Morgan Reid, MSJ’s Post

Death is the inevitable closing chapter in every person's life. For some, the possibility of death has been long anticipated due to chronic illness, whereas others may face it unexpectedly. For many, the idea of spending their last days of life at home is important. We have published a comprehensive new resource aiming to educate and support primary healthcare professionals in delivering community-based care during the last days of life, usually as part of a multidisciplinary team. This was developed with the support of Te Aho o Te Kahu, Cancer Control Agency, and contextualises information from the Ministry of Health, Manatū Hauora, “Te Ara Whakapiri: Principles and guidance for the last days of life” resources specifically for general practice. https://lnkd.in/g-Gz9-EU

We are pleased to introduce the 2nd newsletter of the AFFIRMO project, a comprehensive initiative aimed at enhancing the clinical pathway for older patients managing both multimorbidity and #AtrialFibrillation (AF). 👥 In the ever-evolving landscape of healthcare, where the challenges posed by multiple chronic conditions are significant, AFFIRMO stands out by adopting a patient-centred approach. We prioritize individual needs and social contexts to ensure a holistic approach to care. 💡 As healthcare strategies adapt to meet the unique requirements of older individuals coping with multimorbidity and AF, #AFFIRMO reflects the consortium's unwavering commitment to delivering care beyond traditional models. We recognize the intricate health concerns our patients face and place a strong emphasis on inclusivity and empathy. 🤝 AFFIRMO actively involves patients in decision-making processes, fostering a collaborative environment where their voices shape the trajectory of their care. We believe that by working together, we can create a #healthcare experience that is not only compassionate but also tailored to the unique needs of each individual. Explore the innovative aspects of AFFIRMO with us, as we navigate the complexities of multimorbidity and AF, aiming to create a more compassionate and tailored healthcare experience. Join our efforts in ushering in a new era of patient-centric care, where the emphasis lies on the journey towards health, as much as the destination. 🔗 Check out our latest newsletter to stay updated on the work of the AFFIRMO project: https://lnkd.in/e_Cdt8DS Project Consortium Aalborg University  |  University of Liverpool  |  Ghent University  |  Karolinska Institutet  |  Consiglio Nazionale delle Ricerche  |  Università degli Studi di Padova  |  Carol Davila University of Medicine and Pharmacy  |  Moverim Consulting  |  Ontonix  |  Arrhythmia Alliance  |  University of Belgrade, School of Medicine  |  Istituto Superiore di Sanità  |  Advice Pharma Group S.R.L.  | Università Cattolica del Sacro Cuore  |  Fondazione per il Tuo cuore  |  The European Institute for Innovation Through Health Data  |  The University of Manchester  |  Universidad de Murcia  | MEDITCINSKY UNIVERSITET 

Great article today that talks about the key to success being patient-centric care. "The way that we practice medicine now is fundamentally different than it was even five years ago" has never been more true! Adapt or get left behind 🏃♂️💨 Author credit to Wesley Burks, MD from UNC Health, published by Becker's Healthcare. https://lnkd.in/gjxTd4cg #Healthcare #Beckers #patientcentriccare #patientfirst #qualitymatters #feedbackmatters

Appropriate and timely lifelong access to healthcare following a spinal cord injury (SCI) is critical, yet unmet healthcare needs in this population are common. This study aimed to: (1) describe healthcare provider utilization in the past year, unmet care needs and satisfaction with healthcare services; (2) explore the association between experiences with healthcare providers and unmet healthcare needs; and (3) explore the association between healthcare provider utilization and participant characteristics, including unmet healthcare needs. https://lnkd.in/gtxPG5Jt

We are excited to announce that our Site Partnership Network is expanding with the addition of our strategic partner, SSM Health! SSM Health is a Catholic, not-for-profit, and fully-integrated health system that serves communities across the Midwest—including Illinois, Missouri, Oklahoma, and Wisconsin. Through this partnership, SSM Health will greatly increase and accelerate opportunities for patients to participate in oncology trials and clinical research. "This collaboration furthers SSM Health's Mission of bringing exceptional health care services to all people–especially those most in need–by bringing investigative treatments to our broad network of community-based health settings while contributing to research that could lead to new medicines and devices becoming more broadly available," said George W. Daneker, Jr. MD, Vice President for Oncology at SSM Health. "With Circuit Clinical's research expertise, we can now provide our communities with the access needed to get into those oncology trials in the familiar settings where they already receive their care, allowing us to improve not only survival rates but also their quality of life." Learn more about this momentous partnership and how we're expanding clinical research access for SSM Health patients: https://lnkd.in/gHa2KpVr #ClinicalResearch #Partnership

In celebration of the milestones we have achieved over the course of the past three decades, we feel like it may be an appropriate time to re-introduce ourselves to our growing community of patients, loved ones, healthcare providers, researchers, and more! 𝐀𝐛𝐨𝐮𝐭 𝐭𝐡𝐞 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧 The Restless Legs Syndrome Foundation is the leading organization for science-based education and patient services for people suffering from restless legs syndrome. It is also the only organization with a dedicated research grant program to advance promising research leading to new treatments and a cure for RLS. Restless legs syndrome (RLS) was once regarded as a “rare” condition, but our understanding of the disease has changed drastically and we now know the condition is not rare at all. In fact, recent research suggests that up to 7-8% of the general population has this condition – that is perhaps the most common condition that is unrecognized in the medical community and the public realm. Since its inception in 1992, the Foundation has provided nearly $2 million in support of RLS research and has grown from a small group of volunteers meeting around a kitchen table in Raleigh, North Carolina into a bustling organization with full-time staff and an office in Austin, TX. Through our support network, research grant program, and more, we are dedicated to supporting all those affected by #restlesslegsyndrome.

Fantastic news about our success 🌟 It has been announced that we are one of only two winners for the Health Inequalities Targeted Call, a competitive process by NHS England, NHS Race and Health Observatory, supported by NHS Innovation Accelerator. We have won for our role as catalysts for transformative change in healthcare, and our innovative work in tackling health inequalities, and the Children and Young People’s Peer Mentoring Programme was cited as an example of our work in this area. Here’s some more detail and a link to the full article : 🏆 Winners Announced for Health Inequalities Targeted Call, a collaborative initiative by NHS England, and NHS Race & Health Observatory, supported by the NHS Innovation Accelerator. The winners, C2-Ai and Sickle Cell Society, were revealed today at Royal Society of Medicine conference, ‘Tackling Inequalities: Through innovation and entrepreneurship’. This collaborative effort, aligning with the #Core20PLUS5 strategy, addresses scoring and stratification systems in maternity, sickle cell disease management, and elective care. It marks a resolute step towards confronting healthcare inequalities head-on and driving solutions for better outcomes in the NHS and broader healthcare ecosystems. 🤝 Let's celebrate these remarkable initiatives driving transformative change in healthcare! Together, we can build a future where equitable healthcare is a reality for all. https://lnkd.in/eQS7raWB #healthinequalities #NHSEngland #NHSRaceandHealthObservatory #NHSInnovationAccelerator #transformativechange #healthcare #ChildrenandYoungPeoplePeerMentoringProgramme #collaboration #RoyalSocietyofMedicine #TacklingInequalities #innovation #C2Ai #SickleCellSociety #Sicklecell #Blackcommunity