Global Heart Hub’s Post

In #Europe today, chronic kidney disease is linked with high costs and a substantial burden on #kidney patients and on #healthcare systems. To meaningfully address #CKD, it’s crucial to invest in #innovation. By facilitating public-private innovation partnerships, the #EU can restore its position as a #global leader in #medical innovation! 👉 Discover EKHA’s #KidneyManifesto: https://bit.ly/3ProQZ1

New Blog Post: The cost of #kidneydisease extends far beyond the confines of medical expenses, encompassing lost productivity, diminished quality of life, and strained healthcare resources. Learn more about key strategies to addressing kidney disease from Shelneko Northington, Executive Director of National Kidney Foundation for GA, AL, and MS: https://lnkd.in/eUJUEFyC

Global Heart Hub, in partnership with The Health Policy Partnership, developed a global roadmap to support #patient organisations and other advocates, including healthcare professionals and researchers, in driving shared decision-making best practices for people with #heartvalvedisease in their countries. This roadmap, "Paving the way: a roadmap to the successful implementation of shared decision-making in heart valve disease", will help improve patient access to #shareddecisionmaking by addressing the perceived barriers. The roadmap highlights the need for a gold standard for shared decision-making in #HVD as there is currently no standardised model available at the national or international level. Learn more - https://lnkd.in/d9iSYrrw #HeartSDM

🩸💉 Advancing Healthcare: #Navigating the #Europe #Blood #Screening #Market! 🌍 In the realm of healthcare, blood screening stands as a critical pillar in ensuring safety, early detection, and disease prevention. Across Europe, advancements in technology and increasing awareness drive the evolution of the blood screening market, shaping the future of healthcare delivery and patient outcomes. Get Details:https://t.ly/wQLCJ The Europe blood screening market is witnessing steady growth, driven by factors such as increasing blood donation rates, rising healthcare expenditure, and stringent regulatory standards. #BloodScreening #Healthcare #EuropeMarket #Diagnostics #Innovation #PublicHealth #PatientCare"

At SMA Europe, we are committed to enhancing the healthcare systems, shaping policy, and improving access to care and treatment for people living with SMA. 🤓 This is why, today, on Rare Disease Day 2024, we launch the "Care for adults living with SMA in Europe: a benchmarking report." 📣 In this document, together with the short country reports, we benchmark SMA adult care against 19 indicators within the following categories: 1. Healthcare systems organisation; 2. Healthcare delivery and 3. government and peer support  You can consult it all here: https://lnkd.in/eWgd_UY2 All together. One goal. 🙌 #RDD2024 #RareDiseaseDay #29February #RareDisease #spinalmuscularatrophy #Care #Treatment #accesstotreatment

International Thalassaemia Day: Honoring Patients and Raising Awareness. Today, on May 8th, we commemorate #International_Thalassaemia_Day, a significant annual event dedicated to spreading awareness about thalassaemia, a severe blood disorder. Let’s delve into the history, significance, and ongoing efforts to combat this disease. Join the Movement Let’s stand together to raise awareness, debunk myths, and support those living with thalassaemia. Share your stories, spread knowledge, and advocate for accessible healthcare. Together, we can make a difference! #ThalassaemiaAwareness #HealthMatters #GlobalHealth #IMD #GPL

It’s no secret that access to healthcare is plagued with inequalities — and this is especially true for respiratory and lung disease care in the UK. Read about how specialists in respiratory care are finding new ways to address the issue of access and education for people of all social and cultural backgrounds in our article 'Inspiring solutions: Tackling inequalities in respiratory care': https://lnkd.in/ePRMXz_G #RespiratoryCare #LungDisease #TacklingInequalities

International Thalassaemia Day: Honoring Patients and Raising Awareness. Today, on May 8th, we commemorate #International_Thalassaemia_Day, a significant annual event dedicated to spreading awareness about thalassaemia, a severe blood disorder. Let’s delve into the history, significance, and ongoing efforts to combat this disease. Join the Movement Let’s stand together to raise awareness, debunk myths, and support those living with thalassaemia. Share your stories, spread knowledge, and advocate for accessible healthcare. Together, we can make a difference! #ThalassaemiaAwareness #HealthMatters #GlobalHealth #IMD #GPL

Rare Disease Day serves as a powerful reminder that patients facing rare diseases deserve the best possible care and equitable access to diagnosis, treatment, health, social care, and opportunity. At BCB Medical, we're driven by the goal of improving quality of life. We carefully develop tools that aid clinicians in documenting crucial information, collaborate with patient groups to ensure patient feedback is central to the process, and work alongside healthcare providers, academia, and life sciences with the focus on knowledge sharing that drives advancements in treatments and support. BCB Medical proudly supports Rare Disease Day. We recognize the importance of raising awareness and advocating for the needs of the rare disease community. Through our work, we strive to be part of a global movement for change, ensuring that individuals with rare diseases have access to the care and resources they deserve. #rarediseaseday #bringingdatatolife

A new set of national recommendations for rare disease healthcare were launched today, Rare Disease Day. Eight practical recommendations with embedded resources and educational courses outline how Australian health professionals can provide high quality care to people living with a rare disease, their families, and other carers. Co-designed by an extensive multi-stakeholder consultation process, the recommendations have been developed by health professionals, academics and people living with a rare disease. The recommendations are a first step towards developing national guidelines for rare disease care and support. This work is part of the Rare Disease Awareness, Education, Support and Training (RArEST) Project. Read the full Recommendations here: https://lnkd.in/gR_V5VjK Rare Voices Australia, UNSW, The University of Western Australia, Macquarie University, Australian Institute of Health Innovation AIHI #rarediseaseday #raredisease #RArEST #rarediseaseday2024