscuar. Apply now.
- Website
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http://www.mda.org
External link for Muscular Dystrophy Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Chicago, Illinois
- Type
- Nonprofit
- Founded
- 1950
- Specialties
- health, healthcare services, ALS research, care, advocacy, muscular dystrophy research, care, advocacy, disability inclusion advocacy, MDA Summer Camp, MDA Care Center Network, MDA Advocacy, Neuromuscular diseases, research, care, advocacy, and community and professional medical education
Locations
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Primary
1016 W Jackson Blvd
1073
Chicago, Illinois 60607, US
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Employees at Muscular Dystrophy Association
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Ankur Ghia
Senior Partner - Global Leader in Digital Transformations and Cloud Strategy
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Autumn Hume
National Account Director, Healthcare Partnerships at Muscular Dystrophy Association
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Marshall ("Mark") Smith, NACD.DC
Senior Executive Leader | Operations | Board Governance | Corporate Finance | Strategic Planning | M&A | IPO | Restructuring | Turnaround
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Pamela Norfleet
Accounts Payable/Account Receivables Manager at Bank Administration Institute
Updates
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Thank you to the more than 80 sponsors and 288 golfers for joining us at the 20th Annual Edgar Martinez Golf Classic presented by Quality Food Center and Liberty Mutual Surety™. This event raised $550,000 to support the mission of Muscular Dystrophy Association, including funding groundbreaking research at the lab led by Jeffrey Chamberlain, PhD, at UW Institute for Stem Cell and Regenerative Medicine for a new #GeneTherapy treatment for #Duchenne #MuscularDystrophy (#DMD) showing promise of not only arresting the decline of the muscles of those affected by this inherited genetic disease, but perhaps, in the future, repairing those muscles. Read more here: https://lnkd.in/ggRZMYMa As we celebrated 20 years of this golf event bringing the community together for our shared mission, we can see the huge impact and the power of fundraising to empower MDA families to live longer, more independent lives! The link to donate is still open, please support MDA’s mission here: https://lnkd.in/eVfYgkcn.
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From the UW Institute for Stem Cell and Regenerative Medicine: A new #GeneTherapy for #Duchenne #MuscularDystrophy shows promise of stopping the decline of affected muscles as well as, in the future, possibly repairing the muscles. Learn more about the findings, which were published in Nature this week by members of American Society of Gene & Cell Therapy (ASGCT) Immediate Past President, and Muscular Dystrophy Association (MDA) grant recipient Dr. Jeffrey Chamberlain's lab! Hear more from Dr. Chamberlain and other experts about the latest CGT advancements for muscular dystrophy at the ASGCT and MDA inaugural Breakthroughs in Muscular Dystrophy conference this fall here: https://lnkd.in/gv-C-n3a
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#MDA families recently spoke with Bloomberg News's Gerry Smith about Sarepta Therapeutics' Elevidys, a #GeneTherapy for #Duchenne #MuscularDystrophy with recently expanded approval by the FDA. Jyoti Bharadwaj shared how the therapy could significantly improve the quality of life for her 15-year-old son, Ayan, by making everyday activities easier. Jessica Hubbard, Manager, Community Education at Muscular Dystrophy Association, also expressed relief for her son Deacon, who now qualifies for the therapy thanks to the recent expanded approval. While concerns exist about the medication's efficacy and potential drawbacks, the hope it brings to families like the Bharadwajs and Hubbards is invaluable. Read the full article here: https://lnkd.in/e9hiyuTd For those seeking more information and support, visit our Gene Therapy Support Network: https://lnkd.in/ebMANYhm
Duchenne Kids’ Families Pin Hopes on Contentious FDA Decision
bloomberg.com
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We celebrate Disability Pride Month in July and all year round with empowering stories and resources in Muscular Dystrophy Association’s Quest Media platform. An innovative adaptive lifestyle space where we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. Led by MDA's Mindy Henderson, VP, Disability Outreach & Empowerment, and Quest Media's #EditorInChief, with Rebecca Hume and Holli Woods, MPA, we invite you to check out our Quest magazine, podcast, blog, and newsletter by subscribing for free today: https://lnkd.in/eFNHRRAj #MDA #QuestMedia #DisabilityPrideMonth
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Sam Osborn said, “There is no try, there is only do.” He lived with congenital muscular dystrophy and built a loving community during his lifetime that carries on his memory today with the mantra ‘live a great story.’ Our community is coming together to honor his positive outlook, and his dedication to putting others first. Join us to celebrate his life and legacy September 20 and 21 at Tiburon Golf Club in Omaha, Nebraska, and support MDA’s mission to accelerate research and advance care. Sam Osborn Memorial Golf Tournament - Register today here: https://lnkd.in/ghDca2a4 Thank you to our presenting sponsor Proceed Finance. #Golf #CongenitalMuscularDystrophy #MuscularDystrophy #Neuromuscular
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Researcher Bjarne Udd, MD, PhD, provides a deeper understanding and details the latest developments in disorders related to the Titin (TTN) gene. Learn more in this Q&A from our #QuestMagazine: https://lnkd.in/eHxkCXPb
Understanding Titinopathies - Quest | Muscular Dystrophy Association
https://mdaquest.org
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Join us on Thursday, July 18 from 7-8pm ET for the MDA Advocacy Institute: Finishing 2024 Strong - Top Legislative Priorities. Learn about eliminating SSI savings penalty, urging treatments for pediatric rare disease, and helping kids access health care. These legislative priorities are vital for improving access to care and support for children with rare neuromuscular diseases, and your voice is crucial in pushing them forward. Registration is free here: https://lnkd.in/eUFnKH6p
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Join American Society of Gene & Cell Therapy and the Muscular Dystrophy Association in Chicago November 19-20, 2024, for an unparalleled opportunity to explore the latest advancements in research on #GeneticTherapies for #MuscularDystrophy. This inaugural meeting will bring together leading researchers and clinicians from the #neuromuscular disease community to discuss cutting-edge genetic therapies and technologies. Have research to share? Submit your muscular dystrophy related abstracts through August 9 at 11:59 p.m. ET for the opportunity to present your research in-person in Chicago. Register or learn more here: https://lnkd.in/efS_XEW9 #ScientificResearch #ClinicalResearch #Research
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Happy #IndependenceDay! MDA’s #AccessTheVote campaign aims to ensure voting is accessible for everyone. Let's celebrate our freedom and make our voices heard. 🔹 Register to Vote 🔹 Know Your Rights 🔹 Find Accessible Resources Visit MDA.org/Vote to learn more. #FourthOfJuly #DisabilityInclusion
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