Hodgkin Lymphoma survivor for 52 years. Founder and Executive Director of Hodgkin's International, Inc.
Ready to kick off another @CancerAdvocacy CPAT Symposium! Arrived in DC last night for one of my favorite events of the year. There is nothing like being in the same room with over 100 fellow survivors and advocates to feel like you are making a difference. Looking forward to visiting Capitol Hill tomorrow to make our voices heard. #CancerAdvocacy @NCCSCancerSurvivorship
𝗧𝗵𝗲 𝗙𝗧𝗖 𝗪𝗶𝗹𝗹 𝗦𝗲𝗲 𝗬𝗼𝘂 𝗡𝗼𝘄 - AOA advocacy leader Dr. Jeffrey Sonsino greets Lina Khan, Chair of the U.S. Federal Trade Commission (FTC), during a Capitol Hill visit focused on advancing optometry’s policy priorities, including the urgent need for a crackdown on anti-doctor/anti-patient abuses by the vision plan industry and predatory vision benefit managers (VBMs). Thanks to the efforts of Dr. Sonsino and thousands of advocacy-minded AOA doctors, two Congressional committees have launched inquiries into complaints about VBMs and support for bi-partisan legislation - the Dental and Optometric Care Access Act - to provide relief to optometry practices is growing. To join AOA’s advocacy efforts, please visit the AOA’s Legislative Action Center: https://ow.ly/YFFA50RU0tT
Excited to join this webinar and share my experiences! Please join us to discover more about FH and the milestones which have already been achieved!
Join us for a captivating webinar on September 26th, which delves into the realm of FH Paediatric Screening in Europe. Uncover the significant strides achieved by the FH Europe Foundation and its network, including milestones. We'll also highlight a groundbreaking EU project focused on implementation. Prof. Tomas Freiberger will spotlight diverse screening approaches across countries, proving that there's no one-size-fits-all solution. Indy Bangma, a spirited patient ambassador, will share her personal journey and advocacy efforts for systematic screening across EU nations, underlining the transformative impact of early screening for FH management. You can register here: https://eas.to/FHWeekWeb2
The leading source for clinical, practical, cutting-edge information for advanced practice nurses and clinicians.
In this episode of the NP Pearls of Wisdom (POW) #Videocast, Dr. Julia Rogers, DNP, APRN, CNS, FNP-BC, FAANP chats with Dr. Beth Haney, DNP, FNP-C, FAANP, FAAN about getting involved in state and federal legislature. #APRNs #NursePractitioners https://ow.ly/WSK550Qu1I3
It's time! Write your members of Congress NOW to ensure that Rett syndrome is listed as a topic eligible for federal Department of Defense (DoD) research funding through the Peer Reviewed Medical Research Program (PRMRP) in the final Defense Appropriations bill. As of July 2023, Rett syndrome is listed in the FY24 Senate Defense funding report, but it is critical that it be listed in the final FY24 bill negotiated between the House and Senate. Use our simple and easy Advocacy Tool to write your members of Congress and urge them to include Rett syndrome as a topic eligible for federal funding. Get started at rettsyndrome.org/advocacy.
In this captivating and important episode of Patti's People, from The Evidence Base®, Patti Peeples, PhD speaks with Emily Reuben OBE, CEO and Co-founder of Duchenne UK about Project Hercules and how a #patientadvocacy group can influence payer and provider stakeholders to enable change. A must watch. #heor #healtheconomics #outcomesresearch #hta #healthtechnologyassessment #healthdata #healthequity #healthpolicy #patientcentricity #patientengagement #duchenne #rarediseases
Two important pieces of legislation on the docket for this year's DOTH. HR 955/S 1849: Sustaining Outpatient Services Act seeks to redress the inequity in CMS reimbursement when a CR/PR program relocates off campus or opens a new facility off the grounds of the main hospital. HR 1406/S 3021: Sustainable Cardiopulmonary Rehabilitation Services in the Home Act seeks to make many of the waivers that CMS granted during the PHE permanent. These waivers allowed for the delivery of virtual CR/PR and for the daily supervising provider requirement to be met virtually. The last point is critical (no pun intended) for CAH in rural areas. AACVPR is sending the entire BOD to D.C. this year to impress upon Congress how important these bills are. Hope to see you there.
Calling all members! Join AACVPR leaders in Washington, D.C., March 4-5 for Day on the Hill. Register now to take part in this opportunity to meet with legislators and advocate for the valuable care and services you provide to your patients. https://buff.ly/3Sstvw4
In honor of Doctors’ Day, we celebrate Samuel Kimura, MD, and Michael Hogan, MD, founders of That Man May (now All May See) Foundation in 1971. Learn more about them and support this important work at www.allmaysee.org! #DoctorsDay2024 #UCSF #UCSFOphthalmology
🟢🟥🔶🟣🟨🔷Have you signed up for the Neurodiversity Celebration Week ?🔷🟨🟣🔶🟥🟢 Lots of free informative sessions plus our Chair of Trustees, Vicki Lamb is on the Panel: 👉Neurodiversity for parents and carers👈 Some of the topics covered include: Being inclusive of neurodiverse children Understanding potential challenges and barriers in education Diagnosis and navigating the healthcare system Communicating with teachers and clinicians Why neurodiverse parenting maybe different Acceptance and advocacy https://lnkd.in/eUbnBNYT
🌼 Embrace the Power of Anti-Oppression in End-of-Life Care 🌼 Are you an end-of-life practitioner committed to delivering compassionate and culturally-responsive care? 🌿 Do you want to deepen your understanding of anti-oppression concepts to ensure your care is truly inclusive and healing? 🤝 Join us for this session of our symposium where we'll embark on a journey to build a platform of anti-oppression in end-of-life care. 🌍 🔎 What to Expect: ✨ Exploring Historic Harms & Unintentional Complicity ✨ Unpacking Racism and Other -isms in Care ✨ Activating Anti-Oppression Frameworks ✨ Decolonizing Across Systems ✨ Self-Reflection and Learning from Centuries of Anti-Oppression Activism In our quest to provide the highest quality care, it's crucial to acknowledge that even well-intentioned practitioners can inadvertently perpetuate harm. Let's come together to dismantle these barriers and work toward a future of equitable, compassionate care for all. 💪 Don't miss this enlightening session! Register now and be part of a community committed to change. Click the link in our bio to secure your spot. 🎟️ Help us spread the word! Share this post and tag fellow practitioners who are dedicated to enhancing their practice with anti-oppression values. 👥