Donna Cryer
Washington, District of Columbia, United States
7K followers
500+ connections
About
Award-winning, published , entrepreneurial organization leader, patient, patient…
Articles by Donna
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Launching the Cure Campaign for Hepatitis C
Launching the Cure Campaign for Hepatitis C
By Donna Cryer
Activity
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One obstacle that gets in the way of movement is the idea that you have to be an "exercise person" — like someone who’s a serious runner or always…
One obstacle that gets in the way of movement is the idea that you have to be an "exercise person" — like someone who’s a serious runner or always…
Liked by Donna Cryer
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There's a big wave out there. Explainer for why it's happening (again) and what needs to be done. https://lnkd.in/g9Z7DGZA
There's a big wave out there. Explainer for why it's happening (again) and what needs to be done. https://lnkd.in/g9Z7DGZA
Liked by Donna Cryer
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As we kick off the 2024 Olympics, I'm reminded of the incredible journey my family has been on. Six months after my transplant, my dad, Carl Moore…
As we kick off the 2024 Olympics, I'm reminded of the incredible journey my family has been on. Six months after my transplant, my dad, Carl Moore…
Liked by Donna Cryer
Experience
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Global Liver Institute
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Education
Volunteer Experience
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Member, Patient & Consumer Representative
Health IT Policy Committee
- 1 year 9 months
Health
Appointed by the GAO to advise the National Coordinator for HIT on the policy framework for the development and adoption of a nationwide health information infrastructure
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Patient Representative
FDA
- Present 14 years 8 months
Health
Provide the patient voice and perspective on advisory committees, workshops, and other matters related to drug development and approval
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Member Board Of Trustees
Sibley Memorial Hospital
- Present 7 years 2 months
Health
Affiliated with Johns Hopkins Medicine
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Member Board Of Directors
People centered reseach foundation
- 2 years 8 months
Health
Scale person center comparative effectiveness research across health systems, claims data, and patient registries
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Member Board Of Trustees
The Taft School
- 1 year 9 months
Education
Elite boarding and Day school known for rigor, warmth, and beautiful campus
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Member Board Of Directors
Personalized Medicine Coalition
- 5 years 8 months
Health
Advancing policies that support development and adoption of genomic diagnostics and targeted therapies
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Executive Committee Member
Clinical Trials Transformation Initiative (CTTI)
- Present 6 years 5 months
Health
The Clinical Trials Transformation Initiative (CTTI) is a public-private partnership to develop and drive adoption of practices that will increase the quality and efficiency of clinical trials.
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Member Board Of Directors
Council of Medical Specialty Societies
- Present 3 years 10 months
Health
Serve as Public Member improving the health and growth of professional medical societies as they serve the health of the nation
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Member Board Of Directors
The Innovation and Value Initiative (IVI)
- Present 3 years 10 months
Health
Serve to help define and communicate multiple frameworks for evaluating and assessing innovative health and medical therapies, with an emphasis and expertise on patient-centered value frameworks
Publications
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Is the QALY Fit For Purpose?
American Journal of Managed Care
ABSTRACT
Most value assessment research uses the quality-adjusted life-year (QALY) to measure health gain within a cost-utility framework. The many scientific and ethical flaws of the QALY have been described previously, but it continues to be used because it seems to provide a methodological bridge to a policy goal: resource allocation. Our aim in this paper is to assess whether the QALY is an adequate proxy measure of health value for the purposes of health care priority setting or…ABSTRACT
Most value assessment research uses the quality-adjusted life-year (QALY) to measure health gain within a cost-utility framework. The many scientific and ethical flaws of the QALY have been described previously, but it continues to be used because it seems to provide a methodological bridge to a policy goal: resource allocation. Our aim in this paper is to assess whether the QALY is an adequate proxy measure of health value for the purposes of health care priority setting or whether the limitations inherent in how it is calculated and used in cost-utility analysis have the potential to be harmful. To do this we pose 3 questions. First, does the QALY accurately measure what it purports to measure? Second, does it value the health of all people equally and avoid the ethical and economic harms that arise when this is not the case? Third, does the QALY manage to fairly balance the needs of individuals and society as a whole? We argue that the QALY does not currently pass these 3 tests to an acceptable standard. We argue for methods to achieve incremental improvement in both the scientific and ethical standards used in constructing measures such as the QALY and for an end to the inertia in improving a measurement system that is widely considered inadequate. We point to solutions that are growing in popularity and highlight some of the key challenges that remain.
Am J Accountable Care. 2021;9(2):8-13Other authors -
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NASH: Connecting the dots with patients in mind
Endocrinology, Diabetology and Metabolism
Cryer DR. NASH: Connecting the dots with patients in mind. Endocrinol Diabetes Metab. 2020 Oct 21;3(4):e00109. doi: 10.1002/edm2.109. PMID: 33102792; PMCID: PMC7576233.
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Hepatitis B Virus Screening and Management for Patients With Cancer Prior to Therapy: ASCO Provisional Clinical Opinion Update
Journal of Clinical Oncology
Hwang, Jessica & Feld, Jordan & Hammond, Sarah & Wang, Su & Alston-Johnson, Devena & Cryer, Donna & Hershman, Dawn & Loehrer, Andrew & Sabichi, Anita & Symington, Banu & Terrault, Norah & Wong, Melisa & Somerfield, Mark & Artz, Andrew. (2020). Hepatitis B Virus Screening and Management for Patients With Cancer Prior to Therapy: ASCO Provisional Clinical Opinion Update. Journal of Clinical Oncology. 38. JCO.20.01757. 10.1200/JCO.20.01757.
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An Important Step Toward Increasing the 5-Year Survival Rate of Liver Cancer Patients
American Journal of Managed Care
Unlike many other cancer rates that have been on the decline, liver cancer rates for new liver and intrahepatic bile duct cancer cases have been rising. This October, which is Liver Cancer Awareness Month, Global Liver Institute is joining with more than 30 other leading health and medical organizations, to issue a global call-to-action to increase the 5-year survival rates for patients with liver cancer from 18% to 36% by 2030.
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Mutual mentorship: Patient-partnered care starts at the patient-CEO level
Quality Management in Healthcare
Projects
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The Future of Value Assessment in a Post-Pandemic United States
- Present
Editor’s Note
This post kicks off the Health Affairs Blog short series, “Value Assessment: Where Do We Go Post-COVID?” The series explores what we have learned about value assessment and related issues during the coronavirus pandemic, how we might think about value in health care going forward, and how these ideas might translate into policy. The series is produced with the support of the Innovation and Value Initiative (IVI) and grew out of a group of webinars hosted jointly by IVI…
Editor’s Note
This post kicks off the Health Affairs Blog short series, “Value Assessment: Where Do We Go Post-COVID?” The series explores what we have learned about value assessment and related issues during the coronavirus pandemic, how we might think about value in health care going forward, and how these ideas might translate into policy. The series is produced with the support of the Innovation and Value Initiative (IVI) and grew out of a group of webinars hosted jointly by IVI and ISPOR—The Professional Society for Health Economics and Outcomes Research. Included posts are reviewed and edited by Health Affairs Blog staff; the opinions expressed are those of the authors. -
Speaker: BIO International Convention 2017
Panel 1: A World Without Disease: Can We Get There
Panel 2: The Whole PIcture: Consideration of Personalized Medicine in Value Frameworks -
Speaker: NCQA Quality Talks - Who Defines Quality
Keynote stage presentation video on patient perceptions of healthcare quality
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Speaker: Health 2.0 - Patients as Partners Across the Clinical Spectrum
Video of plenary stage presentation on personal patient journey transformation into professional patient advocacy, outreach to multiple stakeholders to partner with patients
Honors & Awards
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AASLD Distinguished Advocacy Service Award
American Association for the Study of the Liver
The Distinguished Advocacy Service Award is given to an advocacy organization or individual in honor of sustained service to the liver disease community in general. The award recognizes service provided to the hepatology community over an extended period that raises awareness or garners public and federal legislative support and promotes liver health and quality patient care.
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RARE Champions of Hope Founders Award
Global Genes
The RARE Founder’s Award recognizes individuals who have demonstrated a devotion to the ideals of the founder of Global Genes. These individual nominees exhibit their commitment to connecting, empowering and inspiring the rare disease community through their lifetime contributions and achievements advocating for people living with rare disease.
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2017 Top Blacks in Healthcare Award
BlackDoctor.org and Milken Institute School of Public Health at George Washington University
http://www.prweb.com/releases/2017/04/prweb14231793.htm
The awards gala, hosted by radio and television legend Donnie Simpson, will honor 16 individuals who have made outstanding contributions to medicine and health. These highly esteemed and accomplished individuals not only maintain a demanding work/life balance, but they are also progressively moving their communities forward.
“These individuals have reached the highest levels in their careers, despite the challenges, and…http://www.prweb.com/releases/2017/04/prweb14231793.htm
The awards gala, hosted by radio and television legend Donnie Simpson, will honor 16 individuals who have made outstanding contributions to medicine and health. These highly esteemed and accomplished individuals not only maintain a demanding work/life balance, but they are also progressively moving their communities forward.
“These individuals have reached the highest levels in their careers, despite the challenges, and BlackDoctor.org is honored to celebrate their success. Their trailblazing work ensures that everyone has access to quality healthcare,” said Reggie Ware, President and CEO of BlackDoctor.org.
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The rising incidence of liver diseases is particularly worrying among young people less than 50 years. It is high time as a country we commit efforts…
The rising incidence of liver diseases is particularly worrying among young people less than 50 years. It is high time as a country we commit efforts…
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“I used to say there is no magic bullet, but I have changed my mind. The magic bullet is called primary health care. We need to strengthen primary…
“I used to say there is no magic bullet, but I have changed my mind. The magic bullet is called primary health care. We need to strengthen primary…
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A little nudge. —— [Alt text embedded in the image.]
A little nudge. —— [Alt text embedded in the image.]
Liked by Donna Cryer
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With any disease state AWARENESS is the key. #WorldHepatitisDay Did you know you can get a liver transplant safely from liver’s that have had…
With any disease state AWARENESS is the key. #WorldHepatitisDay Did you know you can get a liver transplant safely from liver’s that have had…
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Yesterday was amazing!! Let's see what today has in store. #EIGI2024 #EIGI24 Color of Gastrointestinal Illnesses, Inc. (COGI - Co-Gee)
Yesterday was amazing!! Let's see what today has in store. #EIGI2024 #EIGI24 Color of Gastrointestinal Illnesses, Inc. (COGI - Co-Gee)
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Congratulations to Suni Lee for winning multiple medals at the Olympics! You showed the world that kidney disease doesn't have to define you and…
Congratulations to Suni Lee for winning multiple medals at the Olympics! You showed the world that kidney disease doesn't have to define you and…
Liked by Donna Cryer
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¡Hablemos de MASLD (Higado Graso)! Quisiera escuchar, y aprender, sobre sus historias y experiencias, asi como ayudar a aclarar algunas de sus…
¡Hablemos de MASLD (Higado Graso)! Quisiera escuchar, y aprender, sobre sus historias y experiencias, asi como ayudar a aclarar algunas de sus…
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