Alissa Johnson’s Post

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Principal Consultant @ Johnson Policy Consulting | Health Policy Research and Analysis; Co-Founder and Advisor @ The Louisa Adelynn Johnson Fund for Complex Disease | Research Funding and Patient Advocacy

The Louisa Adelynn Johnson Fund for Complex Disease is pleased to announce its contribution to The Alex Manfull Fund, which will support the work of this incredibly driven and bright researcher. It is a pleasure and a privilege to once again collaborate with you and Neuroimmune Foundation and bring hope for the future to those suffering from PANS and PANDAS and their families.

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Neuroimmune Foundation is excited to announce our contribution to research funding for important work proposed by Dr. Lauren Breithaupt, PhD, Assistant Professor of Psychiatry, based at the Eating Disorders Clinical and Research Program at Massachusetts General Hospital. This work seeks to identify potential disease specific biomarkers for PANS/PANDAS using the largest and most comprehensive dataset of patients with PANS/PANDAS symptoms The funding will allow for the design and analysis of studies that explore inflammation-associated proteins in OCD and PANS/PANDAS and will support a biostatistician who will join the Multidisciplinary Eating Disorders Research Collaborative (MEDRC) at MassGeneral Brigham (MGB). The team is comprised of clinical psychologists, psychiatrists, cognitive neuroscientists, neurobiologists, radiologists, endocrinologists, pediatricians, and computer scientists, making this an idea fit for individuals seeking a collaborative and multidisciplinary environment. Neuroimmune Foundation was pleased to provide funding along with The Louisa Adelynn Johnson Fund for Complex Disease and The Alex Manfull Fund who provided the majority of the support for this important project. It's an honor and pleasure to not only support this critical work but to partner with our collaborators once again. Dr. Breithaupt has a passion and drive that is a huge asset to the PANS community's search for answers and relief.

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René Blanchard

Chair Of The Board Of Directors at EXPAND, The European Immuno-neuropsychiatric Association

4mo

It's much appreciated by the global patient community.

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