Jessica Baladad’s Post

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Master Problem Solver | Strategic Collaborator | Patient Advocate | Speaker + Storyteller | Breast Cancer Survivor

I still struggle to understand this nearly 6 years out from my breast cancer cancer diagnosis. When something goes wrong with my body, what medical provider do I see? For instance, last month I noticed some bright red bumps near my clavicle and arm, on my left side, which is my cancer side. - Do I see my dermatologist because it's my skin? - Do I see my oncologist since this is on my cancer side? - Or do I see my PCP, who happens to know my medical history with cancer and can advise me? I actually called my dermatologist first, but his next availability was 2 weeks out. Here was my thought process: - These bumps are new, and they concern me, so I could probably call my primary, who can take a look at them and tell me what to do next. - This isn't a breast lump, so my oncologist doesn't need to get involved yet, right? - I'll call my Primary because my Oncologist should be reserved for really sick patients. So that's what I did. I went back and forth with these thoughts for about a day. No one tells you how to get cancer and what to do. When I was first diagnosed, I got a "Welcome to Breast Cancer" packet from my hospital. It was an onboarding of sorts that made me feel like I was joining a sorority I didn't choose to be part of. The initiation definitely sucked. But when I went into remission, there was no coordinated plan. I kinda had to figure it out on my own by asking questions and using Google. Ugh. Today I'm on Capitol Hill to advocate for the Comprehensive Cancer Survivorship Act and the Cancer Care Planning & Communications Act. In short, each of these would designate resources, funding and provisions that would alleviate the burdens of medical survivorship during and after cancer. They would provide tools, resources and programs that would better monitor the care patients receive throughout their diagnosis and after. For me, it's less Googling, less anxiety and a more proactive approach to how I take care of myself. ... Because I need to be my best "me" so I can keep going after these insurance companies, too. 😉

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Laurie Lyckholm

Professor, Hematology/Oncology at West Virginia University School of Medicine

3w

First of all, I hope you are okay and those bumps in your skin have gone away! Thank you for highlighting and advocating for survivorship! You are probably also a member of the AYA (Adolescent and Young Adult) group (15=39) of survivors, who have traditionally had a hard time with survivorship because of so many unmet needs unique to that age group. There are AYA programs all over the world that are trying to address the needs of adolescent and young adult survivors. As a medical oncologist, i can say that it would have been well within my specialty and my responsibility to you as your oncologist to answer your call and questions. One of the things I love the most about being an oncologist is the relationships with my patients and their families that are deep and last a long time! Thank you again for all you are doing, and I hope all is well with you, Jessica!

Cheryl Coy Stamm

Principal Owner at CCS Software Solution Consulting, LLC Business Development -- Strategic Sales Plans

3w

I hope the bumps were nothing concerning

Ann Lewandowski

Founder | Chief Patient Officer | Advisor | Health Policy | Strategy Consultant

3w

This is exactly what so many people don't understand about a complex patient. Is X going to kill me, and how do I get the answer it won't.

It’s gross!! We have an assay for women with DCIS stage 0 breast cancer and Medicare and Medicaid cover it based on it’s robust data!!! DCISionRT is the ONLY 7 gene assay that helps women know if Radiation Therapy will help them or not. AND the insurance companies still say it’s investigational despite 7 years on the market and tons and tons of consistent data!! Why??? Purely financial and pay less claims means bigger CEO bonus. #healthcare #breastcancer #advocate

Emily Zarecki

PR & Communication Strategist | Author | Speaker | Breast Cancer Survivor & Advocate

3w

So excited to see this! Life post-cancer can be harder than navigating treatment for cancer. In treatment, physicians follow the science, research, and protocols. For me, I was terrified after ringing the bell, which signaled the end of my chemo. I felt like I was walking into a dark room with no light, no path. Side effects from treatment lingered. Doctor's orders to "eat right and exercise" didn't cut it. I felt like I was finding my own way ... and not always succeeding.

Linda M. McKenna

Owner & Senior Care Advocate at Golden Rule Senior Placement Services

3w

As a MBC Thriver…I Love this sentimental and wise post…immensely! 🩷💝🩷

Betsy Glosik

Putting my cancer experience to work to connect Patients, Advocates & Clinicians with Integrative Oncology

2w

It is indeed so confusing- and we are left to ask ALL the questions to figure it out- even just the basics sometimes. We need to fix this disconnect with oncology and primary care to get better guidance in managing our own care!

Sunny Hoffman, MS, MPH, RBP(ABSA)

Director of Business Development @ Sabai Global | Clinical Trials, Ethical Review, Biosafety Review, Consulting

3w

I once asked a survivor when I would stop being so worried about every little thing. She said, “when you see that they all turn out to be little things.” I got strep last week, and it was the first time I didn’t first jump to cancer as what was most definitely going on. I’m getting better! It’s been 7 years.

Diane M. Simard

Helping Those Impacted by Cancer's Psychological Trauma HEALFORWARD ➤Top 100 Nat'l Women in Biz to Watch ➤ COPE Founder ➤ Executive Advisor ➤ Breast Cancer Survivor ➤ Award-winning Author ➤ Patient Advisor

3w

Bravo, Jessica Baladad! Can you please provide a site link with more info about both Acts (including status)? I plan to reach out to our Colorado DC delegation. Many thanks!

Victoria McGlone

Revenue Leader | Growth Consultant | CEO and Founder of Three Cliffs | Forty Under 40 Recipient | Published Children’s Book Author | Breast Cancer Survivor

3w

Thank you for articulating so beautifully what life is like as a breast cancer survivor. Thank you for your advocacy and your courage 🤍

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