DigiTrends’ Post

Myelofibrosis is a unique disorder affecting the bone marrow's ability to produce blood cells, impacting roughly 1 in 100,000 people. This rare condition results in fibrous scar tissue replacing healthy marrow, leading to progressive bone marrow failure and potentially evolving into a more serious form of leukemia. 📘 Expand your knowledge on myelofibrosis and how to support those affected: https://lnkd.in/dEyThBpy Join Without a Ribbon in providing support and resources for those navigating myelofibrosis: 🔗 Become a Warrior: https://lnkd.in/eHy8HZ_R 🔗 Engage through donations, sponsorships, or volunteering: https://lnkd.in/dsfQcFA5 Together, we can bring light to and combat rare conditions like myelofibrosis. #Myelofibrosis #HealthcareProfessionals #RareDiseases #WithoutARibbonInc #Australia #letsconnect #letsconnecteveryone #letsconnectnow

***TODAY IS PKD DAY** On April 30, we celebrate and honor those who have impacted lives by donating blood for individuals with PKD. We want to express our deep gratitude for their contributions, highlighting the crucial role they play in improving quality of life. Let's come together to raise awareness and appreciation for their invaluable support. Individuals with Pyruvate Kinase Deficiency often rely on frequent blood transfusions, starting from infancy. April 30 marks the 120th day of the year, symbolizing the lifespan of a healthy red blood cell - 120 days. Additionally, the bone marrow produces a staggering 120 million red blood cells in just one minute. However, for those with PK Deficiency, red blood cells last only a fraction of that time, from a few days to 2-8 weeks. Are you curious about the vital impact of blood donation on the lives of those affected by Pyruvate Kinase Deficiency (PKD)? Join us in watching Spikey's video to gain a deeper understanding of why blood donation is so crucial for individuals battling PKD. #PKDDay #PKDAwareness #Spikey

This week is #CFWeek! A week to help raise awareness and vital funds for a life limiting condition. We're avid supporters of Cystic Fibrosis Trust and the work they do. PLEASE JOIN US IN WEARING YELLOW THIS FRIDAY 21ST JUNE TO HELP RAISE AWARENESS. Cystic fibrosis (CF) is a genetic condition affecting more than 10,900 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing. People with cystic fibrosis (CF) often look healthy, but it's a life-limiting condition that affects those living with it in many ways. The condition is caused by a genetic mutation that means cells in the human body are unable to move salt and water around effectively. This results in a build-up of thick mucus in the lungs and digestive system, as well as a number of other effects. This year we're aiming to raise £10,000 for this incredible charity. If you can donate anything at all, please do via this link: https://lnkd.in/eJMpufm5 Find out more about why we're so passionate about supporting this charity - https://lnkd.in/e7MM46cA #CFAwareness #CysticFibrosis #CFTrust

Today is World Rare Disease Day. Ataxia telangiectasia (AT) is a rare, genetic and neurodegenerative disease that still has no cure or treatment. It causes progressive physical disability, immunodeficiency, severe respiratory problems and increased incidence of cancer. In each country we have few people affected by AT, but together there are thousands around the world. For this reason, in 2020 we founded the A-T Global Alliance with charities from other countries, to fight together for research and share support for everyone affected by AT. Could you help us? Donate at https://lnkd.in/exw3nc6z #ataxiatelangiectasia #ATAlliance #rarediseaseday #raredisease

This is how we get inspired, this is how we will be able to fight thalassemia. Hashmat Fazal Mehmood, son of Mehmood Ahmed Butt (Late) remembers his father's dedication to helping thalassemia patients, at the fifth Mehmood Ahmed Butt Blood Donation Camp. Donate blood for thalassemia patients as your blood can save three innocent lives. #AleemDar #aleemdarfoundation #thalassemiafreepakistan #umpirescallforhumanity #blooddonation #blooddonationcamp

Did you know that people can live perfectly healthy lives with just one kidney? Living kidney donation is when a healthy person (donor) chooses to give one of their kidneys to someone who needs it (the recipient). If you are over the age of 18 and in good health you can be considered as a living kidney donor. There are several tests you will need to go through to make sure you are healthy enough to donate and that your kidney is a suitable match for the intended recipient. You will not be able to donate if you have had cancer, or if you have diabetes, heart disease or a condition affecting your kidneys. You have the right to change your mind about donating at any time, right up until the operation itself. You can find out more about donating a kidney here: https://lnkd.in/eFCuXpPt

Over the last several weeks, we have shared information relating to organ donation, and kidney disease in particular. This article provides a recap, information about what happens when you are an organ donor, and how you can become an organ donor. If you are already registered, THANK YOU! https://lnkd.in/gKTnaSx2 #fglcares #freshgreenlight #driversed #drivingschool #teendriver #organdonor #organdonation #beanorgandonor

Apheresis blood donors : 🩸Donors who donate specific components of blood which is required for the patient through a cell separation on an apheresis machine. 🩸Apheresis donation can be either voluntary or replacement. 🩸After whole blood donation , Apheresis donation can be done after 28 days. 🩸Taken into consideration of plateletpheresis , donation can be done 24 times a year. 🩸Minimum weight required for Apheresis donation is 50kgs. 🩸Age limit is 18-60 years of age. 🩸If the individual has taken aspirin or other NSAIDs deferred for 3 days & 14 days deferral for clopidogrel &Ticlopidine if it's platelet donation. #blooddonation #apheresis #transfusionmedicine #bloodcentre

How amazing is the power of umbilical cord blood??! Umbilical cord blood is a beautiful source of blood stem cells that can be collected at the time of birth with no risk to the mom or baby. This blood can then be processed and stored for use as a stem cell donor for patients needing a bone marrow transplant. It is especially important for those patients who can not identify a suitably matched related or unrelated donor because it offers access to a life-saving bone marrow transplant when the patient needs it most. Access to cord blood donors helps make sure that today, there is a blood stem cell donor for nearly everyone who needs one! #donorforall #cordblood #cordbloodtransplant

World Thalassemia Day: Be a Beacon of Hope! 🩸 This World Thalassemia Day, let's shine a light on this genetic blood disorder that affects millions globally. Many Thalassemia patients rely on regular blood transfusions to live healthy lives. Here's how YOU can make a difference: Be a Lifesaver: Donate Blood! A single blood donation can save multiple lives, including those with Thalassemia. Check your local blood bank for eligibility and donation opportunities. Spread Awareness: Share information about Thalassemia on social media using hashtags like #WorldThalassemiaDay, #BeatThalassemia. Educate friends and family about the symptoms and treatment options. Support Patient Advocacy Groups: Donate to organizations dedicated to research, patient support, and improving the lives of those living with Thalassemia. Together, through awareness, action, and support, we can create a brighter future for Thalassemia patients. #WorldThalassemiaDay #BloodDonation #BeTheChange #SupportThalassemiaPatients