We love to see the way our ambassadors spread their unique sparks in the movement disorders community. Recently, PMD Alliance Ambassador Karen Malkin, with the help of Nenad Bach, launched Ping Pong Parkinson at the Somerset Hills YMCA in New Jersey. To everyone working in movement disorders or personally impacted by these diseases, keep bringing your gifts and your heart to the world!
PMD Alliance (Parkinson & Movement Disorder Alliance)
Non-profit Organization Management
Phoenix, Arizona 1,406 followers
PMD Alliance is here to help people impacted by movement disorders to learn, live life more fully and connect.
About us
Parkinson & Movement Disorder Alliance is an independent, national nonprofit dedicated to providing opportunities for people to learn, live more fully and spark meaningful connections around them. We offer educational forums, training for support group leaders, a continuum of live-stream services though Neuro Life Online, discussions with doctors, internet-based support groups, education for healthcare professionals, care partner support, adult children education and other services that meet the needs of people impacted by Parkinson disease, dystonia, essential tremor, PSP and Huntington disease. What makes us different? We focus on you first then the disease. Whether a person with the disease, a care partner or friend - we know you have a full life to live. We don't want you to just exist, we want you to thrive. We offer sustainable, low cost, high impact events and programs that encourage healthy lifestyle choices, increase knowledge of disease and symptom management, and provide opportunities to gather with others for support and inspiration.
- Website
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http://www.pmdalliance.org
External link for PMD Alliance (Parkinson & Movement Disorder Alliance)
- Industry
- Non-profit Organization Management
- Company size
- 11-50 employees
- Headquarters
- Phoenix, Arizona
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Parkinson Disease, Education, Dystonia, Support, Huntington's Disease, Conferences, Exercise, Social events, retreats, non-profit, movement disorders, Physician referral, information & referral, Care Partner services, health, Adult Children Education, Support Group Leaders, Medication information, and empowerment
Locations
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Primary
2030 W Baseline Rd
#182-6207
Phoenix, Arizona 85041, US
Employees at PMD Alliance (Parkinson & Movement Disorder Alliance)
Updates
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Emerging therapies are being developed for dementia in movement disorders. These advanced treatments can be revolutionary for people living with the disease as they seek to both alleviate symptoms and target the underlying mechanism, potentially slowing or stopping its progression. ATMRD, our annual healthcare provider congress, was designed to empower medical providers with the updated knowledge they need about emerging therapies. Listen to Charbel Moussa, MBBS, PhD, talk to NeurologyLive about his ATMRD presentation exploring these exciting and emerging approaches to dementia: https://loom.ly/YH34J_s
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When patients with Parkinson’s are admitted to the hospital, their medication regimen and timing is often altered—which can have big consequences on their symptoms. At ATMRD, our annual healthcare provider congress, Patricia Clark, CNP, of Cleveland Clinic, talked about a specialized program for hospitalized patients with Parkinson’s disease that aligns hospital protocols with their home medication regimens to improve their care. By helping to mirror their in-patient and at-home medication regimens, providers put the person with Parkinson’s care and unique needs at the center. Learn more in this interview NeurologyLive conducted with Clark at ATMRD 2024: https://loom.ly/eCITbTc
A Comprehensive Program to Enhance Inpatient Care for Patients With Parkinson Disease
neurologylive.com
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ATMRD 2024's meme challenge was just one way we welcomed attendees to connect through laughter as well as through shared purpose and insights. When serving a community that’s leaning toward burn-out, these opportunities to discard artifice and form meaningful connections are essential to recharging batteries and forging interdisciplinary relationships. Get the full event recap and photo library here: https://loom.ly/MuvnU8A #ATMRD #MovementDisorders #AdvancedTherapeutics
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Meet Chris Walsh, Arienne Breiteneicher, and Hana Kruse! These three have personally attended over 25 PMD Alliance events in the past few years, and they are just three of the sixteen Supernus Pharmaceuticals representatives who joined us for ATMRD 2024 this past June. We love to partner with Supernus because, just like us, they show up for our community all year long. Learn more: https://lnkd.in/gYiYsbtk
Resource Center – Supernus
supernus.com
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ATMRD, our annual healthcare provider congress, plays an essential role in helping improve communication between people with a diagnosis like Parkinson's and their specialist. NeurologyLive interviewed PMD Alliance Clinical Director Kelly Papesh, DNP, APRN, FNP-BC about an ATMRD session sharing community feedback from a survey earlier this year. "It's a really important pearl to remember," Kelly said, summarizing what providers can do better given the findings, "dedicate your time, give them your active listening, and that's how you're going to build that trust and rapport with your patients." Watch the four-minute interview here: https://loom.ly/WB3mOZw
The Importance of Open Communication in Patient Care: Kelly Papesh, DNP, APRN, FNP-BC
neurologylive.com
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For four days in late June, PMD Alliance gathered healthcare providers in movement disorders and other stakeholders along the Potomac River hugging the nation’s capital to learn in community—gaining insights, sharing findings, and centering those with a diagnosis and their voices at every opportunity. ATMRD learner Amanda Guggenmos, FNP-C, PMHNP-BC told us, “This is my first time attending this conference, but it is one that I will be attending annually. If there is one program you attend annually for movement news and therapy updates, it should be this one.” Mark your calendars for ATMRD 2025, June 27-30, at the Gaylord in National Harbor.
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Joining us for ATMRD next week? To help you prepare, we put together this quick reference guide so you're ready for a successful event! ✅ Know before you go at https://loom.ly/19bglXQ #ATMRD24 #AdvancedTherapeutic #MovementDisorders
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Are you getting your professional headshot at #ATMRD24? 📸 Check out all the travel tips and book your slot with our photographers at our Know Before You Go here: https://loom.ly/19bglXQ Get ready for four days of luxury meals, expert-led education, and all-day interdisciplinary networking opportunities! There's still time to join us, if you register and book now! atmrd.org #AdvancedTherapeutic #MovementDisorders #Neuroscience
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CME covering #Parkinsons, #Huntingtons, #Dementia, surgical management, medication access, and more! $650/provider gets you four days of luxury meals, expert-led education in #MovementDisorders, and all-day interdisciplinary networking opportunities. ✈️Time is running out to book your flight! Register NOW at atmrd.org #ATMRD24
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