Huntington's Disease Society of America’s Post

¿Buscas un grupo de apoyo en español para ayudarte a enfrentar la enfermedad de Huntington? Nuestros grupos te ofrecen un espacio seguro para compartir, aprender y crecer juntos. Únete a nuestra comunidad en línea y encuentra el apoyo que necesitas. https://rb.gy/dlol23

The HD Symptoms and Treatment Impact Survey is here to gather YOUR insights, so we can shape better treatments in the future. Take the survey now and let's #BeatHD: https://lnkd.in/eCuixvy7 💪 #HDawareness

Hey HD warriors! 🌟 We need your voice! The HD Symptoms and Treatment Impact Survey is here to gather YOUR experiences living with HD. This survey will help shape future treatments and developments. Let’s make a difference together! Take the survey now: https://lnkd.in/eCuixvy7 #HDawareness #SurveyImpact #MakeADifference

This past May, in Spokane, WA, the 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together. Another awesome presentation is here! Staying Connected: Isolation & HD, presented by Luci Draayer, LCSW, CMC, is now available on our YouTube channel. Check out this presentation by using the url below: https://lnkd.in/eDVN_S9c #LetsTalkAboutHD #hdsaconvention #HDSAFamily #familyiseverything #huntingtonsdisease

hola maravillosa comunidad! Check out the latest installment of the HDSA Research Blog! #LetsTalkAboutHD📚💡 Share your thoughts, spread the word! 👉Click the link below!👇 https://hdsa.org/blog

This past May, in Spokane, WA, the 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together and that epic recap video is finally here! The 39th Annual HDSA Convention Highlight Video is now available on our YouTube channel. Check out this video by using the link to our YouTube channel in the bio or by using the url below: https://lnkd.in/eP8pvHxV #LetsTalkAboutHD #hdsaconvention #hdsafamily #familyiseverything #huntingtonsdisease

At the 39th Annual #HDSAConvention Awards Dinner & Gala, we celebrated someone who has, through her actions, demonstrated leadership and commitment to HD families and the community. Growing up in an HD family brings challenges that other youth and young adults seldom face. Her bravely empowers others to speak up and do in-spite of their circumstances. Congratulations to the first of two 2024 HDSA Youth Award recipients, and Albany Chapter member, Jenna! #LetstalkaboutHD #HDSAFamily #FamilyIsEverything #NYA

This past May, in Spokane, WA, the 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together. Another awesome presentation is here! Long Term Care Options In HD, presented by Carlette McDaniels, LCSW and the 2024 HDSA Excellence In Care Award winner, Susan Reynolds, MSW, LCSW, is now available on our YouTube channel. Check out this presentation by using the url below: https://lnkd.in/e5s884bh #hdsaconvention #familyiseveryting #longtermcare #huntingtonsdisease

On this date in 1912, music icon Woody Guthrie was born. Woody passed away from complications due to #HuntingtonsDisease when he was only 55 years old, but the Guthrie Family legacy lives on. In 1967, his wife, Marjorie, founded the Committee to Combat Huntington's Disease - known today as the Huntington's Disease Society of America. #LetsTalkAboutHD #HDSAFamily #FamilyIsEverything #HappyBirthdayWoody

The 39th Annual HDSA Convention brought the global #HuntingtonsDisease community together in Spokane, WA, May 30 - June 1, 2024. The presentation on Bridging the Rural - Regional Healthcare Divide in Huntington's Disease Care, made by Jason Aldred, MD FAAN, is now available on our YouTube channel. Check it out by using the url below: https://lnkd.in/eMP6Y3CN #OneHDSA #LetstalkaboutHD #HDSAFamily #familyiseverything #Huntingtonsdisease