National Organization for Rare Disorders’ Post

Let's talk about sexual and reproductive health issues in #RareDisease. From having kids to having fun, what should you keep in mind? Our 2024 #LivingRareForum panelists (and guests) had a lot to say. Watch: https://lnkd.in/eFNahb3M Feat. Dr. Michelle Fynan, André Marcel Harris, MSW of SICKLE CELL ASSOCIATION OF HOUSTON, Esmeralda Vazquez of Genentech, and Taylor Kane of Remember The Girls

Neil Smith

Locum Biomedical Scientist at NHS Blood and Transplant

1mo

This is an important topic for patients with #Kallmann syndrome like myself. It is not an easy topic to discuss in an open forum like this. It is often discussed at patient meetings or on line discussions in patient forums. I think most patients benefit from being able to talk to fellow patients who might be best placed to offer advice and support. In Kallmann syndrome you have the twin problems of abnormal #puberty and #infertility, both of which are not easy topics to bring up in any discussion.

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