National Human Genome Research Institute (NHGRI)’s Post

SAI Members, the Society has limited spaces available for interested members to take part in a 2024 WiDS Datathon workshop! The #WiDSDatathon is an annual event organised by Women in Data Science (WiDS) Worldwide. The Datathon presents a very exciting opportunity for both aspiring data scientists and data science enthusiasts to discover and hone data science skills while solving an interesting and critical social challenge. WiDS Datathon 2024 Challenge Theme: Equity in Healthcare - The 2024 Datathon focusses on equity in healthcare, with sponsor Gilead Sciences providing rich data on metastatic breast cancer treatment, providers, facilities, insurance coverage and patients. Participants will analyse a unique dataset to identify possible inequities in patient care, such as treatment duration and time to adoption of treatment. The workshop will be hosted by the Society and take place virtually on Tuesday, 16th April via Zoom. Participants must be willing and available to take part in the next 2024 WiDS Datathon Challenge which will run until 1st June 2024. All are welcome. The workshop will cater for beginner and intermediate levels of expertise. REGISTRATION - To register your interest in the WiDS Datathon workshop, please make a reservation by COB, Wednesday, 27th March 2024 via this event page, here: https://lnkd.in/e49kAHaB. You will also find further information and the agenda on the event page, too. NOTE: If you would like to form your own Datathon team with other SAI members, please include the names of your preferred teammates in the comment box when making your reservation. Each team should be at least 50% female. #WomenInDataScience #WiDS #Datathon #EquityinHealthcare

Today, I will share the #FierceDEI virtual stage with the incomparable Kimberly Richardson to discuss GCI Health's research on how Black women view clinical trials. The catalyst for taking on this research began with my mother, my grandmother, and me. Across three generations, we were absent from clinical trials. Not because we opted out but because we were never given the chance to opt in. "If I knew that my participation would help the next generation, I would sign up," my mom shared. This story is not an outlier but a part of the journey for many Black women. For example, Black women are still dying at a nearly 40% higher rate from the disease than white women. But, a study found that half of Black women living with metastatic breast cancer never receive information about a clinical trial. We cannot take part if we do not know what's available to us. I don't believe anything materializes by happenstance but by design. That our conversation today is happening on the heels of The White House announcing an initiative to "fundamentally change how we approach and fund women’s health research" is a signal. It's a signal that our communities, our industries, and our country are ready to take on a multi-layered approach to get to equity in women's health research. What does that look like? Making medicine that works for everyone -- including Black women. #ClinicalTrials #HealthEquity #WomensHealthResearch

Partner Spotlight: Accelerated Cure Project We're thrilled to shine a spotlight on our partner, the Accelerated Cure Project for Multiple Sclerosis. Who Are They? The Accelerated Cure Project is a pioneering nonprofit organization with a singular focus: accelerating research efforts in multiple sclerosis (MS). With a foundation of collaboration, innovation, and community involvement, they are driving progress in the fight against this complex disease. What They Do: At the core of their mission is the creation of a powerful research network that brings together scientists, patients, and healthcare professionals. By fostering collaboration and data sharing, they enable breakthroughs in MS research, with the ultimate goal of finding a cure. Why It Matters: Multiple sclerosis is a challenging condition, and the Accelerated Cure Project's approach is nothing short of transformative. Their dedication to an inclusive, data-driven research model is propelling advancements in our understanding of the disease and offering hope to those affected. Our partnership with the Accelerated Cure Project is a testament to our shared commitment to scientific progress and improving lives. Visit their website to learn more - https://lnkd.in/gZ-sdd6q #AcceleratedCureProject #PartnerSpotlight #MSResearch #Collaboration #ScientificInnovation #CommunityInvolvement #AODPartner #Diversity #Equity #Inclusion

How to make community events more diverse, accessible & inclusive 👇 Proud to be part of an organisation that is transparent about diversity, equality and inclusivity at its own events. Here's the deliberate action we are taking to be better: https://lnkd.in/gpBu57Eu

Stephanie Anderson, MA, SHRM-CP, Velocity Chief of Staff, was a panelist for the webinar, "Diversity and Inclusion in Clinical Trials." The webinar was hosted by Merck and delves into critical topics such as operational strategies, community engagement, and successful measures that research sites can employ to enhance diversity and inclusion in study participation. The webinar later covers educational resources to help sites improve workforce diversity, equity, and inclusion. It also highlights the valuable resources and partnerships Merck offers to research sites, including the collaboration currently underway with Velocity — bringing Merck's iLab53, a state-of-the-art, modular 39-foot mobile research unit to underserved communities across California. Don't miss out on this insightful discussion! Watch the webinar: https://lnkd.in/eMcAH7yS #ClinicalTrials #DiversityandInclusion #ResearchExcellence #DEI #ClinicalResearch

Is there a more pressing issue in the medicine today than the challenging landscape of diversity, equity, and inclusion?🤔Join us on this week’s episode of the B-MED as we explore this crucial topic with the thought-provoking insights from Yale’s Chief Diversity Officer Dr. Darin Latimore. We are stronger 💪🏾 together and we must keeping pushing forward on this mission 💯💯💯Link in bio to watch or listen! #diversityequityandinclusion #biasinmedicine #medicalracism #blackdoctorsmatter #representationmatters #blackmedconnectpodcast #bmedpodcast

Enhancing patient diversity in clinical trials is a priority in drug development. Groups such as women, pediatric and elderly patients, people with disabilities, LGBTQ+ individuals and racial/ethnic minorities are often excluded from trials. As a result, the U.S. government has taken increased measures to require sponsors to submit diversity plans. Learn more: #DiversityInClinicalTrials #InclusiveResearch #PatientCare

When it comes to patient safety, it goes beyond just the quality of medical products. Diversity, inclusion and equity in drug development are crucial for ensuring efficacy and safety, as different populations may respond differently to treatments. #TeamBayer, #WorldPatientSafetyDay, #DiversityEquityAndInclusion,

On September 17th, Patient Safety Day, and every other day, we need to continue to elevate the need for diversity and representation in our clinical trials. Diversity, inclusion and health equity is integral to patient safety. #DiversityInClinicalTrials #HealthEquity #PatientSafety