Auto Immune Blistering Disease Foundation’s Post

💧Today, we join the global community in raising awareness for Sjogren’s Syndrome, a chronic autoimmune disease that affects millions of people worldwide. Sjogren’s primarily targets the moisture-producing glands, leading to dry eyes and mouth, but it can also cause fatigue and affect other organs. Here are some key facts about Sjogren’s Syndrome: - It’s an autoimmune disease that primarily affects women. - Common symptoms include dry eyes, dry mouth, and fatigue. - Early diagnosis and treatment are crucial for managing symptoms and preventing complications. If you or a loved one is experiencing symptoms of Sjogren’s Syndrome, visit HB Urgent Care. We are here to provide the care and support you need. Walk-in anytime for fast and friendly service. https://lnkd.in/g9T_xyg Get your COVID Testing today. https://lnkd.in/gC7Kutr #WorldSjögrensDay #AutoimmuneAwareness #HBUCares #SjogrensSyndrome #SupportAndAwareness

Today, July 10th is Chronic Disease Day! Chronic Disease Day raises awareness about the ways in which we can build a healthier community and expand access to care for those in need. The AHDA wants raise awareness about all chronic diseases today, including those who live with chronic headache disorders. Let's look at chronic migraine as an example. Chronic migraine is so much more than "just a headache." Chronic migraine patients experience 15 or more headache days per month and affects around 3-5% of the U.S. population. This condition can be extremely debilitating. You can participate in raising awareness on this Chronic Disease Day by sharing who motivates you to be your strongest self and live your best life while living with your chronic headache disorder with the hashtag #IStayStrong.

Paroxysmal nocturnal hemoglobinuria (PNH) is a debilitating blood disorder which causes a range of life-limiting symptoms for those affected. We spoke to the Aplastic Anemia and MDS International Foundation (AAMDSIF) to highlight the importance of providing support for patients living with rare diseases Click the link to learn more about AAMDSIF and the strides they are making to improve life for people living with PNH: https://lnkd.in/gZUvmp-T

Let’s make #IBDVisible during this Crohn’s and Colitis awareness week. Crohn’s disease and ulcerative colitis are the two main forms of inflammatory bowel disease. These chronic conditions are highly debilitating and are becoming more common, especially among young people. To date, there is no known cure. Fortunately, in both diseases, there are good treatments available to effectively manage the disease and significantly improve patients’ quality of life, as you can see in the infographic below. #IBD #UlcerativeColitis #CrohnsDisease

Happy Friday, If you or someone you know have been diagnosed with PBC, TODAY is the first PBC Foundation virtual meeting of 2024. I'm proud to facitate this group starting at 12pm. A relatively rare disease, both in the United States and worldwide, PBC affects an estimated 65 out of 100,000 women in the U.S., according to the American Liver Foundation, with symptoms such as pruritis, fatigue and jaundice presenting later in life, most often in patients aged 45 to 65 years. Although there is currently no cure for PBC, medications are available for disease management and to curb progression of liver damage. #LiverHealth #PBCcommunity #PatientAdvocate #raredisease #PBCawareness

It's here! The KDIGO 2024 CKD Guideline Executive Summary was released today in the April Issue of Kidney International (KI). Read the Executive Summary in KI: https://lnkd.in/grYUb6mu Download the PDF: https://lnkd.in/g9-UEiMX The KDIGO 2024 CKD Guideline, based on the best current evidence, indicates exciting new approaches to management strategies and treatment options for people living with #CKD. The goal is to improve symptom management, disease modification, and person-centered approaches while also recognizing the heterogeneity of CKD. The fact that new therapies exist and others are being evaluated heralds an exciting time for people living with #kidney diseases.

It’s increasingly clear now that a regular update and in some cases a rewrite of guidelines need to be done. Newer tools, tech and specialities are available to help #healthcare innovate & improve how to treat #patients. Here’s one for clinicians.

In the United States, more than 70,000 new cases of Inflammatory Bowel Diseases (IBD) are reported annually, affecting an estimated 1.6 million Americans.  During Crohn’s and Colitis Awareness Week (Dec 1-7), let's shed light on the challenges posed by these life-long conditions. Crohn’s disease, impacting the GI tract, and ulcerative colitis, limited to the colon, cause severe cramping, discomfort, unintended weight loss, and other disruptive symptoms. Despite the chronic nature, symptoms can be managed with medical treatment and tips. Knowledge empowers patients to enhance their overall health. Let's unite in raising awareness and supporting those navigating the complexities of Crohn's and Colitis. #IBDawareness #CrohnsColitisWeek #HealthSupport

Today is Rare Disease Day! There are estimated to be 7,000 rare diseases affecting between 25 and 30 million Americans. That's 1 in 10! And yet, for many with a rare disease, diagnosis can take years, treatment is palliative, and a cure is unlikely. If you know someone with a rare disease, here are a few tips on how to be an ally: - Don't ask if they have tried XYZ. By the time they are diagnosed, many with rare diseases are experts on their own condition and may even know more than their doctors. - Don't tell them to stay positive. This is invalidating of their lived experience, and the grief they may feel around the loss of their health and the impact that has on their lives. - Do offer specific help. If you want to help, don't put the burden on them to figure out what you can do. Offer something you are capable of doing and let them accept or offer an alternative. - Do listen. Having a rare disease can be isolating which makes having someone to talk to that much more important. #rarediseaseday #disabilityawareness #disabilityrights #womenintech

Busting myths about CHD! 💔 Let’s spread the facts and raise awareness together. "Did you know? Many misconceptions about CHD can impact understanding and support. Let’s set the record straight, take a few minutes and digest our infographic💡 We encourage you to share this post to help spread awareness about Congenital Heart Disease (CHD). By dispelling common myths and spreading factual information, we can support the CHD community more effectively. For more detailed information about CHD and to access additional resources, visit www.chdfnigeria.org Join the conversation! Comment below with your experiences or any questions you have about CHD. Together, we can create a well-informed and supportive community. #CHDMythBusters #HeartHealthAwareness #CongenitalHeartDisease #HeartFacts #CHDSupport #MythVsFact #HeartHeroes #HealthyHearts #CHDMyths #HeartWarriors #SupportCHD"