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Self Compassion
Self Compassion
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Patient and public engagement (PPI) in health research is gaining popularity, and positive
psychology and subjective wellbeing are two reasons why. However, PPI has little experience
and expertise in all stages of the research process, notably analysis. I discussed how to include
patients' viewpoints in the study process, as well as the benefits and difficulties of our
partnership. We provide a nested treatment fidelity study and a single-case exploratory analysis
of a randomized controlled trial of a therapeutic intervention. The experiment that examined the
the patient-physician consultation was designed, implemented, and disseminated with the
participation of five patient representatives with metastatic disease. Following instruction in the
examined for fidelity in the study (VR-CoDES). Collective results were presented in a global
scientific meeting. A workshop was held to discuss the results, effects, and difficulties.
I chose PRO-measures and verified the conversational aid during the design process.
Following the feedback of the patients, the report was revised. According to the results of the
fidelity study, there was broad agreement between patients and researchers on the categorization
of their emotions and their main worries. As well as validating the findings, the patients added to
the conversation by providing fresh vocabulary and insights. Emotional (grief/sorrow, existential
(avoiding information damage, carrying on despite patients' deaths) issues were all prompted by
PPI. The absence of a thorough evaluation method for PPI's effects was a drawback of the study.
Incorporating PPI at all stages and encouraging collaborative analysis was not only doable, but
also highly useful. The level of practical details, longevity, and openness in this scenario makes
it stand out. In addition, the process of co-creation yields insights about how PPI may be put into
practice. Emotional, administrative, and intellectual investments were all taken into account at an
evaluation session, revealing what may be called "tacit but vital work." We can take what we've
learned and use it in future trials where patients are active participants.