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Lessons Learnt From The (NIROGI Lanka) Project
Lessons Learnt From The (NIROGI Lanka) Project
Abstract
In 2008, to tackle the exponential rise in the clinical burden of diabetes that was 1
NIROGI Lanka Project and
challenging the health systems in Sri Lanka, a shift in focus towards patient- Faculty of Medicine, University of
centred care linked with community health promotion was initiated by the National Colombo, Sri Lanka, 2Faculty of
Initiative to Reinforce and Organize General Diabetes Care in Sri Lanka (NIROGI Medicine, University of Colombo,
Lanka) project of the Sri Lanka Medical Association. Specific training of diabetes Sri Lanka, 3Ministry of Health,
Colombo, SriLanka, 4Healthy
educator nursing officers (DENOs), field staff in maternal and child health, footwear
Life Style, Colombo, SriLanka,
technicians, and health promoters from the community, was instituted to improve 5
Family Health Bureau, Ministry
knowledge, skills and attitudes in the area of control and prevention of diabetes. of Health, Colombo, Sri Lanka
This article highlights some of the activities carried out to date with the allied health
workforce and volunteer community. Specifically, it describes experiences with Address for correspondence:
the DENO programme: the educational and administrative processes adopted, Professor Chandrika Wijeyaratne,
challenges faced and lessons learnt. It also highlights an approach to prevention Department of Obstetrics and
and management of complications of chronic diabetic foot through training a Gynaecology, Faculty of Medicine,
cohort of prosthetics and orthotics technicians, in the absence of podiatrists, and University of Colombo, PO Box
an initiative to provide low-cost protective footwear. Harnessing the enthusiasm 271, Kynsey Road, Colombo 008,
of volunteers adults and schoolchildren to address behavioural risk factors Sri Lanka
Email: [email protected]
in a culturally appropriate fashion has also been a key part of the NIROGI Lanka
strategy.
Key words: allied health workers, capacity-building, diabetes education, health
promotion, primary care, Sri Lanka
project was initiated in 2008, by a volunteer group of dedicated footwear. In the NIROGI Diviya component, health-promotion
medical doctors who formed the Diabetes Prevention Task volunteers were trained to empower communities from
Force of the Sri Lanka Medical Association.4 With financial work, school and community settings. This article describes
support from the World Diabetes Foundation, the project these components, together with the processes adopted and
aimed to streamline diabetes care in Sri Lanka, with a focus challenges faced in addressing this hitherto relatively neglected
on the lower socioeconomic groups. Although these groups are area.
eligible for free state-sector health care, high out-of-pocket
expenditures are incurred by individuals and families with
diabetes and CVD.5 Many people with chronic illnesses such Capacity-building of diabetes
as diabetes were not receiving support for self-management, educator nursing officers
resulting in unacceptably high rates of inadequate disease
control and preventable complications the vast majority Starting in September 2009, a programme was developed to
of the health workforce focused on curative care and only a train a cohort of DENOs to serve throughout all nine provinces
minority were involved in preventive activities.5 The mismatch of Sri Lanka. The goal was to train 300 nurses. The hospitals
between the needs of patients with chronic problems and the from which the nurses were selected for training were required
traditional health systems caring for them, induced researchers to have at least one specialist doctor (physician, general
to compile the evidence for appropriately redesigned clinical surgeon, obstetrician or paediatrician) who could supervise the
health-care support systems for managing chronic diseases, work of the DENOs. Potential DENOs were selected by the
using a chronic care model.6 hospital administrator and chief nursing officer, according to
predetermined selection criteria. The training programme was
The challenges faced in ensuring health-care professionals are structured as per International Diabetes Federation modules,
trained in supporting patients with chronic incurable diseases with an in-house module developed on gestational diabetes.
requires recognition of the health and long-term care needs for Each module specified the required behavioural change
individuals, simple rules for health care, and making the patient communication skills required for an educator on diabetes and
perspective a priority in policy and planning. Health systems was reviewed by subject experts. For each module, a grid of
have been confronted with the challenges of such goals, competencies to be achieved, which served as the curriculum
particularly when they remain conventional in nature. Patient- blueprint, was developed. Lesson plans were then developed
centred care requires greater empowerment and activation by senior experienced nursing tutors. Training was conducted
of patients and consumers.7 The use of evidence-based care in batches of 50 during a 2-week residential course at the Post
planning, reorganizing practice systems and provider roles, Basic Nursing School in Colombo; this was followed by a 3-day
improving support for patient self-management, and increasing refresher course 68 months later. Knowledge retention was
access to expertise and clinical information are recognized assessed by pre- and post-training tests. Clear job descriptions
challenges of reorganizing existing health systems to suit the were developed, with an outline for monitoring on-the-job
needs of patients with chronic disease such as diabetes, through functions of trainees by their hospital nursing and physician
primary care or through specialized care settings.8 Recognizing supervisors. Further recommendations for patient education
the exponential rise in trends and future projections for were developed, based on feedback from clinical supervisors
diabetes,9 and taking into account the authors opinion that and trainees following their first 6 months of functioning as
the response of the Sri Lankan state-run health-care system in DENOs. This entailed rational time allocations and feasible
tertiary care was suboptimal, voluntary support was used for numbers of patients to be provided formal diabetes education
a project that targeted capacity-building of allied health-care on an individual basis, for the newly diagnosed patients and for
professionals and made use of published approaches that were groups of follow-up patients. Data collection and provision of
pragmatic and achievable in the local setting. reports to the project office was also encouraged.
were trained to take a lead role in outpatient clinics, in patient Further expansion of the activities of
registration, anthropometric measurements and education on diabetes educator nursing officers
healthy lifestyle, smoking cessation, adherence to treatment,
complying with follow-up appointments, insulin self-injection, The NIROGI Lanka project has continued to arrange an annual
and self-monitoring of blood glucose for those with access to 1-day session for all DENOs from 2012 to date. Timed to
glucometers. A tool kit of teaching aids (leaflets, patient record take place a month before World Diabetes Day, this provides
books, DVDs, flash cards, posters and food tables) was given a forum to review DENOs progress, in the presence of their
to each trainee, along with PowerPoint teaching slides and supervisors, maintain the momentum of their commitment,
simple screening tools. Certified DENOs were also encouraged identify gaps and encourage sharing of achievements, and
to provide on-the-job training to ward-liaison nurses, to ensure provide updates on initiatives for gestational diabetes and
expansion of a diabetes-specific nursing service. In parallel, diabetic foot. Group presentations made from the provinces
20 senior nurse tutors were trained, to ensure the sustainability demonstrate a tremendous level of dedication and work.
of training that is specific to diabetes education. The final two Common challenges faced are inadequate educational material
batches of training were led by these trained tutors. for teaching to match the demand, lack of separate space, and
logistics for providing comprehensive diabetes education for
inpatients.
Review of the utilization of diabetes
educator nursing officers training Opportunistic screening has been integrated to the DENO
duties. Thus, apart from diabetes clinic days, DENOs perform
The majority of nurses were able to apply their new knowledge screening on a regular basis, using a simplified questionnaire.
and skills at their respective health facilities and were expected Beyond this, staff screening and outreach programmes arranged
to function as DENOs for a minimum of 4 years. A review by the local health authorities are also undertaken by DENOs,
of the service delivery provided through the trained DENOs under the supervision of their consultants. Six targeted primary
was conducted in 2013 by an independent public health health facilities in the city of Colombo that piloted a model of
expert, who gave a written report to the NIROGI project and primary care for diabetes in phase 1 also used DENOs who
thereby the Ministry of Health. This qualitative evaluation were specially trained for primary care. Useful actions, such
involved document analysis, focus group discussions and in- as rewarding the best controlled patients, were introduced
depth interviews of DENOs, patients and supervisory staff of by these DENOs, with greater integration of preventive and
28 hospitals in five of the nine provinces. Nineteen hospitals curative care at community level. Foot care was included in
and 51/279 DENOs from government institutions participated. the nurse training module (complementary to the guidelines
Data were triangulated in the analysis. for management of diabetic foot care developed in phase 2 by
NIROGI Paadha), which has enabled improvements in early
The results showed that 36 of the 51 (71%) DENOs interviewed recognition of the high-risk foot.
were successfully integrated in their workplace and released
to perform work related to diabetes. The rest were unable to To date, the DENOs remain an important human resource in
function, owing to staff shortage and administrative issues. providing quality care to individuals with diabetes, under the
The majority were satisfied with the training they had received supervision of consultants, predominantly in the outpatient
and felt competent to deliver diabetes education in the hospital department, and supplementing diabetes-specific care for
setting. Some, particularly in teaching hospitals, were released inpatients, along with community education and empowerment.
for full-time diabetes education. The reviewer proposed that There is still a need to establish a focal point for DENOs to
smaller hospitals with staff shortages should develop a working communicate with and obtain support to resolve technical and
model to retain DENOs diabetes-education activities, which administrative issues, outside the NIROGI project. The Ministry
could be incrementally upgraded to a better model based on of Health has accepted this responsibility in principle, and the
the resource levels. draft National Action Plan for NCD Control and Prevention
includes a commitment to sustain diabetes education. Currently,
The reviewer noted that a key obstacle was conflicting the follow-up system for diabetes education operates mostly
messages from medical officers and DENOs on diet for in an ad hoc manner. There is no formal information system
individuals with diabetes, which complicated diabetes on the DENO work output. Hence, the authors recommend
education and negated patient benefits. The reviewer therefore establishment of a proper system of information on the DENO
recommended refresher training on NCDs particularly service. As a step towards sustainability, inclusion of diabetes
diabetes for medical officers, in order that patients might education in the core nursing curriculum is recommended.
receive consistent advice. Further challenges to the programme
were that some DENOs had unrealistic expectations. Owing
to their enthusiasm and commitment, some nurses expected NIROGI Maatha: field-based
more independence and resources to deliver their services. maternal and child health
Although this would be the ideal model, such expectations
were not realistic within the overstrained health-care system. In the NIROGI Maatha component, the Family Health
One weakness in this evaluation was the absence of formal Bureau, the focal point in the Ministry of Health for training
feedback from the patients. and supervision of the field-based maternal and child health
personnel in Sri Lanka, collaborated with the NIROGI project
in developing a training module on screening and management was assessed by pre- and post-test evaluations. From among
of diabetes complicating pregnancy.10 Emphasis was put these trainees, 34 are now placed in prosthetics and orthotics
on preconception assessment and universal screening, using workshops of state hospitals throughout the country. It is
field-based glucometers; lifestyle modification through diet too early to assess the impact of this training on delivery of
and physical activity during pregnancy to supplement tertiary patient care, although the authors believe that the inclusion
care management of diabetes in pregnancy; and highlighting of this group of allied health professionals has encouraged
the need for annual screening well beyond the traditional institutionalization of a concept of total foot care within the
postpartum period of 6 weeks for these high-risk mothers. Sri Lankan health system. It is noteworthy that, at the time
Supplementary information, education and communication of reporting, 10 prosthetics and orthotics workshops are
materials and teaching aids were developed and reviewed functioning at teaching and provincial hospitals in Sri Lanka
by experts. A national-level1-day training of trainers from where the trained officers are employed by the government,
throughout the country was conducted for provincial consultant with a view to developing the services of shoe modifications
community physicians and district-level medical officers for for individuals with diabetes, while the supply of prosthetic
maternal and child health (n=150), and their feedback on and orthotic devices for amputees still accounts for the bulk
issues of feasibility, implementation of universal screening of the workload. The SriLanka School of Prosthetics and
and collection of data on pregnancy morbidity was obtained. Orthotics has also included a teaching component on the care
Field-based training was decentralized, where medical officers of diabetic foot in its revised curriculum.
of health were then trained at district level (n=325), with
distribution of information, education and communication
material and data-collection formats. At health-divisional level, NIROGI Diviya: health-
the medical officers of health, in turn, trained 45 public health promotion facilitators
nursing sisters, 231 supervisor public health midwives and
5757 public health midwives, giving a total of 6033 field-based The NIROGI Diviya project was initiated in 2009 to establish
primary care health personnel being targeted with pregnancy volunteer-led low-cost health promotion that is applicable in
diabetes-specific training. highly urban and semi-urban areas in Sri Lanka.12 A group of
health-promotion facilitators (HPFs) were selected, based on
At the time of reporting, an evaluation of this intervention led their willingness to work as volunteers with no provision of
by the Family Health Bureau is being formulated to assess the incentives. They were hand-picked by the medical officers
amount and distribution of field-based activites and challenges of health of the selected areas, based on the commitment and
faced in relation to gestational diabetes and its management at enthusiasm they displayed during public-health-related work
grassroots level throughout Sri Lanka. they had previously carried out. HPFs were based in schools,
workplaces and the community and showed wide variation in
age, sex and educational level housewives and bank managers
NIROGI Paadha: prosthetics were trained alike.
and orthotics officers
Training was carried out by a central team of experts with
The NIROGI Paadha component started in 2013.11 A group experience in health promotion at grassroots levels. Inaugural
of 10 allied health workers with a diploma in prosthetics and training included development of soft skills in negotiation,
orthotics awarded by the Sri Lanka School of Prosthetics and team-building and leadership. Each HPF had to recruit
Orthotics were selected for further diabetes-specific training 1015 persons interested in changing their own behaviour.
for 2 weeks, in two centres of excellence in south India CMC The health-promotion process was initiated: measuring risk
Vellore and Jain Institute Bangalore as a training of trainers behaviour related to unhealthy diet, physical inactivity, alcohol
opportunity. Two senior technicians from a shoe manufacturer use and tobacco smoking, and mental well-being; identifying
(the largest local manufacturer with 220 sales outlets and the factors underlying these behaviours; and addressing these
committed to a corporate social responsibility project with factors using culturally appropriate activity-based strategies
the Sri Lanka Medical Association) were also included in this developed in the local context. The HPF-led groups met
group. regularly. Interventions were all activity based, with social
participation. Knowledge, and development of positive
The 10 trained prosthetics and orthotics officers and technicians attitudes and skills were emphasized, with the HPFs playing
from the industry, in conjunction with the Sri Lanka School of only a facilitator role. HPFs also empowered group members
Prosthetics and Orthotics, conducted a national-level training to initiate their own settings with 1015 participants, which
programme for 50 other prosthetics and orthotics officers at led to a rippling effect. Schoolchildren have been trained as
Ragama Rehabilitation Hospital, targeting the government health messengers, to engage their peer groups and families
and private sector. The training was a 7-day full-time in- using a life-cycle approach to prevention of NCD. The health-
service programme that included practical inputs on general promotion process has been expanded through organizations
diabetes care, complications of diabetic foot, and the basis like societies for women and children. Table 1 depicts the
of surgical management, diabetes education, and the need numbers and settings of the groups initiated each year to date.
for shoe modification and manufacture. Competency gained With regard to sustainability, of the 236 groups that had been
started by 2012, 172 (73%) were still functioning in 2015.
Tools developed and additional activities cardiovascular risks, through the existing health-care system.
However, such an approach requires multidiscipinary inputs
Tools developed include health-education material (leaets and advocacy towards a holistic patient-centred approach to
and posters), interactive exhibition kits (quiz programme, ip managing chronic disease and requires long-term evaluation
charts, buffet table, food pyramid), a health-promotion book, and monitoring.
an annual calendar with health messages based on community
art competitions for children, an interactive DVD on physical
activity for adolescents and adults, and a calendar (2015) for Acknowledgements
self-appraisal of health-promotion activities throughout the
year. The HPF programme has also been embedded within For their unstinting support, we thank the former Presidents
a wide range of regional and national advocacy activities, of the Sri Lanka Medical Association (20092015), Dr HRU
including outreach programmes in rural settings and a mobile Indrasiri, the former Deputy Director-General of Health
screening facility for all settings. Services (DDGHS: Education Training and Research),
DrSarath Amunugama, DDGHS (Public Health Services),
The application of this low-cost health-promotion model has DrNeelamani Rajapakse Hewageeganage DDGHS (Planning),
been successful in highly urban and semi-urban settings in Dr Amal Harsha De Silva, the former Provincial Director of
Sri Lanka in empowering community members, workforces Health Services of the Western Province, and the following
and schoolchildren to engage in healthy lifestyles (see professional colleges and their valued members in Sri Lanka:
Table 2). Interventions were tailored to address the underlying the Endocrine Society of Sri Lanka, Diabetes Association of
determinants of behaviour of participants, with an emphasis Sri Lanka, Ceylon College of Physicians, Sri Lanka College of
on the process of changing behaviour rather than conducting Surgeons, College of Community Physicians of Sri Lanka and
one-off activities. College of General Practitioners.