Zbornik Rezimea Novi Sad 2012
Zbornik Rezimea Novi Sad 2012
Belgrade, 2012
SPECIAL EDUCATION AND REHABILITATION – CEREBRAL PALSY
Publisher:
Society of Special Educators and Rehabilitators of Serbia
For publisher:
Mikailo Kijanovic, President
Editors:
PhD Milan Kulic, Associate Professor
Srecko Potic
Reviewers:
PhD Goran Nedovic, Associate Professor
PhD Dragan Rapaic, Associate Professor
PhD Dragan Marinkovic, Assistant Professor
Cover design
Veselin Medenica
Circulation
200 copies
ISBN 978-86-84765-40-8
Review of Book of Proceedings and Abstracts “Special Education and Rehabilitation – Cerebral
Palsy” was accepted by the decision (No. 72/12) of the Presidency of the Society of Special
Educators and Rehabilitators of Serbia in the meeting on June 6th 2012.
II International Scientific Conference
SPECIAL EDUCATION AND REHABILITATION – CEREBRAL PALSY
Organizers of Conference:
University of Belgrade – Faculty of Special Education and Rehabilitation,
Department of Special Education and Rehabilitation of Persons with Motor Disorders
University of Novi Sad – Faculty of Medicine,
Department of Special Rehabilitation and Education
Association of Special Educators and Rehabilitators of Vojvodina
School for Elementary and Secondary Education “Milan Petrovic”, Novi Sad
7
11.10-11.20 Pause
Session 1: Cerebral Palsy, Etiology and Diagnostic
Working Presidency: Dragan Rapaic, Aleksandra Mikov and Spela Golubovic
Mirela Babajic, Emira Svraka,
Structure of prenatal etiologies factors
Senad Mehmedinovic, Edina
11.20-11.30 and types of cerebral palsy in Tuzla
Saric, Damir Babajic and Azem
Canton
Poljic
Vladimir Trajkovski and Biljana Associated conditions in persons with
11.30-11.40
Krstevska-Kokormanova cerebral palsy
Maternal cognitive and emotioanal
Tatjana Krstic and Biljana
11.40-11.50 denial of child’s diagnosis of cerebral
Obradovic
palsy: Nonresolution
Responding to the challanges while
Roksana Hoque and Mohammad
11.50-12.00 raising a child with cerebral palsy in
Monjurul Karim
the context of Bangladesh
Cila Demesi-Drljan, Aleksandra
Mikov, Mirela Vulovic, Vera Functional ability of children with
12.00-12.10
Bekic, Daliborka Borkovac and cerebral palsy
Rastislava Krasnik
The possibilities of assessment and
Spela Golubovic and Sanela classification of capabilities of upper
12.10-12.20
Slavkovic extremity of children with cerebral
palsy
Ofelija Bocka-Pepelcevic, Functional status of youth and adults
12.20-12.30 Andrijana Radulovic and Sanela with cerebral palsy in a residential
Slavkovic facility
Assesment of functional ability of
Sanja Trgovcevic, Blagoje
12.30-12.40 children with cerebral palsy at school
Gesoski and Maja Nedovic
age
Motor performance in primary school
12.40-12.50 Erna Zgur and Miran Cuk
children with cerebral palsy
12.50-13.10 Discussion
13.10-14.30 Pause
Session 2: Treatment of People with Cerebral Palsy
Working Presidency: Snezana Nikolic, Miodrag Stosljevic and Vesela Milankov
Ines Ayadi, Fatma Kamoun, Ines
Hasairi, Emna Ellouz, Houda
Is early treatment of infants at risk of
14.30-14.40 Ben Othmen, Nejmeddine
cerebral palsy warrented?
Hentati and Chahnez Charfi
Triki
Vera Ilankovic, Andrej Ilankovic,
Treatment of children with cerebral
14.40-14.50 Lana Marija Ilankovic-Kambeitz
palsy: Vilan method
and Nikola Ilankovic
„Open stimulation system of human
Miodrag Stosljevic and Milosav
14.50-15.00 development“ as the therapeutic model
Adamovic
of cerebral palsy children rehabilitation
Occupational therapy treatment for
15.00-15.10 Maria Arango
children with cerebral palsy
8
Lidija Dimitrijevic, Aleksandra Application of the Halliwich
15.10-15.20 Mikov, Hristina Colovic and hydrotherapy method in children with
Marko Aleksandrovic cerebral palsy
Miodrag Stosljevic and Milosav Treatment of enuresis nocturnae in
15.20-15.30
Adamovic children with cerebral palsy
The influence of therapeutical horse-
Vesna Pausic, Jelena Stanic and
15.30-15.40 riding on improvement of psychological
Aleksandra Mikov
functions in cerebral palsy patients
Marina Oros, Ivan Jerkovic and The use of robots in children therapy –
15.40-15.50
Agota Major Attitudes of parents
Family therapy and education by
occupational therapist for creating
Mohammad Monjurul Karim environment at home for the children
15.50-16.00
and Roksana Hoque with cerebral palsy: Evaluate child’s
learning from caregiver’s perception in
the context of Bangladesh
16.00-16.20 Discussion
16.20-16.30 Pause
Session 4: Social Welfare of People with Cerebral Palsy
Working Presidency: Gordana Odovic, Sanja Trgovcevic and Renata Skrbic
Accessible housing for person with
16.30-16.40 Emira Svraka
cerebral palsy
Possibilities for social integration of
16.40-16.50 Ivana Mitrovic-Djordjevic
persons with the cerebral palsy
Vojislava Bugarski, Dragana
Health-related quality of life in
16.50-17.00 Miscevic, Renata Skrbic and
children with cerebral palsy
Spela Golubovic
Gordana Odovic, Dragan Rapaic,
Life habits accomplishment level of
17.00-17.10 Jelena Stanisavljevic and Ivana
persons with cerebral palsy
Sretenovic
Svetlana Kaljaca, Gordana Self-esteem of individuals with
17.10-17.20
Odovic and Bojan Ducic cerebral palsy
17.20-17.40 Discussion
October 27th 2012
Session 3: Education of People with Cerebral Palsy
Working Presidency: Danijela Ilic-Stosovic, Radmila Nikic and Slavica Markovic
Speech and language abilities in
Ivana Terzic, Nadica Jovanovic,
10.00-10.10 children with cerebral palsy in
Mile Vukovic and Goran Nedovic
elementary school
Goran Nedovic, Sanja
Graphomotor skils of children with
10.10-10.20 Trgovcevic, Milan Kulic and
cerebral palsy
Dragan Marinkovic
Sanela Pacic, Fadilj Eminovic,
Graphomotor expresion of children
10.20-10.30 Radmila Nikic, Snezana
with cerebral palsy in school age
Mirkovic and Mirjana Gavrilovic
9
Fadilj Eminovic, Gordana
Colic, Milos Djordjevic, Marija Writing ability in children suffering
10.30-10.40 Knezevic, Sanela Pacic, from cerebral palsy after phased
Marienka Zolnjak and Dejan fiberotomy: Case report
Likic
Lucija Djordjevic and Srboljub Peculiarities of artistic expression of
10.40-10.50
Djordjevic students with cerebral palsy
Danijela Ilic-Stosovic, Anita
The analyzes of individual education
10.50-11.00 Kovacic, Snezana Nikolic and
plans for children with cerebral palsy
Jasmina Maksic
Methodology for individual support
Snezana Nisevic and Lidija
11.00-11.10 plan in education for students with
Banjac
cerebral palsy
Condition of students with cerebral
11.10-11.20 Marija Davcevska palsy when switching from lower
grades to upper classes
Conductive education in special
11.20-11.30 Renata Kos and Blazenka Maltar classes in educational centre “Tomislav
Spoljar” in Varazdin
“Inclusive”, “Integrated” or “Special”?
Reflections on the perceptions of,
Shyamani Hettiarachchi and discourse on and perceived training
11.30-11.40
Ajay Das needs in „Inclusive” education for
children with cerebral palsy in Sri
Lanka
Adapted physical activities as the part
11.40-11.50 Hana Valkova of education: Chance for children with
cerebral palsy
11.50-12.10 Discussion
12.10-12.30 Pause
Session 5: Others
Working Presidency: Fadilj Eminovic, Sanela Slavkovic and Snezana Ilic
Isabel Catarina Martins,
Motor imagery in cerebral palsy: Is that
12.30-12.40 Armando Mónica de Oliveira
true?
and Bert Steenbergen
The role of the central nervous system
12.40-12.50 Sinisa Ristic and Zvezdana Kojic in the organization and control of
voluntary motor activity
Dusanka Tesanovic, Dragana Early detection of breast cancer by
12.50-13.00 Djilas-Ivanovic, Danijela Pisaric mammography in woman suffering
and Fadilj Eminovic from cerebral palsy
The role of gender and the type of
hospitalization in training self care
13.00-13.10 Nada Savkovic
activities of preschool children with
cerebral palsy
Dermatogliphic characteristics of
Miodrag Stosljevic and Milosav
13.10-13.20 digito-palmar complex of a child with
Adamovic
cerebral palsy – Case study
10
The physical education and sports
Evdokia Samouilidou and
13.20-13.30 activities, socialization instruments for
Constantine Mouratidis
students with phyical disabilities
Danijela Vukicevic, Stevan Jovic,
Wheelchair fencing – An adaptive sport
13.30-13.40 Dragan Vulovic, Aleksandra
for person with cerebral palsy
Sekulic and Jelena Stikovic
11
Veselin Medenica, Lidija Using the computer software for
Ivanovic, Katarina Uzunovic, observation and analysis of motor
Radica Dragojlovic-Ruzicic and behavior for apraxia assessment in
Marica Drcelic persons affected by cerebral palsy
Jasmina Karic, Vesna The inclusive potential of applied
Radovanovic and Sladjana theatre in activities with people with
Andjelkovic disabilities
Swallowing and chewing problems in
Vesela Milankov and Kosta Savic
children with cerebral palsy
Evaluation of literature data on the
Rosica Stoilova and Zivka prevalence of dental caries and oral
Bataska hygiene status in children with cerebral
palsy
Vesela Milankov, Mila
The influence of respiration on the
Veselinovic and Slavica
quality of phonation in dysarthria
Markovic
Gross motor function and classification
Snjezana Mergon
system
16.30-17.00 Presentation of the Conference Sponsors
October 28th 2012
10.00-11.30 Roundtable and Conclusions of the Conference
12
Plenary Session
METHODOLOGICAL APPROACH TO THE STUDY OF PERSONS
WITH CEREBRAL PALSY
During the fifties of the last century there was a real expansion in the
studies of problems that cerebral palsy entailed. Medical research in this
field dealt with the etiology, clinical picture, classification, treatment and
rehabilitation. At the same time, in the research focuse of psychological studies
were intelligence, perception, memory, learning abilities, etc. The practice of
special education was facing the resolving of learning problems in children with
cerebral palsy, and the theory was facing the studying of the nature of learning
problems and the discovering of intervention methods. Special attention was
given to motor disorders that generated problems in motor behavior, and also
to effectiveness of children with cerebral palsy.
When talking about motor behavior, by that we imply “a product of
biological characteristics and environmental influences that can be seen in
the domain of learning and execution of movement or motor skills. Motion
planning, control of execution and motor learning represent cognitive aspects
of motor behavior but also are problems that constantly confront the theory
and practice of special education and rehabilitation” (Rapaić, Nedović, 2007,
p. 616).
Before saying anything more about the methodological approach we have
chosen when studying cerebral palsy, we would first like to present different
research approaches used in other sciences in the studying of this condition.
In a wider scientific context, a field of motor behavior studying is truly
diverse. However, for understanding of research and attitudes presented in
this publication, two directions of motor behavior studying are highlighted as
very important: “The study of “mental representations” of motor activities is
relatively more recent and linked to the cognitive psychological framework.
Another research direction consists of studies recognized as the “brain and
behavior” and which belong to the domain of medically-oriented research”
(Nedovikj, Rapaikj, 2010, p. 31-42). In psychology, research of relation between
cognitive function and motor behavior was conducted on healthy subjects. On
the other hand, research in medicine, which was directed to consideration of the
relationship between motor behavior and biological structures, was carried out
in patients who suffered from an organic brain syndrome or head or brain injury.
So far, studies on a relationship of cognition and motor action in people with
disabilities have been partial. Specific motor skills in some forms of disability
or handicap were studied. “Studies of motor behavior in people with disabilities
15
indicate the existence of different planning mechanisms that are characteristic
for each type of disability (Rapaić, Nedović, 1995; Rapaić, Nedović, Nikolić,
1995; Jablan, Rapaić, Nedović, 1997; Nedović, Rapaić, Subotić, 2006; Rapaić,
Nedović, 2006, 2007). These studies profiled the assessment methodology of
the structure of motor behavior in people with disability, and also connected
this information with educational and rehabilitation programs of preventive
and corrective work. The problem of differential assessment and construction
of theoretical and practical models of education and rehabilitation represent
further research need in this area” (Rapaić, Nedović, 2007, p. 616).
One of possible methodological approaches in studying of people with
cerebral palsy is the analysis of two segments of their functioning – the motor
and the cognitive. In this approach, motor and cognitive functioning are
conditionally divided into two separate units in order to make discussion of
these issues more systematic and more clear.
In the scientific literature, methodological approach is described as a
construction, based on the belief of researchers, that serves for the elaboration
or the verification of an idea. Its clear presentation allows the reader to follow
the conceptual course with understanding, and also further considerations
that derive from it. The methodological approach is not a theory, but its testing
and verification can provide proving of an existing theory (highlighting of
some of its aspects), or serve the new theory construction. Broader framework
of our approach is the theory and practice of defectology (special education and
rehabilitation) and consideration of context which consists of children with
developmental disabilities and people with disabilities in a social environment.
The basic idea of our approach is the analysis of two segments of behavior
of children with cerebral palsy in a way that is presented in scheme 1.
Scheme 1.
← Cognitive functioning ⇒
Social environment ⇒ ← Social environment
← Motor functioning ⇒
16
in people with disabilities within the social environment. Under these
circumstances handicap situation occurs. When it comes to children with
cerebral palsy, then they are observed in the peer group context (preschool and
school-aged), and through expected behavior which is related to that context. If
it comes to people with cerebral palsy in a productive life period, then they are
observed in working-professional context, with all the expected abilities that
are necessary for such activity, and expected characteristics of peer groups.
Motor and cognitive functioning within a social context are induced by
the satisfaction of needs or result from some other motive. In any case, activated
are those potentials (within motor and cognitive) that will be sufficient for the
intended action, i.e. goal, to be achieved. Healthy individuals meet the needs
(for food, personal hygiene, education, artistic value, etc.), realize short-term
or long-term goals (writing homework, decorating an apartment, completing
of education or employment), mostly uninterrupted with appropriate energy
consumption. In the case of people with cerebral palsy, motor and cognitive
functioning in a social context is considerably more difficult, and sometimes
completely impossible.
“If the focus is directed on the socio-psychological conditions in which
children with cerebral palsy grow, then it is clear that these children are largely
deprived in terms of outside influences as one of the major factors of adequate
development. Motor disorder itself causes numerous limitations to a child and
makes the acquisition of spontaneous experiences difficult by depriving him/her
of many sensory and social stimulations. Therefore, not only perceptual, motor,
visuo-motor abilities are affected, but also are many other abilities and skills,
because a child does not practice them due to the primary, motor impairment.
Therefore these individuals subsequently or partially learn activities of daily
living (eating, dressing, personal hygiene), they get later included in the family
life and peer group activities, and also they later learn other abilities that are
highly important for inclusion in the school environment, and both life and
work in a social environment” (Nedović, Odović, Rapaić, 2010, p. 35-36).
“Mutual effect of motor and cognitive functioning is most evident in the
case of dominant dysfunction in one area. In summary, as an example, people
with cerebral palsy (in which a motor impairment is the primary one) and
people with intellectual disabilities whose mental dysfunction dominates the
clinical picture, could be mentioned. Motor dysfunction disables people with
cerebral palsy in acquiring of experiences and knowledge that can be reached
only through motor action, and on which higher cognitive functions and social
experiences are further built. The negative impact of intellectual disability
(which is primarily characterized by deficits in cognitive functioning) is
reflected in an inability of individual with intellectual disability to design a
goal, and then to cognitively support the planning, controlling and executing
of motor actions” (Rapaić Nedović, Nikolić, 1995, p. 68-76).
17
Testing of components of functional units in the area of motor and
cognitive functioning in people with cerebral palsy can be carried out at the
levels shown in the scheme 2 (Rapaić, Nedović, 1995, p. 34)
Scheme 2.
THE AREAS OF FUNCTIONING
MOTOR COGNITIVE
- elementary movements - attention
- nonrepresentative movements - experience of body wholeness
- nontransitive movements - orientation
- transitive movements - perception
- leg praxis - memory
- bilateral movements - thinking
- ideational movements - speaking
- constructive praxis
- graphomotoric
- praxis of dressing
- facial praxis
- movement imitation
“In the area of motor functioning, movements that are the building
components of functional units, can be identified (elementary movements,
nonrepresentative, nontransitive, transitive, bilateral, etc.), but also the
movements that consist of movement sequences and that are functional only
when are connected in certain order and time-limited (ideational movements,
constructive praxis, praxis of dressing, etc.). Impairment, disorder or complete
omission of one or more groups of movements directly cause dysfunction of
the individual (low, medium or high) within a social environment” (Rapaić
Nedović, 1995, p. 33). In the area of cognitive functioning, the following
functional units can be analyzed: attention, perception of body wholeness,
orientation, perception, memory, thinking and speaking.
Each of these, motor and cognitive areas, can be analyzed separately or in
interaction with other areas (Rapaić Nedović, Nikolić, 1995, p. 68-76; Nedovikj,
Jachova, Rapaikj, 2009). Finding a connection is possible within the same area,
e.g. bilateral and nonrepresentative movements or attention and memory.
Testing of cognitive aspects of motor behavior in people with disabilities is
particularly important for us (Rapaić Nedović, 2007). Therefore, it is a classic
framework within cognitive psychology, which is used in the study of motor
behavior in participants from the typical population, and which is used, for the
purposes of our approach, in the analysis of children with cerebral palsy.
18
In the understanding of cerebral palsy, we started from the basic fact
that cerebral palsy is a multidisciplinary and multidimensional problem, and
therefore different aspects of studying and analyzing of cerebral palsy are
possible. They often reflect researchers’ personal preferences, their professional
orientation and basic education. Our approach to studying of cerebral palsy is
the result of years of theoretical analysis and research in the area of defectology
(special education and rehabilitation), i.e. somatopedics. We believe that
the proposed methodological framework is flexible enough so that different
disability situations and different life periods studied in a defectology (special
education and rehabilitation) can be described. The efficiency of its use is found
in the description of people with visual impairment (Rapaić Nedović, Jablan,
1997), and people with intellectual disability (Rapaić Ivanuš, Nedović, 1996),
but also in gerontology (Rapaić Nedović, Potić, 2010). The aims of these studies
are the assessment of abilities, potentials and deficient areas in participants as
the basis for the proposal and creation of defectological treatment.
References
1. Jablan B., Rapaić D., Nedović G. (1997). Istraživanje praksičkih sposobnosti
kod slepih lica. Beogradska defektološka škola, 1, str. 69-74.
2. Nedovikj G., Jachova Z., Rapaikj D. (2009). Social Functioning of children
with malignant diseases. Journal of Special Education and Rehabilitation, 10
(3-4), 7-27.
3. Nedović G., Odović G., Rapaić D. (2010). Razvoj socijalnih veština kod
osoba sa smetnjama u razvoju. Beograd: Društvo defektologa Srbije.
4. Nedovikj G., Rapaikj D. 2010. The influence of mental retardation on
mental representation and motor execution. Journal of Special Education and
Rehabilitation, 11(3-4), 31-42.
5. Nedović G., Rapaić D., Subotić M. (2006). Struktura motoričkih programa
kod osoba sa zatvorenom povredom mozga. Medicinski žurnal, 12(1-2),
23-27.
6. Rapaic D., Nedovic G., Potic S. (2010). Importance of evaluation in
determination of treatment of elderly people. Special education and
rehabilitation – science and/or practice. Novi Sad: Society of Special
Education and Rehabilitation of Vojvodina, 315-334.
7. Rapaić D., Nedović G. (2007). Struktura motoričkog ponašanja kod osoba
sa invaliditetom. U Nove tendencije u specijalnoj edukaciji i rehabilitaciji,
Univerzitet u Beogradu, Fakultet za specijalnu edukaciju i rehabilitaciju,
615-641.
8. Rapaić D., Nedović G. (2006). Paradigma mentalne reprezentacije i
motorne egzekucije kod tranzitivnih i netranzitivnih pokreta. Zavod za
19
psihofiziološke poremećaje i govornu patologiju ’’Prof. Dr Cvetko Brajović”
Beograd, Zbornik radova i sažetaka, 96-105.
9. Rapaić D., Nedović G. (1995). Metodološki pristup u dijagnostici i
rehabilitaciji osoba sa oštećenjem centralnog nervnog sistema. Defektološka
teorija i praksa, 1, 33-38.
10. Rapaić D., Nedović G., Nikolić S. (1995). Polazni parametri u rehabilitaciji
osoba sa poremećajima kognitivnih i praksičkih funkcija nastalih povredama
mozga. Defektološka teorija i praksa, 1, 68 -76.
11. Rapaić D., Ivanuš J., Nedović G. (1996). Izvođenje pokreta kod menalno
retardiranih, Beogradska defektološka škola, 1, 105-116.
20
EDUCATING CHILDREN WITH CEREBRAL PALSY IN THE
REPUBLIC OF SERBIA
Educating children with cerebral palsy have not long tradition, nor in the world,
nor in our country. In the development of this educational forefront technologically and
economically developed countries, and the first school for the education of children
in Serbia opens only 1972nd year. Education in special conditiones in ourcountry is
dominated to 2009., when the came of the Law on Basic Sistem of Education.
The main objective of this paper is to present models and methodology of
education of children with cerebral palsy in the Republic of Serbia, as well as through
critical review indicate the best forms of education of these children.
Special education is of the view that knowledge of bio - psycho - social
characteristics of these children prerequisite for their education, and that every
child should receive appropriate the educational content and support in learning.
The complexity and interdependence of these factors is such that requires a specific
methodological approach when it comes to the identification of educational needs of
children with cerebral palsy.
Key words: education, cerebral palsy, methodological frameworks.
Introduction
Upbringing and education of children with physical disabilities, including
the children with cerebral palsy has no tradition,neither in our country nor in the
rest of the world. The exceptions are countries where this practice began in the
second half of the nineteenth century, but in most countries special pedagogical
practice did not begin until the twentieth century. The sources that would
provide theoretical support for practical work were very scarce and mostly limited
to practical care of these children, with little contribution to the development
of the profession. Later on, literature that was dealing with organizational and
methodological issues as well as issues of educational practice methodology for
children with physical disabilities emerged (Henneberg et al., 1968).
Children with physical disabilities are covered with medical treatment much
earlier than with special-pedagogical and rehabilitation process, which is not the
case with children with different conditions and impairments (children with
visual dysfunctioning, children with hearing disabilities, etc.). Among the fields
of medicine that pioneered the coverage of children with physical disabilities in
the rehabilitation process, were orthopedics and physical medicine. “Different
attitude towards education of physically disabled children and education of some
other categories of children disabled in psychosomatic development comes from
21
various points of view at different disorders that cause disability in one or in the
other case. Disorders that cause blindness or deafness are still seen as permanent
and unchangeable, “static” in functional terms, while the organic and functional
disorders, and disorders that cause physical disability are often viewed as a
variable or “dynamic” in the functional sense, of course, except for the cases of
the loss extremities “(Henneberg et al., 1968, p.59).
The idea of organized education for children with physical disabilities
in Serbia was introduced rather late, compared with the fact that first class
education for disabled children in Europe was opened in the nineteenth
century (it was founded by Jacques Matthias Delpek). In Serbia, Regulation
of establishment of the State department for Child Protection that foreseen
the opening of the Institute for the accommodation, teaching and training of
disabled children was brought in 1919. but not until 1923. Zemun disability
institute began to accept children with disabilities to learn crafts« (Macić,
Nikolić, 1991, p.11). Special schools were included in the state education system
in 1929. when the Ministry of Education took care of disabled children, but
in the 1928. only school in Serbia that dealt with education of these children
(placed in a Disability Institute in Zemun) stoped working. For children whose
illness character required longer hospitalization schools and hospitals were
opened in Kraljevici (1935) and Sremska Kamenica (1936).
Of all the schools for children with physical disabilities in Europe schools
for children with cerebral palsy were opened last. The first school for these
children was opened in England in 1947 and then began to set up service
centers for cerebral palsied individuals, preschool classes, special schools and
other institutions. The first primary school for children with cerebral palsy
in the Republic of Serbia was founded in 1972. by the Education Council of
the Republic. »At that time the school consisted of 142 students, divided into
17 classes. The teaching staff consisted of 13 special education teachers in the
classroom and three special education teachers in the living room, who worked
with the children to prepare their homework »(Macić, Nikolić, 1991, p.12).
Today, the school is housed in the premises of the Hospital for Cerebral Palsy
and Developmental Neurology in Belgrade and called PS »Miodrag Matic.« In
addition to the school education of children with cerebral palsy, and children
with other forms of disability is performed also by the school »Dragan Hercog«
in Belgrade, which works under this name since 1971 year, as the school »Milan
Petrovic« in Novi Sad, founded in 1960/61 year.
The main objective of this paper is to present the main organizational
forms of education and upbringing of children with cerebral palsy and, through
critical reflection, point the need of respect for basic methodological aspects of
creating education programs for children with cerebral palsy.
22
The organizational forms of education for
children with cerebral palsy
Until the adoption of the Law for Educational System of the Republic of
Serbia (2009), all children with special needs, including children with cerebral
palsy in Serbia were able to study under several organizational forms: 1) regular
primary schools (no special adjustment program, methods and teaching aids),
2) in regular schools, but individual departments and specialist curriculum,
and 3) schools for children in hospital and home care (according to the regular
curriculum, but the adaptation of content, teaching methods, and studied
conditions), and 4) schools for children with cerebral palsy (with special
curriculum with an adaptation conditions, devices, methods, and particularly
the educated professionals), 5) in special schools under a special curriculum.
Such a widespread network of educational opportunities for children with
cerebral palsy exists due to several reasons, including basic: the existence or
non-existence of special schools for the child in place of birth, a long and rich
tradition of special education for children with disabilities, and education staff
working with these children, specially developed methodological approaches
in guiding children towards a particular form of education etc.
Upon the adoption of the Law for Educational System of the Republic of Serbia
(2009), which promoted the education of children in inclusive terms, children
with cerebral palsy could be educated in regular schools, schools for children with
cerebral palsy, as well as schools for children in hospital and home care, but only in
the ordinary curriculum, as well as by Individual educational plans.
A critical review
Although inclusive education is clearly a humane idea and aspiration that
all children with special should be included in the educational system, however,
the question remains whether it is, as it was theoretically designed, proven in
practice as the best achievable solution for children with cerebral palsy. This
dilemma is supported by the fact that cerebral palsy is followed by a number
of associated damage. Falkman (2005) highlights a marked heterogeneity of
manifested symptoms. Specifically, problems in motor skills can range from
barely noticeable to those that the child is practically helpless without outside
help and care. As a result of this heterogeneity, for two children who were
diagnosed with cerebral palsy, we can see such a difference in motor and speech
and language behavior, that someone who does not deal with this problem, gets
the impression that these are two different states of disability.
Research suggests that in addition to motor dysfunction, around 60% of
children with cerebral palsy have two or more additional damage (Falkman,
2005). In addition to hearing and sight impairments, according to different
23
studies 20 - 40% of children with cerebral palsy suffer from epilepsy, especially
children with hemiplegia, and quadriplegia (Sanner, according Falkman, 2005;
Oddding, Roebroeck, Stam, 2006). The percentage of children with cerebral
palsy and intellectual disability varies, depending on the type of cerebral palsy,
and can range from 10% in children with dyskinetic syndrome to 100% in
children with spastic quadriplegia (Sanner, 1999, according to Falkman, 2005).
Anvor et al. (2006) cite figures that 67% of children have impaired speech,
and according to Odding, Roebroeck and Stam (2006) found that nearly 80%
of children with cerebral palsy have a speech impairment.
This is all reflected in the ability of these children to participate in
teaching. Ilic-Stosović and Nikolic (2008), while examining the ability to
participate in the teaching of children with cerebral palsy who are educated
in the ordinary and the special curriculum, indicated that students of both
groups had very low achievement on assessment of the material acquired in
the Serbian language, although among the first group of students were those
who adopted the material completely, while in the second tested group there
was no such students. Ability to efficiently direct the individual activity was
better for students who are being educated in regular conditions compared
to students who were educated under a special curriculum and program.
These authors have pointed out the remarkable diverse ability to participate
in teaching, especially when the students need to receive education in special
circumstances, the ability to comply with guidelines for working with these
children ranges from unsatisfactory to outstanding. The ability to participate
actively in the work of the group, for the children with cerebral palsy who
attend the regular curriculum and program, moves within the training needs
for improvement to complete absence of this ability. The average achievement
of students with cerebral palsy in special schools is in range of training needs
for improvement, but it is very variable (ranging from failure to outstanding).
All this supports the fact that the implementation of the class for students
with cerebral palsy is very complex, that it is preceded by a detailed, individualized
and continuing preparation of teachers. This also speaks in favor of the realization
of teaching content, for a number of children with cerebral palsy, in the classes
that have more than 20 students, it is not possible, and in this form of teaching
can not meet the needs of many students with cerebral palsy, that are not related
to the educational purposes only. It is therefore very important to develop and
adhere to the methodological aspects of identifying their needs and accordingly,
sorting children into appropriate forms of education.
24
The methodological framework of identifying the
needs of children with cerebral palsy in Education
Children with cerebral palsy in the modern theoretical concepts and
practical organizational forms of education are considered as students with
“special needs” or learning disabilities, according to which all further is defined.
It is believed that a student has special educational needs when learning requires
special educational measures. There is a particular need when the child has a
bigger problem with the learning than most of students of his age or have a
disability that prevents use of regular educational institutions. Children with
cerebral palsy have not developed adequate skills to independently participate
in education. They can not overcome in courses under the same conditions as
students in regular schools. They need organized and systematic help.
The methodological framework for identifying the needs of children with
cerebral palsy in education is based on an assessment of the ability of students
that is necesary for them to function in the school. It includes: assessment of
motor functioning, cognitive functioning, communication skills assessment
and evaluation of adaptive capacity (Nedovic, Rapaic, 2012). Assessment of
motor functioning is based on: identification of somatic status, assessment
of psychomotor organization, the ability to perform motion estimation and
evaluate the level of acquired motor skills. Cognitive functioning, is assessed
in the following areas: attention, orientation, perception, memory, speech and
thought. The communication area includes: speaking, writing and reading.
Whereas, the assessment of adaptive capacity includes: an assessment of the
student’s behavior in different situational contexts of school, home, public
services, etc.. Recorded deficits in these areas of functioning of the students,
are the basis for defining the needs of these students: A special design and
organization of the school, a special program and working methods, and the
development of learning support, special tools and technology etc.
The development of science has led to a significant correction of the
methodological approach to working with children with cerebral palsy, leading
to changes in the classical and traditional views on their rehabilitation and
education. Numerous studies have shown that the causes of disability rather
than ability level functions (motor and cognitive) are one of the important
criteria for classifying and determining ways of educating children with
cerebral palsy. Taking into count the criteria is in accordance with the modern
understanding of education of children with cerebral palsy, which puts the child
in focus. Organization and technology of the school is a reflection of the specific
needs of students, rather than the need of adjusting their existing (regular)
system. Upbringing and educational work is based on the specific organization
capabilities, it monitors and encourages their development. Quantity of learned
content is not important, but how the content affects a child’s development.
Curricula and programms are carried out under controlled conditions.
25
Individual extracurricular programs are introduced, whose task is to raise
the students’ nonbehavioral ability essential for monitoring and mastering
the curriculum. Special education is becoming part of the (re) habilitation of
children with cerebral palsy.
Numerous studies show the justification of such a methodological
approach, because there are differences between children with cerebral palsy
and therefore there are special requirements (needs) that are used in their
education and rehabilitation.
Conclusion
The conditions in which a society is developed are different, and models
relating to the education of children with cerebral palsy are different from
one country to another. Therefore, one can not speak of a single, ideal, global
model of education of these children. We prioritize a complex and continuing
education that includes special education as an integral part of rehabilitation,
we see education and rehabilitation as unique and indivisible system. At
the same time one must beare in mind that the idea of uniform programs is
abondoned. The view that all students should not be asked to fulfill the same
requests because their skills are not the same, prevailed with good reason.
Therefore, in practice, differentiated program are introduced (or individual
programs) that match the abilities of these students and are in accordance with
the demand – that everyone in the education system, progressing at their own
pace according to their abilities.
Special education is based on the view that knowledge of bio-psycho-social
characteristics of the condition of these children is the best source for their
education (Nedovic, Rapaic, Ilic, 2002), and that every child should receive
appropriate education – the educational content and support learning. The
complexity and interdependence of these factors is such that requires a specific
methodological approach when it comes to the identification of educational
needs of children with CP.
Researching studies, as well as its attainable content, is an issue in special
education. By that we mean the search for models that children will be able to
implement, and at the same time meet the standards and norms prescribed by
the Law for Education System.
26
Literature
1. Anwar S., Chowdhury J., Khatun M., Mollah A. H., Begum H. A., Rahman
Z., Nahar N. (2006). Clinical profile and predisposing factors of cerebral
palsy, Mymeshing Medical Journal, 15 (2), 142 – 5.
2. Arsić, S., Eminović, F., Stanković, I., (2011), ‘’The ability of conceptual
monitoring and the quality of working memory at children with calculation
difficulties’’, International journal ‘’Psychology Research’’, Vol. 1, No.1,
str.12-18, ISSN 2159-5542, David Publishing Company, Chicago, IL, USA
3. Falkman K. W. (2005). Communicating Your Way to a Theory of Mind,
The development of mentalizing skills in children with atypical language
developement, Department of Psychology, Goteborg University, Sweden,
Vasastandens Bokbinderi AB, Goeteborg.
4. Hennenberg Z, Karić J, Mandić V, Mašović S, Stančić V, Špoljar T. (1968).
Kompleksna rehabilitacija tjelesno invalidne djece i omladine, Savez
društava defektologa Jugoslavije, Sekcija za tjelesno invalidne, Zavod za
unapređivanje osnovnog obrazovanja SR Hrvatske, Zagreb
5. Ilić-Stošović D, Nikolić S. (2008): Sposobnost učestvovanja u nastavnim
aktivnostima učenika sa cerebralnom paralizom, Specijalna edukacija
i rehabilitacija, br. 1-2, str. 103-120, Fakultet za specijalnu edukaciju I
rehabilitaciju Univerziteta U Beogradu.
6. Macić, D., Nikolić, S. (1991). Metodika vaspitno-obrazovnog rada sa telesno
invalidnim licima predškolskog uzrasta. Naučna knjiga, Beograd.
7. Odding E., Roebroeck M. E., Stam H. J. (2006). The epidemiology of cerebral
palsy: incidence, impairments and risk factors, Disability Rehabilitation,
28(4), 183 – 91.
8. Zakon o osnovama sistema vaspitanja i obrazovanja. Službeni glasnik RS,
br. 72/09.
27
WORK METHODOLOGY OF THE SPECIAL HOSPITAL FOR CEREBRAL
PALSY AND DEVELOPMENTAL NEUROLOGY IN BELGRADE
Mirjana Boskovic
Special Hospital for Cerebral Palsy and Developmental Neurology, Belgrade, Serbia
28
THERAPEUTIC POSSIBILITIES IN THE TRETAMENT OF PATIENTS
WITH CEREBRAL PALSY
29
THE EFFICIENCY OF APPLICATION OF MEDICAL TECHNOLOGY
“PHASE FIBROTOMY IN ORTHOPEDICS” BY PROFESSOR V. B.
ULZIBAT IN THE REHABILITATION OF PATIENTS WITH
INFANTILE CEREBRAL PALSY
Aleksandar Nazarkin
Institute of Clinical Rehabilitation, Tula, Russian Federation
30
−− functionality which is provided by the simultaneous action on different
muscle groups taking into account their synergism and antagonism,
the possibility of a combination of operations on all superficial
skeletal muscles of the head, trunk and extremities in order to achieve
maximal effect;
−− minimally traumatic which is achieved through precise movements
of specially constructed scalpel; absence of skin excision, blood
loss, and complete muscle excision and transplantation, there is no
working on tendons and bones, and subsequent cast immobilizations
are unnecessary, which all further contribute to the shortening of the
recovery period and a patient’s early activation after surgery;
−− the possibility of working in the outpatient setting which contributes
to faster recovery under the conditions that are usual for the patient;
The therapy of surgical treatment with the use of Phase Fibrotomy includes
several phases. According to statistical data, one patient generally requires
3 phases of treatment, and an average of 15 micro-surgery on the muscles is
performed in each stage.
The following indications for treatment by technology of Professor V.B.
Ulzibat are determined:
−− presence of organic muscle contractures and chronic myofascial pain
syndrome;
−− absence of effect of the conservative therapy application.
Absolute contraindications for surgery are considered to be the following:
−− presence of developmental disorders and chronic diseases in the stage
of decompensation;
−− dysfunction of vital organs.
Relative contraindications for surgery are:
−− acute infectious and somatic diseases, including the reconvalescence
period;
−− acute and subacute period of neuroinfection, head injury and cerebral
vascular disorders;
−− chronic disease in the deterioration period;
−− intolerance of medical anesthesia products;
−− presence of severe allergic reactions in anamnesis;
−− presence of injuries, inflammatory skin and soft tissue diseases;
31
−− post spastic seizure status: after the “small” seizures – at least 3 months,
after the “big” (generalized) seizures – at least 6 months; after status
epilepticus – at least 12 months;
−− status after the Botox intervention (Dysport) – at least 6 months;
−− status after vaccination – at least 1 month
For the final differentiation of functional (muscle-dystonic) and organic
(dystrophic) stages of muscle contractures, and for the determination of
type and intensity of contractures and locomotor deformations, “Relaxation
probe” is practiced in our practice, by using inhalational anesthesia (surgical
stage, levels 2-3) or local anesthetics (Novocaine, Lidocaine): during muscle
palpation in a state of relaxation “functional” contractures disappear, and the
“organic” muscle contractures remain in the form of thickened lacertus.
The prescribed selective and operative action on fibrously-modified
fibers by using the technology “Phase Fibrotomy in Orthopedics”, provides
the improvement of blood circulation and function of the operated muscles,
liquidation of focuses of pathological impulsing and local pain. Moreover,
removing of organic muscle contracture contributes to restoration of normal
central nervous system function due to the strengthening and optimization of
the impulses flow that starts from the muscles that were previously inactive or
that functioned irregularly.
In accordance with the obtained data, we believe that early removal of
organic muscle contracture is a condition necessary for the successful treatment
of patients with orthopedic profiles and patients with infantile cerebral palsy, in
order to correct pathological status, arrest chronic myofascial pain syndrome,
and prevent development of persisting locomotor deformations and joints
changes that require more complex operational corrections.
During the last twenty and a half years, the experts of “The Institute of
Clinical Rehabilitation” AD have been providing specialized orthopedic care
for patients with congenital and acquired pathology of the locomotor apparatus,
including infantile cerebral palsy.
In the working period of our center, 36781 patients were admitted for the
treatment (data on 31.12.2011), and 29749 of them were children (80.9%). An
average of 4000 patients per year were operationally treated, and more than
2000 of them applied for the first time, including 81.7% percent of children
(1650 patients).
The age structure of all patients admitted for the treatment of locomotor
system pathology was the following: 1–3 years: 14.4%; 4–7 years: 36.3%; 8–10
years: 14.8%; 11–14 years: 15.4%; 15–17 years: 17.7%; and older than 18 years:
1.4%.
32
The largest group of patients includes people with the incoming diagnosis
of “infantile cerebral palsy”. The patients with cerebral palsy accounted for
84.3% of total patients number (31006). Among patients with infantile cerebral
palsy, 86.9% were children (26959). The following age distribution of patients
with infantile cerebral palsy was determined: 1–3 years: 16.3%; 4–7 years:
40.2%; 8–10 years: 16%; 11–14 years: 15.3%; 15–17 years: 11.9%; and older
than 18 years: 1.2%. The structure of patients according to the type of infantile
cerebral palsy was the following: the double hemiplegia: 42%; spastic diplegia:
36.7%; hemiparetic form: 13.3%; hyperkinetic form: 6.3%; atonic-astatic
form: 1.5%. Patients with severe and moderate level of motoric disorders were
prevailing.
The analysis of treatment results of 3849 patients over a long period of
time, compiled by the doctors from different cities of Russia and the experts of
the Institute in the period from the year 1993 till 2011, showed that on average
of 92.84% of cases has achieved a “good” clinical effect which is manifested
through the increasing range of motion, the emergence of new or substantial
improvement of previously existing motor habits, the forming of a qualitatively
new motoric stereotypes, and the disappearance or reduction of pain syndrome
and hyperkinesia. In the case of 4.34% of patients “satisfactory” result was found,
the improvement of individual motor habits was noted, and also the expansion
of the features within the initial level of motor development. In the case of 2.79%
of patients, their condition was “unchanged”. In the case of 0.03% of patients, the
occurrence of pain in the muscle areas that were not previously operated, was
considered to be the deterioration, however, these changes were eliminated in the
following phases of treatment. In 52% of cases, the motor function changes had
a qualitative character and were manifested through the development of new
habits (sitting, crawling, walking, self-service habits). The effectiveness of phase
fibrotomy in relation to local organic muscle contracture or the pain spot was
97.5% in average.
Apart from the indicators of motor development improvement, in the
case of muscle contractures removal, additional positive effects were found:
improvement of speech (62%), mastication (49%), swallowing (50%), facial
expressions (22%), emotional and behavioral indicators (64%), sleep (49%),
appetite (58%) reduction of strabismus (55%), salivation (56%), nystagmus
(22%), the frequency and severity of seizures (25%) increase in visual acuity
(17%) and hearing acuity (15%). The frequency of qualitative changes
(occurrence of speech, mastication, termination of strabismus and salivation)
was 35%.
Katamnestic monitoring of patients during the period of 20.5 years
confirms that the surgical procedure is optimal at the early stages of organic
muscle contractures, before the occurrence of persisting contractures and
deformities of locomotor apparatus. In relation to this, in order to achieve the
33
maximum results, in the cases of adequate indications, it is the most appropriate
that surgical treatment starts at age of 2–3 years of life when pathology is
congenital, and at age of 3–5 years of life when it comes to acquired pathology
of the locomotor apparatus and infant cerebral palsy.
Comparative analysis of the effectiveness of treatment of children with
disorders of locomotor apparatus and infantile cerebral palsy from different age
subgroups showed that the percentage of positive results in pre-school children
is higher than in older children. Reason for this lies in more pronounced
changes in the muscles of school-aged children and older boys and girls, and
also in the forming of fixed deformation of locomotor apparatus over time.
A higher efficacy of the treatment of patients with spastic types of infantile
cerebral palsy, and in the cases of moderate motoric disorders, unless there are
changes in the joints, or they are minimal, was found.
According to our monitoring results, a timely mannered surgical
intervention performed by medical technology “Phase Fibrotomy in
Orthopedics” by professor V. B. Ulzibat, contributes to the orthopedic
correction of existing deformities and reduction of myofascial pain syndrome,
which, in combination with conservative recover therapy, greatly increase the
rehabilitation potential of patients with the pathology of locomotor apparatus
and infantile cerebral palsy, especially in children.
34
HOW TO IMPLEMENT NATURAL SUPPORTS IN THE WORKPLACE
TO INCREASE TASK PERFORMANCE AND
SOCIAL INTEGRATION
Keith Storey
Touro University – College of Education, USA
Natural supports for workers with Cerebral Palsy involves using co-workers,
supervisors, and other supports intrinsic to the job setting to facilitate job skill
acquisition, maintenance, and integration. The use of natural supports is based upon
the understanding that utilizing people who are typically found on the job and typical
environments enhances integration more effectively than relying on specialized
services, personnel and settings. In the workplace, natural supports involves work-
site personnel and others providing support to employees with Cerebral Palsy with a
special emphasis on enhancing social integration. Supports may involve: (a) continued
skill training, (b) social skills instruction, (c) advocacy, (d) community skill training,
(e) crisis intervention, (f) validating instructional strategies, (g) collecting subjective
evaluations, (h) collecting social comparison information, and (i) job modifications
and adaptations.
The audience will gain an understanding of natural support strategies for
increasing supports and integration at work sites which have been empirically validated
as well as a better understanding of current research issues concerning natural supports.
I will offer guidelines for implementation of natural support strategies for individuals
with Cerebral Palsy.
Key words: Natural Supports, Supported Employment, Independent
Performance
35
Theme 1
39
STRUCTURE OF PRENATAL ETIOLOGIES FACTORS AND TYPES OF
CEREBRAL PALSY IN TUZLA CANTON
The aim of this study was to determine the structure of prenatal etiologic factors
and types of cerebral palsy in Tuzla Canton. The survey included the total sample of
48 patients with cerebral palsy, both gender, at the age 2-19 years. Realization of the
research is performed in home visits to each family of children with cerebral palsy
who had a spa treatment at „Ilidza“ Center for Physical Medicine and Spa Treatment,
Gradacac.
In order to study structural questionnaire was used for parents of children and
adoloscents with cerebral palsy. Data analysis was performed using nonparametric
statistics. Calculate the basic statistical parameters, frequencies and percentages,
and the tabulation results performed. Results showed that 68.8% of mother had the
disease inpregnancy, of which the highest percentage of births (86.1%) children with
spasmodic type of cerebral palsy. Also, the results imply that professional counseling
and education of future mother in leading a healthy pregnancy, whic would have the
primary objective, the prevention of cerebral palsy.
Key words: structure, prenatal etiological factors, cerebral palsy
40
ASSOCIATED CONDITIONS IN PERSONS WITH
CEREBRAL PALSY
Cerebral palsy is a disorder of motor control due to a static lesion of the developing
brain. It was described almost 150 years ago and is quite familiar to both the lay and
medical communities. Continuing advances in our understanding of the causes and
treatment of this heterogeneous disorder, when broadly understood and applied, will
allow more children and adults with cerebral palsy to reach their full potential.
The aim of this study is to compare associated conditions in two groups of
persons with cerebral palsy and intellectual disability (ID) and persons with cerebral
palsy without intellectual disability.
In this research 62 examinees were included. They were divided in two groups:
persons with cerebral palsy with ID (N=31) aged 4–18 years and persons with cerebral
palsy without ID aged 4–18 years. All participants were members of Association of
Physically Disabled Persons from city of Skopje. The study was conducted in the
period May-June 2004.
The most frequent type of cerebral palsy was spastic (65%). There was no
statistically difference in epileptic convulsions between two groups (p=0.52).
Receptive and expressive speech were poorly developed in the first group with ID
compared with the group without ID (p=0.002 respectively p<0.001). Orthopedic
deformities of shoulder, hip and spine were not correlated with intellectual disability.
Audiologic diagnostics was insufficient in 89% of participants. A large percent of
persons with cerebral palsy and ID had visual impairments (71%). Parents of these
persons with cerebral palsy had low educational level and low socioeconomic status.
Mothers of persons with cerebral palsy had pathological pregnancy in 19% and
pathological delivery in 44%.
Associated conditions in persons with cerebral palsy were more frequent in the
group with ID in comparison without ID.
Key words: cerebral palsy, intellectual disability, associated conditions, Skopje
41
LIFE EXPECTANCY IN CHILDREN WITH CEREBRAL PALSY
42
MATERNAL COGNITIVE AND EMOTIOANAL DENIAL OF CHILD’S
DIAGNOSIS OF CEREBRAL PALSY: NONRESOLUTION
Parental denial of the child’s diagnosis of cerebral palsy increases the risk of
insensitive parenthood and of development of insecure attachment in the child, and
such a parental reaction is called unresolved. Unresolved parents are unable to direct
themselves to the reality of their child’s diagnosis, but rather express unrealistic beliefs
about the child’s condition, actively searching for its cause and turning their attention
to the past. Emotionally, they may be overwhelmed with grief, depressed or angry,
and may deny the emotional impact of the diagnosis, or even idealize it. Considering
that nonresolution of diagnosis may have numerous negative implications for the
child, parent, and parent-child interactions, timely recognition of such reactions is a
very important task for clinical psychologists.
The aim of the research was to identify mothers’ resolution regarding their child’s
diagnosis of cerebral palsy, in particular nonresolution. Maternal resolution of diagnosis
was assessed using the Reaction to Diagnosis Interview and the Reaction to Diagnosis
Classification System. In addition to the main classification of Resolved/Unresolved,
six further subtypes of Unresolved were differentiated: Emotionally Overwhelmed,
Angrily Preoccupied, Neutralizing, Depressed, Distorting, and Confused.
The research included 100 mothers of children diagnosed with cerebral palsy,
2-7 years of age. Of these, 41 were classified by blinded coders as Unresolved. Most
mothers (36.6%) were emotionally overwhelmed, and other subtypes of Unresolved
were equally distributed. The emotionally overwhelmed reaction indicates that the
mother still has extremely painful reactions to the trauma of receiving the child’s
diagnosis. Overwhelmed by her own feelings such a mother remains emotionally
detached and insensitive for her child’s signals and needs.
Our findings have important clinical implications in the fields of prevention,
psychological support and management of unresolved mothers. Helping them
cognitively and emotionally accept the child’s condition is an important target of
psychological intervention.
Key words: nonresolution, cerebral palsy, child, mother
43
RESPONDING TO THE CHALLANGES WHILE RAISING A CHILD
WITH CEREBRAL PALSY IN THE CONTEXT OF BANGLADESH
Background: Cerebral Palsy is the most cost common physical and intellectual
disability in childhood. In Bangladesh, the total number of children with cerebral
palsy is 282.680 among 141.340.476 (US Census Bureau 2004 cited in Statistics by
country for Cerebral Palsy 2007). So, the number of cerebral palsy is huge. So, it is
very important to find out their challenges and its responses from parents experience.
It helps professionals to teach parents appropriate approach to raise a child.
Aim of the study: To explore challenges of parenting and to explore the feasibility
of new parenting approach while raising a child with Cerebral Palsy in Bangladesh.
Design: The study was conducted using phenomenological method.
Participants and setting: A total of 20 parents of children with Cerebral Palsy
took part in this study in school setting and hospital setting.
Methodology/Method: The study was conducted using phenomenological
method. Twenty Caregivers of children with Cerebral Palsy were selected as the study
participants by purposive sampling. Data were generated by using data triangulation
through 5 individual interviews, 3 focus-group discussions and observation. Data
were analyzed using content analysis under category, code and preparing theme for
result.
Results: Parents mentioned that they face problem with their Childs’ uncertain
behavior, developmental milestone, parenting under time pressure, with additional
parenting tasks and parenting under public security and grief. In the context of
Bangladesh, they have another challenge of societal attitude and superstitions
towards their child. In response to these challenges, they become depressed as they
have no support from family to embark upon challenges. Sometimes challenges are
so overwhelming for them and they flew away from the society they live. This is why
Parents suggest running awareness program in rural areas with all people and special
parent’s education program for the parents of children with Cerebral Palsy. This will
help them to embark upon their challenges.
Conclusion/Significance: In Bangladesh, Parents of Cerebral Palsy faced a range
of challenges while raising their child. These challenges may be effectively reduced by
awareness program and special parent’s education program.
Key words: cerebral palsy, parents, society, attitudes
44
FUNCTIONAL ABILITY OF CHILDREN WITH CEREBRAL PA
Background: The most important clinical feature of cerebral palsy (CP) is the
impairment of motor skills, which refers to the degree of restriction of motor function
in all body regions including the function of speech. The ability to walk is often used
as a rough measure for the severity of motor impairment.
The objective of this study was to determine the functional ability of children
with cerebral palsy.
Material and methods: The study included 206 children with cerebral palsy.
They were classified according to the Gross motor function classification system
(GMFCS) in V levels. Level I refer to best functional ability and level V the most
limited motor function. There are four age groups described within each of the five
levels of GMFCS (under 2 years, 2 to 4 years, 4 to 6 years and 6 to 12 years). Four
to eighteen years old children with CP were also classified according to the Manual
ability classification system (MACS) in V levels. Level I relates to the best ability to
handle objects in daily life, while in level V there is no ability to handle objects.
Results: Two-thirds of children with CP were able to walk independently or
with an aid (level I-III), while third of children had no ability to walk (level IV and
V). Limitations of medium level (level III) were present in every sixth child. Half the
children were classified according to the MACS classification as level I or II, a fifth
of children as level III and less than a third of children were classified as level IV or V.
Conclusion: The GMFCS and MACS classification systems enable to settle
rehabilitation goals for each level of motor function according to different age groups.
Key words: cerebral palsy, child, functional ability
45
THE POSSIBILITIES OF ASSESSMENT AND CLASSIFICATION OF
CAPABILITIES OF UPPER EXTREMITY OF CHILDREN
WITH CEREBRAL PALSY
46
FUNCTIONAL STATUS OF YOUTH AND ADULTS WITH CEREBRAL
PALSY IN A RESIDENTIAL FACILITY
47
ASSESMENT OF FUNCTIONAL ABILITY OF CHILDREN WITH
CEREBRAL PALSY AT SCHOOL AGE
The object was to assess the ability of motor and cognitive functioning of
children with cerebral palsy at school age.
The study included a total of 40 subjects with cerebral palsy, both sexes. Criteria
for the formation of the group were: age (6-11 years), established clinical diagnosis
of cerebral palsy (verified by the pediatrician) and available medical and school
history (from birth on wards). The first group, 20 subjects with cerebral palsy was
included in regular schools. The second group, which numbered 20 subjects that
was diagnosed with cerebral palsy with associated disorders and related problems,
attended primary school for children with special needs. Clinical data of subjects were
classified according to the ICD-10 and the Berg balance scale for assessing children
with cerebral palsy. Functional status of the subjects was obtained using standard
defectology estimates of motor and cognitive functioning in children with cerebral
palsy.
The structure of the results showed that the children of school age with cerebral
palsy have not developed adequate skills to independently participate in the education.
After comparing general motor skills, cognitive-perceptual integration skills and
skills of visual information communication, there were no statistically significant
differences found in tested variables between tested groups.
Key words: cerebral palsy, education, motor and cognitive functioning
48
MOTOR PERFORMANCE IN PRIMARY SCHOOL CHILDRENWITH
CEREBRAL PALSY
Purpose. The study defines the overall motor performance in children with
cerebral palsy, which defines their latent motor space.
Methods. The study was conducted on a sample of 80 children aged 6 to 16
years. Only children with cerebral palsy attending primary schools with equivalent
educational standards were included in the research.
Results. A discriminant analysis confirmed that children with cerebral palsy
differ in the latent structure of their motor space depending on the diagnosis of
cerebral palsy (the type of cerebral palsy). At common motor space, children with
different type of cerebral palsy have a distinction. The comparisation of three groups
/ types of cerebral palsy have shown two discriminative functions, first we called
function of common motorics, second function of maturity.
Conclusions. The study confirmed the impact of individual motor components
on the formation of motor space. The latter also comprises other dimensions of the
broader neuro-therapeutic spectrum. The type of cerebral palsy, causing individual
neurological deficits, determines the differences in motor space.
Key words: motor performance, motor skills and abilities, cerebral palsy
49
Theme 2
Ines Ayadi, Fatma Kamoun, Ines Hsairi, Emna Ellouz, Houda Ben Othmen,
Nejmeddine Hentati and Chahnez Charfi Triki
Child Neurology Department, Sfax, Tunisia
Objective – To test the possible link between first investigation and development
of cerebral palsy.
Method – A long-term prospective study was carried out in the child neurology
department and the ASHMS.
Results – The study undertaken from January 1, 2005, to December 31,
2007, involved 100 children suspected of developing cerebral palsy and requiring
a specialized course of treatment during the evolution of disease. In 47, evolution
of disease was favourable, and in 53. An unfavourable evolution was significantly
associated with late intervention.
Conclusion – Early detection and intervention seem to be determining factors
in cerebral palsy.
Key words: cerebral palsy, early detection, early intervention.
53
TREATMENT OF CHILDREN WITH CEREBRAL PALSY:
VILAN METHOD
Thes methods and our new, original approach the Vilan method (Ilankovic
& Ilankovic, 1996) with stimulative and reconstructive exercises – exteroceptive,
proprioceptive and vestibular stimulation, stimulation of postural reactions,
regulation of tonus and balance, reeducation of complicated psycho-motor and
behavioral patterns.
Indicationes of the Vilan technics: cerebral palsy, medication – induced and
other movement disorders, hyperkinetic and tic disorders, mental (psychomotor
and psychosensoric) retardation, pervasive and specific developmental disorders
(childhood autism, Rett’s syndrome, atypical autism...), motor (psychomotor)
deficiency in other neurological and psychiatric disorders, organic mental disorders
and schizophrenia – residual and other type.
Effects of the Vilan technics: 1) regulation of muscel tone; 2) restoration of
muscel power; 3) regulation of balance; 4) reconstruction of postural reaction;
5) recontruction of body image; 6) recovery of spatial perception; 7) recovery of
communicationes; 8) reconstruction of static and dynamic posture; 9) regulation of
coordination in movement; 10) reeducation of complex motor pattern and behaviour;
11) recovery of self-concsiousness, and 12) development of creativity.
On the basis of results stemming from our research it can be said that the
applied rehabilitation model, with Vilan method, although conceptually a novelty, and
representing pioneer work being applied on this type of psychiatric population, has
provided very satisfactory therapeutic results.
Key words: Vilan, cerebral palsy, rehabilitation, children
54
“OPEN STIMULATION SYSTEM OF HUMAN DEVELOPMENT” AS THE
THERAPEUTIC MODEL OF CEREBRAL PALSY
CHILDREN REHABILITATION
55
OCCUPATIONAL THERAPY TREATMENT FOR CHILDREN
WITH CEREBRAL PALSY
Maria Arango
United States of America Armed Forces (NAVY- ARMY)
Educational and Developmental Intervention Services (EDIS Japan and Belgium)
Objective: Occupational Therapy for children with Cerebral Palsy focuses on the
development of skills necessary for the performance of Activities of Daily Living and
work (school and play specifically for children) to improve and achieve independence.
The aim of this systematic review is to explain how different Occupational Therapy
interventions would improve the outcome for children with Cerebral Palsy.
Content: General overview of the Occupational Therapy frames of reference
and specific models of practice to link them into the treatment for children with
Cerebral Palsy. The Occupational Therapist works in different settings such as
acute, rehabilitation, outpatient, home care and schools. The treatment can meet
children’s needs by working on fine motor skills to develop object manipulation,
handwriting skills and motor control. Occupational therapists also address hand-eye
coordination to improve play skills, such as hitting a target, batting a ball, or copying
from a blackboard. Occupational Therapy treatments are focused to help children
with mild or severe developmental learning delays in basic daily tasks, providing
different adaptive devices to increase their independence. The treatment also is
focused on teaching strategies to work on cognitive and visual perceptual activities
that are difficult for them in order to meet the school curriculum and participate
in different activities with their peers. Cerebral Palsy patients are evaluated for
specialized equipment/adaptive technology, such as wheelchairs, voice command
activators, touch screens and computers. Occupational Therapists can also help kids
with behavioral disorders to use different strategies to cope and manage themselves
properly to meet societal and environmental demands.
As an Occupational Therapist with 18 years of experience working in all different
settings with children with Cerebral Palsy and using an eclectic approach I want to
present some specific personal professional experiences using different treatments
techniques that have helped me to achieve a better outcome. Neurodevelopmental
Treatment and Sensory Integration approaches (with the use of equipment such as
bolsters and therapeutic balls) are used to manage the tone and increase the quality of
movement. The use of therapeutic tape and therapeutic orthotic garments with straps
(Theratogs) during and after the session as a way to carryover the muscle facilitation
or inhibition of specific body posture and/or movement. Therapeutic taping and
garments are recent interventions used in rehabilitation programs. They produce a
cutaneous stimulation of the sensoriomotor and proprioceptive systems. A sample of
research studies in these techniques will be reviewed to show how they support the
outcomes.
Occupational Therapists are also involved with children that receive botox
injections, tendon transfers, baclofen pump insertions, or a rizothomy as techniques
56
to reduce tone following the different protocols established by the physicians in order
to increase functional motor performance.
The last point to address is the importance of working closely with all different
team members in order to have better outcomes and provide children with Cerebral
Palsy the maximum independent level in all areas to increase their self-esteem and
sense of accomplishment.
Conclusion: Intensive therapy using different approaches have shown how
children with Cerebral Palsy can improve in all different areas. From research
studies and personal experience it can be suggested that Therapeutic Tape and
Orthotic Garments as an adjunct to treatment (NDT, SI) may assist with the goal
of independence and quality of movement in Occupational Therapy treatment.
Further studies are recommended to test the effectiveness of these methods and to
determine the lasting effects on motor skills and functional performance once the
tape or garments are removed.
Key words: cerebral palsy, rehabilitation, occupational therapy
57
THE IMPORTANCE OF APPLICATION LOGOPEDIC INSTRUMENTS IN
TREATMENT CHILDREN WITH CEREBRAL PALSY
Much has been written about oral dysfunctions of children with cerebral
palsy but there is no much about application of logopedic’s intruments. Children
with cerebral palsy have three categories of oral disorders: 1) moderate to severe
oral function problem as reduced lip closure and reduced tongue coordination; 2)
moderate to severe problems and delay in triggering the swallow; 3) neuromuscular
abnormalities including reduced tongue base movement and reduced laryngeal
elevation. Huge problem those children have is salivation and swallowing disorders.
We found the importance of application logopedic’s instruments in passive massage
and termo-tactile stimulation of oral cavity and also increasing of sensory awareness.
Application of logopedic’s instruments is valuable in: 1) gradually increasing of
pressure on tongue (usage no.6 from logopedic’s set of intruments); 2) introduction
of strong senses of taste (sweet, salty, sour, bitter); 3) termo-tactile stimulation (usage
no. 1 from logopedic’s set) with cold and warm massage. Termo-tactile massage is
performing by rubbing in circular motions inside of the cheek, lateral sulcus and
faucial arch. Importance in classic passive massage of oral cavity has application of
logopedic’s vibrafon whit direct vibrations in oral cavity. There is a need to emphasize
application of logopedic’s instruments in therapy with children with cerebral palsy to
improve oral function, salivation and movements wich helps in speech and swalowing.
Key words: logopedic instruments, treatment, cerebral palsy
58
APPLICATION OF THE HALLIWICH HYDROTHERAPY METHOD IN
CHILDREN WITH CEREBRAL PALSY
59
TREATMENT OF ENURESIS NOCTURNAE IN CHILDREN
WITH CEREBRAL PALSY
60
THE INFLUENCE OF THERAPEUTICAL HORSE-RIDING ON
IMPROVEMENT OF PSYCHOLOGICAL FUNCTIONS IN
CEREBRAL PALSY PATIENTS
61
DEMONSTRATION OF REHABILITATION OF PERSONS WITH
CEREBRAL PALSY AND MULTIPLE DISABILITIES
Persons with cerebral palsy and those with multiple disabilities are limited in
acquiring social experience through motor activity. The aim of this study was to
determine the correlation between the motor and social functioning of examinee.
The sample consists of people with cerebral palsy (N=4) and those with multiple
disabilities (N=10), both sexes.
Assessment of motor and social /emotional skills was conducted by questionnaire
adapted Lin Anderson, Margaret Blizard, Ajmi Vjuver, 1998. In the study, we applied
the techniques of drama. Method of play activities include integration and enrichment
experiences in the game.
The results of treatment suggest that there has been progress in controlling
motor activity and social skills, people with cerebral palsy and those with multiple
disabilities.
Key words: cerebral palsy, multiple disability, play activities
62
THE USE OF ROBOTS IN CHILDREN THERAPY – ATTITUDES
OF PARENTS
63
FAMILY THERAPY AND EDUCATION BU OCCUPATIONAL
THERAPIST FOR CREATING ENVIRONMENT AT HOME
FORTHE CHILDREN WITH CEREBRAL PALSY:
Evaluate child’s learning from caregiver’s perception
in the context of Bangladesh
64
Theme 3
67
SPEECH AND LANGUAGE ABILITIES IN CHILDREN WITH CEREBRAL
PALSY IN ELEMENTARY SCHOOL
68
GRAPHOMOTOR SKILS OF CHILDREN WITH CEREBRAL PALSY
69
GRAPHOMOTOR EXPRESION OF CHILDREN WITH CEREBRAL
PALSY IN SCHOOL AGE
70
WRITING ABILITY IN CHILDREN SUFFERING FROM CEREBRAL
PALSY AFTER PHASED FIBEROTOMY: CASE REPORT
71
THE ANALYZES OF INDIVIDUAL EDUCATION PLANS FOR CHILDREN
WITH CEREBRAL PALSY
72
METHODOLOGY FOR INDIVIDUAL SUPPORT PLAN IN EDUCATION
FOR STUDENTS WITH CEREBRAL PALSY
In this paper we present case study the boy with cerebral palsy at the age 9
years, attending first grade of primary school in Belgrade. The boy was involved in a
rehabilitation program in the Special Hospital for Cerebral Palsy and Developmental
Neurology from the age of 11 months old until to starting education. He was 8.5 years
old when he started education in first grade at school for children with disabilities.
But, he transferred to a regular school at the beginning of the same school year. A
student has had a number of difficulties in participating in teaching during the first
year of education, although all measures of adjustment implemented at school. To
provide additional support for special educator at the school was necessary for further
progress. The school has requested assistance from the Mobile Team of Primary
School „B. Buha”. A thorough assessment of students’ ability and adaptation in the
school environment was performed by special educator. Profile of student needs in
education created, based on analysis of Interdepartmental Commission’s opinions,
health, developmental and educational status and family situation. We analyzed
school resources, too. Based on collected data, we created individual support plan for
student in education.
In this study the initial premise was the view that students with cerebral palsy
require additional support to include and participate optimally in the process of
education. The study has a double importance:
1. highlights necessity to organize rehabilitation programs within the school,
contributing to the development and progress of student with cerebral palsy
in education
2. contributes to the development of methodology for creating individual
support plan to these students in inclusive education.
Key words: individual support plan, cerebral palsy, school
73
CONDITION OF STUDENTS WITH CEREBRAL PALSY WHEN
SWITCHING FROM LOWER GRADES TO UPPER CLASSES
Marija Davcevska
SES “Maca Ovcharova”, Veles, Republic of Macedonia
A subject of case study: a case study of the pupil F. I. (14 years). The student
started its education in our school “Maca Ovcarova” Veles.
Research Methodology: The following methods are implemented in the
researching process:
−− An interview with family members
−− An interview with the student F. I.
−− An interview with the class supervisor/tutor
−− Defectology diagnostics and treatment (Individual Education Plans)
−− A survey conducted (students and teachers)
−− Results: A contrastive analysis of the following two periods:
−− One year observation period of student’s behavior at deportment including
defectology thretments
−− An observation period without any treatment
Conclusion:
−− Easy adaptation period process with the new teachers with some given
expectations
−− Students with cerebral palsy are accepted by classmates and teachers
Key words: a case study, individual education plan, cerebral palsy
74
CONDUCTIVE EDUCATION IN SPECIAL CLASSES IN EDUCATIONAL
CENTRE “TOMISLAV SPOLJAR” IN VARAZDIN
Children with rather low intellectual functions and some additional troubles
have been educated in special classes in COO “Tomislav Spoljar” in the assistance of
special teachers.
In 2011/2012 school year there are 15 students of certainly low intellectual
functions and cerebral palsy (CP) in special classes, 8 -17 years of age (8 students need
a special help to move – a wheelchair). They also suffer from clearly impaired motor
functions and have troubles in everyday activities. These students have been educated
according to a special curriculum which includes the following fields of education:
communication, getting acquainted with school and its surroundings, education
for work, taking care of themselves, socialization, art and music creativity, physical
training and religion. These subjects stimulate the development of speech, verbal
and nonverbal communication, getting acquainted with school and its surroundings,
self-orientation and orientation concerning time and space, visual perception and
sensitivity, ocular-motor and graphic---motor co ordinations, the development of
concentration, attention and self-confidence, socialization skills, the skill of self-care
and self-service appropriate to child’s motor and mental status and chronological
age. In order to form their self-confidence, the students are regularly included in
performances in and outside COO.
These students’ curriculum and the programme of logopedics and kinesitherapy
have been coordinated. There are different didactic tools used in teaching. These
are: building and modelling materials, natural unshaped materials, different texture
materials, pull – out puzzles, insets, stringing up elements, auditory tools (rattles,
small bells), balls of different shapes and different technical tools. In teaching the care
is taken of adjusting work place (light, e.g., the length, frequency and size of visual
tools, adjusting the texts and the use of tools to perform fine motor activities.
During physical training the students go swimming and recreation horse-riding.
In spite of an effort to eliminate architectural barriers in COO, some of them still
exist (there is no lift). There is also lack of adequate equipment (desks, chairs). Besides
education, special education aims to support, help and stimulate motor skills which
will contribute child’s self-reliance.
Key words: Educational Centre “Tomislav Spoljar” (COO); education; cerebral
palsy (CP)
75
“INCLUSIVE”, “INTEGRATED” OR “SPECIAL”? REFLECTIONS ON THE
PECEPTIONS OF, DISCOURSE ON AND PERCEIVED TRAINING
NEEDS IN “INCLUSIVE” EDUCATION FOR CHILDREN WITH
CEREBRAL PALSY IN SRI LANKA
76
ADAPTED PHYSICAL ACTIVITIES AS THE PART OF EDUCATION:
CHANCE FOR CHILDREN WITH CEREBRAL PALSY
Hana Valkova
Palacky University in Olomouc – Faculty of Physical Culture, Czech Republic
77
PECULIARITIES OF ARTISTIC EXPRESSION OF STUDENTS
WITH CEREBRAL PALSY
A child’s artistic expression can be studied from many different angles. Most
of the early researchers of children’s artistic expression dealt with defining the
characteristics of children’s drawings, the reasons why they occurred and with their
changes over the age. All researches of children’s artistic expression show that the
children’s artistic expression is conditioned by the achieved level of motor abilities,
consciousness and emotions. However, in addition to these internal factors there
are external factors that also influence the appearance and development of artistic
expression, including the child’s living conditions and stimulants from its social
environment. Early researchers of this topic, established a certain periodicity and
characteristics of a child’s ability to express itself through art, but also deviations from
the standards of development which could be caused by subjective and environmental
factors, in addition to mental retardation or physical handicap. Proceeding from the
above, the goal of the research we conducted was to investigate the level of artistic
expression of children with cerebral palsy, starting from “optical-thematic plan” and
compare it with the development standards of artistic expression of students with
typical development. The survey was conducted on a sample of 17 children with
cerebral palsy from first to eighth grade, aged 8 to 20 years. Drawing the human figure
were evaluated in relation to the level of reality display starting from the three phases
in the development of children’s artistic expression G. Kerschensteiner: 1) scribbling
and scribbling stage (from two to four years of age), 2) phase scheme or symbols
(ideoplastic drawing) (from four to seven years of age) and 3) the stage of shapes
and forms (physioplastic drawing) (from the seventh to the ten years of age). The
result of the empirical study indicates that the level of artistic expression of children
with cerebral palsy significantly deviates from the standards of the development of
art expression of children with typical development. This discrepancy in the artistic
expression of children with cerebral palsy are reflected in a significantly slower
passage through the stages of artistic expression, poverty detail in the drawing and
retaining the level of phase scheme or symbols (ideoplastic drawing). A small number
of young children with cerebral palsy are in the development of artistic expression at
the level of scribbling phase or transition to phase scheme. The result of Delay in the
development of artistic expression of children with cerebral palsy is, of course, the
primary damage, but the lack of training in drawing, too. The results can serve as a
basis for providing adequate didactic and methodological guidelines for working with
this population of students in the field of fine arts, which clearly draws attention to the
practical application of research performed.
Key words: cerebral palsy, artistic expression, drawing, optical-thematic plan
78
PROFESSIONAL TRAINING FOR PERSONS WITH CEREBRAL PALSY –
A CASE STUDY
79
PROBLEMS OF EMPLOYMENT AND JOB ACOMMODATION OF
PERSONS WITH CEREBRAL PALSY
80
Theme 4
Emira Svraka
University of Sarajevo – Faculty of Health Studies, Bosnia and Herzegovina
83
POSSIBILITIES FOR SOCIAL INTEGRATION OF PERSONS WITH THE
CEREBRAL PALSY
Ivana Mitrovic-Djordjevic
Elementary School “Dusan Dugalic”, Belgrade, Serbia
In this work, we have covered the following topic: Possibilities for social
integration of persons with physical disability. Our research included assessment of
actual and nominal psycho-social support to persons with physical disability on one
hand, and assessment of possibilities for social integration of persons with physical
disability, on the other. The results were analyzed against possibility for integration
into school-, work- or wider social environment through opportunities for education,
employment and use of public services.
This research was conducted on persons with physical disability but with
preserved mental abilities, and the main issues were potential and achieved integration.
The research has identified all relevant factors which create obstacles or prejudices
and put this part of population in the state of occasional or constant incompetence.
We have achieved the defined goal through following: (1) assessment of psycho-
social support to persons with physical disability (actual and nominal support), (2)
assessment of motor and mental functions of persons with physical disability in social
environment and (3) comparison of abilities of persons with physical disability and
psycho-social support.
This research was conducted in Belgrade, during 2003/04. It involved 187
participants, persons with physical disability, of both genders. Criteria for the research
group were: belonging to the category of physical disability, age between 7 and 20,
preserved mental functions and residence in Belgrade.
According to defined research goals, conclusion is that the existing legal,
institutional and professional potentials are not sufficiently and adequately utilized
in the field of integration of persons with physical disability in social environment.
Key words: persons with physical disability, social integration, psycho-social
support
84
HEALTH-RELATED QUALITY OF LIFE IN CHILDREN WITH
CEREBRAL PALSY
85
LIFE HABITS ACCOMPLISHMENT LEVEL OF PERSONS
WITH CEREBRAL PALSY
Participation in daily activities is vital for all humans. World Health Organization,
stated that participation has a positive influence on health. The presence of disability
lead to less diverse participation, person is located more time in the home and involves
fewer social relationships, includes less active recreation as well. The WHO defines
participation as involvement in a life situation. In the ICF, participation is categorized
into domains: learning and applying knowledge; general task and demands;
communication; mobility; self-care; domestic life; interpersonal interactions and
relationships; major life areas such as work or school; and community, social, and
civic life (WHO, 2001).
The aim of this paper is to examine the life habits accomplishment level in
the domain of everyday activities of persons with cerebral palsy (CP). The sample
included 51 patients with CP of both sexes. The survey was conducted during May
2012 in the Association for Cerebral and Child Paralysis of Belgrade and Association
for Cerebral and Child Paralysis of Serbia. Part related to daily activities of Life
Habits Assessment 3.1 (Fougeyrollas, Noreau & St-Michel, 2001) was used for this
research. Descriptive statistics methods, absolute and relative indicators were applied
for datas processing and relation between independent and dependent variables was
investigated by chi-square test.
The results show that age and gender of respondents didn`t represent statistically
significant factors of life habits accomplishment level. Education proved to be a
significant variable in the field of nutrition (X2=12.244; p=0,032), and independent
living in the field of mobility (X2=14.596; p=0,012).
Key words: life habits, cerebral palsy, daily activities
Introduction
Seen from the perspective of social sciences, particularly from the
standpoint of special education and rehabilitation, the biggest problem with
explicative models which explaining the consequences of disease, trauma
or other disorders, such as model ICIDH or Nagi model, is related to their
institutional background or context of health (disease) from which they trace
their roots. Such models do not rely on generic, or the anthropological model
of development that are applicable to all human beings. In contrast, the model
of human development allows us to illustrate the dynamics of an interactive
process between the personal (internal) and environmental (external) factors
86
that determine the results of achievement in realizing the life style appropriate
to the age, sex and socio-cultural identity of a person.
It is difficult, to distinguish between “personal capacity” and “achievements
in social situations in real life” (referring to a set capacity profile, and the
environmental determinants), and argue that, for example, preparing meals
is inner characteristics of the person. Since this claim is supported by many
authors, it should be noted that personal activities (such as dressing, hygiene,
maintenance of security in the home) can not be categorized in category of
personal hallmark, but rather may represent the degree of realization of a social
activity in the real environment. That is the meeting between the people and
their environment in accordance with the expected and socially determined
result (Verbrugge & Jette, 1994; Bolduc, 1995; Sjogren, 1995; Robine et al.,
1997). Dimensions of environmental factors is therefore, from this perspective,
the key variable that allows the differentiation capacity of personal achievements
in the field of exercise life habits.
87
Cerebral Palsy
Cerebral palsy occurs with brain injury, most often in the uterus or birth, so
that the further development of these people are quite specific. It is manifested
with impairment of motor function, but is often associated with other disorders,
such as vision problems, hearing loss, mental retardation, speech disorders or
behavioral disorders. Cerebral palsy is defined as a disorder of movement and
postural balance due to a variety of immature brain damage. Therefore, cerebral
palsy is not only a medical problem but also it is a social and economic, and as
such it, affects the overall quality of life for these people and their environment
(Križ & Prpic, 2005). This is a condition that in the social context gets attributes
of disability (retardation, disability, handicap) (Rapaic & Nedovic, 2011).
Many individuals with cerebral palsy have a low level of participation in daily
activities. The World Health Organization states that participation has a positive
impact on health, and it is of vital importance for all people. Donkervoort et al.
(2007) state, that participation and exercise of life habits in most cases depend on
the level of motor functioning. Respectively, a higher level of motor functioning
gives some lower limits in their daily activities. The level of motor functioning,
age and intellectual status are predictors of the level and quality of exercise of
life habits for people with cerebral palsy, particularly in the areas of personal
care and social engagement (Nedovic et al., 2012). On the other hand, there are
studies that indicate an increase in the number of people with cerebral palsy who
successfully participate and that, regardless of the severity of their condition,
show independence in daily activities and in the implementation of employment.
The reason of this change, can be found in the progress of rehabilitation and an
improving service achievements, but also in the environmental factors that are
becoming easier for people with cerebral palsy (Murphy et al., 2000).
Aim
The aim of this paper is to examine the life habits accomplishment level in
the domain of daily activities of persons with cerebral palsy (CP).
Methods
Participants
The sample included 51 persons with cerebral palsy both of sex.
Participants are aged between 35 and 55 years. Types of cerebral palsy based
on topographical distribution: diplegia, hemiplegia, paraplegia, quadriplegia.
Participants were recruited from the Association for Cerebral and Child
88
Paralysis of Belgrade and Association for Cerebral and Child Paralysis of
Serbia. The research was conducted during May 2012.
Instrument
The Assessment of Life Habits (LIFE-H) was developed to assess the
quality of social participation of people with disabilities by estimating how a
client accomplishes activities of daily living and social roles (Fougeyrollas et
al., 1998). The LIFE-H considers the degree of difficulty in carrying out life
habits and the type of assistance required (Desrosiers et al., 2004).
The short version of the LIFE-H 3.1 (Fougeyrollas, Noreau & St-Michel,
2001) was used in this research. It is composed of 77 life habits divided into
12 categories. We used the Activities of Daily Living sub-scale contains the
following categories: nutrition, fitness, personal care, communication, housing
and mobility. For each item in the accomplishment sub-scale the client is asked
about perceived difficulty in performing a life habit When a life habit is not
realized because it is not part of the person’s daily life, it is considered as a non-
applicable item (Desrosiers et al., 2005; Desrosiers, Bourbonnais, Noreau,
Rochette, Bravo, & Bourget, 2005; Fougeyrollas et al., 1998).
Statistical analysis
Analyses were performed using SPSS 12.0.1 for Windows. Descriptive
statistics methods, absolute and relative indicators were applied for datas
processing and relation between independent and dependent variables was
investigated by chi-square test.
Results
89
Table 1
Characteristics
Age n(%)
35 – 45 24 (47.1)
46 – 55 27 (52.9)
Gender, n (%)
Male 25 (49.0)
Female 26 (51.0)
Level of education, n (%)
High –
Medium 23 (45.1)
Low 28 (54.9)
Daily activities
The research resultats of daily activities are shown in Table 2.
Respondents accomplished without difficulty most of life habits in the
fields of nutrition, fitness and communication. They accomplished habits at
different levels in the fields of personal care, mobility and housing ranging
from accomplished with difficulties, accomplished by a proxy and to not
accomplished.
Table 2
Performing
Daily activities Performed with Performed with Performed by Not Not
no difficulty difficulty a substitute performed applicable
Nutrition f % f % f % f % f %
Selecting appropriate 38 74.5 11 21.6 / / 2 3.9 / /
food
Preparing your meals 10 19.6 3 5.9 / / 38 74.5 / /
Eating meals 44 86.3 7 13.7 / / / / / /
Eating in restaurants 37 72.5 7 13.7 / / / / 7 13.7
Fitness f % f % f % f % f %
Getting in and out of 33 64.7 14 27.5 4 7.8 / / / /
bed
Sleep 51 100 / / / / / / / /
Particip. in phys. 2 3.9 16 31.4 / / 6 11.6 27 52.9
activities
Particip. in relaxation or / / / / / / / / 51 100
mental focus activities
90
Personal care f % f % f % f % f %
Attending to personal 16 31.4 34 66.7 1 2 / / / /
hyg.
Using the bathr./toilet 21 41.2 29 56.9 1 2 / / / /
in home
Using the bathr./ toilet 15 29.4 23 45.1 / / 13 25.5 / /
other than those in
home
Dressing/undressing 39 76.5 11 21.6 1 2 / / / /
the upper half of your
body
Dressing and 31 60.8 19 37.3 1 2 / / / /
undressing the lower
half of your body
Putting on, removing, 6 11.8 19 37.3 / / / / 26 51
and maintaining your
AD
Taking care of your 15 29.4 36 70.6 / / / / / /
health
Using services provided 10 19.6 41 80.4 / / / / / /
by a hospital or rehab.
center
Communication f % f % f % f % f %
Communicating 35 68.6 13 25.5 / / 1 2 2 3.9
with person in the
community
Communicating with 39 76.5 10 19.6 / / / / 2 3.9
a group of people at
home
Written communication 35 68.6 2 3.9 / / / / 14 27.5
Reading and 34 66.7 2 3.9 / / / / 15 29.4
understanding written
information
Using a phone at home 33 64.7 7 13.7 1 2 1 2 9 17.6
or at work
Using a public or cell 6 11.8 4 7.8 / / 5 9.8 36 70.6
phone
Using a computer 22 43.1 2 3.9 4 7.8 2 3.9 21 41.2
Using radio,TV or 34 66.7 16 31.4 1 2 / / / /
sound s.
Housing f % f % f % f % f %
Maintaining your home 3 5.9 43 84.3 1 2 4 7.8 / /
Maintaining the 2 3.9 7 13.7 / / 4 7.8 38 74.5
grounds of your home
Doing major household / / 28 54.9 / / 22 43.1 1 2
tasks
91
Moving around within 28 54.9 12 23.5 11 21.6 / / / /
your home
Using the furniture 24 47.1 14 27.5 12 23.5 1 2 / /
and home-furnishing
equipment in your
home
Moving around out 14 27.5 29 56.9 8 15.7 / / / /
home
Mobility f % f % f % f % f %
Getting around on 13 25.5 32 62.7 6 11.8 / / / //
streets
Getting around on 1 2 47 92.2 / / 3 5.9 / /
slippery or uneven
surfaces
Riding a bicycle / / / / / / / / 51 100
Being a passenger in a 12 23.5 39 76.5 / / / / / /
vehicle
The results also showed that age and gender of respondents didn`t represent
statistically significant factors of life habits accomplishment level.
Education proved to be a significant variable in the field of nutrition
(X =12.244; p=0,032), and independent living in the field of mobility (X 2=14.596;
2
p=0,012).
Discussion
Much of the emphasis in cerebral palsy is on the pediatric aspects. Great
attention is paid to therapies to maximize the child’s potential for speech,
ambulation and other functions. Researchers have studied the developmental
trajectory of children with CP, considering questions such as the child’s chance
of learning to walk (Blair, et al., 2001). There is a large literature on medical
conditions of children with cerebral palsy and also a considerable literature
from around the world on survival of children and young adults with CP (Evans
et al., 1990; Crichton, et al., 1995; Hutton et al;., 2000; Hutton & Pharoah,
2002). By comparison, there has been less attention paid to adults and elderly
persons with CP.
The aim of this research was examining the life habits accomplishment
level in the domain of everyday activities of adults with CP.
According to the International Classification of Functioning, Disability
and Health (ICF), participation is defined as the involvement of a person in life-
situations and is determined by impairment or limitations of activity, as well as
by environmental or contextual factors (WHO, 2001; Jonsson et al., 2008). For
adults with CP, restrictions in participation have been demonstrated in several
92
areas of day-to-day living, including employment, independent living, and
social and leisure activities (Andersson et al., 2001, Andren & Grimby, 2004).
The results of our research showed a difficulties in accomplishment of
daily living habits in fields of personal care, mobility and housing. Donkervoort
et al. (2007) stated that a significant number of adolescents and younger adults
with CP without severe learning disabilities are restricted in daily activities and
social participation. These problems are mainly attributable to restricted gross
motor functioning, a low level of education and younger age. About 20–30% of
the participants encountered restrictions in daily activities (mobility, self-care,
nutrition). Level of education and age proved to be important determinants
of functioning in daily activities and social participation, explaining 70% and
66% of the variance in outcome respectively.
French historian and philosopher Michel Foucault asserted that power
and knowledge have been used to develop a society and health care system
that marginalizes people who are different from the “norm” (Foucault, 1975).
Research also has shown that institutional environmental factors (economic,
political, attitudinal) significantly affect the participation of persons with
disabilities (Law et al., 1999). Issues of poverty, cost of programs, affordable
housing, lack of information and physical assistance, lack of inclusion of persons
with disabilities in planning, and staff training and attitudes limit participation
(Imrie & Kumar, 1998; LaPlante et al., 1996).
The results also showed that age and gender dont represent statistically
significant factors of life habits accomplishment level. Education proved to
be a significant variable in the field of nutrition and independent living in
the field of mobility. Donkervoort et al. (2007) also found that the level of
education is important determinant, especially in the area of lifestyle related to
communication and nutrition.
Conclusion
The presence of disability has been found to lead to participation that is
less diverse, is located more in the home, involves fewer social relationships,
and includes less active recreation.
As the reason for that, on a broad level, we must consider societal production
of space or the whole organization of our cities and towns, including places of
employment, households, shopping districts, and transportation networks.
The research results show that there is greater need of community support
in terms of setting up a support services for people with CP who living alone and
those living with their parents. Except an accessible barrier free environment,
support for persons with CP should include assistance in housing, personal
hygiene and mobility in the home and environment.
93
References
1. Andersson, C. & Mattson, E. (2001) Adults with cerebral palsy:
a survey describing problems, needs, and resources, with special
emphasis on locomotion. Developmental Medicine & Child Neurology,
43, 76–82.
2. Andren, E. & Grimby, G. (2004).Dependence in daily activities and
life satisfaction in adult subjects with cerebral palsy or spina bifida: a
follow-up study. Disability and Rehabilitation, 26, 528–536.
3. Blair, E., Watson, L., Badawi, N. & Stanley, F.J. (2001). Life expectancy
among people with cerebral palsy in Western Australia. Developmental
Medicine & Child Neurology 43, 508–515.
4. Crichton, J.U., Mackinnon, M. & White, C.P. (1995). The life
expectancy of persons with cerebral palsy, Developmental Medicine &
Child Neurology 37, 567–576.
5. Desrosiers, J., Noreau, L., Robichaud, L., Fougeyrollas, P., Rochette, A.,
Viscogliosi, C. (2004). Validity of the assessment of life habits in older
adults. Journal of Rehabilitation Medicine, 36(4), 177-182.
6. Desrosiers, J., Bourbonnais, D., Noreau, L., Rochette, A., Bravo, G.,
Bourget, A.(2005). Participation after stroke compared to normal
aging. Journal of Rehabilitation Medicine, 37, 353-357.
7. Donkervoort, M., Roebroeck, M., Wiegerink, D., Van der Heijden-
Maessen, H. & Stam, H. (2007). Determinants of functioning
of adolescents and young adults with cerebral palsy. Disability &
Rehabilitation. 29 (6), 453-463.
8. Evans, P.M., Evans, S.J.W. & Alberman, E. (1990). Cerebral palsy:
Why we must plan for survival. Archives of Diseases in Childhood 65,
1329–1333.
9. Foucault, M. (1975). The birth of the clinic: An archaeology of medical
perception. New York: Vintage/Random House.
10. Fougeyrollas, P. (1995). Documenting environmental factors for
preventing the handicap creation process: Quebec contributions
relating to ICIDH and social participation of people with functional
differences.Disability and Rehabilitation, 17 (3/4), 145-153.
11. Fougeyrollas, P., Noreau, L., Bergeron, H., Cloutier, R., Dion, S.A. &
St Michel, G. (1998). Social consequences of long term impairments
and disabilities: conceptual approach and assessment of handicap.
International Journal of Rehabilitation Research, 21, 127-141.
94
12. Fougeyrollas, P., Noreau, L. & St-Michel, G. (2001). Life Habits
Measure: shortened version (LIFE-H 3.0). Lac St-Charles, Quebec,
Canada:CQIDIH
13. Hutton, J.L. & Pharoah,P.O.D. (2002). Effects of cognitive, motor, and
sensory disabilities on survival in cerebral palsy. Archives of Disease in
Childhood 86, 84–89.
14. Hutton, J.L., Colver, A.F. & Mackie, P.C. (2000). Effect of severity
of disability on survival in north east England cerebral palsy cohort.
Archives of Disease in Childhood 83, 468–474.
15. Imrie, R. & Kumar, M. (1998). Focusing on disability and access in
the built environment. Disability and Socaity, 13, 357-374.
16. Jonsson, G., Ekholm, J., Schult, M.L. (2008). The International
Classification of Functioning, Disability and Health environmental
factors as facilitators or barriers used in describing personal and social
networks: a pilot study of adults with cerebral palsy. International
Journal of Rehabilitation Research 31, 119–129.
17. Križ, M. & Prpić, I. (2005). Cerebralna paraliza. Medicina, 1, 46-48.
18. LaPlante, M. P., Kennedy, J., Kaye, S., & Wenger, B. L. (1996).
Disability and employment. Disability Statistics Abstract, 11, 1–4.
19. Law, M., Haight, M., Milroy, B., Willms, D., Stewart, D., & Rosenbaum,
P. (1999). Environmental factors affecting the occupations of children
with physical disabilities. Journal of Occupational Science, 6(3),
102–110.
20. Murphy, K., Molnar, G. & Lankasky, K. (2000). Employment and
social issues in adults with cerebral palsy. Archives of Physical Medicine
and Rehabilitation,81(6), 807-811.
21. Nedović, G., Rapaić, D., Odović, G., Potić, S. & Milićević,M. (2012).
Socijalna participacija osoba sa invaliditetom. Beograd: Društvo
defektologa Srbije.
22. Rapaić, D. & Nedović, G. (2011). Cerebralna paraliza-praksičke
i kognitivne funkcije. Beograd: Fakultet za specijalnu edukaciju i
rehabilitaciju, CIDD.
23. Robine, J.M., Ravaud, J.F. & Cambois, E. (1997). General Concepts
of Disablement, In: Hamerman, D. (Ed.) Osteoarthritis: Public
health implication for an aging population. Baltimore: John Hopkins
University Press, pp 63-83.
95
24. Sjogren, O.(1995). Individualized services programs. A best support
and service model for children, youths and adults with disabilities and
their familie 1. The model, ISP Norden, Sweden.
25. Verbrugge, L. M. & Jette, A. M.(1994). The Disablement Process.
Social Science & Medicine, 38, (1), 1-14.
26. World Health Organization (2001). International Classification of
Functioning, Disability and Health: ICF. Geneva: WHO.
96
BEHAVIORAL PROBLEMS IN CHILDREN WITH CEREBRAL PALSY
AND MILD INTELLECTUAL DISABILITY
97
SELF– ESTEEM OF INDIVIDUALS WITH CEREBRAL PALSY
98
ACTIVITIES OF DAILY LIVING IN PERSONS WITH CEREBRAL PALSY
IN INSTITUTIONALIZED CONDITIONS
Reviewing the literature we have revealed that there were gaps in research of
everyday activities of persons with impairments in institutions of social care. It is
often assumed that if a person is accommodated an institution of social care has all
the necessary support and that there are no major obstacles in everyday activities with
a given support. Therefore, we believe that this subject was not even studied. The
research that was conducted for the purpose of this paper gave us the overall picture
of everyday activities of persons with physical disabilities in social care institutions.
The main objective of this study was to determine the possibility of performing
everyday activities, including participation in special activities organized by the
institution, and thus find the indication for somatopedic treatment for persons with
cerebral palsy, quadriplegia and paraplegia, multiple sclerosis and muscular dystrophy
that are in institutionalized.
Method – For purposes of this study, we have used the descriptive method.
Methods of collecting data were: documentation, analysis and individual assessment
– testing. Assessment instruments – Test everyday activities (Rusk, 1971) and a
Questionnaire for assessing the intensity of needed psychosocial support (Nedovic,
Odovic, Rapaic, 2010).
The results show that users included in this research are heterogeneous group
regarding the success at the test of everyday activities and level of needed psychosocial
support and that they take very little part in programs provided by the institutions
and that there is a need for somatopedic treatment.
Key words: everyday activities, persons with cerebral palsy, institutionalized
conditions.
99
Theme 5
Others
motor imagery in cerebral palsy: is that true?
103
THE ROLE OF THE CENTRAL NERVOUS SYSTEM IN THE
ORGANIZATION AND CONTROL OF VOLUNTARY MOTOR ACTIVITY
104
EARLY DETECTION OF BREAST CANCER BY MAMMOGRAPHY IN
WOMAN SUFFERING FROM CEREBRAL PALSY
Breast cancer is the most common malignancy in women, and if detected early
patients have a relatively good chance to cope with the disease. Ar the Institute of
Oncology in Sremska Kamenica be conducted systematic reviews, screening program
for early detection of breast cancer base, control mammography and ultrasound. The
analysis of data from the records of the Institute revealed that the participation of
people with very little, and we believe that woman with breast cancer is not the time
uncovered and treated.
In this paper, we emphasize the need to identify the barriers to aprticipation
in mammography screening of women with cerebral palsy in Serbia. It was found
that timely mammograms significantly reduce the mortality rate, but women with
disabilities, such as cerebral palsy do not use this preventive method, potentially
leading to a delay in diagnosis of breast cancer and a worse prognosis of the disease.
Difficulties in communication, physical and psychological limitations, and attitudes
of health care professionals are an obstacle to the successful outcome of a prevention
program.
Necessary adaptation of mammographic techniques that correspond to the
physical limitations of a woman with cerebral palsy and education of health care
professionals to increase the effectiveness of prevention programs.
Key words: breast cancer, mammography, cerebral palsy
105
USING THE COMPUTER SOFTWARE FOR OBSERVATION AND
ANALYSIS OF MOTOR BEHAVIOR FOR APRAXIA ASSESSMENT IN
PERSONS AFFECTED BY CEREBRAL PALSY
106
GROSS MOTOR FUNCTION AND CLASSIFICATION SYSTEM
Snjezana Mergon
Center for Education and Rehabilitation, Krizevci, Croatia
A group of Canadian doctors for long time has explored the tests that would
assess motor function of children. The result of their work is the “Handbook for the
assessment of gross motor function,” according to Russell and others. The estimate is
accepted because it was extensive and reliable.
Testing with 66 tasks in practice is used as the basis for the classification of gross
motor function in cerebral palsy. Testing with 88 tasks is used in research, clinical
trials and as a complement to Test – 66. Testing is performed in 5 dimensions. Rules
and GMFM sheet for recording results are used in testing procedure.
The aim of the assessment is to measure the magnitude of change in gross motor
skills after a period of time. Initial measurement is essential to reveal the child’s
strengths, as they should be used as motivation for work. The measurement should be
used for further prognosis, in cerebral palsy, as well as with other motor impairment.
Classification system of gross motor functioning, GMFCS, is the assessment of
severity of the disorders of motor function. It is based on voluntary caused motions
classified in 5 levels. The main criterion is the function in everyday life, and it differs in
functional limitations, the need for aids and quality of movement. The classification
focuses on current capabilities and limitations of coarse motor function of children
and adolescents.
Key words: Gross Motor Function Measurement – GMFM, Gross Motor
Function Classification System – GMFCS, testing, prognosis, cerebral palsy
107
THE ROLE OF GENDER AND THE TYPE OF HOSPITALIZATION IN
TRAINING SELF CARE ACTIVITIES OF PRESCHOOL CHILDREN
WITH CEREBRAL PALSY
Nada Savkovic
Health College Belgrade, Serbia
This research is a part of master’s thesis with the main assumption that special
education program may affect the ability of manipulative skills and self care of children
with cerebral palsy (Savkovic, 2011). The aim of the research is to determine the effects
of individually composed programs to ability of the child for taking food, personal
hygiene and dressing/undressing activities, and identification of the correlative
relationship between gender and the type of hospitalization, and achievement after
the implementation of special education program. The sample was formed of 30
children aged 4 to 7 years for treatment at the Special Hospital for Cerebral Palsy and
Developmental Neurology at Belgrade and separate protocol, designed specifically
for this study was used for evaluation before and after the applied program, which
was applied continuously for 12 weeks. On the basis of correlation analysis and by
T-test it is confirmed that the program led to improved hand function and its role in
prehension and manipulation of objects from everyday life and helped children with
cerebral palsy in achieving independence in basic self-care activities.
Key words: children, cerebral palsy, self care, special education program
Theoretical basis
Speaking of a hand as a blade of a mind Connolly (1998) wrote that our
hand is a central part of our psyche, as its executive, research and expressive
roles constantly rotate. Development of hand in the service of capturing and
manipulating objects exceeds a long way and is one of the ways in which children
experience a sense of loss and gain competence. Bruner (1973) has emphasized
that this competence in children include not only social interaction, but also
elements of domination over the facilities. Classification system that is based
on clinical physiology of motor dysfunction, the number of limb involvement,
and functional status of the child usually describes the patient’s inability, but
does not provide insight into the etiology and pathology (Ball, Morven, 2002).
The results of research on the relationship between the damage to his hands and
manual skills of children with cerebral palsy (ABILHAND-Kids questionnaire
applied to a sample of 101 children), verified that in 58% of children led to the
damage of the hands of manipulative abilities and limitations to the general
mobility of the dominant hand and power nondominant hand grip good
predictors of manual skills. Attempts by several comparative studies conducted
in order to prove the efficiency and validity of commonly used therapeutic
programs have been extremely unsuccessful (Metcalf et all., 2007).
108
Aim of the research
The aim of the research is to determine the effects of individually
composed defectological treatment to improve handling skills and self care of
children with cerebral palsy. From this base we produced partial goals, such
as determining the correlative relationship between the calendar age, gender,
type of hospitalization, the distribution of motor impairment and the degree of
intellectual deficits and achievements after the implementation of programs for
the development of manipulative skills.
Research tasks
At the beginning of the experiment we evaluate manipulative skills and the
ability for self care of each child with the battery of tests composed specifically
for this study. We developed individual program for each child and applied it
continuously during 12 weeks. After completion of the program, we used the
same battery of tests, to assess manipulative skills and self-care activities, and
compared the correlation with the initial assessment to determine the effects
of the applied program.
Hypothesis
We expected that the implemented program will improve handling
capabilities of a child with cerebral palsy. We expected that the program for the
development of manipulative skills will have an impact on the childs ability for
self-care activities. We assumed that the distribution of motor impairment and
intellectual level will significantly affect the development of manipulative skills.
We expected that the calendar age will have an impact on the development of
manipulative skills. We also assumed that gender will significantly influence
the development of manipulative skills of children with cerebral palsy. We
also assumed that the type of hospitalization will affect the development of
manipulative skills of children with cerebral palsy.
Research methodology
The study was conducted at the Special Hospital for Cerebral Palsy and
Developmental Neurology, in Belgrade during 2010 year. The study sample
was consisted of children with cerebral palsy who were on full or partial
hospitalization, alone or with a parent. Of the total number of children we
selected the number of thirty, and we folloved certain criterias to form a pattern.
Those criterias are that a child is aged between 4 and 7 years, regularly involved
in the rehabilitation program of the institution, and have a diagnosis of cerebral
109
palsy (children with other neurological and behavioral disorders were excluded
from the sample).
Data resources
Data on the type of of hospitalization, age, diagnosis, shape and form of
cerebral palsy and intellectual status were obtained from medical records of
the institution.
Variables
The independent variables were gender, calendar age, type of hospitalization,
distribution of motor impairment and the degree of intellectual deficit. The
dependent variables in this study were defined as the manipulative ability, and
they are expressed through: maturity/repertoire of grips, bimanual activities,
eye-hand coordination and the child’s ability to perform age relevant self-care
activities.
110
The structure of the sample in relation to the form of
cerebral palsy
Cumulative review of subjects in relation to the form of cerebral palsy.
Classification and codes were taken from the ICD 10 (10th revision of
International Classification of Diseases 1990). The largest number of children,
25 (83.33 %) are with spastic cerebral palsy, 8 respondents (26.66 %) are with
quadriparesis, 12 respondents (40 %) are with diplegia and 5 respondents
(16.66 %) are with hemiparesis. Only 2 respondents (6.66 %) are with Ataxic
form of cerebral palsy, and 2 (6.66 %) are with non-specific form of cerebral
palsy and 1 respondent (3.33 %) is with dyskinetic form of cerebral palsy.
Results
The assumption that the gender will be significantly correlated with
achievement was partially confirmed, as in only 6 out of 38 items evaluated,
the girls proved successful. In the first test which evaluates the grasps maturity
in only one of 11 items, or in one of the six tested grabs (palm-grip) is shown
a statistically significant effect of gender on the development of a mature
catch. In second test, which assesses bimanual activities, on the retest girls
showed significantly higher achievement in one of five items – dismantling and
assembling small objects. In the third test that evaluates eye - hand coordination,
111
in one of four items girls were more successful in placing the stick to the circle
with both hands. In carrying out activities in the second part of the protocol,
girls were at the retest significantly better in washing hands and face and in using
glasses and cups for drinking- in only three of 22 items.Our assumption that
the type of hospitalization will lead to higher improvement of the manipulative
ability and self care in children, who were hospitalized without parental care,
has not been confirmed. There was no statistically significant relationship
between the type of hospitalization and achievements in all 16 items which
evaluate manual abilities. Statistically significant correlation between type of
hospitalisation and achievment after the aplied program is shown in only one
activity (hair combing) of 22 tested items relating to self-care activities, when
children who were stationed with mother or alone were significantly better in
the re-assessment compared to children who were coming to ambulance and
day hospital.The difference in achievement at the re-evaluation in relation to
calendar age is shown only in using fingers for picking and eating food, where
the children of older calendar age (6 and 7 years) had better achievement,
but not enough to establish a statistically significant correlation (r=0.087).
Examining whether there is a statistically significant association between the
distribution of motor impairments and program for developing manipulative
skills, we have confirmed that there is correlation which was confirmed by
retest and showed throught statistically significant values, thus confirming our
hypothesis that the distribution of motor impairment significantly influenced
the manipulative abilities of a child with cerebral palsy.Statistically significant
correlation is shown in 30 of 38 items between the degree of intellectual deficit
and achievement at retest after applying the program, thus confirming our
hypothesis that the level of intellectual development significantly affects hand
function. Most children who have progressed are from the group of average and
limited intelectual abilities.
Conclusion
In relation to the investigated dependent variables – the maturity of the
basic grips, bimanual activity, eye-hand coordination and ability to perform
basic self-care activities, the results indicate the fact that most children in
this survey failed in many everyday activities because they have not been
taught to use their hands. The final conclusion based on this research, could
be that targeted activities at the preschool age can affect the development of
manipulative skills and abilities for self care of a child with cerebral palsy. XXI
century trends focuse on what children can (“focus on abbility”), but despite
the demolition of architectural barriers, the use of universally designed assistive
resources, new communication technologies, personal assistance services, and
inclusion / integration in educational processes, nothing can fully compensate
the role of the hand as an organ for capturing.
112
References
1. Ball, Morven, F. (2002). Developmental Coordination Disorder: Hints
and Tips for the Activities of Daily Living. Jessica Kingsley Publishers,
Philadelphia.
2. Bruner, J. (1973). Going Beyond the Information Given. Norton, New
York.
3. Metcalf, C., Adams, J., Burridge, J., Yule, V., Chappell, P. (2007). A
review of clinical upper limb assessments within the framework of
the who icf musculoskeletal care. Musculoskeletal Care 5(3): 160–173.
Published online in Wiley InterScience (www.interscience.wiley.
com)
4. Connolly, K.J. (1998). The psychobiology of the hand. Cambridge
University Press, Cambridge.
5. Savkovic, N. (2011). Influence of Special education Program for
developing manipulative abilities of children with cerebral palsy. Master
thesis. Faculty of Special Education and Rehabilitation, University of
Belgrade.
113
DERMATOGLIPHIC CHARACTERISTICS OF DIGITO-PALMAR
COMPLEX OF A CHILD WITH CEREBRAL PALSY – CASE STUDY
114
SWALLOWING AND CHEWING PROBLEMS IN CHILDREN WITH
CEREBRAL PALSY
115
EVALUATION OF LITERATURE DATA ON THE PREVALENCE OF
DENTAL CARIES AND ORAL HYGIENE STATUS IN CHILDREN WITH
CEREBRAL PALSY
The aim of this study was to summarize and systematize the available literature
data on the prevalence of the most common disease in the oral cavity – dental caries
and oral hygiene status in children with cerebral palsy, when compared to children
without psychomotor disturbances. Systemic manifestations and much potential
damage in individuals with cerebral palsy adversely affect their oral health, creating
problems with speech, chewing and swallowing food – factors modifying oral
functions. The comparison is difficult because of inconsistencies in the diagnoses,
age groups, approaches, using different indices, etc., but some trends are clear The
view that children with cerebral palsy have a higher incidence of caries registered by
dft / DMFT indices (d, D = decayed; M = missing; f, F = filled, t, T = teeth), as the
number of untreated and missing teeth is much greater than that of their peers without
CP. There is inadequate and poor oral hygiene, which is directly related to physical
constraints imposed by the underlying disease. Reported are interactions between
oral and systemic manifestations of CP. Dentist should be aware of the responsibilities
assigned to it in the treatment of patients with cerebral palsy The main factors for the
success of treatment are mutual trust, good preparation, early first visit to dentist and
prevention of subsequent indications.
Key words: Cerebral palsy (CP), dental caries (dft/DMFT indexеs), oral
hygiene, literature review
116
THE INFLUENCE OF RESPIRATION ON THE QUALITY OF
PHONATION IN DYSARTHRIA
117
THE PHYSICAL EDUCATION AND SPORTS ACTIVITIES,
SOCIALIZATION INSTRUMENTS FOR STUDENTS
WITH PHYICAL DISABILITIES
Introduction
In Greece there are a significant number of students with disabilities
among them and physical disability. These disabilities associated with cases
of children who have difficulty in movement. These students often have and
other disorders (learning disabilities, sensory disorders, epilepsy), and this
affects their education. The term “motor disorder” includes disorders caused
by disease, spinal injuries, heredity, birth defects, etc.
Cerebral Palsy
Cerebral palsy is a neurological disorder affecting the motor control
centers of the brain. Consequence of all these is the difficulty of executing
simple movements and lack of motor control (Koutsouki, 1999).
Spina bifida
Spina bifida is a congenital birth defect in which the neural tube fails to
close completely during the first four weeks of fetal development.
Other motor disorders are traumatic injuries, poliomyelitis, muscular
dystrophy, amputations, child rheumatoid arthritis etc. (Winnick, 2000).
Targets
Physical Education teachers from a list of proposed activities have the
opportunity to teach and train students with physical disabilities to enhance
their socialization and integration in society, to gain confidence, respect and
self-esteem, to be educated on nutrition, exercise and health matters. To gain
positive perspective on sport and to incorporate into their daily lives (lifelong
exercise).
To express Social issues that concerns them, to learn about European and
world championships and the Olympic and Paralympic Games. To address
access issues.
118
Methodology
Basic principles and methods governing the implementation of activities
for pupils with physical disabilities can be allocated as follows: Adaptation,
Personalization, Analysis and Simplification of the activities.
Adaptation: This is the process by which the space fits the needs of
each student (Physical environment, equipment, mobility, teaching methods
(individual and group instruction)).
Personalization: Students with physical disabilities show variability in
symptoms that vary in the same disability. There is heterogeneity of student
to student. The aim is to implement specific teaching based on disability and
learning pace of each student.
Given the level of functionality of each student formed the teaching in the
learning process.
Analysis and Simplification of activities: Several students with physical
disabilities have learning difficulties, ADHD and Intellectual disability. For
this reason, we simplify the activities of teaching in levels in order to achieve
better learning (from easy to difficult). The directions of teaching should be
simple, specific and understandable.
Method of repetition: Give sometimes stimuli repeatedly without getting
tired by the student.
Multi stimulation: Stimuli based on hearing, vision and touch is better
option than education – teaching with unilateral stimulation. In case of multi
stimulation can be used games, video, CD, Internet, painting, construction, to
enable the student to participate.
Teamwork: When physical education activities performed by small groups
of students enhances teamwork, solidarity and cooperation. This requires the
teacher to possess teamwork collaboration and learning (Matsagouras, 2008).
Creativity: The students on the basis that “everyone can” create original
activities with simple instruments, balls, skipping ropes, hoops.
119
Recommended sports for diseases/injuries spinal cord injury: archery,
athletics, horse riding, weightlifting, sailing, shooting, swimming, table tennis,
volleyball sitting.
The choice of sport is always based on the student’s level of functioning
in relation to Categorize/Classification, as apply at Paralympic Games
(Patatoukas, 2004).
Social dimension
These activities can be implemented in Education Programs for students
with and without disabilities.
120
At the Olympic Games in Athens in 2004 through a giant Olympic
Education Programme, students General Education had the opportunity to train
and participate in athletic activities focused mainly for students and athletes with
physical and other disabilities. The whole process was aimed Social Dimension,
the elimination of social discrimination for people with disabilities.
The invalidity or Kinetic or otherwise, is a multidimensional phenomenon.
Vary based on the culture of each nation and is influenced by ethnicity, beliefs,
expectations of the individual (Sherill, 1997). Participation of students in sports
is possible socialization factor. It offers shared experiences and interaction
opportunities for participation in group projects (Gallahue, Ozmun, 1997).
The sensitization of society takes the implementation of legislative provisions
on social policy issues. Culmination of these efforts is the ability of students
with disabilities to attend mainstream education.
Inclusion of students with disabilities and their participation in sporting
activities enhance their confidence which helps parallel society to reach a
positive manner the issues of disability.
Conclusions
The socialization of students with disabilities (and students with
different types of disability), through their inclusion indicates that the Physical
Education and Sport Activities are helpers for the formation of the personality
of these students, proving that “... disability is not a barrier in development of
the personality of the students... “
References
1. Gallahue, D. L., & Ozmun (1997). Understanding motor development:
infants and children, Burr-Ridge: Mc Graw-Hill, Higner Education.
2. Koutsouki, D., (1997). Special Physical Education. Athens: Edition of
Simmetria.
3. Matsaguras, I.L., (2008). School classroom. Athens: Edition Gregori.
4. Sherill, C. (1997). Disability, indentity and involvement. Champaign,
IL.: Human Kinetics.
5. Sotiriadou, K. (1997). Children with Education Needs. Introduction
in Special Education. Athens.
6. Winnck, J. (2000). Adapted Physical Education and Sport. Human
Kinetics: State University of New York.
121
SPORTS AND RECREATIONAL ACTIVITES – BOCCIA FOR
PEOPLE WITH CEREBRAL PALSY
Admira Konicanin
Higf School and Technical School,Tutin and State University of Novi Pazar,
Departmant of Sport and Physical Education, Novi Pazar, Serbia
Boccia is a sport most common for people with cerebral paralizy it is fully
adapted for persons with physical disabiities. The fact is that the least these people are
engaged in sports activities because of the severity of damage that requires effort and
practice od sport. Sports activities for people with disabilities include a widerange of
medically unavoidable and optional content, of those who are part of the process of
treatment and rehabilitation, to those having the basic task of raising the physical and
psychosocial health, and improving the quality of everyday life.
Key words: cerebral paralizy, sports, recreation, Boccia
Introduction
Children cerebral palsy is non-progressive syndrome with extremely
complex etiopatogenesis, clinical manifestations and therapeutic options.
Numerous psychological, social, and educational and professional problems of
patients, with their disturbed and damaged somatic integrity, put or the severity
and importance of the approach to the suffers from cerebral palsy. Almost as
much as the authors who have dealt with it, so is the definition of trying that
in a few words or sentences define. Only possible approach in dealing with
cerebral palsy children is integral approach. The treatment lasts for the entire
life of the child, 24 hours a day. It is therefore very important the appreciation
of the environment. Goal focuses on the performance of certain movements
and therefore patient needs to be functional recovered.
Cerebral palsy is not a disease with a specific etiology, pathogenesis and
clinical features, but a syndrome dominated by pyramidal or extrapyramidal
disorder, spastic paralysis or ataxy. Many studies have shown that persons with
impaired physical ability participating in physical activities generate numerous
psychological, social, health, functional and economic benefits.
Talk about today on analysis of the quality of work in applied kinesiology,
including the area kinezitherapy, is impossible without consideration of the
material conditions of work as fundamentals to implement any level of serious
kinesitherapeutic procedure.
122
Sports and recreational activities
The application of motion in the form of various exercises, sports or
recreational activities are used since ancient times as a mean of healing. Date
about this are found in the book titled about Nature, “which was the foundation
of the ancient medical doctrine of Chine. In the book they are described and
used as a means of treatment: mass, breathing exercises, remedial gymnastics
and other exercises.
Before 3000 years,,Brahmanism” appears in India religious-physical and
learning does the physical activity (,,Yoga Hatha”) as a form of strengthening
human body, which ultimately contributed to the preservation of good health.
First international competition of disabled athletes held in 1963.the city of Linz
in Austria. Special contribution to the promotion of physical activity as the
current methods of paraplegics was given by the English physician Gutman. He
proposed that after each Olympics for healthy athletes organize competition
of paraplegic. It was first organized the competition of paraplegic after the
Olympics in Italy in 1960.
The largest contribution of sport and physical exercise is to readapting
themselves and re-socialization of people with disability. Involving sport and
physical exercises in treatment and rehabilitation of persons with disabilities
has multiple psychological engagement effect. This disabled people feel
satisfaction as they physical are involved, as the are in a group with their similar
and healthy people. There are the positive changes in terms of psychological
tension that fades so easily and overcome difficulties. The greatest importance
of sport and physical exercise is to readapting themselves and resocialization
disabled. Disability generated in the war or peace time leads to: violation of
psychophysical at men. Including sport and physical exercise in the treatment
and rehabilitation of disabled persons has get multiple psychological impact.
This preoccupying people with disabilities they feel statisfaction as they
physical are by engaged, as they are in a group, similar to them and people. There
are the positive changes at them in terms of vanishing of psychological tension
to help them to overcome the difficulties. The greatest importance of sport
and physical exercise is in readapting and resocializing the disabled persons.
Disability that occus in wartime or peacetime leads to: violation of human
psychophysical unity. Including sport and physical exercise in the treatment
and rehabilitation of disabled persons has got multiple psychological impact.
Active involvement in sport surge in confidence and faith at disabled persons,
noticing that they are not small, there is also knowledge that he is not useless
member of society and family that his skills and capabilities can be improved,
and reinforcing them by every day. Beside their disability he still has a need
for affirmation and for that reason self-approving. For those reasons sport
and physical exercise in the rehabilitation process have worthfull importance.
Through sports, he establishes a normal human relations, contributes to faster
123
adaptation to disability, quickly coming to the body scheme and the new
ideas of body, so that ultimately leads to balancing psychological status and
functional capacity.
The optimum effect is achieved if these activities are conducted under
the supervision of a team of experts and the appropriate educational level and
appropriate speciality. The role of a doctor is of primary importance. Medical
control may be positive or optimal only when doctors are trained to work with
disabled people. Health permanent control with the cooperation of doctors: a
specialist in physical medicine, sports medicine, physical therapists and trainers
can result: optimal rehabilitation of disabled persons, successful participation
in various forms of physical activity, till the success of the Olympic Games.
Active doing sports increases self-esteem of people with disabilities and
faith in the ability to achieve their goal, the goal of victory. Sports and physical
exercises for people with disabilities is essentially a method of treatment for the
reason that in this way the maximum compensatory mechanisms are engage
that the modern rehabilitation is based.
Sport as a tool in the treatment and rehabilitation occupies a prominent
place. In order to understand this method it is necessary to understand the
mode of action of body exercises and sport an a body both healthy and sick
man.
Application of sport and physical exercises are classified as non-specific
therapy that has a significant effect in reactivating the body of people with
disabilities.
Sports training is one of the methods that is more successful by shows in
the rehabilitation and treatment of people with disabilities. Applying training
processes essentially is a complex process that gradually leads to enable people
with disabilities to increased physical workload. Sports training for people
with disabilities are optimaly dosed to the limited capabilities of people with
disabilities, aimed at bringing these capabilities to the optimum level.
Physical activities practiced by people with disabilities in the aim to
achieve results for the organized sports competitions, are includied in sports
and physical activities aimed at achieving results. These activities have a
competition system, which is organized at different levels (municipal, city,
regional, republic, federal and international). Trainings are organized several
times a week and in some sports two or more contests times daily. The final
goal is to achieve results that ensures victory and the higher placement can be
whether it is an individual or a team.
Physical activities that are performed in free time organized in groups and
individually, and are aimed at increasing the psycho physical properties beloug
to recreative group. Also it is the aim increaseing the functional capability of
124
organs and organ systems that is the organisms it the whole. It is recommended
that doing the recreational physical activities at least three times a week. These
activities are not aimed at the competition, but increasing its capacity of motor
and functional abilities.
125
Bocce is the wide spreaded sport for people with cerebral palsy because it
is completely suited to the people with motor difficulties that they can compete
on an equal basis with all other athletes (with or without disabilities). Boccia
is a sport at all levels, at the national and international level, by athletes who
require a wheelchair because of physical disability. Originally it was designed
for people with cerebral palsy to play but now includes athletes with other
severe disabilities affecting to motor skills. Boccia a become Paraolympic
sport 1984 and in 2008, it is practiced in more than fifty countries around the
world. Bowling for people with cerebral palsy is regulated by the International
Sporting Association (CPISRA) and is one of three Paraolympic sports that do
not give preference to any other sport, and compete in the Olympic program. In
assembly is a bowling section which brings together lovers of sport and bowling
and so recreate and meet their sporting needs. Boccia is practiced in over 60
countries. The aim of the game is to throw the ball – colored red or blue (which
side started the game id determined by a coin toss). To be eligible to compete
in bowling at the national or international level, athletes must have a disability
and must be in a wheelchair as a result of cerebral palsy, or other neurological
conditions that have similar effects, such as muscular dystrophy or traumatic
brain injury. Players are tested to determine their level of disability.
The competition in this sport is done individually, in pairs and teams
(three competitors in the team). Team competition are done in men, women
and mixed rivality.
Used by the racers wheelchair must meet certain regulations.
Before the competition, the players selection was done that are divided
into four group: BC1, BC2, BC3 and BC4.
BC4 group is intended for people who do not have cerebral palsy, but their
bowling skills are similar.The players are classified into one of four classes of
sports in Boccia: depending on their functional capabilities:
BC1 – Players in this class throw the ball with his hand or foot. They can
compete with the assistant who remains out of play in the field of competitors,
to stabilize and adjust his gave and give the game ball to the player when it is
asked for.
BC2 – Players in this class throw the ball from a side. They are not
appropriate for assistance.
BC3 – Players in this class have very severe locomotor disfunction in all
four. They may use assistive devices such as a ramp to deliver the ball. They can
not compete with his assistant, assistants must turn back, to the playground
they can not see the game.
126
BC4 – Players in this class have severe locomotor dysfunction of all four
limbs and trunk control, which is very weak. They can show sufficient dexterity
to throw the ball on the ground. Players are not allowed for assistance.
There are about 350-ranked international players bowling.
Bocceia is a game that requires extreme precision of muscle control,
precision and an intense focus and concentration.
127
measured the time that the player spent. Allowed time during the competition
depends on the competing groups. Teams can have 6 minutes, 18 minutes
couples and individuals, 5 or 6 minutes. Communication between players is
allowed only when their team is in to play.
References
1. Grobelnik, S. (1971). The importance of sports for disabled. The
first Yugoslav symposium with international participation, sports
and recreation activities in the mental and physical rehabilitation of
disabled people, Proceedings, Belgrade,41-4.
2. Ječinac, R. (1983). Medical lexicon, Volume 2, “Vuk Karadzic”,
Belgrade.
3. Malajner, K. (2006). Boccia, športniki, Sarajevo.
4. Stevanović, M., Necić, M. (1969). Sport and recreation in the
rehabilitation of disabled persons, Association for Sport and
Recreation disabled Yugoslavia, Belgrade.
5. Ratomir, Đ., Dobrica, Ž. (2009). Sports persons with special needs,
Nis.
http://www.bocce.org/history.html History of Bocce
http://www.paralympic.org/release/Summer_Sports/Boccia/
http://www.boccia.org.nz/
http://www.sportingwheelies.org.au/doc.php?ID=218
http://www.cpisra.org/files/sports/boccia/Boccia_CPISRA_World_Ranking_
List_2010.pdf
http://www.2007bocciaworldcup.com/
http://www.fedmf.com/boccia/docs/CPISRA_Boccia_World_Cup_2007_
Intent_to_register.pdf
http://en.paralympic.beijing2008.cn/sports/boccia/index.shtml
Boccia at the Cerebral Palsy International Sport and Recreation Association
CP-ISRA Classification and Sports Rule Manual, 9th Ed., Cerebral Palsy International
Sports and Recreation Association, 2005.
Boccia at the International Paralympic Committee
128
WHEELCHAIR FENCING – AN ADAPTIVE SPORT FOR PERSON
WITH CEREBRAL PALSY
Wheelchair fencing is one of the oldest sports for persons with disabilities. Dr
Guttman, founder of Paralympics games believed this sport was not only a continuity
of medical rehabilitation, but the good way for patient to build self-respect.
That was the reason that we started with the wheelchair fencing at the Clinic for
rehabilitation “Dr Miroslav Zotovic” in Belgrade in January 2011.
Wheelchair fencing is adjusted for body able persons, because participant seat
in wheelchairs fixed on a special metal construction. The upper body is in action, one
arm holds the sword and the other hand is used for holding the wheelchair.
The training system includes: strengthening of the trunk muscles and the arms;
multitask exercises with balls for increasing speed, skills and coordination; sticking
balls with sword; increasing concentration and endurance through individual
trainings with the fencing instructor and duels with the opponent.
Children at Clinic for rehabilitation children have one-hour trainings three
times a week. Children from Dental school have fencing trainings instead of physical
exercises classes 3 times of a week and they take part in the trainings at our Clinic
several times a month. This activity is a good example of inclusion. Their cooperation
is particularly emphasized in tournaments that are taking place every six months, with
participation of children with disabilities of the Clinic for rehabilitation and through
action for the popularization of sports for persons with disabilities.
Our experience in including children with cerebral palsy in this activity that
were on long-term stationary or outpatient treatment showed a greater motivation for
continued efforts and active participation in trainings, increase of muscle strength,
endurance and concentration, awareness of their own opportunities, improving
self-esteem.
Therefore, we believe that this is a good approach for children with cerebral
palsy to take active participation in all aspects of life and good social interaction in
the community.
Key words: wheelchair fencing, cerebral palsy
129
THE INCLUSIVE POTENTIAL OF APPLIED THEATRE IN ACTIVITIES
WITH PEOPLE WITH DISABILITIES
It is difficult to define applied theatre since many theatrical forms are played
under that name; however, what they have in common is that they take place in “non-
theatrical conditions”, when working with children, adults, people with disabilities,
minorities and socially maladjusted people, with the aim to make the audience or the
participants aware of the events or topics of personal or public importance. Uniformity
cannot be found in the reference literature on the theatrical forms which belong to the
applied theatre. Some of the accepted, recognizable forms of applied theatre are socio-
drama, theatre in education, theatre in development, playback theatre and the theatre
of the oppressed.
Different forms of applied theatre are described in this paper as well as the
organizations which promote the applied theatre with the aim of social inclusion of
people with disabilities, with a special retrospect to the people with cerebral paralysis.
The applied theatre is becoming an increasingly important means of social inclusion
of people with disabilities, which is confirmed by a great number of organizations
worldwide and a great number of projects they carry out. The theatrical techniques
these organizations apply are diverse and adapted to the specific needs of people with
disabilities. People with cerebral paralysis, depending on their mobility, can more or
less take part in most of these techniques.
The applied theatre is developing increasingly and it is getting a more important
role in the development of the inclusive society.
Key words: applied theatre, people with disabilities, inclusion, people with
cerebral paralysis
130
DIGITAL MEDIA WORKING WITH CHILDREN WITH MULTIPLE
DISABILITIES
Digital media play an important role in education. They integrate in the process
of teaching and influence the system of education. One of the leading elements of
digital media in education is digital – interactive whiteboard. The digital whiteboard
can be used in all school subjects for presentation of prepared content or playing
music. This form of digital media helps the children with disabilities in development
by giving them a further possibility to learn through expansion of visual, auditory
and tactile- kinesthetic perceptions. In primary school “Dusan Dugalic” in Belgrade
pupils from I to VIII grade are included in curricular and extracurricular activities
through the digital whiteboard. The total number of pupils in school is 83, – 60 boys
(72,29%) and 23 girls (27,71%). The students who attend our school are divided into
the following categories: moderate mental retardation – 12 pupils (14, 56%), mild
mental retardation – 9 pupils (10,84%), autism – 40 pupils (48,19%) and multiple
disability – 22 pupils (26,51%).
Key words: digital media, digital whiteboard, pupils with disabilities
131
POSSIBILITY OF USING NEW TYPES OF MUSICAL ELECTRONIC
INSTRUMENTS FOR ASSISTIVE TECNOLOGY
People with cerebral palsy are encapable to perform certain variety of activities
that are available to other people. One of the almost impracticable activities for people
with cerebral palsy is to play music instruments. Modern assistive technologies partly
ménage to help people with cerebral palsy to live a quality life and to overcome everyday
obstacles (common problems). The problem is availability of modern technology,
its complexity and its price. This research would present a new idea for people with
cerebral palsy and their possibility to perform some elementary music activities. The
advantage of this technological solution is its simplicity and its market price. One more
advantage is the most direct contact between the user and the instruments possible.
The instruments work by sensors and servo motors, which represent the hand of
the musician. The sensors can be activated by many “triggers”, like, light, touch,
movement… By activating sensors the signal is translating to the servo motor, which
depence on the instrument: pulls string, hits the drums or does any activity to create
sound. For pretty short time that we had for testing, the instruments showed really
good. We tested how much musical knowledge did the children get. We conformed
that the children really improved. There is one more thing that we can’t measure, but
it means a lot. That is children’s smiles and the possibility for them to create music
Key words: cerebral palsy, music, assistive technology
132
AUTHOR INDEX
B G
Babajic Damir 40 Gavrilovic Mirjana 70
Babajic Mirela 40 Gesoski Blagoje 48
Banjac Lidija 73 Gligorovic Milica 80
Bankovic Slobodan 97 Glumbic Nenad 97
Bataska Zivka 116 Golubovic Spela 46,85
Bekic Vera 45
Ben Othmen Houda 53 H
Bocka-Pepelcevic Ofelija 47 Hsairi Ines 53
Borkovac Daliborka 45 Hentati Nejmeddine 53
Boskovic Mirjana 28 Hettiarachchi Shyamani 76
Bugarski Vojislava 85 Hoque Roksana 44,64
C I
Causevac Dragan 58 Ilankovic Andrej 54
Coble Kurt 132 Ilankovic Nikola 54
Colic Gordana 71 Ilankovic Vera 39,54
Colovic Hristina 59 Ilankovic-Kambeitz Lana Marija 54
Cuk Miran 49 Ilic Snezana 67
Ilic-Stosovic Danijela 21,72
D Iric Nada 62
Das Ajay 76 Ivanovic Lidija 99,106
Davcevska Marija 74
Demesi-Drljan Cila 29, 45 J
de Oliveira Armando Monica 103 Jerkovic Ivan 63
Dimitrijevic Lidija 29,59 Jovanovic Nadica 68
Djilas-Ivanovic Dragana 105 Jovic Stevan 129
Djordjevic Lucija 78
Djordjevic Milos 71 K
Djordjevic Mirjana 97 Kalamkovic Martin 132
Djordjevic Srboljub 78 Kaljaca Svetlana 98
Dragojlovic-Ruzicic Radica 106 Kamoun Fatma 53
133
Karic Jasmina 130 Nedovic Maja 48
Knezevic Marija 71 Nikic Radmila 70
Kojic Zvezdana 104 Nikolic Snezana 72
Konicanin Admira 122 Nikolovska Lence 42
Kos Renata 75 Nisevic Snezana 73
Kovacic Anita 72
Krasnik Rastislava 45 O
Krstevska-Kokormanova Biljana 41 Obradovic Biljana 43
Krstic Tatjana 43 Odovic Gordana 86,98
Kulic Milan 69 Oros Marina 63
L P
Likic Dejan 71 Pacic Sanela 70,71
Panov Nenad 42
M Panova Gordana 42
Major Agota 63 Panova Blagica 42
Maksic Jasmina 72 Pausic Vesna 61
Maltar Blazenka 75 Pavlovic Andrijana 67
Marinkovic Dragan 69 Pisaric Danijela 105
Markovic Slavica 117,132 Poljic Azem 40
Martins Isabel Catarina 103 Potic Srecko 39,67
Mastilo Bojana 67
Medenica Veselin 99,106 R
Mehmedinovic Senad 40 Radic-Sestic Marina 79,80
Mergon Snjezana 107 Radovanovic Vesna 79,130
Mikov Aleksandra 29,45,59,61 Radulovic Andrijana 47
Mikovic Suzana 62 Rapaic Dragan 15,86,99
Milankov Vesela 115,117 Ristic Sinisa 104
Milanovic-Dobrota Biljana 79,80 Ristovski Radmila 132
Milicevic Milena 39,67
Milosevic Neda 58 S
Milovanovic-Minic Milka 62 Samouilidou Evdokia 118
Mirkovic Snezana 70 Saric Edina 40
Miscevic Dragana 85 Savic Kosta 115
Mitrovic-Djordjevic Ivana 84 Savkovic Nada 108
Monjurul Karim Mohammad 44,64 Scepanovic Marinela 99
Mouratidis Constantine 118 Sekulic Aleksandra 129
Skrbic Renata 85
N Slavkovic Sanela 46,47
Nazarkin Aleksandar 30 Sretenovic Ivana 86
Nedovic Goran 15,21,68,69 Stanic Jelena 29,61
134
Stanimirov Ksenija 97
Stanisavljevic Jelena 86
Steenbergen Ber t 103
Stikovic Jelena 129
Stoilova Rosica 116
Storey Keith 35
Stosljevic Miodrag 55,60,114
Svraka Emira 40,83
T
Terzic Ivana 68
Tesanovic Dusanka 105
Todorovic Vojislav 131
Trajkovski Vladimir 41
Trgovcevic Sanja 15,48,69,99
Triki Chahnez Charfi 53,
U
Uzunovic Katarina 106
V
Valkova Hana 77
Velickova Nevenka 42
Veselinovic Mila 117
Vukicevic Danijela 129
Vukovic Mile 68
Vuletic Slobodan 131
Vulovic Dragan 129
Vulovic Mirela 45
Z
Zecevic Ivana 67
Zelic Mirna 58
Zgur Erna 49
Zolnjak Marienka 71
135
CIP - Каталогизација у публикацији
Народна библиотека Србије, Београд
616.831-009.11(048)
ISBN 978-86-84765-40-8
1. Faculty of Special Education and
Rehabilitation (Belgrade)
a) Церебрална парализа - Апстракти
COBISS.SR-ID 193901580