UCB’s Post

October 18th, 2023, is SUDEP (Sudden Unexpected Death in Epilepsy) Action day. It refers to death in people with epilepsy that is not from injury, drowning, or other known causes (Source: CDC). Let's raise awareness about the risks and precautions associated with epilepsy & SUDEP and offer our compassion to individuals living with epilepsy and their families.  #SUDEPActionDay #SUDEPAwareness #EpilepsyAwareness

💙🌼 September is Polycystic Ovary Syndrome (PCOS) Awareness Month 2023! Let's unite to shed light on this common but often misunderstood condition. Knowledge is empowerment, and together, we can support those affected by PCOS and advocate for better understanding and care. 💪💬 #PCOSAwareness #EmpowerHealth #KnowledgeIsPower https://bit.ly/3wVutWr

"Embracing PCOS Week with strength and resilience! 💪💙 Let's raise awareness, support one another, and break the stigma surrounding Polycystic Ovary Syndrome. Together, we can empower those with PCOS and create a more inclusive world. 💙🌟 #pcosawareness #StrengthInSisterhood #PCOSWeek"

New Blog Post! Navigating Rare Disease Challenges: How My Rett Ally Became a Mom’s Secret Asset In the wild ride of parenthood, nothing quite prepares you for the unexpected twists and turns that life throws your way. For Yesenia, her journey took an unforeseen detour when her daughter, Alessandra was diagnosed with Rett Syndrome at just 18 months old. What followed was a rollercoaster of emotions, hurdles, but ultimately, a journey illuminated by love, grit, and hope. “Being Alessandra’s mom is my greatest honor. She makes everything better and is such a bright light! However, navigating and getting support for Alessandra’s needs is overwhelming and very challenging at times.” Says Yesenia When the first FDA-approved medication for Rett Syndrome hit the scene in June 2023, there was both excitement and nerves. “We were like, ‘Yay, progress!’ But also, ‘Oh man, side effects?” “I needed something to help me keep track of everything without driving myself crazy,” she admits. “And let me tell you, this app. It’s been a game-changer.” “The apps easy-peasy interface made logging observations a breeze. No more scribbling notes on random bits of paper. And when we’d go in for check-ups, having all the info right there on my phone? Genius!” Read more about Yesenia and Alessandra by clicking our new blog link in our bio. #blog #rettsyndrome #rett #caregiving #newtreatment #fdaapproved #raredisease #medlists #disability #advocate #advocatelikeamother #healthcare #healthtech #caregiverapp #gtube

This is why routine testing for Group B Strep needs to become common practice and why there needs to be greater understanding of GBS #GroupBStrepAwarenessMonth #GroupBStrep #GBSAware

November is CRPS (Complex Regional Pain Syndrome) Awareness Month, a time to shine a light on the challenges those living with this debilitating condition face. CRPS affects individuals in profound ways, causing excruciating pain and impacting their quality of life. We must raise awareness and support those affected by CRPS, fostering a sense of unity and empathy. Let us unite, educate ourselves, and extend compassion to those enduring this relentless battle. Through understanding and advocacy, we can work towards better diagnosis, treatment, and a brighter future for those living with CRPS. https://ow.ly/Wghm50Q3N7K

Team Ladybird work to increase awareness of the signs & symptoms of childhood cancer to look out for in your child's health & general well-being to ensure children receive the correct treatment promptly. Please share the film & help us to deliver this information to as many parents & medical professionals as possible 💜 2 of the nine signs to be mindful of: 🐞Recurrent illnesses 🐞Disturbance in vision #CCAM #Awareness #SignsAndSymptoms #EarlyDetection #childhoodcancer #earlydiagnosis

Did you know????? Many families do not know the workings behind the different types of strokes, their causes, nor the presentation that a Hemorrhagic or Ischemic Stroke may have on their aging loved one. Use this as a quick tool to educate yourself, family members, or friends to be more aware of some causes and effects of the different types of strokes!! #seniorcare #homecare #knowledgeispower