Payal Patel’s Post

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Rare Disease Mom | Advocate

It's Giving Tuesday, and I know that means everyone with a cause is asking for your attention -- and your donations-- today. As you consider where to give, I hope you'll consider DLG4 Research Fund Here are just a few reasons why: 1. We have done more work in one year with our small board than most non profits accomplish in 5 years. Plus our board is matching every single donation through the end of the year. 2 Because our funding pool is small, we MUST be efficient and strategic. We don't waste time or money. 100% of the proceeds go towards research. There are no overhead costs. 3. Our gene therapy work is moving forward as quickly as possible, thanks to Alysson R. Muotri, PhD 4. The challenges our children our facing are monumental. We need an army as strong and brave as they are to tackle DLG4 Synaptopathy. We've made great strides, but we need your continued commitment to keep moving hope forward. By making a donation today, YOU can contribute to improving the lives of those affected by DLG4 Synaptopathy. Every $1 helps and if you are unable to donate, even sharing this post will help reach us a bigger audience. Thank you for helping us make a difference for these kids.

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As we embrace the festive spirit and count all of our blessings, we humbly implore you to consider donating to a cause that is ver close to our heart. In there trying times, we acknowledge the multitude of noble organizations vying for your year-end contributions. Our plea stems from the urgency and uniqueness of our mission. This nonprofit is exceptionally small, with limited funding sources, and those affected by DLG4 Synaptopathy receive little to no support due to its rarity. With the cost of genetic treatments soaring, your support can make an extraordinary difference. Please help us change lives, provide hope, and drive scientific progress. Your donation this holiday season can propel us toward finding a cure and illuminating the lives of these 151 individuals and counting touched by this rare disease. As a bonus our board will be matching every single donation that is made through the end of this month. That is doubling your impact. Thank you!

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