International Myeloma Foundation’s Post

In my last post, I already emphasised the importance of social responsibility. Besides the mentioned organisations for children, there are many other institutions that rely on support to save, facilitate or improve people's lives. As part of my company's expansion in Bosnia-Herzegovina, we are supporting the renovation of important healthcare infrastructure - in this case specifically for oncology and haematology in Tuzla. #SocialResponsibility #BosniaandHerzegovina #proxeedo

💙 Niccolo (20), Alessandro (13) and Sammy (28) are among nearly 100 children & young adults with #Progeria across the world who are benefitting from the life-extending, FDA-approved lonafarnib drug. PRF will continue to devote funds to ensure access to lonafarnib for all, and to study its long-term effects. But we won’t stop there. PRF is exploring 3 other therapeutic pathways to treat and cure Progeria, attacking this disease: at the Protein, at the RNA and at the DNA levels. 💙 Donate here: https://bit.ly/OPTeamPRF 💙 The Progeria Research Foundation is dedicated to making sure all children & young adults with Progeria have a bright future. Thanks to YOU, PRF continues to make a dramatic impact on the length and quality of life for those with Progeria. Please continue your vital support and be ONE who makes the cure POSSIBLE! #ONEpossible #fundraiser #fundraisingcampaign #research #scientificbreakthroughs #lonafarnib #progerin

In a clinician-patient partnership #DYNAMALK is raising funds to incl. Stage 4 ALK+ NSCLC patients on treatment Every $10k raised samples a patient's comprehensive DNA profile over time to correlate with clinical changes A step closer to personalised medicine Donate https://buff.ly/3rTsGSi Read more about this and other TOGA research: https://buff.ly/46AGL5m

A planned gift to Lymphoma Canada can help you create a lasting legacy and transform countless lives. You do not need to be wealthy in order to maximize the benefits of charitable giving and with the help of a financial advisor you can plan a gift that fits your goals and tax situation. To learn more about Planned Giving: https://ow.ly/RXtX50QTCgu

💙 Today is #GivingTuesday❗ Help us give children and young adults with #Progeria a brighter future❣️ 💙 Help us reach our $20,000 Giving Tuesday goal – Please donate TODAY❣️ https://bit.ly/PRFDonation 💙 Check out how far we’ve come: Previous studies showed that #lonafarnib, the only FDA-approved treatment for Progeria, increased lifespan on average by 2.5 years. Now, time and our new biomarker test have demonstrated that life expectancy for those on the drug for 10 years or more increases by almost double that figure, to an average of 4.5 years. This represents more than a 30% increase in lifespan - AMAZING❣️ #ClinicalTrials #progeria #findthecure #lonafarnib #ProgeriaResearchFoundation

🌟 A remarkable stride in medical research unfolds! With the insightful work of Drs. Dulski, Stanley, Chitu, and Wszolek, we're glimpsing the potential of glucocorticosteroids having a possible protective effect for CSF1R mutation carriers. To everyone invested in the journey toward better health—this is an update you won't want to miss. Join the conversation, spread the word, and be a part of this exciting chapter in medical science. Together, we're moving forward to a future where every discovery brings us one step closer to healing and hope. Donations: If you are interested in donating to research, or to a multicenter collaboration to provide further evidence on GCs please donate at https://lnkd.in/gWpGGtis. Please note that you would like your donation to be used towards research. For more information please refer to the full publication: https://lnkd.in/gJ8jQgC7 #RareDisease #CSF1R #ALSP

This Rare Disease Month or simply in 2024, will you commit to helping fundraise to support continued research, drug development, awareness and advocacy? https://lnkd.in/gHBMyAyB #curegm1 #rarediseaseday #hope #fundraise #donate #nonprofit Rare Disease Day

A planned gift to Lymphoma Canada can help you create a lasting legacy and transform countless lives. You do not need to be wealthy in order to maximize the benefits of charitable giving and with the help of a financial advisor you can plan a gift that fits your goals and tax situation. To learn more about Planned Giving: https://ow.ly/zVvS50Rjomv