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On Rare Disease Day 2024, rareLife solutions stands with the patients, advocates, and caregivers (PACs) living with rare disease. In fact, at rareLife, the remaining 364 (or 365) days are rare disease days, too. Scientific communications are our what, but PACs are our why. Learn more here today.

Robert F. I Melendez, MD, MBA is committed to achieving premium refractive outcomes for all of his patients. His protocol begins with testing for ocular surface disease pre-surgically with the #ScoutPro. Watch the video below ⤵ to learn more about the adoption of tear osmolarity testing in his clinic, Juliette Eye Institute. #Outliers2024 #OsmolarityMatters

Join Woo U and Dr. Selina Mcgee on April 24th! This course will cover an overview of the clinical overview of dry eye disease and the impact of preservatives on the ocular surface, the downsides of preservatives, and an update on novel formulations for dry eye disease treatment. Register now! Here is the link: https://lnkd.in/gNaKPTcy #DryEye #EyeHealth #EyeCare #Optometry #DryEyeDisease #EyeHealthMatters #WooUWebinar

Surgical treatment for Moyamoya Disease is complex. Watch our latest video for insight on pre-, intra- and postoperative considerations. https://lnkd.in/ehJ6ND-Q

Actions and steps taken now at both global and local levels will pave the way towards global implementation of shared decision-making in #heartvalve disease. In consultation with 19 multidisciplinary experts, we identified five key areas for global action and six local calls to action. Learn more about local call to action 1: Develop comprehensive and accessible local-level patient information materials on shared decision-making in HVD - https://lnkd.in/d9iSYrrw #HeartSDM

Important webinar for health care providers, family caregivers, and people living with Parkinson's about the Future of Parkinson's care.

The battle against syphilis just got a powerful boost with the recent release of significant recommendations by the United States Centers for Disease Control and Prevention (CDC), as highlighted in the Morbidity and Mortality Weekly Report (MMWR). These recommendations provide comprehensive guidance on the tests and protocols necessary for the accurate diagnosis of syphilis in the United States. With the alarming rise in syphilis cases globally, especially in developed nations like ours, these recommendations couldn't come at a more critical time. Click the link below to access the full article: https://bit.ly/4caSuvE Follow us for Daily Stories in the Medical Space #SyphilisDiagnosis #InfectiousDiseases #PublicHealth #CDC #MMWR #HealthcareUpdates #DiagnosticRecommendations #TreponemaPallidum #SyphilisAwareness #MedicalScience #SexualHealth

Those with a rare disease know how hard it is to get the right diagnosis and treatment. There are over 7,000 rare diseases affecting 350 million people around the world. But the rules and regulations that affect their health are often complicated and confusing. That’s why they need advocates who can speak up and make sure policymakers understand their needs. Advocates can help get more funding for research and more access to treatments and also help change policy that can make a big difference for those with high unmet medical needs. EveryLife Foundation for Rare Diseases

Learn more about our fourth local call to action from our shared decision-making in heart valve disease roadmap ➡ Seek to include a distinct step(s) within local HVD patient care pathways where the individual’s preferences, values and priorities can be understood and captured. Actions and steps taken now at both global and local levels will pave the way towards global implementation of shared decision-making in #heartvalve disease. Read more: https://lnkd.in/d9iSYrrw #HeartSDM

#ICYMI: Today, in an oral presentation at #ASGCT24, we shared nonclinical data demonstrating the tolerability and in vivo efficacy of SGT-1001, our development candidate for the one-time treatment of Stargardt disease. Check out the presentation here: https://bit.ly/3QyiIPo