Stillbirth Working Group of Council

NICHD formed the Stillbirth Working Group of Council, a subgroup of NICHD’s National Advisory Child Health and Human Development (NACHHD) Council, in response to a U.S. Department of Health and Human Services (HHS) request to lead a congressionally mandated task force to examine stillbirth in the United States, with a focus on the following issues:

  • Current barriers to collecting data on U.S. stillbirths
  • Communities at higher risk for stillbirth
  • Psychological impact and treatment for mothers following stillbirth
  • Known risk factors for stillbirth

The working group began holding meetings in October 2022 to discuss how to address these issues, and presented its recommendations to the NACHHD Council in January 2023.

The working group released its final report to HHS, Working to Address the Tragedy of Stillbirth (PDF 941 KB), on March 15, 2023. In July 2024, they released a follow-up implementation recommendations report (PDF 445 KB).

Wanda Barfield, M.D., M.P.H.
Division of Reproductive Health, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention
Email: [email protected]

Amanda Cohn, M.D.
Division of Birth Defects and Infant Disorders, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
Email: [email protected]

Deborah Conway, M.D.
University of Texas Health Science Center at San Antonio
Email: [email protected]; [email protected]

Carla DeSisto, Ph.D., M.P.H.
Division of Reproductive Health, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention
Email: [email protected]

Ada Dieke, Dr.P.H., M.P.H.
Division of Reproductive Health, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention
Email: [email protected]

Donald Dudley, M.D.
University of Virginia    
Email: [email protected]

Andrew Fullerton, M.P.P., Representative of the March of Dimes
March of Dimes
Email: [email protected]

Isabelle Horon, Dr.P.H.
Reproductive Statistics Branch, Centers for Disease Control and Prevention
Division of Vital Statistics
Email: [email protected]

Lucky Jain, M.D., Co-Chair
Emory University
Email: [email protected]

Denise Jamieson, M.D., M.P.H.
Emory University
Email: [email protected]

Stephanie Leonard, Ph.D.
Stanford University
Email: [email protected]; [email protected]

Jenna Nobles, Ph.D.
University of Wisconsin-Madison
Email: [email protected]

Tina Pattara-Lau, M.D.
Office of Clinical and Preventive Services, Indian Health Service
Email: [email protected]

Sonja Rasmussen, M.D., M.S.
Johns Hopkins School of Medicine
Email: [email protected]

Uma M. Reddy, M.D., M.P.H., Co-Chair; Representative for the American College of Obstetricians and Gynecologists
Columbia University Irving Medical Center
Email: [email protected]

Jennita Reefhuis, Ph.D.
Birth Defects Monitoring and Research Branch, Centers for Disease Control and Prevention
Email: [email protected]

Robert M. Silver, M.D., Representative for Society for Maternal-Fetal Medicine
University of Utah Health Sciences Center
Email: [email protected]

Catherine Vladutiu, Ph.D., M.P.H.
Maternal and Child Health Bureau, Health Resources and Services Administration
Email: [email protected]

Maeve Wallace, Ph.D.
Tulane University School of Public Health
Email: [email protected]

Monica H. Wojcik, M.D.
Boston Children’s Hospital
Email: [email protected]

Meetings

More Information

  • At the January 2023 NACHHD Council meeting, council members discussed preliminary working group recommendations (presentation and discussion begins at 1:30:41 in the VideoCast recording).
  • NOT-HD-22-054: Request for Information: Developing Strategies to Strengthen Research on Stillbirth Prevention

Contacts

Natasha H. Williams, Ph.D., J.D., L.L.M., M.P.H.
Legislation and Public Policy Branch
[email protected]

Monica Longo, M.D.
Pregnancy and Perinatology Branch
[email protected]

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