Navigating #HealthInsurance can be the worst part of the care process. With a #RareDisease, it can be even harder. Our #LivingRareForum panelists discussed How to Overcome Insurance Barriers with a Rare Disease: https://bit.ly/3zLEglU
Overcoming Insurance Barriers with Rare Disease - 2024 NORD Living Rare Forum
https://www.youtube.com/
Nina Schirmer
1mo
This is a great topic of discussion. I have to go through barriers currently to get approvals for surgery for my rare disease.
This was a fabulous discussion. Great presenters who were wonderful resources after the session was done too!! Thank you!!
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1moIf my husband hadn't been told by insurance that he needed to "fail" all other available forms of treatment for his rare disease before they would approve the one known to be most successful and recommended by his doctor, maybe he would still be here and not gone less than a year after diagnosis. Instead, our daughter will walk down the aisle at her wedding without him just a week after the two year anniversary of his passing this fall. Change is needed.