PNOC (Pediatric Neuro-oncology Consortium) Foundation

We are honored to share with you the comprehensive report of our first decade of impact. PNOC has redefined the model of translating the latest biological findings into clinical trials and through their collaborative network and global reach they’re working with speed, efficiency and safety. PNOC have advanced groundbreaking research that brings us closer to cures for every child diagnosed with brain cancer. As we look ahead to the next decade, we invite you to explore the report and celebrate what we have achieved together and learn about our goals and vision for the future. We look forward to many more achievements in the future. Read the report here: https://lnkd.in/gx8yGDSb

If you missed seeing our recent PNOC high grade #glioma webinar, or would like to watch it again, the recording is now archived along with all our previous disease specific patient family informational webinars on our YouTube channel. Watch: https://lnkd.in/gwPTnpqE #braincancer #braincancerresearch #pediatricbraincancer #neuro-oncology #cancerresearch #braintumor #braintumorresearch #highgradeglioma #glioma #PNOC

Join us today: https://lnkd.in/gjzwKT_u

May 1 marked the beginning of #BrainTumorAwarenessMonth and the first day of the PNOC Scientific meeting in Boston. PNOC is comprised of 275+ dedicated researchers from across the globe, this meeting is an important opportunity for them to gather in person, discuss progress and advance concepts. Directly following their Spring meeting, we invite you to join PNOC Leadership for an exciting briefing session.  Drs. Sabine Mueller, Mike Prados, Cassie Kline, and Ashley Margol will share an in-depth look at the latest advancements and future directions in pediatric neuro-oncology research. This webinar will include time for Q&A and also be available on demand for those who can not make it in real time. Register here: https://lnkd.in/gzUBrp4K

This week's FDA landmark approval of Tovorafenib (DAY101) is a significant advancement for #peditricbraincancer and is a direct result of PNOC's clinical trials! This approval marks a significant milestone as the first and only FDA-approved medicine for children with #BRAF fusions or rearrangements in pediatric low-grade #glioma. Before #Tovorafenib, there was no standard of care for these children. Pediatric low-grade glioma is the most common brain tumor diagnosed in children, with patients suffering profound tumor- and treatment-associated morbidities that can impact their life trajectory. BRAF is the most commonly altered gene in pediatric low-grade glioma, with up to 75 percent of children having a BRAF alteration. We are incredibly grateful for everyone involved from PNOC, Day One Biopharmaceuticals, PNOC's participating sites and of course all the patient families. This week's historic new treatment approval by the FDA is proof of what is possible when doctors, scientists, researchers, biopharma, and philanthropists truly collaborate and work together. Hear PNOC Co-founder Dr. Prados Michael elaborate on how this historic moment came to be! https://lnkd.in/g8--k9fV #cancerresearch #cancerbreakthrough #pLGG #PNOC #braincancer #braintumor #collaboration

This is a landmark development for pediatric brain cancer research and treatment. It shows what's possible when doctors, scientists, researchers, biopharma, and philanthropists truly collaborate and work together. This is a victory for kids and their families fighting pediatric low-grade gliomas, however, there is still a huge unmet need. More courage to invest in and fund new therapies and trials is needed to bring further breakthroughs to other types of pediatric brain cancer, the deadliest of childhood cancers. Seeing the promise of PNOC realized with advancements like #Tovorafenib confirms the crucial role of our foundation. This milestone, made possible by our community's support and the generosity of our donors, empowers us to continue our quest to revolutionize pediatric neuro-oncology and improve the lives of children affected by brain tumors. #FDAApproved #newcancerdrug #Cancerresearch #braincancer #braintumkor #glioma #childhoodcancer #collaboration #dayone https://lnkd.in/gkbxfkv3

Join us next week to hear the latest pediatric #HighGradeGlioma research and clinical trial updates from PNOC's expert scientific panel. Register to receive the zoom link: https://lnkd.in/gXFT5hMs - this webinar will be available live with a Q&A or on demand if you cant make it in real time. #braincancer #pediatriccancer #pediatricbraincancer #glioma #gliomas #braintumor #cancerresearch

We invite you to join us on April 25 at 9:00 AM PT / 12:00 PM ET / 6:00 PM CEST to hear the latest pediatric #HighGradeGlioma research and clinical trial updates from PNOC's expert scientific panel. Register to receive the zoom link: https://lnkd.in/gXFT5hMs #braincancer #pediatriccancer#pediatricbraincancer #glioma #gliomas

On December 14, Forden Studio presents “Non Verbal Communication” - a one night event with a live demonstration by local ceramicist Patrick Johnston, to support PNOC’s #ATRT research! This special evening in Los Angeles includes guest speaker Dr. Ashley Margol, PNOC AT/RT Research Group Principal Investigator, a silent auction, live music, as well as complimentary wine, beer, and hors d'oeuvres! Renowned for his participatory hug vases Patrick Johnston throws a one-of-a kind vessel and participants get to hug the pot leaving a permanent memorable impression for the recipient to keep. Patrick has generously offered to donate a couple of these live ceramic experiences on the night to be auctioned! We have an opportunity for an AT/RT patient family in the Los Angeles area to participate in their very own hug vase. We also invite any AT/RT patient families to be part of the event by sending their child's photo to be included. Reach out to [email protected] if you are interested! Don’t miss this fun night and opportunity to support support critically needed AT/RT research! Tickets: https://lnkd.in/gWVvyTH2

Thanks to Marin Magazine for listing PNOC Foundation (Pacific Pediatric Neuro-oncology Consortium Foundation) in their giving guide and helping us raise critical funds for pediatric brain cancer research and clinical trials! https://lnkd.in/gYDhHrfN