CSHCNExpert Meeting
CSHCNExpert Meeting
Children with
Special Health
Care Needs
2
financing. The meeting included both presentations
and workgroup sessions.
Priority for Action:
Development of these priorities was influenced
by MCHB’s National Agenda for CSHCN, which Medical Home a and
addresses family partnership, medical home, insur-
ance coverage, screening, organization of services,
Dental Homeb Interface
and transition to adulthood.3 Recommendations t Strengthen the integration
from other CSHCN and oral health expert meetings,
conferences, and papers were also considered.4–11 The between general health care
priorities align with MCHB’s goal of achieving several and oral health care, including
key outcomes among CSHCN, specifically
preventive care, by addressing
t Improved oral health
obstacles posed by the separation
t Affordable comprehensive oral health care in
high-quality dental homes
of medicine and dentistry.
t Early oral health interventions (e.g., risk assessment
by age 6 months)
t Improved oral health status upon transition to
adulthood Objective 1—Promote linkages
Representatives from MCHB opened the expert between general health care
meeting with an overview of how the oral health
needs of CSHCN fit within the bureau’s goals and
and oral health care to ensure
activities for improving the health of infants, chil- that CSHCN receive comprehen-
dren, adolescents, and women. Presenters described
the interface between medical and dental homes for sive health care services.
CSHCN, discussed the issues and opportunities in
educating and training current and future health
professionals to care for CSHCN, and highlighted
considerations in health care financing for CSHCN. Strategies
Following these presentations, participants broke into
1. Strengthen and expand collaborative relation-
workgroups to develop strategies for a set of objec-
ships to support the integration of medicine and
tives, developed before the meeting, in each priority
dentistry.
area. Workgroup members were instructed to define
the CSHCN population broadly to include infants, Next Steps:
children, adolescents, and young adults through t Involve families and other caregivers of CSHCN
age 24. in the development of integrated programs and
services at the practice and policy levels.
This report summarizes the strategies and key
partners that meeting participants identified for each t Articulate the level of partnership needed among
priority area. The report includes three sections. Sec- general health professionals and oral health pro-
tion 1 focuses on strategies and key partners that are fessionals to create effective medical and dental
important to the implementation of the medical and homes for CSHCN.
dental home interface. Section 2 identifies strategies t Identify promising practices and strategies (e.g.,
and key partners that are important to the implemen- maintain electronic records, make appropriate
tation of education and training. Section 3 discusses referrals, follow up on all reciprocal referrals,
strategies and key partners that are important to consult on health histories and clinical manage-
financing. An appendix includes a listing of organiza- ment) to promote the integration of general
tions, the meeting agenda, and a participant list. health care and oral health care.
3
t Develop an evidence base that addresses the guidance) into care-coordination models and
impact of medical and dental homes on the oral health programs that serve CSHCN.
health and general health of CSHCN. t Identify and address challenges to establishing
Key Partners: Children’s hospitals, dental schools, referral mechanisms.
families and other caregivers of CSHCN, family Key Partners: Families and other caregivers of
advocacy and support groups, federal agencies CSHCN, family advocacy and support groups,
(e.g., MCHB), general health professional organi- general health professional organizations, general
zations, health officials, MCHB-funded projects health professionals, oral health professional orga-
(e.g., National Oral Health Policy Center, pediat- nizations, and oral health professionals.
ric dentistry training programs), medical schools,
oral health professional organizations, oral health 3. Establish and maintain an inventory of services to
professionals, private insurance companies, guide efforts to coordinate, leverage, and maximize
residency programs, and policymakers and oral health services.
legislators. Next Steps:
2. Develop referral and health-care-delivery mecha- t Increase awareness and create a culture within
nisms for general health professionals and oral the oral health community that encourages oral
health professionals to ensure comprehensive health professionals to serve CSHCN.
health care services for CSHCN. t Create and maintain directories of oral health
Next Steps: professionals willing to serve CSHCN (e.g.,
t Conduct an environmental scan (i.e., gather- South Carolina searchable online database).
ing and analyzing information for strategic t Improve coordination and information-sharing
purposes) for existing standards, protocols, and between public and private organizations that
models that work. provide services to CSHCN.
t Integrate oral health (e.g., establishment of Key Partners: Dental schools, general health
a dental home, risk assessment, anticipatory professional organizations (e.g., the Association of
4
Maternal and Child Health Programs, the National
Association of County and City Health Officers),
federal agencies (e.g., Centers for Medicare and Objective 2—Strengthen colla-
Medicaid Services, MCHB), oral health profes- borative leadership at federal,
sional organizations (e.g., the Association of State
and Territorial Dental Directors [ASTDD]), and state, and local levels to pro-
private insurance companies.
mote the integration of general
4. Encourage the use of case managers with oral
health backgrounds (e.g., dental hygienists) to help health and oral health systems
families and other caregivers of CSHCN access oral
of care that serve CSHCN.
health care, and provide links to appropriate com-
munity resources.
Next Steps:
t Examine medical homes’ use of care coordina- Strategies
tors (e.g., in public and private insurance plans 1. Strengthen and expand communication and collabo-
and early intervention programs), and provide ration among government agencies to promote the
training to help them better address the oral concept of oral health as part of the medical home.
health needs of CSHCN.
Next Steps:
t Look to existing models to improve access to
care (e.g., ADA community dental health coordi- t Conduct an environmental scan to determine
nator model, Alabama dental case management existing level of communication and collaboration.
model). t Establish mechanisms for ongoing communica-
Key Partners: Family advocacy and support groups tion and collaboration among government agen-
(e.g., Family Voices, Family-to-Family Health cies at the federal, state, and local levels.
Information Centers, United Way) and oral health t Include families and other caregivers of CSHCN
professional organizations. in government advisory and planning groups
that address CSHCN issues and the integration
of systems that impact oral health care delivery.
t Identify technical assistance that is available to
promote oral health as part of the medical home.
t Use existing resources (e.g., The Interface
Between Medicine and Dentistry in Meeting the
Oral Health Needs of Young Children: A White
Paper,12 Promoting the Oral Health of Children
with Special Health Care Needs — In Support of
the National Agenda 4) as communication tools
to increase the awareness and visibility of oral
health issues for CSHCN.
Key Partners: Families and other caregivers of
CSHCN, general health professional organizations
(e.g., American Medical Association, Association
of State and Territorial Health Officials), federal
agencies (e.g., MCHB), and oral health profes-
sional organizations (e.g., American Academy
of Pediatric Dentistry, American Association for
Community Dental Programs, American Dental
Association [ADA], ASTDD).
5
organizations, and families and other caregivers
of CSHCN to identify barriers to care.
Priority for Action: t Develop materials that can be used by advocacy
Education and Training groups and others (e.g., legal groups, social jus-
tice groups) to promote facilities that are compli-
t Increase the knowledge and ant with the Americans with Disabilities Act.
skills of health professionals and Key Partners: Dental schools, families and other
students in medical and dental caregivers of CSHCN, federal agencies (e.g.,
MCHB), and oral health professional organizations
schools and programs that work (e.g., ADA, American Dental Education Associa-
with CSHCN and their families and tion [ADEA]).
other caregivers to improve capac- 2. Support oral health education and training for
general health professionals and oral health
ity to address the oral health needs
professionals, and facilitate such education and
of CSHCN. training.
Next Steps:
t Identify and evaluate the effectiveness of prom-
ising models or “best practice” approaches for
Objective 1— Increase improving oral health screening, risk assessment,
diagnosis, treatment, anticipatory guidance, and
education and training clinical management of CSHCN.
opportunities and strengthen t Disseminate promising models or “best practice”
approaches to oral health care for CSHCN.
competency requirements
t Promote and support financial incentives for
to improve the capacity of additional oral health education and training on
caring for CSHCN for general health profession-
general health professionals als and oral health professionals.
and oral health professionals to t Develop oral health educational materials for
general health professionals and oral health
appropriately address the oral professionals working with families and other
health needs of CSHCN. caregivers of CSHCN.
Key Partners: Family advocacy and support
groups (e.g., Family Voices, Family-to-Family
Health Information Centers, National Founda-
Strategies tion for Ectodermal Dysplasia [NFED]), general
1. Document the need for increased education and health professional organizations, federal agencies
training opportunities in the oral health care of (e.g., Centers for Disease Control and Preven-
CSHCN. tion, Department of Education, MCHB), MCHB-
funded projects (e.g., National Maternal and Child
Next Steps:
Oral Health Resource Center, National Oral Health
t Prepare a policy brief for policymakers and Policy Center), oral health professional organiza-
educators explaining the rationale for increas- tions (e.g., Academy of General Dentistry, ADEA,
ing education and training about CSHCN’s oral Special Care Dentistry Association), private foun-
health needs in dental school curricula. dations (e.g., Robert Wood Johnson Foundation,
t Convene a meeting with representatives from Commonwealth Fund), and private funders (e.g.,
the federal government, oral health professional Colgate, Delta Dental).
6
Objective 2—Make oral health
educational materials and
programs that are culturally
and linguistically appropriate
available to families and other
caregivers of CSHCN.
Strategies
1. Develop materials and programs (e.g., using the
family-to-family education program) to educate
families and other caregivers of CSHCN on how to
prevent oral disease in children.
Next Steps:
t Implement a model peer-education program that
targets families and other caregivers of CSHCN
in community-based settings (e.g., community
centers, schools).
3. Encourage the passage of legislation that man- t Identify key messages for use in educational
dates education and training to meet the oral materials and programs, including
health care needs of CSHCN, provides loan for-
t Identification of dental caries as an infectious
giveness, and defines CSHCN as an underserved
disease
population.
t Importance of early intervention and continu-
Next Steps:
ous care
t Provide education and training to health profes-
t Consequences of poor oral health
sionals and child health advocates so they can
influence the legislative process at the state and t Practical oral hygiene and nutrition strategies
national levels to improve the oral health of t Behavioral, mental, physical, and age
CSHCN. considerations
t Participate in the public comment review of the Key Partners: Family advocacy and support groups
Commission on Dental Accreditation standards (e.g., Family Voices, Family-to-Family Health
for dental education. Information Centers, NFED), federal agencies
t Raise awareness about the inadequate level of (e.g., Department of Education, MCHB), general
education and training on the oral health of health professional organizations (e.g., American
CSHCN included in dental school curricula as a Academy of Pediatrics), oral health professional
legal and moral issue that results in a significant organizations (e.g., American Academy of Pediat-
barrier to accessing care. ric Dentistry), and school nurses.
Key Partners: Families and other caregivers of 2. Develop and identify existing resources to assist
CSHCN, federal agencies (e.g., MCHB), oral families and other caregivers of CSHCN in
health professional organizations (e.g., ADA, navigating medical and oral health systems of
ADEA). care.
7
Next Steps:
t Assist families and other caregivers with their
oral health informational needs, and help them
Priority for Action:
find care, especially for children who need highly Financing
specialized care.
t Create and maintain online discussion lists and t Strengthen public and private
other social networking strategies to address financing mechanisms to ensure
questions from families and other caregivers of
the delivery of appropriate oral
CSHCN.
health care to CSHCN.
t Develop a helpline where families and other
caregivers of CSHCN can receive answers to
questions.
t Improve the capacity of existing MCH cen-
ters (e.g., University Centers for Excellence in Objective 1—Promote financial
Developmental Disabilities) to assist families in
addressing the oral health needs of their child. incentives and policies to
t Increase case-management training about oral expand the size of the oral
health, and increase training for personal care
workers, which is especially important for transi- health work force and the
tioning to group homes.
number of facilities available to
t Develop education services to help families of
CSHCN increase their understanding of their address the oral health needs of
dental coverage (e.g., what services are and are
not covered), and to challenge denials, when
CSHCN.
appropriate.
Key Partners: Families and other caregivers of
CSHCN, family advocacy and support groups (e.g., Strategies
Family Voices, Family-to-Family Health Informa-
tion Centers), and federal agencies (e.g., MCHB). 1. Encourage the passage of state-level legislation to
ensure comprehensive oral health care coverage
(particularly for general anesthesia) for CSHCN,
especially by private insurers.
Next Steps:
t Identify best practices from private insurers that
are providing comprehensive oral health care
coverage to CSHCN.
t Develop a model plan for comprehensive oral
health care coverage for CSHCN.
t Fund research to inform legislation on criti-
cal issues, such as (1) the extent to which state
Medicaid plans meet the oral health care needs
of CSHCN; (2) the impact of insurers’ exclusion
of services (e.g., general anesthesia, operating
room charges), required by some CSHCN; and
(3) the impact of inappropriate denial of services
on CSHCN and their families.
8
t Develop reimbursement codes and billing
mechanisms for oral health care delivered to
CSHCN by (1) developing descriptors (such as
co-morbidities) to identify a need for a higher
level of oral health care and (2) defining the
scope of oral health care that justifies the need
for higher reimbursement levels.
t Examine existing reimbursement models devel-
oped by the medical field and by public and pri-
vate dental insurers for CSHCN that have proven
successful in achieving and maintaining general
health and well-being.
Key Partners: Federal agencies (e.g., Centers for
Medicare and Medicaid Services, MCHB), general
health professional organizations (e.g., National
Association of State Medicaid Directors), gen-
eral health professionals, oral health professional
organizations (e.g., Medicaid/SCHIP Dental
Association), oral health professionals, and private
insurance companies.
3. Advocate for support for specialized programs or
practices that focus on serving CSHCN.
Next Steps:
Key Partners: Federal agencies (e.g., Centers for t Document the cost savings effected by programs
Medicare and Medicaid Services, National Institute and practices designed to increase access to oral
for Dental and Craniofacial Research), National health care for CSHCN as a result of treating pre-
Association of Insurance Commissioners, oral ventable oral problems and reducing the need for
health professional organizations (e.g., Medicaid/ emergency room care.
SCHIP Dental Association), private foundations, t Support resources (e.g., funding, equipment,
and private insurance companies. education, and training) to improve the capacity
2. Advocate for enhanced insurance reimbursement of federally qualified health centers to provide
for dentists who receive special education and oral health care to CSHCN.
training in the care of CSHCN and for dentists t Create incentives for dental and dental hygiene
providing care for CSHCN with complex medical school graduates to work in specialized programs
conditions and behavior issues. and practices that serve CSHCN.
Next Steps: Key Partners: Community clinics, community
t Work with private insurers to increase reim- health centers, dental schools, federal agencies
bursement rates. (e.g., Centers for Medicaid and Medicare Services,
MCHB), federally qualified health centers, oral
t Reduce barriers that deter oral health profes-
health professionals, private foundations, and
sionals from participating in state Medicaid
private insurance companies.
programs, specifically, increasing reimburse-
ment fees, streamlining the reimbursement 4. Provide incentives for oral health professionals to
process, and reducing the wait time for serve CSHCN.
credentialing. Next Steps:
t Promote innovative approaches to increase t Provide financial incentives (e.g., loan repay-
access to care, such as teledentistry. ment, scholarships, stipends) for additional
9
oral health education and training on caring for
CSHCN for dentists through fellowship pro-
grams, optional second years in general practice Objective 2—Identify resources
residencies, and year-long supervised placements and reduce financial barriers to
in community clinics.
t Develop pipeline programs in which oral health ensure that families of CSHCN
professionals who receive additional education have access to affordable
and training on caring for CSHCN are funneled
into full-time positions that specialize in serv- comprehensive oral health care.
ing this population, such as positions at chil-
dren’s hospitals, universities, and community
clinics.
Key Partners: Children’s hospitals, community Strategies
clinics, dental schools, federal agencies (e.g., 1. Provide information on options for affordable care
MCHB), medical schools, and universities. and sources of financial support for oral health
services for CSHCN.
Next Steps:
t Identify options for affordable care (e.g., spe-
cialty clinics) for CSHCN whose families are
unable to pay for oral health care.
t Encourage private and nonprofit entities to dis-
seminate information about affordable care and
sources of financial support for CSHCN.
t Partner with organizations to help families and
other caregivers of CSHCN locate affordable oral
health care, and advocate for making oral health
care more accessible for CSHCN.
Key Partners: Family advocacy and support groups
(e.g., Family Voices, Family-to-Family Health
Information Centers, United Way).
2. Promote affordable financing mechanisms (e.g.,
through Medicaid, the State Children’s Health Insur-
ance Program [SCHIP], and private insurance) with
benefits that provide comprehensive oral health care
coverage that meets the complex needs of CSHCN.
Next Steps:
t Increase the affordability of third-party dental
insurance by implementing publicly supported
premium payments (e.g., Healthy Kids Dental).
t Address payment issues and difficulty in access-
ing oral health care for CSHCN who are less
likely to have health insurance (e.g., undocu-
mented immigrants).
Key Partners: Federal agencies (e.g., Centers for
Medicare and Medicaid Services), oral health
10
professional organizations (e.g., Medicaid/SCHIP
Dental Association), and private insurance
companies.
3. Identify dental payment options for adolescents
with special health care needs who are transition-
ing to adulthood and who are no longer eligible for
public dental benefits (e.g., through Medicaid or
SCHIP) or for private dental benefits through their
parents’ insurance policy.
Next Steps:
t Conduct an environmental scan to determine
the level of access that adolescents with special
health care needs have to public dental benefits
across states.
t Advocate for protected status under Medicaid for Key Partners: Families and other caregivers of
adolescents with special health care needs who are CSHCN, family advocacy and support groups (e.g.,
transitioning into adulthood, and promote enroll- Family Voices, Family-to-Family Health Informa-
ment in Medicaid for adolescents who qualify as a tion Centers), and federal agencies (e.g., Centers
result of receiving Supplemental Security Income for Medicare and Medicaid Services, Social Secu-
or Social Security Disability Insurance payments. rity Administration). ■
a
The medical home is a source of ongoing routine health care 5. Crall JJ. 2007. Improving oral health for individuals with
where health professionals and families work as partners to meet special health care needs. Pediatric Dentistry 29(2):98–104.
the needs of children and families. The medical home assists 6. Edelstein BL. 2007. Conceptual frameworks for understanding
in the early identification of special health care needs; provides system capacity in the care of people with special health care
ongoing primary care; and coordinates with a broad range of needs. Pediatric Dentistry 29(2):108–116.
other specialty, ancillary, and related services.4
7. Anderson B. 2007. A look back: Lessons in family activism and
b
The dental home is the ongoing relationship between the recommendations to address today’s oral health challenges
dentist and the patient, inclusive of all aspects of oral health for children with special health care needs. Pediatric Dentistry
care delivered in a comprehensive, continuously accessible, 29(2):117–122.
coordinated, and family-centered way. Establishment of a dental
home begins no later than 12 months of age and includes referral 8. Balzer J. 2007. Improving systems of care for people with
to dental specialists when appropriate.13 special needs: The ASTDD Best Practices Project. Pediatric
Dentistry 29(2):123–128.
References 9. McTigue DJ. 2007. Dental education and special-needs
1. Maternal and Child Health Bureau. 2007. The National Survey patients: Challenges and opportunities. Pediatric Dentistry
of Children with Special Health Care Needs Chartbook 2005– 29(2):129–133.
2006. Rockville, MD: Maternal and Child Health Bureau. 10. McTigue DJ, Fenton SJ. 2007. Educational issues workshop
http://mchb.hrsa.gov/cshcn05. Report. Pediatric Dentistry 29(2): 146–147.
2. McPherson M, Arango P, Fox H, Lauver C, McManus M, 11. Sheller B. 2007. Systems issues workshop report. Pediatric
Newacheck PW, Perrin JM, Shonkoff JP, Strickland B. 1998. Dentistry 29(2):150–152.
A new definition of children with special health care needs. 12. Hegner RE. 2003. The Interface Between Medicine and Dentistry
Pediatrics 102(1 Pt. 1):137–140. in Meeting the Oral Health Needs of Young Children: A White
3. Maternal and Child Health Bureau. Achieving and Measuring Paper. Washington, DC: Children’s Dental Health Project.
Success: A National Agenda for Children with Special Health 13. American Academy of Pediatric Dentistry, Council on Clinical
Care Needs [Web site]. http://mchb.hrsa.gov/programs/ Affairs. 2006. Policy on the dental home. Pediatric Dentistry
specialneeds/measuresuccess.htm. 27(7 Suppl.):18–19.
4. Balzer J. 2006. Promoting the Oral Health of Children with
Special Health Care Needs — In Support of the National Agenda.
Jefferson City, MO: Association of State and Territorial Dental
Directors; Washington, DC: National Maternal and Child Oral
Health Resource Center.
11
The report was written by Sandra Silva and Beth
Zimmerman of Altarum Institute and Katrina Holt of the
National Maternal and Child Oral Health Resource Center
(OHRC), Georgetown University, with special thanks
to Ann Drum, Maternal and Child Health Bureau, and
to Jay Balzer, Association of State and Territorial Dental
Directors. The report was produced by OHRC.
12
Appendix A: Organizations
Clearinghouses/Resource Centers Association of University Centers on Disabilities
Family Resource Center on Disabilities (FRCD) Developmental Disabilities Nurses Association
(DDND)
National Maternal and Child Oral Health Resource
Center (OHRC) National Association of Community Health Centers
(NACHC)
National Oral Health Information Clearinghouse
(NIDCR) National Association of County and City Health
Officials (NACCHO)
National Oral Health Policy Center (NOHPC)
National Association of State Medicaid Directors
Family Advocacy and Support Groups (NASMD)
Family Voices Society of Teachers of Family Medicine (STFM)
Family-to-Family Health Information Centers Oral Health Professional Organizations
(F2F HIC)
Academy of General Dentistry (AGD)
National Foundation of Dentistry for the
Handicapped (NFDH) American Academy of Developmental Medicine and
Dentistry (AADMD)
National Foundation for Ectodermal Dysplasia
(NFED) American Academy of Pediatric Dentistry (AAPD)
United Way American Academy of Periodontology (AAP)
American Association for Community Dental
Federal Agencies Programs (AACDP)
Department of Education American Association of Hospital Dentists (AAHD)
Department of Health and Human Services (DHHS) American Association on Health and Disability
Centers for Disease Control and Prevention (AAHD)
Centers for Medicare and Medicaid Services (CMS) American Dental Association (ADA)
Health Resources and Services Administration American Dental Education Association (ADEA)
(HRSA) American Dental Hygienists’ Association (ADHA)
Maternal and Child Health Bureau (MCHB) Association of State and Territorial Dental Directors
National Institute of Dental and Craniofacial (ASTDD)
Research (NIDCR) Medicaid/SCHIP Dental Association (MSDA)
Social Security Administration (SSA) National Foundation for Ectodermal Dysplasia
(NFED)
General Health Professional Special Care Dentistry Association (SCDA)
Organizations University Centers of Excellence in Developmental
American Academy of Family Physicians (AAFP) Disabilities Education, Research, and Service
American Academy of Pediatrics (AAP)
Private Foundations
American Association on Health and Disability
Commonwealth Foundation
(AAHD)
Robert Wood Johnson Foundation
American Medical Association (AMA)
American Public Health Association (APHA) Private Funders
Association of Maternal and Child Health Programs
Colgate
(AMCHP)
Delta Dental
Association of State and Territorial Health Officials
(ASTHO)
13
Appendix B: Agenda
Agenda
Monday, April 14, 2008
11:45–1:00 Lunch
4:00–4:15 Break
14
Tuesday, April 15, 2008
10:30–10:45 Break
11:30–1:00 Next Steps and Final Remarks (discussion led by Mark Nehring)
t *NQMFNFOUJOH4USBUFHJFT
t .BJOUBJOJOH.PNFOUVN
15
Appendix C: Participant List
Betsy Anderson Fax: (410) 786-3194
IMPACT Project Director E-mail: [email protected]
Family Voices
c/o Federation for Children with Special Needs Ann Drum, D.D.S., M.P.H.
1135 Tremont Street, Suite 420 Director
Boston, MA 02120 Division of Research, Training and Education
Phone: (617) 399-8321 Maternal and Child Health Bureau
Fax: (617) 399-8325 Health Resources and Services Administration
E-mail: [email protected] 5600 Fishers Lane, Parklawn Building, 18A-55
Rockville, MD 20878
Jay Balzer, D.M.D., M.P.H. Phone: (301) 443-0761
Consultant Fax: (301) 443-4842
Association of State and Territorial Dental Directors E-mail: [email protected]
921 Crescent Drive
Boulder, CO 80303 Burton L. Edelstein, D.D.S., M.P.H.
Phone: (303) 499-0662 Professor of Dentistry and Health Policy and
E-mail: [email protected] Management
Columbia University College of Dental Medicine
Paul Casamassimo, D.D.S., M.S. 601 West 168th Street, Suite 32
Professor and Chief of Dentistry New York, NY 10032
Pediatric Dentistry Phone: (212) 342-3505
The Ohio State University College of Dentistry Fax: (413) 677-4286
305 West 12th Avenue E-mail: [email protected]
Columbus, OH 43210
Phone: (614) 722-5655 Rani Simon Gereige, M.D., M.P.H.
Fax: (614) 722-6791 Associate Professor
E-mail: [email protected] Department of Pediatrics
University of South Florida College of Medicine
James Crall, D.D.S., Sc.D. 2A Columbia Drive, Fifth Floor
Director Tampa, FL 33606
National Oral Health Policy Center Phone: (813) 259-8752
Professor and Chair Fax: (813) 259-8749
Section of Pediatric Dentistry E-mail: [email protected]
UCLA School of Dentistry, CHS 23-020A
10833 LeConte Avenue Katrina Holt, M.P.H., M.S., R.D.
Los Angeles, CA 90095 Director
Phone: (310) 206-3172 National Maternal and Child Oral Health Resource
Fax: (310) 794-2728 Center
E-mail: [email protected] Georgetown University
Box 571272
Conan Davis, D.M.D., M.P.H. Washington, DC 20057
Chief Dental Officer Phone: (202) 784-9551
Centers for Medicare and Medicaid Services Fax: (202) 784-9777
7500 Security Boulevard, C1-09-15 E-mail: [email protected]
Baltimore, MD 21244
Phone: (410) 786-2110
16
George Jesien, Ph.D. Seattle, WA 98195
Executive Director Phone: (206) 543-0903
Association of University Centers on Disabilities Fax: (206) 616-2612
1010 Wayne Avenue, Suite 920 E-mail: [email protected]
Silver Spring, MD 20910
Phone: (301) 588-8252, ext. 207 Mark Nehring, D.M.D., M.P.H.
Fax: (301) 588-2842 Chief Dental Officer
E-mail: [email protected] Division of Child, Adolescent and Family Health
Maternal and Child Health Bureau
Wendy Alegra Jones, M.Ed., M.S.W. Health Resources and Services Administration
Director 5600 Fishers Lane, Parklawn Building, 18A-30
Children and Youth with Special Health Care Needs Rockville, MD 20857
Project Phone: (301) 443-2449
Center for Child and Human Development Fax: (301) 443-1296
Georgetown University E-mail: [email protected]
Box 571485
Washington, DC 20057 Jon Nelson, M.S.A.
Phone: (202) 687-5531 Deputy Associate Administrator
Fax: (202) 687-8899 Maternal and Child Health Bureau
E-mail: [email protected] Health Resources and Services Administration
5600 Fishers Lane, Parklawn Building, 18A-05
Cassie Lauver, L.M.S.W., A.C.S.W. Rockville, MD 20857
Director Phone: (301) 443-2170
Division of State and Community Health Fax: (301) 443-1797
Maternal and Child Health Bureau E-mail: [email protected]
Health Resources and Services Administration
5600 Fishers Lane, Parklawn Building, 18A-05 Dianna Prachyl, R.D.H., M.S.
Rockville, MD 20857 President
Phone: (301) 443-2204 American Dental Hygienists’ Association
Fax: (301) 443-9354 444 North Michigan Avenue, Suite 3400
E-mail: [email protected] Chicago, IL 60611
Phone: (214) 456-8824
Ray Lyons, D.D.S., F.A.D.P.D., D.A.B.S.C.D. Fax: (214) 456-1881
Chief of Special Care Dental Services E-mail: [email protected]
Los Lunas Community Program Special Needs Dental
Clinic Rick A. Rader, M.D.
New Mexico Department of Health President
1000 Main Street, N.W., Box 1269 American Academy of Developmental Medicine and
Los Lunas, NM 87031 Dentistry
Phone: (505) 841-5270 615 Derby Street
Fax: (505) 841-5316 Chattanooga, TN 37404
E-mail: [email protected] Phone: (423) 493-2936
Fax: (423) 493-2926
Wendy Mouradian, M.D., M.S. E-mail: [email protected]
Associate Dean for Regional Affairs
Professor of Pediatric Dentistry
University of Washington School of Dentistry
1959 North East Pacific Street
B-442 Health Sciences Center, Box 356365
17
Lauren Raskin-Ramos, M.P.H. Barbara J. Smith, Ph.D., R.D.H., M.P.H.
Director of Programs Manager
Association of Maternal and Child Health Programs Geriatric and Special Needs Populations Council on
2030 M Street, N.W., Suite 350 Access
Washington, DC 20036 Prevention and Interprofessional Relations
Phone: (202) 775-0436 American Dental Association
Fax: (202) 775-0061 211 East Chicago Avenue
E-mail: [email protected] Chicago, IL 60611-2678
Phone: (312) 440-2697
Mary Kaye Richter Fax: (312) 440-4640
Executive Officer E-mail: [email protected]
National Foundation for Ectodermal Dysplasias
410 East Main Street, P.O. Box 114 Bonnie Strickland, Ph.D.
Mascoutah, IL 62258 Director
Phone: (618) 566-2020, ext. 26 Division of Services for Children with Special Health
Fax: (618) 566-4718 Care Needs
E-mail: [email protected] Maternal and Child Health Bureau
Health Resources and Services Administration
John Rossetti, D.D.S., M.P.H. 5600 Fishers Lane, Parklawn Building, 18A-18
Consultant Rockville MD 20856
Maternal and Child Health Bureau Phone: (301) 443-9331
Health Resources and Services Administration Fax: (301) 594-0878
14669 Mustang Path E-mail: [email protected]
Glenwood, MD 21738
Phone: (301) 443-3177 Pamella Vodicka, M.S., R.D.
Fax: (301) 443-1296 Senior Public Health Analyst
E-mail: [email protected] Division of Child, Adolescent and Family Health
Maternal and Child Health Bureau
Sandra Silva, M.M. Health Resources and Services Administration
Senior Policy Associate 5600 Fishers Lane, Parklawn Building, 18A-30
Altarum Institute Rockville, MD 20857
1200 18th Street, N.W., Suite 700 Phone: (301) 443-2753
Washington, DC 20036 Fax: (301) 443-1296
Phone: (202) 776-5163 E-mail: [email protected]
Fax: (202) 728-9469
E-mail: [email protected] Mark Wagner, D.M.D.
Senior Consultant
Phyllis J. Sloyer, R.N., Ph.D., P.A.H.M., F.A.A.P. Healthy Athletes Programs
Division Director Special Olympics International
Children’s Medical Services Network 24 Old Plantation Way
Florida Department of Health Pikesville, MD 21208
2020 Capital Circle, S.E., Mail Bin A13 Phone: (410) 653-6986
Tallahassee, FL 32399 E-mail: [email protected]
Phone: (850) 245-4218, ext. 4218
Fax: (850) 488-3813
E-mail: [email protected]
18
Grace Pushparany Williams, B.A.
Health Coordinator
Maryland Family Voices
801 Cromwell Park Drive
Glen Burnie, MD 21061
Phone: (410) 768-9100, ext. 103
Fax: (410) 768-0830
E-mail: [email protected]
19